Calling all TNs
Comments
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Lory~ Love the video and song...thank you for lifting me up today
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We all need things like this to help keep us fighting.. We are after all Warriors!!
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Adding my thanks, for the video -- I send an email update to family and friends about every two to three weeks and will be including it in my next update. It made me smile.
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Thanks Lory.... was needed Off to the BS this afternoon for post op follow up. Has path report so keeping everything crossed to hear him say Clear Margins/NED. 0
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wow.. Kim that was very moving.... thank you for sharing that with all of us. I dont know what to say ...im at a loss for words.... just thank you is what i can come up with. God bless you....
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I love the vidio, made my day, was feeling sorry for my self, it picked me right up.
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Lory48 is there a way to send that vidio to me in email so i can play it when i need it, My email is thbxldy@yahoo.com. I would like to put it on my little recorder for my worst days.0
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Thanks Lory for the amazing video. I do love that song and what a great way to do it. That young girl is so brave.
Thanks Ladies for the stomach advice. I've been done chemo for 4 months now but my stomach still acts up every so often. It was SO bad on the metformin (trial) that I had to stop the drug for a week and I had no issues. I've had a few bad stomach moments since restarting but nothing like before. I think I might keep a food journal so I can pinpoint better what sets me off.
Had a great workout with my DH today and soon going to prepare dinner for friends who're coming over tonight. Tomorrow I am off to Buffalo with my bestie for a night away and shopping trip. Love to you all xo
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Tazzy - I hope everything goes well at the BS today!!! Holding your hand...
Lory - can't wait to get on my desktop to play the song. I could use a little pick me up.0 -
On it's wa DG.. hope it works
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Dawn - thinking of you - hoping you and your MO are coming up with the plan that kicks ass! Positive vibes headed your way.
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Lory - love the video! thanks for sharing!
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Tazzy-Fingers crossed by good report from BS today.
Born & others - I never considered my GERD (heart burn) was a SE of chemo, but after reading here, I'm guessing it must be! Back to Prilosec, after trying to tough it out with just Pepcid. Glad you brought it up.
Still concerned for Inmate.
Luv - Thinking about you, Luv, and your new regimen. Best wishes that this time it's a winner. Where do you go in Hawaii? I've spent a lot of time in Kauai, in fact was last there in January. Oh those islands are heaven.
Annie, I'm concerned about you, too. And your dear Mandy. Think of you often.
I finally got up the courage to call BS to get "surviving" breast removed. As far as I know, it has no problems, I just want to go flat on both sides! Hate those forms and bras. Appointment is next week.
Hoping all of you find some joy today. Jan
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My good thing today-I went to Costco. I was able to do major shopping, including a big bad of dog food. I loaded everything into my car and then into my house. Why is this my good thing? Because it seems a short few months ago I went to Costco to get dog food only and I was so weak I had to have help getting it into my car! I cried on that day, as I was so discouraged that I was so weak from chemo. Now I am getting closer to being back to my old self, still have a ways to go, but much better than I was.
Oh, my good thing yesterday, my sister got a job!!!!! WhooooHoooooooooo!
I am starting to have bad leg cramps at night, must be the tamoxifen:( I have my ct scan next week. Double
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Inmate-I miss you!
Hope-How is your treatment going? Thinking of you!
To all the ladies with avatar pictures of themselves-you are all so beautiful! What great photos! Borntosurvive-love the pose!
Kim-Thank you for your message. Suze was such a special person and will never be forgotten. She was very lucky to have a friend like you, as I am sure you felt very lucky to have a friend like her!
Lory-I haven't checked out the video but I will!
Tazzy-I hope you get a great report!!
Sending love to you all!
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BAK-- great job!! I remember those days of going to costco and having to leave DH to finish. Sending prayers of a clear CT.. But I feel ya.. I have my first mammo since this whole ride started nearly a year ago..
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Oh...wow...loved that video...I'm in tears dang it....dang...I hate cancer
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Hello ladies! You all have been busy bees today while I was off visiting my mom, getting a mani/pedi and babysitting the grandkids. I now have the oldest one here with me for the night and we are going to the beach tomorrow.
I am still feeling absolutely fine! Crazy, this disease. I did get a call from the Dana Farber clinical trial nurse this afternoon and ARQ-197 is now officially open. I will be one of 26 in the USA to get the drug in a clinical trial specific to metastatic triple negative cancer. The drug has been tested extensively and successfully with lung and liver cancer, so I am very hopeful. I will have all the pre-testing (EKG, CAT, labs, etc) on Friday, then next Friday will be "day one" of the trial, assuming I pass muster. I can't imagine why I wouldn't, so I'm not even considering the possibility.
For those of you with GERD or other digestive issues with chemo, here's what I learned...prilosec works great for AC but you need Pepcid for Taxol (and probably Taxotere). The two antacids work on different acid producers so prilosec won't work for Taxol. And while I don't know it for a fact, I think that Pepcid won't work so well with AC. Talk to your oncologist and make sure you're taking the right one.0 -
Well ladies I have good news... the surgeon got all the cancer (he believes)... took 10 nodes, 3 of which were positive. Now onto rads. I will have to leave you all though as the path report came back that I am ER positive. How can it change from 8 months ago ??? Anyway it has and that is that. I get my drains out tomorrow too which Iam really looking forward to. Chemo worked excellently... shrunk my tumour from 8+cm to 1.5cm.
I will have to look into now and again as I want to know how Annie and Mandy are... any news yet Annie, and Inmate. and.... well all of you who I dont see on other threads. I love you all.
I wish each and every one of you positive news such as mine. One day at a time eh?
Positive vibes out to you all ladies xxxxxxxxxxxxxxxx
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Luv, I am glad you are feeling good - I've been reading up on this clinical trial drug and it looks very promising. Enjoy your day at the beach with your grandson. I can't think of a better place to be than the beach - almost any beach! The weather has been beautiful here in Tennessee. We usually go to Jekyll Island, GA.
Bak, I get the muscle cramps from the tamoxifen, too. I've been on it since March and it seems like the worst time for the muscle cramps was about a month ago. My onc said the side effects usually peak around six months. To help with the "crone shuffle" (someone on this board coined that phrase and I love it!), I aggressively stretch my calves in bed before my feet hit the floor in the morning. Wishing you the best on your scan.
The best thing for me today was walking and jogging with my daughter. I am so fortunate to have the relationship with her that I have. I was a very young mother and sometimes I think overall that was a good thing because we are very close. We work together and she sees probably too much of me - so it meant a lot that she wanted to spend time with me exercising after work today. Every moment like that is sweet; I've definitely learned that lesson through all this.
Tazzy, that is great news! Do you know what level ER+ you are? Mine changed, too - but still very low levels (5-10%) and my PR is -. My onc thought it mutated in response to the chemo.
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Luv - All this GERD stuff is strarting to make even more sense. I had AC and Taxotere last summer and I never considered that that could be the source of my severe GERD. What a wonderful bit of information. And what an education I'm getting. So happy you are feeling so well. Being with grandchildren is wonderful medicine, I know for a fact. And it's fantastic that you are in the study. Enjoy the beach. Jan
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Woot woot Tazzy!!! I'm so happy to hear your positive news!
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Luv so glad you get to start the trial soon! Yay!!!
For gerd my dr has prescribed protonix it is prescription but only like $3 a month for 30 days. It works wonderful as long as you take it once a day. For cramps mine started arouund the 8 month mark after chemo and I learned as long as I eat bananas that the cramps stay away.
Tazzy you don't have to leave us, you are welcome to still hang out and chat!
Inmate was popping in to check on you. (((hugs)))
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Tazzy - I agree with everyone, you can't ditch us that easily!!!
Jan - glad that tidbit of info helped.
Going to the beach today with DGS #1, will be a great day! See you all later!!!
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Goood news for you Tazzy! Bad news for us if you leave us!
Have a great day every one.
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Luv: Great news on the trial - it sounds very promising!
Tazzy: Good to hear the chemo knocked back the tumour so well -- and the ER+? That's great news as you now have another weapon! Interesting that the chemo may have changed it - may be another argument for neoadjuvent chemo. Do hope you'll continue to post here.
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Good morning Ladies and thank you for letting me be part of your group still - I will for sure be happy to hang out here with you all and chat.
Luah... I am going to ask my MO when I see her in October if the neoadjuvant chemo changed my ER status... the surgeon didn't really seem to know for sure, but said maybe ??? I guess all these people have their specialities.
Anyway.... for today... the sun is shining brighter and everything around me seems a little bit more special
(((inmate)))
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Inmate, sorry you're not feeling so hot. When I told my rads onc how fatigued I was all the time, he recommended sublingual vitamin B12. I gives me a little more energy and it's healthy. Just a thought. Hope things are looking brighter today!
LuvRVing, awesome to hear about you getting into the trial! Can't wait to hear how it goes!
Tazzy, how ER+ are you now? This time around I'm 1% er+ as opposed to 0% three years ago. But they're considering that enough to put me on Letrozole! I started it this week, so far no side effects... And I know it's kind of iffy, but I also started some vaginal suppositories with phytoestrogens. Everyone's saying it will only be absorbed locally, not systemically... I sure hope they're right! I just could not STAND any longer the extreme pain from peeing I was having from all the chemo-induced vaginal atrophy. Lordy, I could barely walk, never mind anything else!
I've also started my Metformin this week, taking it slow... I am taking so many drugs and supplements my purse weight like 25 pounds
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Dear Wife, I'm writing you this letter to tell you that I'm leaving you forever. I've been a good man to you for 7 years & I have nothing to show for it. These last 2 weeks have been hell. ... Your boss called to tell me that you quit your job today & that was the last straw. Last week, you came home & didn't even notice I had a new haircut, had cooked your favourite meal & even wore a brand new pair of silk boxers. You ate in 2 minutes, & went straight to sleep after watching all of your soaps. You don't tell me you love me anymore; you don't want sex or anything that connects us as husband & wife. Either you are cheating on me or you don't love me anymore; whatever the case, I'm gone.
Your EX-Husband
P.S. don't try to find me. Your SISTER & I are moving away to West Virginia together! Have a great life! --Dear Ex-Husband Nothing has made my day more than receiving your letter. It's true you & I have been married for 7 years, although a good man is a far cry from what you've been. I watch my soaps so much because they drown out your constant whining & griping. I DID notice when you got a hair cut last week, but the first thing that came to mind was ‘You look just like a girl!' Since my mother raised me not to say anything if you can't say something nice, I didn't comment. And when you cooked my favourite meal, you must have gotten me confused with MY SISTER, because I stopped eating pork 7 years ago. About those new silk boxers: I turned away from you because the $49.99 price tag was still on them, & I prayed it was a coincidence that my sister had just borrowed $50 from me that morning.
After all of this, I still loved you & felt we could work it out. So when I hit the lotto for 10 million dollars, I quit my job & bought us 2 tickets to Jamaica but when I got home you were gone. Everything happens for a reason, I guess. I hope you have the fulfilling life you always wanted. My lawyer said that the letter you wrote ensures you won't get a dime from me. So take care.
Your Ex-Wife, Rich As Hell & Free!
P.S. I don't know if I ever told you this, but my sister Carla was born Carl. I hope that's not a problem0 -
Good one Bernie! 0
