Calling all TNs
Comments
-
Good morning, ladies, so much to catch up on in just a day!
Luv: My heart sank to hear news of your progression, but you're absolutely right - there are loads of drugs to try, and I hope the next one blasts those mets to smithereens. In the meantime, enjoy the grandkids.
ks: So happy for you - you sound like you have a great doc.
Jan: I had a bone scan when first diagnosed, along with abdominal ultrasound and chext Xray, to check for signs of any further disease. I had another bone scan last fall when I had persistent aching in my back, to rule out mets.
Sugar: Sorry to hear about the abscess - those can be nasty and painful. Hope you're on the mend now.
Monisch: Since chemo I noticed a worsening in my tendency to get dizzy (near black-out) when standing up suddenly. My doc put it down to my low blood pressure (always had), it's sometimes worse when I'm dehydrated. I just get up more slowly and all's good. That said, this is not a new condition for me. Have you talked to your onc about your dizziness? My deal with mine is that I call her with any symptoms that are new, unexplained, alarming and/or persistent... for peace of mind if nothing else.
We're getting loads of rain lately - a good thing as everything has been so dry. So I'm cocooning with a good book for the weekend. Hugs to all.
0 -
Jan - my guess would be that you've never had a bone scan, because a PET would show if there is any activity going on in your bones. (LuvRV, will be able to tell you if I'm right on this one)
Monisch - when they did your BP, did they do it lying, then sitting , then standing. If they did it would rule out what Luah is experiencing. If it doesn't stop I'd call your MO for further evaluation.
Desertmama - I've crossed off your location on my "places to visit" list. With those kind of archaic rules, I"m surprised that there aren't lots of people saying f*#k!!!
Cocker - still holding your hand.0 -
Just want to say hi to all you strong ladies out there.
Sending peaceful calming thoughts to you all that need them - which I think is most of us
0 -
Yes, tazzy...you're on the right track! Calming thoughts and good ju-ju all around!
0 -
Luah and Kathyrn Thanks for your info on bone scans. That gives me some peace knowing my bones have been looked at.
Still feeling so sad for our lost sisters, for our sisters learning new troubles, for Cocker and her daughter, for momtobe. Trying not to curl up and pull blanket over my head. Well, it's too hot for that. One foot in front of other. I need to get a life. Living in the mountains limits my everyday encounters with people. Poor DH.
Jan
0 -
Jan - I agree with Kathy about the PET showing your bones. I can see my skeletal structure with one of the views.
If you're having a PET, get a copy of the CD and pop it in your computer. Then take a look at the different things you can see - it's really quite fascinating. The files are "read only" so you can't mess them up.
Good ju-ju...I like that!
0 -
Ladies - Got an answer on the Blue Tongue.... Infection. No Fever, just a Blue Tongue and sore throat. Just wanted to share, might help someone some day?.
Wishing you all a peaceful night.0 -
Good evening ladies - I like the calm Tazzy is sending out! I need to chill out tonight and catch up on my sleep this weekend. 2.5 weeks of rads and by Friday I am worn out!
Hope everyone enjoys their evening!
0 -
Bernie-Too funny!
KS-Congrats!
Luv-So sorry about the progression. Glad you have family and fun to help keep your mind off of it. Hoping the next round kicks a$$.
Inmate-I know what you mean about the tattoos! I did the same thing to 2 of my friends, we went to get tattoos and I chickened out! Couldn't decide what to get or where to put it. Great picture!
Jan-I don't know why my doc did both the pet/ct and bone scan, but I do know he likes to scan a lot! I think i have had just about every type of scan. Unfortunately now my insurance seems to think I am fine and has denied bone scan and pet scan, and ct scan. But, thanks to the persistence of my doc's office, the insurance finally said I can do a ct scan anytime, after saying they would not pay. It seems like it depends on who you talk to!
I am also so sad about Becky. Thinking of LJ, Suze, MBJ, Jenn, Blondelawyer and Becky makes me so sad and angry. Sometimes I feel so down and hopeless. I was originally diagnosed at a later stage then all of these gals. I am terrified of scans and sometimes think what is the use? Most of these gals were being watched very closely, and like many docs believe, it does not seem to make a difference if you find mets early or not, as either the treatment is going to work or it is not. So sorry to be such a downer lately. I think it is because it is time for my scans, and now the waiting has been prolonged because of insurance issues, so then I think I will just skip the ct that they will approve. Well, I better go do some yard work...
0 -
Thank you all so much for the sweet comments!
Luv (((hugs))))
Praying for all you sweet ladies and hoping someday soon we are ALL NED!!!
0 -
The difference in scan preferences depending on the MO is beyond my understanding. It is strange that two women can have the same diagnosis with two different MOs and the treatment/monitoring is COMPLETELY different! I'm doing everything I can to convince my MO to do a CT/PET to settle my mind about some issues and others get more scans than they do breaths in a day. It is so bizarre!
Have a fabulous weekend everyone! Let's enjoy every second as much as possible in memory of our sisters lost. God bless...0 -
...and KS - Congratulations! Woot! NED! You go on with your cancer-free self!!!
0 -
Day #11 of chemo. It was a great day. Peace to you all. My next milestone is hairloss.
0 -
Fern....how's the itchy rash? Is it getting better?
Jazzt.....I'm still confused. What was up with the blue tongue?
desertmama....i'm with Kathy. You'll just have to come stateside for a BCO meetup. We may all just get thrown in the slammer.
I seem to have developed a cough since yesterday. Hoping it's the A/C irritating my throat. I will talk to Dr K about it on Monday.
Have a great night ladies. Love to you all!
0 -
Mccrimmon.......thanks for checking in. definitely have missed you. have a great visit home. yeah that it isn't too long before your family is back together again. big smile!
0 -
Inmate - I will send you happy thoughts & good ju-ju that it is only minor throat irritation & that it goes away quickly!
0 -
Hey everyone...bad week on here .....yes....but we had some good news too....Karen being Ned...thats a good thing...ladies going through chemo with blue tongues...but surviving it nonetheless.
I dunno...we do what we have to do and hope for the best...we support each other in good times and bad....I don't know what I would do without all of you...amazed at all the caring that goes on here...
Inmate...loved the pic...ha ha...that pic is you loving your life...(and the bil seems to be enjoying himself also).
Ok...ladies...get your thighs ready for some clapping..I'm doing another 5K next Saturday.....this one isn't for cancer but for the United Way...my company sponsors the whole thing and I ended up being the team Captain..by default...so here we go....I think about Laura, Mary and Suze now I will think about Becky, Lisa and Jenn...you just can't imagine how thinking of them makes me try even harder....I really do feel them with me...maybe that is weird but it is the truth.
0 -
Inmate - I usually have a sore throat with A/C, but I woke up yesterday with a blue tongue! The top was Blue and the bottom was blue with red blood vessels. I was concerned that it has something to do with my "alert low" WBC, but the MO determined that I have an infection and called in Antibiotics. Was doing really well until this week. Feel like cr@p, but will get through it.
Hugs to all.0 -
Titan - Thighs clapping! Good luck with the 5k. You run girl!
0 -
Thanks all. I've completed a whole week of work (except 3 hours to go to doc on tuesday). Worst S/E was/is the itch/rash which is well maintained on prednisone. Other S/E's are a bit of metal mouth with the steroid pre-chemo; red flushed face as if I've been in the sun; drippy nose a bit. NOT BAD.
Today is DAY #11 - so you know what that means . . . I'm losing my hair this coming week. (I'm vocalizing that in Bruce the Shark's voice from Finding Nemo)
I have a picture of my pre-falling out hair cut - but can't figure out how to load it - so someone will have to help me with figuring that out. I also had my hubby take pictures of my pre-bi-lat-mastectomy, and NOW I CAN'T FIND IT - I was going to be very brave and show you all my "pre" and "post" flat chest (both pre and post are actually quite similar - total weight loss of breast tissue was 1.6 pounds
). Anyway, I've been "flying high" on prednisone; yesterday I was "traveling at ludicrous speed" -- today slowed down a bit to "warp speed" at work. I am so blessed to be able to work, feel relatively normal (the definition of normal "for me" may be a bit off . . . ), enjoy work and my hubby, and the beautiful weather this evening. All around good week. Grace and peace and comfort and SLEEP to you all (I'm taking my sleeping pill now!)
0 -
titan......my thighs clap every day for you. or is it in your honor? okay, that sounds creepy......for you sounds a little less creepy. the girls, all of you girls are never far from my mind. i am constantly amazed and in awe of your strength and caring.
ok Jazzy.....a blue tongue is the most unique se I've ever heard of. good for you for being so different
love to you all!
0 -
Clapping them thighs Titan... way to go.
0 -
Hi Ladies. I'm back to the land of the living.
Tookybun - so glad to hear your first treatment is over. Hope all goes well for your next ones.
Melissa119 - Great that you are on your last AC. Hoping taxol is easier for you. Enjoy your break from here and come back when you can.
Inmate - sorry youre having trouble with your sister. There is nothing worse than a liar or a thief in my book because you can never trust either and its even worse when its your sister. Glad you were able to sort it out with minimum stress for you. Your pics are just great. You look wonderful in them. How is baby Baker? Talking of tattoo's don't forget the two I am going to get on my butt cheeks .........some day. Love the pic of you and your sister, I hope he is her husband with his hand where it is !!!!
Riley702 - what a day you had with your friend and the burglary. Well they always say what goes around comes around so hopefully the rotten sods will get theirs some day. Just love your smiley group hug. One back at you.
Babs37 - yes it is hard on here when a friend passes and we feel so much sadness for their families but we do have some fun days too to help us over that thankfully and there are more of them than sad days. You are right when you say it gets better with time.
Tazzy - hope all went well with your surgery. Crying doesn't make you weak love, after crying we are somehow always able to pick ourselves up and carry on. I am a lot more emotional since having cancer but we get there. You will soon be back to our cheerful Tazzy.
Fern - I got a lot of itchy rashes with chemo and taxol. Nearly made me crazy and kept me up all night. So glad you are getting on top of it and you had a great day with your friends.
Maggie - great news that your son and his wife are working through their issues with no divorce. Will be hard but at least they are both willing to try so they are half way there already. I'm sure they will pull through together and come out a lot stronger.
Jan69 - great news and congratulations on being 1½ yrs NED. I hope I make that too. You are right a group hug always helps.
Bak94 - can I get off the train with you and Jan too. The thought of a recurrence after rads does nothing but go around and around in my brain and the thought of what will happen to me next - very frightening.
Bernie - great joke about the chicken.
Luv - thinking of you heaps and so glad that you are enjoying your time with the grandchildren. Such crap news. I hope they come up with a sure fire trial. I know you will beat this, you are always so positive.
Christina19 - I use my absent mindedness quite a lot with my family. Comes in handy if I have forgotten to do something for them.
Heather - glad you checked in. You was a long time away. Glad you are going to visit hubby and the babies. How is your new job going?
KSmatthews - Congratulations. Wonderful words NED. Just what we needed to hear.
Titan - you go girl - again. Hope you have been keeping up with your training. Don't worry we will be clapping our thighs. The next thing you know you will be in the next olympics. Wouldn't that be great. I know you could do it!!
Well Monday is nearly here and we might find out some more info on my Mandy. I have been praying a lot. So please hold her hand on Monday at 4.15pm.
I can never wait to get home from the lodge even though I have made many friends there now. It is a lovely place but just not like home. I rush to my treatment on a Friday so that I can get on the road early. I'm still getting into trouble from the battleaxe for leaving a door open when I nip out for a ciggie. I'm beginning to think she is quite miserable, the old bat. The dinners are ok but not as good as my old fellars. The cafe is doing good and he is enjoying it. He's got so many people to chat to now and my other daughter Cindy said they haven't had one arguement yet - wonders will never cease to happen lol.
We were all at dinner last night and my old fellar had a fluffy dice that he kept in the car but was somehow in the house. When we had finished dinner my daughter looked under the table and there was all these black felt dots all over the floor. The little shit (Chloe) had somehow got the dice and bitten off all the dots whilst we were eating. Couldn't help but laugh so to get her back I bathed her today. (She don't like a bath, luckily). That will teach her.
Sending warm hugs to everyone and hoping you will have a good day. Annie
0 -
A man walks into a bar with an ostrich and a cat and sits at the bar. The bartender walks over to them and says, "What can I get for you?"
The man says "I'll have a beer", the ostrich says, "I'll have a beer", and the cat says, "I'll have half a beer and I'm not buying." So the bartender says, "OK, that will be $3.87."
The man reaches into his pocket and brings out the exact change and pays him. About an hour later the bartender goes back over to them and says, "What'll you guys have?"
The man says, "I'll have a beer", the ostrich says, "I'll have a beer", and the cat says "I'll have half a beer and I'm not buying." The bartender gets them their beer and says "That'll be $3.87."
The man reaches into his pocket and brings out the exact change and pays him. A couple of days later they come back into the bar and the bartender walks over and asks "What do you guys want today?"
The man says, "I'll have a scotch", the ostrich says, "I'll have a bourbon", and the cat says, "I'll have half a beer and I'm not buying." So the bartender says "OK, that will be $7.53." The man reaches into his pocket and brings out the exact change and pays him.
The bartender's curiosity got the best of him and he asks, "Why is it that every time I tell you the amount you owe you always have the exact change in you pocket?"
The man said, "I found a bottle with a genie in it and she granted me 3 wishes. My first wish was that I always have the exact change in my pocket for anything I buy."
The bartender says, "That's a great wish...better than asking for a million dollars. A million dollars will run out but that never will. What were your other 2 wishes?"
The man says, "That's where I screwed up. I asked for a chick with long legs and a tight p***y."0 -
Hello ladies. Haven't been here in months, too busy enjoying life (sailing, traveling, carriage driving... in otherwords... the usual!) and putting cancer behind me. Nonetheless, thought today warranted a peek in here. THREE YEARS TODAY!
Sadly, I also checked the Angel's List and saw where two more have passed. I read blondelawyers blog.... widowed/diagnosed/died.... all by 33 years old. Incredibly sad stuff.
I feel lucky to be here. Don't forget to feel the breeze on your faces, smell the fragrances of life, and touch something you love. Every day.
0 -
Heidi - congratulations on three years! Yes, Blondelawyer, Jenn3 and Becaad are all now angels. So sad and does make us appreciate today!
0 -
Heidi, CONGRATULATIONS! I remember what the doctor told me about three years being a very good sign. I'm glad you stopped by - I was thinking about you yesterday and figured you had been traveling and carriage riding. Please pop by and post pictures when you have a chance. I know the new girls would also love to see pics of the horses and Boston pups. They always put a smile on my face!
0 -
Fern.....can't wait to see the pics. I use tinypic to host my photos then cut and paste the address into this message using the tree icon.
Heidi......big congrats to you! Yes, please, when you have time from your busy schedule, indulge us with some pics. Don't forget to include McFry (?) Did I get that right?
Cocker.....that old bat may just miss you the most when you leave. I think you give her some purpose. Perhaps a nice big smile and hug when you leave should throw her off her surly game. So glad to hear about the old fellers cafe. Hmmmmm, just makes me hungry thinking about it.
have a wonderful day everyone!
Love to you all!
0 -
Yay Heidi! glad you are living life and well!
0 -
Heidi, thanks for checking in it is nice to see we can make it 3 years.....
0
