Calling all TNs
Comments
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DUH, hadn't thought of that . . . my face feels SOOOO flushed and tingly . . I am leaving work now . . . I'll take the temp when I get home. THANKS INMATE.
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{{{{{HUGS}}}}} to everyone...this is unbelievable to wrap my head around. Another sister gone from this s****y disease.
Inmate--totally get it with your sister. Mine was just here visiting ( she lives 400 miles away in Atl GA) and I could not wait for her to leave. She is so self centered that I just cannot take it anymore. I avoid her phone calls and only answer when i feel I can handle having a conversation with her. I have decided that I can no longer be around anyone, even if they are family, if they just do not give me the emotional, physical, and mental support that i need. My own mother is soon to be added to that group if she does not stop turning everything to be about her. She made a crappy comment today something about bras as if she had completely forgotten that my breast have been replaced with a scar from pit to pit...seriously?? Never feel guilty for sticking up for YOURSELF...esp now!!
FernMF--take care of that rash...watch out for a possible infection (cellulitis) that can creep up quickly and need immediate medical attention!
To all you newbies...take heart. We tend to lose our beloved sisters in batches and then will go a long time without any loss. We can continue to support each other and hold each other through the good the bad and the ugly. We are all so individual and handle everything in our own way. Taking a break once in a while can do wonders for the soul.
Tazzy--sorry about the melt down but get it out girl. Cry scream and do whatever it takes to cleanse yourself of the toxic thoughts. You are strong! We all have those moments of utter sadness and must release it or will explode. It is tough--no impossible- to go through what we have without tears. I am almost to 1 yr from surgery and I miss my boobies so much sometimes that I will look in the mirror sometimes and just cry...I figure I just must need it!
On a positive note....my Field Ops Manager came to visit my store today and we got an excellent report from her. She had nothing but great things to say about our operations! ( I own a franchised children's store) We are up 47% over last year's sales and we won the award for #4 in the country last year for % increase over the previous years sales and are trending up so well again that we will most likely get 2 awards next year. Finally something to cheer about in life!! Also my son and his wife have worked out their issues and will not be getting a divorce after all...my heart feels so good about that! Just wanting to share some good things with you all XOXO
Maggie
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Mags- Congrats on your store's great report! And so happy for your son and his wife staying together.
It's good to hear good news on days like this. Thanks for sharing. 0 -
Thanks for sharing your good news Mags... much needed.
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I am so sad about another loss.
Hard to stay strong.
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Indeed, it is very hard to stay strong when we learn of losses. But what else can we do BUT be strong! Surround ourselves with peeps that can build us up despite the horrible feelings that cloud our days. To hell with everyone else!
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Tazzy, Inmate and others - - no temperature - the insistant, incedious rash has tripled - covering about 1/2 my abdomen and "down there", my neck and arm pit to back on the left side . . . this is "just itching" . . . BUT OMG it drives me crazy . . . so, if "this is as bad as it gets" I can get through this. Oncologist on call (no my doctor) said treat with Prednisone - so, to sooth an allergic reaction I'm pumped for of steroids about the time I think I finally got over the 28 mg of steroid that got last week's treatment started . . . Aveena Colloidal Bath here I come. It is helpful for me to go about my normal life, and I am very thankful that I have a job to go to, and stuff to fill my day so that I don't dwell on myself. Tonight started church choir practice for the fall season, I am a pianist and have played/sung/lead music for 44 years . . . so, this is a blessing to me - went, sang, played, met with friends I haven't seen all summer and enjoyed myself - hopefully now, after 3 hours sleep total last night, and 1 benedryl, 6 prednisones, 1 sleeping pill, I'm gonna get some rest. THANKS so VERY MUCH for answering my questions early - it helped to talk to the doctor with what you all thought was the answer - made me "sound" more intelligent and less of a basket case. Talk with you all tomorrow . . . I am "hopefully" going to sleep here real soon.
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Yes, it's time for a group hug. Big time. Sometimes it's hard to be optimistic even when it's my nature to be so. I'm a year and a half out of diagnosis and am NED, but I still feel totally vulnerable to this blasted disease. Stop the train, I want to get off........
Hug your loved ones and sleep peacefully, we need our strength and courage for tomorrow. Jan
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fern....i hope the bath helped.
yes, mags thank you for the good news.
okay all....the best thing that happened to me today:
I was able to let go of extra stress in my life and be okay with it.
next.......it's out there, some days it is just harder to see.
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I am still here, the doc put me on blood thinners for the blood clot, had a few bad days all I did was sleep. But today food is more enjoyable so can eat at least for now next week is chemo #3 start all over again. Today is a good day, I'll take it.
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dgcote........so glad to hear they got the blood clot under control. Sleep is good and so is ice cream. Just a suggestion.
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Just wanted to say I appreciate all of you gals! This is a safe place to vent, whine, and post happy thoughts! It doesn't matter if you are stage 1 or stage 4, you all are so accepting, even of my 3% er positive self! Sure, we are all on different journeys with our cancer and lives, some will never recur (yay!), some will, and some already have, but here we are, having a group hug supporting each other.
dgcote-glad today is a good day!
Inmate*happy to hear you made it through a difficult situation!
Jan-I want off this train too, but with all of you!
Fern-I hope the rash disapears fast!
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cocker.....you out there?
minxie....missing you my dear.
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inmate - Don't forget that mixie said she was going to the ocean this week - hopefully that is why she isn't posting right now. Hopefully her rad burn is all healed up and she is enjoying the fresh salt air!
Doreen
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"Don't walk in front of me, I may not follow.
Don't walk behind me, I may not lead.
Walk beside me and be my friend."
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Lovely Bernie
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Yes, Bernie, a beautiful thought to start my day.
Inmate - glad things went OK with your sister. I live within 20 minutes of my sister and she doesn't call or visit. She's toxic, insists that we can have a relationship only if we can get together so she can tell me about all the "bad things" that have happened in our past. Most of them have nothing to do with me. I told her that it was time to let go of the past and live in the here and now. She refuses, I told her I didn't have time or energy to waste rehashing old crap. So it's an impasse and so be it. She'll probably show up when I'm on my deathbed.
Riley - sorry you had to deal with such crappy experiences. Having a friend with alcohol abuse is so difficult to deal with.
Fern - hope you're doing OK with that rash.
Mags - congrats on all your good news!!!
Dgcote - hang in there!
Bak - I agree, this is a great thread.
I am still waiting for the "official" word on my scans from Monday. I think the delay is that my local MO is consulting with my Dana Farber Boston MO about where we go next. Not sure if I mentioned there was some progression in an axilla node, not sure about the lung mets. Xeloda doesn't seem to be working so well for me. It's early in the game and there are plenty of other options, as Inmate can attest to. Optimism prevails!
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So sad we lost another sister to this horrible disease!!!
(((group hug)))
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So stunned at the loss of Beccad. Yes group hug indeed.
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Doreen....thanks for the reminder. just got a little panicky for a moment. I don't want to leave anyone behind.
Yes, Bernie....thanks for that. good start to the day.
Thanks Luv........I am fortunate to have a several sisters, one of which is my best friend. we speak every day. She is the grandma to that wonderful little man, Baker, that I posted the pic of before. And I am sure as my little sister matures she will begin to make healthier choices that she is proud to be honest an open about. Until then, I will continue to love her, from a safe stress free distance.
Please let us know when you get the results. We could use more good news!
Bak.....funny story about tattoos. My sister and I as well another good friend have all gone to get tattoos over the years. Each time I let them go first so I can decide what and where. So far they are 3 and I am 0. I could never decide and still to this day I am a tattoo virgin. My sister advises you to make me go first. You just let me know when you are ready.
Have a wonderful day ladies! Love to you all!
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I had 2 sisters, 1 older and 1 younger as well as 2 older brothers. My younger sister and I were the very best friends - unfortunately I lost her to TNBC 6 years ago. On the other hand, my older sister, who lives in the same city, has not even called me the entire time I have been going through this nightmare. I called her because I thought maybe she was ill or something but no, she was fine. Just doesn't care, I guess. My 2 brothers call every week. I miss my younger sister so much but am so grateful that I had her in my life!0
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Dor....so sorry to hear you lost your sister and best friend. I worry about leaving my sister behind. She is my strength, support and unconditional love and I hers. We are 2 1/2 years apart but many people ask if we are twins. I usually say yes, but she's the older twin.
here's to sisters: (of course I picked one of us when we were young and wrinkle free - also includes my BIL)
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Damm! I logged in to post something intelligent, and I can't remember what it was! A touch of Alzhiemers and 6 doses of chemo equals ?
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Chemo brain! - It's a valid excuse. I intend to use it for the next 4 years!
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dormac I'm with you - intend using chemo brain for as long as possible... although when I told my family that, they said "how will we ever know the difference"
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Inmate, love that photo! You all look like you are having a great time! Makes me want to go to the beach right now.
My favorite photo of my sister is one where she is hugging a pit bull. I am a big animal person and she has been afraid of dogs ever since a large one scared her as a child. She is very afraid of big dogs. We have discussed dogs such as pit bulls many times and she has had an unfavorable opinion of them based on what she has read in the media. One day on our way back from a oncology consultation in North Carolina, we stopped at a vegetarian cafe in the mountains at the NC/TN state line along the river. There is a female pit bull who belongs to one of the guys who works at the zip line place there. "River" is a "regular" in the outside patio area of the cafe. She likes to jump from tabletop to tabletop and pose for photos. My sister was so impressed with River's calm and friendly demeanor that she made friends with her, petted her, and posed with her arm around her for a photo.
Tazzy, that's so funny! I don't know how my family would know the difference either and I come by my absent mindedness honestly. We used to joke in my family that we knew when dinner was ready when we could smell it burning (my mom would invariably forget to check the oven or burn the toast.) We ate a lot of scraped toast when I was a kid. Mom never had chemo.
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Just saw this on the positives about negatives blog- phase II clinical trial just opened up:
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So happy!!! Went to see my BS today (which I love), and he looked over all my scans I have done recently and he said you know what the 3 most important letters in alphabet are? I said no. He said NED! Cause you are cancer free!!! I am so thrilled. Thanking the good Lord above!!
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KS - long may you dance with NED!!!!
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Worked all day today - I'm high on prednisone for the rash (that is still there, but NOT itching). I'm the road runner and the energizer bunny in one - BEEPPPP BEEPPPPP.
Finally contacted the after hours service and talked to an oncologist I have not met - he thought the rash could be related to the chemo (DUH?) and that prednisone was the only way to go. So I doubled the antihistamine AND took a sleeping pill - so I got a good nights rest. Good thing - today has been full speed here at work.
Now, it's come to my mind that side effects from Chemo "might" hit us at those physical points where we have previous conditions; i.e. I have skin problems, I'm highly allergic to poison ivy and never touch the stuff, but come down with 1-2-3-4 times per year where I have to take prednisone. (AND, got a S/E skin rash) Also, I have highly myopic eyes with reading lenses in my -18 lenses plus prisms. The S/E on day 3 and 4 after chemo was double vision. Is that what you all have experienced? THANKS!!!
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