Calling all TNs
Comments
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such wonderful news Annie - so happy for you all.
(((((inmate))))))
Weather here in the Okanagan is beautiful today.
Wishing you all wonderful happy days even though I haven't responded to you all.
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Tazzy....yeah for no more drains and finishing. Don't go anywhere. just wouldn't be the sam ewithout you.
Cocker.......Ugh! I tell you this cancer thing sure has turned me into an intolerant b**ch for stupid people or just plain rude people. One of these days I think you ladies will all be reading about me in some news article about road rage or just a general smack down of unruly street teenagers. Mostly I just wan to say, "Where is your mother?". Sadly, I don't think finding their mother and tattling on them would do much good. So, good for you Annie, for standing our ground. Sorry you still have o go back and finish up. The party sounded very nice!
Well Ladies, I received a very sweet phone message from Wrenwood on Sunday. Unfortunately I was too busy to answer but would love to have talked "real time" with one of my sisters. That was so sweet and meant a lot to me to know that you all have been thinking of me and so worried that you tracked me down. Thank you all from the bottom of my heart!
I have been really struggling with fatigue. Still trying to maintain a schedule and helping out at my friends stores, but I see that is going to have to change. I literally come home and fall into bed. Someone mentioned earlier about neglecting housework. I have been neglecting everything and it's starting to get to me. My pain is the worst I have felt throughout my 2 1/2 years on treatment. I cough constantly. Still waiting on my schedule for the trial. I swear I can feel he cancer moving around. Hopefully that's just in my head. Oh and I can't seem to get out of my head with this stage 4 diagnosis. It's all about getting things done while I have time. Imagining my funeral. These thoughts are no helping. I know once I get started on treatment again, I will be able to get my groove back. Not a patient person.
I'm so glad to have read some good news for you ladies and love you all dearly. Sorry to worry you all. Just know if I'm not posting I'm sleeping these days.
Love to you all.................dawn
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Luv - Hope you're busy winning big!
Cocker - congrats on finishing rads, and WoooHooo on Mandy's results. I'm with TifJ, God doesn't collect on "Mother's Love" bargains. I was laughing at your comment on dinner. Reminded me of one time when my parents were feuding. Dad came home and asked what was for dinner. Mom answered "shit". Dad immediately replied, "only cook half as much, I'm not hungry".
Bernie - great laughs.
Born - take lots of Kleenex and pictures.
Christina - if you ever get to Old Orchard Beach, don't plan on swimming much. It's like trying to swim in ice cubes. Your body goes immediately numb and it never gets better.
Tookybum - can't see the picture, but I'm sure you look beautiful.
Jan - damn, now I'm hungry.
Tazzy - ((smooch))
Minxie - glad to hear you're doing so well and having fun.
Inmate - ((smooch)) we were worried. If you're to tired to post much, just post "hanging in there", so we know you're ok. *firmly kicks trial people in the ass* , there, maybe that will get them moving!
Anyone here have problems with fatigue coming back after tx? I'm 5 months post rads, but the last few weeks I've been more tired than I was during tx. I'm hoping it's just old age sneaking up on me.0 -
Dawn - A sigh of relief coming from here. I've been so concerned about you. Your lack of patience should serve you well. Get on your doctors' cases to get treatment going! I hope you know we are pulling for you.
Joy to all, Jan
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Inmate, So happy to hear from you. I hope calling you wasn't an intrusion...BAK and I just felt everyone needed to how you were. I agree with Kathrynn post anything, just so we know you are okay.
Sorry you are going thru this hell and hope the trial starts soon...what are they waiting for? Going to the "dark side" is not healthy but we all go there...can you talk to your MO about the pain?
As always, you are foremost in my thoughts.0 -
Dawn - glad you checked in!
Bernie - thanks for the laughs.
Tookybum - I hope you are able to get some relief from the itching soon.0 -
Dawn - so glad to hear from you, but sorry you are having such a difficult time. I'm going to PM you, I have some ideas that might help. This Stage IV thing really sucks, but please check out the Stage IV forum. There are some wonderful people there, lots of support, lots of ideas for dealing with difficult issues.
Kathy - we are leaving tomorrow morning for Atlantic City and will leave there early Friday morning so I can make a 2:30 appointment at Dana Farber in Boston. I am so glad they changed my appointment, it was originally scheduled for 8:15 a.m. and that was just not going to happen. So next Friday is Day 1 of my clinical trial. I am very happy to get this show on the road!
Annie - congrats on finishing rads, and big sigh of relief for your DD, so glad that all is well! And as always, thanks to you and Bernie_Ellen for the chuckles!
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Inmate- here's to getting your groove back soon!
Cocker - yea to finishing rads and a double woohoo that your daughter is ok!
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Inmate-Yay! So glad to hear from you. So very sorry you are so fatigued. I really mean it when I ask if I can do anything for you. I will pm my number.
Kathy-I am also about 5 months post rads. Even though I am much better and can do much more than I could during treatment, I am still frustrated by how much I can't do. My hubby doesn't seem to get it. We have been doing a major clear out of stuff from our house and I have to rest every hour or so, it is taking me much longer than I thought it would. I am thinking about asking for them to do another muga scan or some heart workup on me, because of how much adriamycin I have had. I sweat a lot, thought it was hot flashes but am worried now that it might be my heart. No pain, just tiredness.
Maybe we should do a triple negative private list with emails and numbers, what does everybody think? I am on facebook if anyone wants to friend me. I do belong to the triple neg. facebook group also. I don't post much there, but do check in.
Count down to scans. I am not even sure what they are scanning! It is a ct, do they do full body ct's? I am sure I will at least have my chest and liver scanned. I have been so stressed out about this, makes me grumpy and I can't sleep at night. I have also been eating bad and gained more weight. I need to lose weight and I keep saying I will start after my scans.
Thanks for listening.
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Oh yeah-Congrats CS!!!!!!!!!
Ok, now back to organizing:(
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I am happy dancing for you Cocker...soooo happy for you for finishing rads and soooo happy that you Daughter is OK!!!
Inmate--we love you back and will be here with you everystep.
sorry to all you ladies in the middle of tx...you can do this...stay strong and just think you will be done soon.
Tomorrow I get a basal cell removed from my back...glad it was not melanoma but not looking forward to another procedure.
To anyone is the Gulf states...stay safe and may Isaac be kind to you
Maggie
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Good idea about a contact list. I'm on facebook as well.
Big loving hug for inmate - stay strong girl.
Love to you all
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Hi Ladies
Kathy - you make me laugh every time. I can just imagine your dad saying that to your mum lol. I think your tiredness is from too many late nights at the casino or may be you are doing something else behind my back with your time!!
Bak94 - I'm in favour of a private list. How do I find you on Facebook. Hoping your scan goes ok for you.
Borntosurvi - can just imagine your excited litte lad going to big school. Long time ago, but I still remember those wonderful days. I used to love the school holidays so I would have the girls home again and we could do things together. Oh to go back to them days.
Yep your right about the bursts. The trouble is those bursts don't get him bursting much.
Minxie - glad you have your old energy back with all that housework but save some time for you as well.
Tookybum - unable to see your photo but I'm sure you look wonderful in it.
Karen - I love the 15 mins of housework and then resting for 30 mins. My kind of action.
Luv - how do you find the energy for all of your outings. I was going to do so much today and ended up doing nothing. Mind you thats probably normal for me lol.
Christina - 15 km. I couldn't do 1km. You go girl.
Inmate - try not to overdo it at your friends store. Save all your energy for when your trial starts. I have never read it but have the doctors actually said you are Stage 4?
Jan69 - your mountain home with its beautiful weather sounds wonderful and idylic. Luckily we have just come into spring so our weather is getting a bit better now thank goodness and hopefully we will get some warm sun soon.
Mags - sorry you have to go through another procedure but at least a BCC does not spread. Will be thinking of you tomorrow.
Tazzy - how are you doing after your surgery. Hope everything is going well for you. Don't forget you are not alowed to go to another site lol.
Lovelyface - haven't heard from you for a while. Hope you are doing ok.
Well ladies all I have got to do tomorrow apart from housework is get my port flushed. I haven't heard when I will be getting it out yet so still have to go and get it done.
Have a good night. Thinking of all of you still going through treatment and sending big hugs. Annie.
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Inmate: thanks for checking in. We were all worried and wondering about you. Stay strong and get lots of rest.
I am also on facebook and would be more then happy to connect that way too.
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Hi ladies - I haven't posted much in a while. Just been feeling low, mood-wise, and didn't want to bring you all down. But I 'm coming out of hiding for 2 shout outs....
Cocker - Congrats on finishing rads, and great news about Mandy!
Inmate - Thanks so much for checking in!
Hugs to all....
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Ladies amazing news...went in expecting biopsy and the doctor doing the ultrasound said that what was showing on MRI and us were normal lymph nodes...I got the all clear on the left breast!!! Yay!! Thanks for thinking of me!!
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Yay, Steph!!!
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Cocker: great news on finishing rads... and your daughter's benign outcome.
Inmate: Great to hear from you. Sorry to hear you're in such pain and fatigue... hope that trial gets going, like, yesterday!
5owens: What a relief. Those crazy MRIs... grrrr, but at least you know all's well on that front!
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5owens- GREAT NEWS!!!!
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Annie - Yes, our home and surroundings are beautiful. I often stroll around the property and marvel that I live here. I can't imagine living any where else. There is a down side to this paradise: fire. Yesterday the wind blew in thick smoke and an internet report said the fire was about 3 miles away! DH and I started talking about what we should load up in the cars if necessary. The wind was strong, smoke was thick, water dropping planes were buzzing overhead. Turns out the fire was near a road that firefighters could get to easily and they contained it quickly. Bless those firefighters, they risk their lives for ours. Sigh.
Find some joy today dear friends Jan
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Inmate.... glad you are nothing more than tired - thanks for letting us all know.
Cocker - surgery OK - still very tender and sore under my arm, Seeing a LE PT specialist next Wednesday. Doing my daily exercises. I am not a very patient person so really 3 and half weeks out of surgery I feel I should be back to normal - ha ha ! and tired, get tired so easily. How did you find rads.... that's next on my list.
Want you to know that I am thinking of you all even though I haven't responded. Wishing you all sunshine and happiness in your days.
Peace and Love xxx
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Hi ladies, my mom wanted me to ask you all a question, (I don't think I'll ever get her to join here). Her eyelashes and eyebrows have all fallen out, after finishing treatment 6 weeks ago. I told her I was pretty sure it was normal because I remember her Onc. telling her the chemo would be in her system for at least 4 weeks after finishing. But...she's stubborn and still wanted me to ask
Thanks a lot! Hope everyone is well!0 -
My last taxotere chemo was June 22... .still no sign of lashes... brows just coming back, but hardly. Sorry its not better news. Apparently lashes are the last things to return - least that is what I have been told.
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LNBCA- If I remember correctly, my eyelashes and eyebrows fell 5/6 weeks after my last Taxol, right after my mastectomy. It's weird because my hair started to grow back on Taxol and I kept most of my lashes/brows all through it too. At least I kept the hair!
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Thank you, I'll let her know it's normal
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Good Morning Ladies
Hope - you will not bring us down. We are all here for you as you are for us. Sending you a great big hug to hope you feel better soon.
Steph - wonderful news. Nothing beats - all clear. Congratulations.
Luah - great to hear from you. Have missed your little posts.
Jan69 - what would we do without those wonderful firefighters. It seems such a terrrible shame that fire and smoke could mar your beautiful surroundings.
Tazzy - Rads was a breeze for me, so much so that I wondered whether it was working. Had no problems whatsoever and it was only on the fifth week that I started to get a little bit pink. I had no tiredness and still don't. The oncologist did say that rads continue to work for 7-14 days after and I might go more red or blister but so far so good. Hoping it will be a breeze for you too.
Ladies I have the 'what ifs' today. What if it comes back, when, how. It seems like if I try and plan something or get excited about something coming up there is always a cloud hanging over it. Did you feel like this. I know I should be happy and planning forward but I'm finding it very hard to do for fear that something will go wrong. My thoughts seem to be a jumbled up mess at the moment and I can't seem to shift them.
Happy, stress free day for everyone. Annie
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Thats great news Cocker on the rads.... and as for the What If's.... I always say "What IF my aunt had balls, she'd be my Uncle'
((((Hugs to everyone))))
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Taz you are a scream. Don't ever leave this site or I will hunt you down.
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it is so hard to keep with all the post and who said what, I wish they had a "like" botton on here!
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cocker...oh yes...the "What ifs" all of us have them...regardless of where we are in our treatment. I get them all the time. Like after I enjoy a meal with all the things I should not eat...wondering if I just made it come back. It is so normal to have these feelings. It is much like a roller coaster ride with it's ups and downs. Rest assured that as more time passes and you begin to celebrate those milestones (1 yr 2 yrs out etc) your thought of the "what ifs" will be less and less and you will be back to living.
had the basal cell cut off my back today. Numbness has worn off and just a tiny bit sore but nothing compared to what we have all had to endure eh? Piece of cake--chocolate cake that is HAHA..crap now I want chocolate cake...or cookies...or something sweet...or wine...see never crave what is good for me.
Maggie
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