Calling all TNs
Comments
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Hi Caroline - where are you getting your treatment? I had a brilliant BS in Waterford. Had my chemo in kilkenny then rads at the whitfield institute in waterford.
Love all the doggie pics.
Ben does get annoyed if he is woken up. Just like me, lol.
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Thanks Lovelyface ,its true about the hormonal imbalances. Having been pushed straight thru menopause has been trying. Its like" okay you are all healed" and then they leave and we are not the same. This is more of a burning sensation and it may be weather related although I have never experienced it before. I am probably getting paranoid thats all. I will try the massage. Thanks
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My heart is breaking.....Our Jenn3 is now in hospice care. I just read a post on her caring bridge page. She had a seizure earlier this week and is in the hospital. Oh how I hate this disease. I have her home address. If you would like to send her a card please PM me.
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Caroline 71-My humble opinion would be to have both breasts removed. I wish I had. I had a modified radical of right breast year ago and now wish I had been consulted about the irritation of wearing a heavy form and the lopsided feeling. (I live in sunny California where it is usually either very warm or hot) I'm trying to find time to have remaining left breast removed even though it is healthy. That way I can run around bra-less and be comfortable. Good luck with all the decisions you must make. So may people are here to hold your hand and boost your spirits.
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Navy: Crap, feel sick about jenn3. She is such a lovely, caring person. Thanks for letting us know.
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Navy and all you ladies who know Jenn. I do not, but please I am thinking of her and sending positive thoughts..... this cancer *&^%$#) sucks... stay strong people, stay strong.
Love and hugs xxxxxxxxxxxxxxxxxx
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I don't know Jenn either, but my heart is breaking never the less. CANCER SUCKS
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Dang this board moves fast, forgive me if I forget someone.
Riley - thank you for that info on genetic response to chemo and no correlation to SE and efficacy. I often did wonder if having an easy time was gonna bite me in the a** down the road. My doc ( who has a fun sense of humor) did mention, that they didn't understand why some people had a hard time, and others (like me) had an easier time. Ever the wise a**, I told her I had an easy time because I was a smoker, my body is used to being poisoned by toxins. This elicited both the evil eye and lots of laughter from her. Loved the EMT story!
OBKX - Congrats on your son's achievements and loved that hangover anology.
Bernie - love the jokes.
To all who felt bad about complaining about hubbies - DON'T! This is the perfect place to vent, with others who will understand. If men were able to chat like we do there would be a lot less problems.
Thank you all for the puppy pictures. As I've listened to you all over time, I actually became grateful to be divorced. (don't take that the wrong way) I just realized that I was able to focus on my needs and not have to worry about how it was effecting somebody else. But I will tell you, da*n, I still miss my dog! *big grin*
Lisadi - everyone got your questions, but one warning. Are you large breasted? If so, you may get fluid in your breast after surgery, that "sloshes" when you move. I checked the toilet, tub and sink one day after surgery, before I figured out that the "sloshing" I was hearing was actually coming from my breast. It was so audible, that I recorded it on my cell phone audio, and sent it to my girlfriend's with the caption "can you name this tune"? Almost everyone guessed washing machine!
Caroline - one thing I've noticed is that even in the same part of the country, we are all receiving different type of treatment and follow up. The keep referring to them as "standards of care" but I'll be da*ned if I can find anything "standard" about them.
Nsmith36 - welcome, and ladies with experience with reoccurrence will be along to offer they're expertise.
NavyMom - that is awful news, praying for strength for Jenn3
To Cocker, Tazzy and all who were laughing about the pubes, I wanted to share something. Mine have grown back but with a big surprise. I have a big bald spot right in the front about the size of a golf ball. (i'm thinking of having a bloody smiley face tattooed there!), but the da*n things grew out on the sides so I'll still have to pay for a bikini wax. You couldn't have chosen the sides for the dam* bald spot!!!!!
Those of you who asked about the poker. The are actually two types of poker, tournament and cash. I am more used to playing Tournament, which I describe like being a version of Survivor (out-wit, out-last, out-play). If you go on YouTube, I actually have an audition tape for Daniel Negrau's TV show. (You had to win a 10,000 person on-line tourney to win the chance to audition.) No, I never got a call, lol.
Since I don't get a lot of chances to play cash at the casino, I only play low limit poker. (you won't win a lot, but you won't lose a lot). I play because I love the game, not because I plan to get rich, lol. I played for 12 hours yesterday, didn't ever really have a lot of good cards, and came home with 20 bucks and a free dinner on the casino. 12 hours of fun, and it didn't cost me a dime, I look at that as a win!
Have had a wee scare this week. Found a lump in my breast near where my one of my original lumps was. I'm assuming it's scar tissue, but I have called the doc. The nurse is going to let the doc know that my mammo is in a month, and let her decide if I need to have it checked now, or if it can wait till the mammo. If not, I'll see her Wed morning. I've always had lumpy breasts, so I'm not in a panic, it's probably just scar tissue.
To all those in treatment , wishing you minimal SE, and some source of joy today.0 -
kathyrnn... how I am laughing out loud about the bald spot... omg! is this what we have to look forward to.
Laughing even louder and heartier about the sloshing too...like WTF? And nice to be able to share humour and laughs among sorrow !
Good for you on the poker. I love going to Vegas and am like you but play roulette (not good enough for poker - dont have a poker face and cant remember cards)... play for low odds but have so much fun. And coming out with $20 and a free dinner is a winner to me.
Thoughts with you on the 'lump' - wishing for scar tissue. Let us know eh?
DorMac thanks for the reminder on Michelle's blog about Paris.... made me check in and yes what a wonderful time they are having.
Have a wonderful weekend, and Cocker enjoy the long weekend you have.
Chat over the weekend.
Positive thoughts to you all - In the short time I have known you I feel you are my friends..... Oh Carloline... docataxel makes you emotional
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Good morning Ladies. Well I've done it again and got up late. 10am this time so an improvement on last weeks 11am and that was only because the phone rang. Funny part about it, I just don't care. Pre BC I would have been up and running around like a blue arse fly now I just think, make the most of it.
Heather - absolutely beautiful dogs they look so happy. Could they have got any closer to your hubby. Now if that had been me I would have been in bed all day so as not to disturb them.
OBXK - well thats a new concept putting your panties in the trash. I'm beginning to find out lot about you!! and its all good.
Yep you got it about the wheat bag only its wider and longer than a sock. I'm happy to send you one over if you want.
How long did your neuropathy last? and was it bad enought to stop me typing if I get it?
Caroline71 - I think you would have to talk to your doctor about having both breasts removed but I do know I wish I had then I wouldn't have to worry about getting BC in the other one or having mammos. Big decision though and not easy.
NavyMom - glad you are back. Yes it would be wonderful to all be in one big room then we wouldn't lose our posts and would we have a great time getting to know each other.
Terrible news about Jenn3. Thinking of her and her family and sending lots of prayers. Yes cancer Sux big time.
Nora - Hi. Welcome. We all fear recurrence so understand where you are coming from but I am sure all will be ok for you. Congratulations on your 5 year anniversary.
Tazzy - I too have the watery eyes, blocked but runny nose and sneezing. It's a pain in the rectum. And still can't taste very much. Its very irritating.
I agree about the long chats. Not sure who started those novels!!!!!
Kathrynn - glad you had a good time with poker and glad you didn't lose too much money. I don't know if I could sit there for 12 hours though.
Nothing today from Titan - must be out running.
And still nothing from Inmate.
Talking of dogs. My little maltess girl Chloe is a right little rat. She hates it when we go out even though she has my Tessa for company. To get us back for leaving her over time she has chewed all the tops off the remotes which she found on the arm of the old fellars chair, much to his disgust. She has chewed my cell phone so I had to buy another, assorted pens, the corner of the airer and heaps of other things. I threaten to smack her bum every time but when I come home and stare at her madly she shakes and I haven't got the heart to do it. She beats up the cat every time he walks in the door by trying to nip at his paws and she won't give up until he wallops her one but Oh she has the sweatest face.
Well now whats on the agenda for today. I am going to clean all my windows and make them sparkle. Bathe my little Chloe (might even drown her!) and trim my little cocker spaniel Tessa who is an absolute dream to live with.
Have a great day ladies with no side effects and have lots of laughs. Annie
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Navy- Thank you for letting us know about Jenn3. She has had such a difficult time. My heart goes out to her and her family.
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Ok Cocker, enough with the bloody bragging and making me feel like a slacker. My definition of "dawn" is "the crack of noon" *big grin*
See Tazzy, you didn't know you might be able to play tunes with your boob after surgery.0 -
NanyMom, Jenn3 and I were all in the starting chemo August 2009 group. In fact Jenn started the thread. Most of the group don't post much any more, but Navy, Jenn and I and a couple of other ladies have kept up.
She is a wonderful lady. This is tough.
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I love you gals!!! too funny...we all need in the midst of this nonsense.
Today I was able to go back to the therapist for MLD and to get my wrap back for my left arm LE. My nighttime garment came in and hopefully when the wrap comes off next week i will be have the custom made glove that I will have to wear everyday with my lovely sleeve. Ah well ....guess it could be worse eh??
May Jenn3 and her family find peace in this aweful time for her.
And to you CANCER---kiss my A** I hate you and your little dog toto (the se's and lifelong changes) too!!
Maggie
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Well said Mags'
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Thanks Gilly..for the info about Jenn.she "watched" my son when he was in NOLA in March for the basketball tournament...it gave me great comfort that he had someone watching his back while he was there...I told him that I know women all over the world so that he will never go anywhere without one of my friends watching out for him....it just breaks my heart over Jenn..though I knew that this maybe happening in time...she has worked her "arse" off (here's to you Cocker)...to beat this disease...lovely, lovely lady and one I'm proud to call a friend...and thanks to all of you that don't know her but are wishing her well...she needs our love right now...
Yeah Cocker..I did do a little running today...gotta get in shape for June 23....I'm taking ALL of you with me...last time I ran I was made sure that my thighs weren't slapping against each other...lol or wtf.
Hi Nora..welcome to this thread...!
Kathy..wish I could do the poker but way too impatient..a friend of mine plays though...she is heading out to Vegas this week to play some poker..and oh yeah..visit the Grand Canyon...
You will like this story Cocker..went out to dinner with the old fellar..then stopped at the liquor store for some Lady Bligh.he's to tight to buy the captain..anyway...we got home, went in the house and a few minutes later he asked me if I brought the rum into the house...I was like..are you serious.....
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So sorry to hear about jenn3; please keep us posted. God, this disease sucks so hard!
To whomever asked about phantom pain after MX, I've never felt that, but did have something weirder happen this winter. It was cold and windy and I walked around the corner of a building and just got slapped in the face with the cold wind. My eyes watered, but also, I "felt" my nipples pebbling from the cold - except I don't have any! Very freaky sensation.
C_S, maybe you could introduce Chloe to "The Crate". Duhn duhn duuuhn!
And while trying to figure out how to spell duhn duhn duhn, I ran across this little gem on YouTube (O Fortuna misheard lyrics - animated!) that had me howling with laughter:
http://www.youtube.com/watch?v=nIwrgAnx6Q8
And I had more to write, but can't remember it now. Watch the video!
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Riley... that link to U-tube was hilarious. I must say that is one of my most favorite pieces of music.. but now dont think I will ever be able to listen again without remembering some of the misheard lyrics... priceless. Thanks for the laugh.
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That poor octopus. Just minding his own business with a can of beer in his tentacle...
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Navy - Thanks for letting us know about Jenn3. I feel that Jenn and I have crossed paths on this Topic. I just went to check my old messages to see whether I had talked to her via PM, and found none from her, however, found many PM's from LauraJane, Suze and MBJ, such amazing wonderful women. I really truly loved them all. Suze was my very bright young friend. I believe she was in her mid 40's, a very young woman. Jenn3 is only 44 as well. I read her profile and posts, and it seems like she has been going through a hard time lately and seems to have made peace with the outcome of the horrible disease. She had mets to the brain in 2011, and has decided not to do much treatment for that. I hope and pray that she is pain free and is in a loving environment with her childen and loved ones.
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Good Evening Ladies
Hope you are all feeling good.
Riley - the misheard lyrics was hilarious. Great. Thank you. Needed that tonight.
Well went out tonight for dinner for the old fellars birthday. To be honest I didn't really feel like going. You know the old story, fourth day after treatment, extra tired, headachey, thick gluggy throat and mouth and no taste but we did have a good laugh and a good meal even if my Grandson Connor helped me eat mine after he ate his. We took the cake and all the waitresses and waiters helped us all sing happy birthday so was pretty special.
Titan - glad to see you are keeping up with the training. Not long to go now. I've got my best hat ready to wear for that day.
Loved the story on the rum. My eldest girl likes rum. Come to think of it she likes all alcohol!!
Got home and the furry rat had been at it again. Left nothing around for her to chew but she must have got on our bed and got the old fellars inhaler off his bedside cabinet and she had chewed through the mouth piece and then left it by the front door for us to find. Good thing he has got more than one in the house. At this moment I know she is beating the cat up again cause I can hear her little feet jumping around and around. He is bigger than her and after he has had enough he will wack her, so saves me doing it.
Lovelyface - I don't think we will ever forget all the lovely ladies on here that have passed. I know we all think of them all from time to time and wish they were still here, hard to believe that they are not. I too hope that Jenn3 is comfortable and free of pain with those she loves around her. Cancer Sux even more today on hearing that news. When, when, when are they going to find a cure. Life really is shit at times.
Ok ladies I feel so tired so going to bed for an early night. Sleep well all of you. Have a good day with no side effects whatsoever. Annie
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Riley - Thank you, that video was hysterical!!
I'm so sorry to hear about Jenn - while I never "met" her on here I have seen a few of her posts. My thoughts and prayers are with her and her family.
CS - Your little chloe sounds adorable. I can just see the hyper little terror attacking the poor cat and the cats bored expression. When we first got Hoover we had another dog Fred, much much bigger @ 90 lbs then Hoovers puppy wieght of 10. Well Hoover would pester the heck out of poor Fred. He would chase him around the chair and bite him in the arse. One day Fred caught on and turned and bit Hoover in the arse. If only you could have seen the shocked expression from Hoover!! Not to mention he cried like Fred bit his arse off. My hubby and I still laugh over it.
Friends called me around 7 last night. Invited me out to see a band a co-workers son was in. I can't tell you the last time I was in center city, in a bar watching a band with friends. We had a lot of fun. Today I'm off to do a 5k with a friend of mine. Now this is not a real 5k like Titan. We'll be on treadmills and it will just be the 2 of us but it is something we are doing with an online group. I hope to finish somewhere near a 30 min but really don't think that's going to happen.
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Titan - Do you realize sometime this weekend probably or maybe early this week your thread is going to hit 15000 posts!!!!! That's pretty darn amazing!! You need to make yourself something special with your Rum to celebrate. I'd like my Rum in a Pina Colada with a little umbrella.
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This posts flies!!! I cannot keep up anymore.
Nothing new on my side. I hope you ladies have a great weekend.
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An african ambassador visited Russia and was entertained by his opposite number, the Russian ambassador. For three days, the African ambassador was wined, dined, and generally treated to the best hospitality that Russia had to offer.
On the last day of his visit, the Russian ambassador said, "As your stay is coming to an end, it's time for you to play our traditional game, Russian roulette. One of the six chambers of this gun is loaded - you spin the cylinder, point the gun at your head, and pull the trigger."
This phased the African slightly, but he was a proud man of a warrior people, and to show fear would be unthinkable. Both men took their guns, spun, and pulled the triggers.
Both chambers were empty, and both ambassadors breathed a sigh of relief.
The African ambassador was impressed with the courageous game, and thought hard about the subject before the Russian Ambassador was due to visit his country the next year.
When the visit came, the African ambassador treated the Russian with all hospitality, until the final day of his stay. Leading him to a private room in the palace, the African ambassador spoke, "Now, time for you to sample our game, African roulette". He then led the Russian into the room, the only occupants of which were six stunning and naked women.
The African ambassador said, "These women are the most beautiful members of one of our tribes. Any one of them will give you a oral sex take your pick".
The Russian was not entirely averse to this idea, but he couldn't see the connection with Russian roulette. He said, "Well, ok, great, but where's the roulette part? Where's the danger?"
With a big grin on his face, the African ambassador answered:
"One of them's a cannibal."0 -
Titan - you really made me laugh when you said you were to "impatient" to play poker. Patience is not my long suit, but now I realize that maybe loving the game was a life lesson to teach me some. I actually sit at the table reading a book while I play. Marking 6/23 on the calender so I can clap my thighs in support. Tell hubby that I'm tight as a tick too, but Captain Morgan Private Stock is worth the price, and so smooth it rolls itself into the house, heheheheheheeh
Riley - still laughing at the video! BTW, crate was my first thought too.
McCrimmon - you go girl! *claps thighs*. The only time I ever plan to "run" in this lifetime will involve either someone with a knife or a gun.
Pray for me today ladies, lol. It is raining buckets here and I'm off to my nephews outdoor H.S. graduation party. This is the first time I will have to be in a social situation with my Ex and his wife. I'm ok with ex, but this is the woman that he was having an affair with. To let you know how ballsy she is, I threw a Valentine's Day party for my hubby at his job, and found out long afterwards that she was at the party. Also found that when my Dad died 2 months after we seperated she insisted on being part of the company honor guard at the funeral, because he was "her boyfriend". (Company sends an honor guard to all funerals. His boss called and asked if I wanted to refuse it and I did. I only found out later, the reason they had called me)
The most diplomatic phrase I can up with if she insists on being introduced is "it's interesting to meet you!". You DO NOT want to know my knickname for her! It would get me kicked off the board by the moderators! Pray for me. *big a**ed evil grin*0 -
kathyrn.... good luck today. And rise above the beatch... you are bigger and better than she will ever be. She is not fit to clean your shoes. But I'd bet you'd just love to slap her upside the head
And dont forget, if your Ex had an affair with her... one day he is sure to do the same to her - statistical fact. Revenge is sweet and best served cold.Let us know how you get on...
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Navy - thanks for letting us know about Jenn3. She's a lovely women. I had the privilege of meeting her in New Orleans during a family trip for New Years 2011.
I hope everyone's doing well. I've been out of commission with the flu. I'm on the mend now and am trying to catch up on all your posts this past week.
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Kathrynn - Good luck today meeting "her" - if introduced just remember we're all standing behind you with big evil grins on trying to guess her nickname.
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Tazzy, I'm on my way but you reminded me of the sign I posted on my wall the day after he moved out. "the best revenge is a life lived well" and that I've accomplished!
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