Calling all TNs
Comments
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My baby Calva at seven months (she's at the back) 0 -
Bernie... love the jokes - keep 'em coming
Love the dogs even more.. they are beauts. Both yours? Is Calva a bull mastiff?
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Good afternoon ladies,
I'm having such issues typing lately. Typed out this long long paragraph yesterday morning only to have it dissappear. Thanks for all the congrats, very excited to start my new job. Hubby is being a pain in my a**, can't believe he keeps going on and on about not moving up and he changed his mine. WTF!!! He drives me crazy. I miss my dogs and was in such a great mood yesterday but he killed it.
Hope everyone is doing well. Bernie, love the jokes and the pics.
He's my precious little pumpkins, I miss them and that darn bed.
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Hi Mccmrimmon,
Is there a full/new moon coming up soon? My DH was a complete jerk the other night. I wasn't feeling too good when he got home from work... just tired of being tired and sick... you know what I'm talking about.... and his worldly wise sarcastic comment was..."Well you are in fine form tonight eh" and walked away. All I can say is that he is lucky I didn't have a sharp object in my hand at the time. Of course after he had retreated to his man cave for a beer he came back grovelling saying sorry and he'd had a crappy day at work. I made the DH suffer til the next day - dont get away with it that easy Buster !! ha ha. Oh! and he had a crappy day... take mine !! Grrr!!
I do not have a dog (I did when I lived in the UK) but we have become the Grandparents of our neighbours dog Tucker. I thought I was pretty computer savvy... guess not, I cant post a picture of him as you and Bernie have done. Tried copying and pasting...no luck - what is your secret?
Anyway, we dog sit Tucker if they go away and do not take him, and on my good days I walk him when they are working, and he comes over to visit when they let him out to run in the yard.
Dogs give unconditional love.
When do you start your new job... so happy and excited for you. Will you share what it is you do?
Michele
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Hi everyone!
I am having my lumpectomy 6/5. They are putting a wire in before surgery. Does anyone have any info on this procedure? Also what kind of bra should I get for after surgery? I've heard some say to get a sports bra.
Thanks for any info!
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Tazzy, I believe someone (you??) asked what I did before and I forgot to answer. Nothing exciting, just bookkeeper work. Dogs do give unconditional love and I miss mine terribly. Hubby, has OCD issues and is really suffering down in Florida alone and I can truly understand that but he's being very negative and nasty with me and I'm just very frustrated with it. Sorry to be such a downer everyone, sometimes I feel like if I talk to much about it, it gets old and then people think badly of him and he's really a great guy who thinks of me first in everything except when he gets in the "mood" he just gets very negative.
Anyway, start my new job on Monday, spent today sort of feeling sorry for myself, think I'll pick up some fifty shades of grey tonight and start fresh in the morning. Going for my 2nd haircut since chemo!!
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Hi Ladies
Lisadi1963 - I'm afraid I can't help you with the wire and bra issues as I haven't had this type of procedure but I am some of our ladies on here will come along soon and help answer your questions. Good lunch with your lumpectomy. Will be thinking of you.
Heather - I guess the men get down too in their own way with them thinking about things and worrying about us. They are not so forthcoming as us girls and can't let it out like we can with a good cry or a good laugh. I guess too your old fellar is missing you like hell and wants to be with you so much. We won't think badly of him because he loves you and wants to be where you are right now and he's good to you and for you so hopefully it won't be too long before he can join you with those babies of yours.
BY the way what is a hair cut!! So long since I had one.
Good luck starting your job on Monday. Nothing wrong with book keeping work. Hope you enjoy it and make new friends. It's my turn to have a day off on Monday so I am looking forward to no typing on that day. Nothing exciting there either with typing but a jobs a job.
Inmate - no sign of you and I am getting worried now. Please come on when you can.
Have a good day ladies. Thinking of you. Annie
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Lisa, I had that proceedure done, the wire is placed by ultrasound before the surgery to direct the surgeon. I wore a sports bra for several weeks after wards. I got some nice ones at target that were cheap and comfy! Good luck!
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Blame it on the chemo brain.. ha ha ha!! You say not an exciting job....my Dad said to me many many moons ago when I was just starting out at work... "Remember that there is no such thing as a mundane job, just a mundane attitude". I remember those words when I feel disillusioned about my job.
And its OK to be on a downer. And I wouldn't judge what your DH is like at all... I bitch and whine about mine also... (sure at some point I will again and I'll likely share with you all) but I wouldn't want to be going through this with anyone else... he's my best bud and always will be...whatever I say.
I have to read this 50 Shades.. hearing so much about it.
And your 2nd haircut since chemo ?? How long after chemo was the first?
Lisa - dont have any info with you... just want to say good luck.
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Lisa..I had the wire...they inserted it at the cancer center..took about 5 minutes..no pain at all....after my lumpectomy I did wear a bra..even to bed for awhile..it just seem to hold things together than going with out...I think I wore a bra for about 2 weeks or so until I felt that turning over or laying on my side felt comfortable without things falling around..
Bernie..good to see you and thanks for the jokes...love your sense of humor
Tazzy..dh's can be idiots at time...they are under stress too...which we can understand..I guess..I think I put my dh through hell during my treatments...when I had my lx I told him that if I died during surgery that he could get married again but she had better not be a bitch...when I was going through chemo I whined about having to go and he would say ok..just quit..I didn't but I certainly made him jump through hoops for me..poor guy.....now that I'm "independent" again...I get annoyed with the hovering....ah well..it will all work out...I'm sure
Kathryn..so you are a poker player...good luck...I admire you...it takes alot more skill and concentration than playing the slot machines...a good friend of mine plays poker..usually she is the only woman at the table..hope you won something...!
We are going to the new casino in Cleveland in a week...going there first and then going to a concert.Crosby, Stills and Nash...I hear that they really look old but still sound good...I'm excited!
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Lisa - when I awoke from my lumpectomy, they had put a soft,nylon, front loader on me. It even had the seams on the outside. While I was very large breasted and would have looked sloppy wearing it under something tight, it was supportive and had a nice soft edge - which is good if you have your sentinel node removed, under your arm. I hope everything goes well with your surgery.
Annie - I almost pissed my pants reading that you had! I have somehow managed to wet my panties on a few occasions, I just put them in the trash and went commando! I think I get what you mean about the wheat bag. I use to put rice, in men's tube socks and sew shut. Microwave for two minutes - is it along those lines?
Bernie - thanks for the cheer!
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At 6:15 the 12 year old comes in and says " mom, I forgot to tell you it's academics awards night at 6:30. Threw on a face and made it on time! He scored ribbons, certificates, plaques and a trophy!!! I am one proud mama. Last year, I had just finished and couldn't clap, because of my neuropathy. When recovery is slow, it's easy to forget, how far we've come.
Hugs all around!0 -
Ladies,Don't forget to check out LuvRVing (Michele's) blog about their trip to Paris. It sounds like they are having a really good time:www.mch-breastcancer.blogspot.comDoreen0
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Lisa - having had the wire procedure twice now, I think I can describe it... they basically stick a very fine wire right into the heart of your tumor. This enables your surgeon to find it easily, and make sure he/she is getting clear margins around when cutting. For the procedure itself they will numb the area with lidocaine and then using ultrasound, guide the wire into the tumor. Some of the wire will stick out of your breast but they'll tape it down and it shouldn't be uncomfortable nor should you feel it at all. It'll be gone, along with evil lump, when you wake up from surgery. Bras - yeah they recommended sports bras, but for the first week they had me bound up in an ace bandage type thing.
You all on the Budwig diet - I tried a few years back and immediately suffered baaad gastric distress.I may try again and take it more slowly this time. I think all the fat and oil is tough on some people.
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Titan... I know they are under stress also. I look at my DH and can see the fear in his eyes. I truly believe it is sometimes harder for the spouses and they (least mine does) wants to fix it and he cant. Hey as long as we come out of it kissing and making up its all good. Maybe just clears the air. I have heard that before about the hovering when we are fixed. Also loved your comment to yours about getting married again - bet he loved hearing that... ha ha !!
And Annie so true about them not letting their feelings out.. we are so lucky that way. How you feeling after your treatment the other day ?
OBXK... good ending to your post... Taxotere is giving me tingles and numbness and can only imagine how bad yours must have been not to be able to clap - yikes. But you are so right, its easy to forget how far we actually travel during this. Thank you!
On Dexa's at the mo.. so have been buzzing all day which I must say has been a nice change for feeling so bloody tired due to the low hemoglobins... so I decided to clean my house - you'd think I'd find something better to do...but normality reigned for today.
Well ladies I am off for chemo #7 of 8 tomorrow...almost a chemo grad
Positive thoughts and hugs to you all !!
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Tazzy, Good Luck tomorrow! Move those fingers or toes that are giving you tingles and numbness. My PT told me to rub on different textures to get the sensation back - carpet, clothing, couch, sand, rice. See what works for you. I find carpet for the toes and clothing for the fingers work for me. You need to stimulate the nerves that are being effected by the Taxatore. #4 is giving me more tummy troubles but I am taking the meds and trying different cold foods. Hot is not appealing right now.
OBXK, I have an 11 yr old that sounds like yours. Everything forgotten until the last minute. Way to go on all the awards!0 -
Great advice StayShiny... I will try that...I have given up wearing slippers indoors and I will try different textures for the hands. Tummy troubles are not good... I'm pleased to say I had none on any of my treatments. good luck.
Yeah sorry not to have congratulated you and your son OBXK - you must be so proud.
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Lovely Face....did you read what Minxie posted regarding her stomach problems with the Budwig Diet?
She wrote:
You all on the Budwig diet - I tried a few years back and immediately suffered baaad gastric distress.I may try again and take it more slowly this time. I think all the fat and oil is tough on some people.
I think if I were you I would take a break from it...I don't put ground flax seed in mine anymore. I have oatmeal on alternate days and add the ground flax to that.
I had a thought, maybe you could contact the Budwig Institute via email and ask them if the oil and cottage cheese could be the cause of your gastric distress and how can you fix it.
I agree with you about hair, and skin and energy...I felt the changes happening after only 3 days.
Take care and I do hope you can get this resolved.
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Bernie, keep 'em coming! Those cracked me up and I'm totally stealing them. Hmm, posting on Facebook might be quicker than e-mailing my friends.
C_S, speaking of "aversions", I have a friend who worked as an EMT 20-25 yrs ago. One night a drunk came in having difficulty breathing, and as she was helping him sit up, he vomited right down the front of her, even into her bra (I would have promptly returned the "favor", myself). It was mostly Jack Daniels, and to this day, she gags at the mere sight of a bottle of Jack, even a picture in a magazine advertisement. Now THAT is a serious aversion.
I shouldn't laugh about the (lack of) pubes remark, but that startled the hell out of me, too. Thankfully, I was at home when I suddenly started peeing sideways. THAT'S something they should warn you about during chemo!
Tazzy, they didn't give me cold gloves or a cold cap for my hair or ice to chew during the infusion to reduce mouth sores, and I didn't know to ask about it. It would be interesting to know if they use those precautions now. They DID say that the Taxotere and Xeloda "might" cause discoloration of my nails and that there was a "tiny" chance of a nail or two coming off, but that it wouldn't be painful if it did. They were right about it not hurting, but it was a delayed reaction for me. My nails were starting to discolor and raise up a little by the end of those first 4 cycles, but it got worse through the next 4 rounds of A/C. The toenails didn't start coming off until AFTER I'd finished chemo. My fingernails are fine now, but the nails on both my big toes still don't look normal almost 2 years after finishing chemo. About a quarter of the nail is whitish-yellow and raised up a bit. My primary doc put me on several weeks of antifungals, but it didn't help. I think I'm stuck with them looking like this.
As for posting pics, I upload them from my computer to Photobucket. That gives me a direct url link to that image. Then click on the icon above the reply box here that looks like a green tree. A pop-up will ask you to paste that direct link to your image and also asks you to name the image. Click insert.
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Riley - Ha! ha! ha! I had also started peeing sideways - now I am wondering what was that all about? I think you lose some of the hair and the dynamics changes down there. For all of you going through your treatments, my hats off to you brave ladies.
Tazzy - Good job, you're almost there. Before you know it, the 8th one will be there, and my lady, you are going to celebrate maybe not on the day of chemo, but as soon as you start feeling better. Have you thought about how you are going to celebrate?
I also had a wire put in, to guide the doctor. Actually I had this procedure done on a nodule on the other side (the non-cancer) breast. The nodule was not malignant, thank God. The wire really was no big deal, not painful and yes, it was gone when I came to after surgery.
Wrenwood, yes, I know for sure that my problem was caused by the budwig diet. I just hope that eventually my tummy will go back to normal. I used to sprinkle flax seed (the kind which was already ground from Trader Joe) in my cereal and that had caused no problems. Maybe the flax was rancid and did not have any goodness in them, I am not sure. But I might start doing that sort of thing again, rather than this oil thing. I am now sitting in direct sun almost every day at work, lunch hour. As the scientist explains that we need to eat food, which has been in the sun, such as fresh food, not dead food. Also, we need to soak ourselves in the sun to give our cells the electron charge. Good idea - I will write to Budwig and see what they say why I have so much gastric distress. I have wasted so many days and nights just trying to heal myself back to normal. My stomach is big right now, bloated, but the pain has somewhat lessened.
I am waiting for my second thyroid biopsy. In the meantime, I have developed a sort of sharp pain from the first biopsy area. While the skin has healed, every once in a while, I feel a sharp tinge coming from there. I am so very sick of these types of things happening to me, it is a roller coaster, non-stop. Now what could this be? An infection? I called the bad doctor's office earlier today to cancel my next Monday appointment. Well, after spelling my name over and over again with the answering service, I left a message to cancel my appointment. Well, later someone from that office called and on my phone it stated the doctor's name. I am pretty sure it was the doc himself calling back. I feel that he does not have too many staff and there is a bunch of docs who share the general office staff, therefore, he calls all his patients back himself, even if it is about canceling an appointment. No wonder he is mean to his patients. I did not answer the phone as I don't wish to be humiliated again. He is the one who said to me "I don't appreciate getting 2 calls from you today". He also said "you have 30 seconds" when giving me my biopsy results.
Gosh, now I realize that I might have to see him anyway, due to the pain coming from the biopsy area. the other option is to go to my primary care doc, get a referral, and then go to a new doc for a brand new appt. maybe a month or two away. So much time passes, when one is to change doctors. How do you all do it? there are just so many appointments, it is an almost full time job, isn't it?
Annie - Hi there, thanks for making us laugh, love your humor.
McCrimmon - my daughter in law is also starting a new job next Monday. I know it is stressful but days pass by so quickly and before you know it, the job will become a normal part of your life. Love your dogs, so precious.
Bernie - your dogs are beautiful.
Minxie - thanks for the info. on Budwig, it helps to know how others react to things.
All you other ladies - I read each and every post throughout the day. Wish I could talk to each one of you individually. I tend to forget and as you all know we cannot go back to a prior post while typing on this screen - cut and paste does not work on my sort of outdated computer.
Good night everyone. it is hot here in Concord, California tonight. It is almost midnight and I am still up.
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Morning everyone.
Calva is a Dogue de Bordeaux (french mastiff), she currently weighs around 90lbs and when fully grown she will be 120 - 130lbs.
My chap at the front Is Gunnar (tuetonic - means Bold Warrior). He is 2. The gentlest dog I have ever owned. He is a cross pitbull/rotweiller.
The little chap is Ben (rescue dog). He's a cross jack russell/beagle. He rules the house.
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Good Evening Ladies
Tazzy - Yep I get a bit tetchy with my old fellar at times but he really is my rock and I love the ground he walks on. I think its human nature when you are together all the time. I think its when couples cant get over it or cannot talk to each other that things get out of hand.
Good luck with your chemo tomorrow. Nearly there. Just love your dogs. They certainly like your settee.
Bernie - you have beautiful dogs too. Just lovely.
Titan - I too told my old fellar before my op that he could get married again if I died on the op table. He goes to bowls every Wednesday night and there is one bitch of a woman whom I really do not like. She is one of those in your face flirty type with all the men. She's had three husbands so far and they have all died one way or another and left all their money to her (that won't happen with my old fellar he aint got none) but she is always around the men. So I told him if he ever hooks up with her I will come back and haunt them both. Can't stand women like that.
Kathrynn - good luck with the gambling. Do you play for high stakes. Do you ever win much.
Karen - oh isn't Carson wonderful getting all those prizes. No wonder you were proud. Bless him. Was well worth chucking on the lippy to be there to clap.
Riley - Yuk to the Jack Daniels episode but I must admit when I hear the ladies talking on here about the Budwig diet it makes me want to heave with the thought of all that oil and cottage cheese. I just could not stomach it.
Lovelyface - I think I would go to my primary care doctor and get a new referral. You don't deserve to be insulted again. I certainly would not go back to him.
I also get sharp pains where my boob was removed. Not often just a few times a week but they are sharp and my oncologist said it was where the nerve endings are healing. So I take her word for it. Hope thats what your is.
Well ladies we have a holiday here in NZ on Monday (so there Titan!) Its for Queen's Birthday weekend. So all you ladies working, well just enjoy your day as I will mine.
Have a good day with no problems at all. Big hugs. Annie
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Hi I am just getting a chance to read up on the posts its brilliant page I started my chemo called Docetaxel (Taxotere )Cyclophosphaimide has any one else got this treatment or is there differnt chemo types for TN . I am having 4 seesions of cnemo through the vein I started my first one 29/5/12 back again in 3 weeks and seeing my oncoloist on the 14 /6/12 I am having my lright breast removed my tumour is 6 cm roughley but they cant tell me how long its there until surgery also I am having 35 sessions of radiium after all that now they found a benighn lunp in my left breat I was wondering would i be doing the right thing in asking them to remove both breast they are not giving me construction due to tumour size they said maybe down the road but that was a big maybe so I think I am taking that as a no I feel good so far eating well also I get an injection called Nuestra 24/48 hours after each chemo the nurse came and done it for me wednesday so now I know how to do it myself I am just so confussed why our doctors in IRELAND are not Up todate on TN it has to be very rare here in IRELAND ANY SUGGESTIONS OR TIPS MOST APPRECIATED sorry abouut caps ... I have not broke down I have been postive and strong but ai am the sort of person that likes to know is it life threating as my surgeon told me it s very aggressive cancer so any help anybody keep you all in my prayers xx
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Bernie, your pups are so adorable!
Lisa, I must have missed your post. I also had the wire, had no idea it was happening until the day of surgery. They put me back in the biospy machine and stuck it in. They DID NOT tape it down. They stuck a styrofoam cup over it and sent me on my way. Across the street for my surgery. I was freaked out completely! BUT, it didn't hurt at all and it was mostly my nerves, now it doesn't seem such a big deal. Good luck and sports bras afterwards. Like Titan said, keep them on all the time at first. it helps prevent seroma.
Congrats on #7 Tazzy
CS - you just make me laugh. Thank you.
Lovelyface - glad you figured out what was causing the tummy issues and I do think the zinging in the biospy area is normal. Please get a referral for another dr. Don't give that jacka** another dime!
Forget who asked but first hair cut was beginning of March and last chemo was end of Sept. I had let it go too, sides and back grew first and faster so they had to be trimmed. Now the whole thing needs help and I've never had curly hair before. My god it's curly!!!
For the complaining I do about hubby, my avatar is pic is my baby Hoover all snuggled up in his daddy's arm. It's Hoovers happy place, well actually I guess it's mine too. If I can find the picture, I have one of the three of them all cuddled together sleeping when hubby was sick. Very sweet and reminds me that he's not always the a**hole he's being right now.
Again, I forget who asked, Tazzy I think, about posting pics. They need to be posted on the web first then you can copy them. Took me a long time to figure out how to do it. I used photobucket for my bald head pics and Facebook for the rest.
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Good Morning, everbody. I have been trying to keep up on the poists......my gawd.....what a bunch of chatty women we are! Could you imagine if we were all in one room???? Now that would be something!!!
I gotta tell you, I am really enjoying all the photos. I do not have any animals but I love a good dog that just "knows" when his human needs some company and affection. I babysit my neighbor ladies dog. Its a little hairy mutt, but loves coming over to my house and lap sitting with me.
Welcome to the new gals. This is wonderful place to park yourself.
I don't have too much time to write this morning but wanted to say hello.
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HI my name is Nora age 50 and I had TN BC in 2007. After much chemo Adriamycin, taxotere and cytoxen and 30 Rads I am thankfully okay. I had a lumpectomy and 3 nodes removed which were all negative. My margins were clear and I kind of left it behind me. However, in the last three weeks or so I have had pain in the node site and under my breast on my ribs. I don't feel anything but with all the scar tissue and holes its hard to tell whats what. I am freakin out a little cause I fear recurrance. Does recurrance hurt? I had no pain with my original tumor. I go to the drs on the 6th for my 6 month check-up . It will be the last one cause my 5 year survival anniversary is coming up in Oct on my 30th wedding anniversary. Any insight would be helpful. Thanks!
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Riley - it's a pretty new concept with the frozen gloves so maybe 2 years ago they hadn't worked that one out. I must say that that and the watering eyes and nose have been the most irritating SE's - drives me nuts. Although I have to say since taking my dexas yesterday the eyes and nose have not watered??
I haven't had any mouth sores for which I am very grateful. After each meal (well most) I would clean my
teeth and also make up a mouth wash of baking soda and water... worked for me.Thanks for the photo info I will try.
Oh! and the lack of pubes comments...how very, very true, they cracked me up... hey wonder if that's why men can't pee straight? And why don't they tell you that at chemo teach eh?
Lovely... not sure how we will celebrate... open a bottle of my favourite wine is up there near the top of the list. Only had about 4 beers since chemo started. One glass and I'm sure I'll be pretty sozzled. Finally my old man gets
a cheap date after 20 years..ha ha !! Maybe just me and hubby go out for a really nice meal - don't know yet. I'll let you all know though. And yes, get a new referral to another doc or if he insists on being a prize dick again... just tell him you do not appreciate being spoken to in that way.Bernie... Ben is a real cutie... and he looks kinda pissed as if someone woke him up.
Annie...not my dogs, but Heathers (darn chemo brain)... they are real beauts.. and Heather what a pic of them with your sick hubby.. arh! I'm with you Annie on the budwig diet... would much prefer a glass of JD.
Caroline... my protocol was 4 weeks of AC and I am now on 4 treatments of Taxotere/docetaxel. I have Neupogen (Nuestra) for 3 days following chemo. It does affect everyone differently, but I get pain in my long bones for which they prescribed me codeine. Only lasts a couple of days. If you get pains make sure you ask your onc for a prescription. We don't need to suffer anymore than we do. Here's a link for the TNBC website.
http://www.tnbcfoundation.org/
Wonder why its pretty rare in Ireland...maybe all that Guinness you drink. And its OK to break down and cry and scream... doesn't mean we are not positive about kicking this sucker into touch.
Navy I can only agree at what a chatty bunch we are... isn't it great ?
Nora... good luck at the docs - fingers crossed its just scar tissue.
Well my dear friends... I am off the get ready and will chat later on. Have a wonderful day/evening/night and here's to not many or bad SE's.
Positive thoughts and hugs to you all xxxx
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Wow... my post is almost as long as yours Annie... see what happens we dont chat for a few hours !!
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Caroline, your chemo regime is what I am just finishing up. I had 4 rounds of Cytoxan + Taxatore. My last round was 5/30. I am waiting for the SEs to be done before I celebrate. Neulasta shot 24 hrs after each chemo. The shot can cause bone pain as it stimulates the WBC. Claritin has helped me with the bone pain. I take 1 the day before the shot and then for @ 5 days after. My hardest days are 3-7 after tx. Mostly fatigue and taste buds go. Keep positive and don't hesitate to ask your questions. We are here for you.
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Dear nsmith36 - You know I used to get that sharp pain under my breasts, on the ribs, and wrote many posts asking people what it was. I personally feel it is some sort of lymph drainage that kinda gets stuck there. I am not sure if we have some lymph nodes right below the breasts, but I personally feel they come from hormonal imbalance. Sometimes those areas have no pain whatsoever, other times, there is so much pain there. I would use coconut oil and massage those areas on both sides for at least a half hour. I still do. The next day the sharpness gets to be less. And a week of massaging actually takes all the pain away. Once my surgeon referred to it as something (a medical term). I wish I had written it down, but I will never be able to remember what she had said. I have researched this on the internet and never found anyone that talked about it. Try massaging and let me know if the pain goes away after a few days. The difference in pain is felt the next day, after massaging. Don't freak out, we have a lot going on in our bodies at age 50 and after. Mainly, in my opinion, most of it has to do with hormonal imbalances, which is a natural phenomena, but because we live in a toxic world, things are not normal anymore.
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