Calling all TNs
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ks--that is awesome news!! thanks for sharing
Maggie
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KS- WOOOHOOO!!!!! Dance away with NED!!!!!!0
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KS - dancing with ya.
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Well, got the results of my scans and all I can say is that it sucks pretty bad.
Progression of metastatic disease in the left supraclavicular region, left
superior mediastinum, left axilla, left hilum and left lung.
Slight improvement of left subcarinal lymph node since previous study of
05/11/2012.
So my oncs are looking for a clinical trial. Time to pull out all the stops and stop this crap in its tracks. Ugh!!!
So I copied and pasted the results and it gave me the funky html code. Sorry about that, but you can get the idea.
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Double crap Luv!! I hope they find something quickly that will kick this to the curb! I am sending all the good vibes I can muster to you!
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Luv - sorry for your results - hope you get in a clinical trial and you kick cancer to the curb for good!
KS - woohoo!
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ks..... woot woot for you my dear! such good news
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oh Luv.......my heart is heavy for you. i so wanted better news. f'ing. F. lots of love coming your way!
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((((((Michelle))))))))
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Luv, I am so sorry for the bad news - I hope the next chemo will be the one to stop any progression. I posted a new trial that opened up a few entries above - I'm not sure where it is but it opened this week.
KS, I'm glad you got the very good news!
Love to all -
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I was absolutely devastated to see earlier that we have lost three sisters in two weeks. I f'ing LOATHE this disease! I found myself just screaming out loud in my car when I got home from work. This has GOT to stop! I just pray their families & friends find peace & comfort.
Luv - I am so sorry to hear your results. This board is so full of incredible, funny, strong, tenacious women, including yourself, & I just know you can best this! I'm sending you loads of good ju-ju as we speak! (((((Hugs)))))0 -
Hi ladies - just catching up on my reading here after a few days....
Melissa - We all understand the need to take a break. You will always be welcomed back if and when you decide to return.
Luv- Damn! I was hoping for better news for you. Sending you a BIG HUG! Stay strong!
KS - Great news! Dancing with you!
Inmate - So happy you cleared the air with your sister.
Tazzy - Please forgive me, I don't remember exactly what surgery you had....may have been during my hospital daze...Just wanted to tell you that my neighbor had a double mx a few weeks ago. She's normally a very stoic person, but has been having major crying attacks which seem to embarass her. I told her that sometimes she'll just have to cry, and that's totally OK. We all have and we all do on this crappy journey. HUGS TO YOU!
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Thanks Hope... had a mx to right and ALND/SNB. Best these emotions come out rather than being bottled up...but still its a pisser. I try to remember we have every right to cry, scream, rant or whatever we want to.
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oh LUV...I am sad for your news but as others have said you are such an amazing and strong woman. I just know they will find the magic bullet for you {{{HUGS}}} to you
Mags
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KS- sorry I overlooked your great news on my last post! Congrats! I hope you have many, many many more years of NED!!
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Keeping up with the posts, just wanted to jump in with the:
((((GROUP HUG))))))
My condolences to Beccad's family. It's awful to lose another sister.
KS - dancing with you.
LuvRV - a special ((HUG)) for you. They better come up with a combo that works!!!0 -
(((luv)))0
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KS....so happy for you.
Luv.....just so damn unfair. Go for all they have and beat this to the curb. A great big hug to you. Please let us all hold you for awhile. And even more hugs to you and your family.0 -
Totally sucks Luv! So sorry..... HUGE Hugs!!
Has anyone experienced their tongue turing Blue on the edges, discolored underneath and pale gums? My WBC's were alert low this week but the MO didn't want to give me antibiotics unless I had a fever, which I do not. I noticed the color change this morning, 9 days after my last treatment. Any input would be greatly appreciated......0 -
Hi ladies, I can't remember where I left off. I've been reading daily but haven't posted in a while.
I'm so sorry to hear about Jenn and Becky.
Luv, sorry to hear about your progression. Hopefully your doctors will have a good trial or plan for you.
Inmate, sounds like you were strong with your sister and you are just so strong altogether. Love the picture...reminds me of my youth. Those were the days...not a wrinkle or a care in the world.
Love the jokes and group hugs...let's have one now (((((((((((group hug)))))))))))
I've been suffering from a dental abscess that resulted after a little corner on a back molar was repaired last week. Turns out the gum got inflammed from the clamps (or whatever device was used to set the tooth) and then infected causing a very painful abscess. I'm now on antibiotics. Now off to rinse in salt water.
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I'm happy for KS and crying for Luv. I can't think of anything else to say right now.
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ks. so glad to here good news, happy for you.
fernmf . soak in a little baking soda it really helps and feels so good
luv rving. hope you find a trial soon, will be praying for you
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Thanks so much, everyone! I'm really OK right now, I feel perfectly fine. We went to my DD's tonight, had chinese food, and sang and danced with the grandkids. Nothing like grandkids to make you forget your troubles.
I am type 2 diabetic and my Boston Dana Farber oncologist wants me off my metformin. You all know I've always been glad i was on it because of all the breast cancer clinical trials with metformin. But it doesn't seem to be doing anything for me, and being on it excludes me from a few other, probably more important clinical trials. So I'll wean myself off over the next couple of weeks. I'll have to watch my diet and test my glucose levels more frequently, but I think I can meet their requirements for controlling by diet.
Inmate can attest to the fact that there is a whole laundry list of chemos to try. Add that to the clinical trials and there is plenty of opportunity to find the right one. It's gonna be a marathon, and I've only just begun.
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Calling Cocker - Where are you and how are you? We need you terribly. This thread is so sad these days and we could really use your light touch. I know you and your family are no doubt shaking in your boots while waiting for your daughter to see the next doctor. Still holding your hand.
Luv - I know so well how grandkids can work wonders! So sorry you are back to the stage of waiting for MO to call with treatment plans. Thinking of you while you wean off Metformin and beyond.
Last night I had a very vivid dream that they found I have ovarian cancer. That dream and all the sadness on this site has left me in a deep funk today. I get to see my grandkids next week. That should cure me.
I think what I was going to ask and couldn't remember was about bone scans. I have had so many PET/CT and US scans, but no bone scans. For those of you who have the bone scans, what triggers the need for one?
Wishing you all a restful night and a happier day tomorrow. Jan
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I read all the posts, just haven't been posting. Better days to all ~hugs~ WOW, some strong woman here!
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Sorry to hear about Beccad. Sending hugs to her family and friends.
KS - Congrats on being clear! Keep that going.
Inmate - glad you have a sister that you are so close to.
Luv - sorry to hear your news and I hope they come up with that right cocktail for you now so you can put this all behind you and concentrate on just enjoying that lovely grandchild!
{{{HUGS}}} to everyone - I think we can all use one right now!
Doreen
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A guy approaches the window of the movie theater with a chicken under his arm, and asks for 2 tickets. The girl at the counter wants to know who is going in with him. He replies, "Well, my pet chicken, of course!" The girl tells him that he CAN'T take a chicken into the theater, so he goes around the corner, stuffs the chicken into his trousers, and returns. He buys his ticket and goes in. Inside the theater, the chicken starts to get hot and begins to squirm, so the man unzips his fly so the chicken can stick its head out - get some air and watch the movie. Sitting next to him is Agnes. She elbows Myrtle and whispers, "Myrtle, this man over here has just unzipped his pants!" Myrtle whispers back, "Oh, don't worry about it.....you've seen one, you've seen them all." Agnes says, "I KNOW......but this one's eating my POPCORN!"
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good morning ladies
I havent been here in a long time ..... hope your doing well. I have a quetion for those of you out of therapy perhaps 1 or 2 years out.
Do any of you have boughts with dizzy spells that seem to come from no where, have no reason ??? Ive been having these for 2 weeks now. They dont happen every day but when they do, its almost like a knock out. My first bad one was last friday, which was so bad that i even went to my primary doctor ( takes alot to get me to go the doc. for something like that). They found no cause for it.. they took ekg, pulse, BP, did some simple neurological test. I dont have a tinnitus and no eyesight problems. I was just wondering if any of you have had this or are going thru it. Is it something i need to be scared of or worry about right now.
Oh yes .. and to your discussion about stress and cancer.... i truely beleive it makes a big difference. I had enormous stress before i got sick.... not short period stress but constant over a few years. Since TNBC isnt Hormone triggered, that might be the real cause of our rare BC.
Im under hefty stress once more and am treuly terrefied that the cancer will come back. I think we all have those thoughts though.
I wish yal a wonderful weekend...... stay healthy and safe.
Monica
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I had my 3rd dose dense AC on Tuesday. I asked my oncologist for something to help me sleep the first night, as the steroids had me awake all night, and the first 2 treatments also gave me a 24 hour migraine. He told me he is not allowed to prescribe anything due to the drug laws in this country, aaaaargh. Never mind the sleeping pill, I would eat your face for some codeine right about now. Codeine, however, is not legal and never prescribed here. Sigh.
Administering many drugs and particularly narcotics is a HUGE deal here. A regular pharmacist cannot dispense it (a special doctor who wears gloves handles it) and there are government applications and approvals and hoops to jump through. I had the same problem after my surgery. My anaesthesia wore off and I spent the whole night crying and begging the nurses for drugs. The first thing they gave me was over-the-counter headache medicine in my IV. Hellooo!! You just scooped out a body part and I don't think headache medicine is gonna cut it!!! She told me I had to wait at least 2 hours and then could try something slightly stronger. So it went all night long... My BS came in at 6am and was not happy to hear I had been left in pain. She called the nurse in and ordered narcotics, oh bliss. But once it wore off, I faced the same challenge with the nurses- terrified to give me narcotics without the surgeon present and so they refused.
I feel very lucky to have found an amazing surgeon and a good oncologist too, but the drug laws here suck so badly. It makes me angry!
Hugs to everyone. I read through the posts, but my brain is so scrambled today I can't keep everyone's challenges straight in my head, sorry. Wishing everyone an extra little bit of peace and happiness in their lives today. xo
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Good Morning Ladies,
I haven't been on in a little while, anxiety was getting the best of me and now I am just trying to get a little caught up.
Welcome to all the new ladies, so sorry you have to be here but really this was the only place I wanted to be when first diagnosed. These ladies on this thread are wonderful.
I'm sure I'm going to miss a lot of ladies and I'm sorry but
Luv - I'm so sorry to hear about the progression - I have faith that you'll find the right chemo combo or trial to kick FC's butt!
Inmate - praying that this chemo kicks FC's for good!!!
Hope60 - Hope you healing up for your surgery and rads are going smoothly
Christina - I think it was you, thanks for posting the PhaseII trial, gives me a little hope.
Although I needed a break, it was nice to be able to log back on and see everyone, I've missed you. I'm on my way to Florida this weekend to visit my hubby and doggies. Miss them, they make the big move to me on Labor Day weekend. Excited for it to get here.
And finally, my heart hurts, I'm so sorry to hear of the three ladies we lost. It's just unfair. Why can't they find a damn cure. Blondelawyer was in the same Chemo thread as me. Someone said she is with her husband now and that makes me happy, I believe that as well. My thoughts and prayers go out to Blondelawyers, Jenn3's and Beccad's family.
Have a wonderful, SE free weekend sisters.
Big hugs to everyone.
Heather
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