Calling all TNs
Comments
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Tazzy- YEAH!!
I concur with everyone else. What you are going through will difinitely help someone else down the road. Plus we like to stay in contact and track each others progress, and provide support to those that need it. So post and let us know how you are doing. If memory serves me right I think we have had two other ladies that turned positive after tx.
Minxie- let us know how Metformin is working for you. I have completed my first full year on the study. The study nurse said that my bloodwork looked normal, but would not give me any other info other than to keep my iron up. She's so sweet though. If I can answer any question please ask.
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Hello Ladies; Stopping in to say hi. I had to take a little break to get my emotions in check. I was really having a very hard time with the loss of three sisters so very close together. Even though I did not know them personally it was making this f@#*ing disease to very real. Glad to see everyone is doing well. Had my second treatment last week. Gave myself the Neulasta shot for the first time and shaved my head. It was all falling out and making a total mess anyway. Didn't bounce back quiet as well as the first. Really acted like a giant lump most of the weekend. Even felt pretty crappy at work on Monday. But better now. Looking forward to going back to school shopping with my 7 year old. He can be quite a fashionista when he wants.
Love you all. Stay strong.
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yay... my drains are gone - what a relief. I feel like a new person
Hang in there tooky... great you have your son as a distraction from this crap. Hang in there with the tx - chemo works.... zapped my tumour from 8+cm to 1.5cm.
Take care everyone, hope you manage to find some sunshine in your life today.
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Hi fellow TN's,
I am 16 days post 4DD xAC and I can't seem to get it together. No energy, blurry vision, achy and feeling down. Usually by this time I have a few good days but am struggling.
Taxol starts on Tuesday, geez.. Anyone else experience this after AC? Could it be low WBC as I have not had Neulasta for any treatment? Thanks.
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Tazzy you stay put missy....that old expression 2 out of 3 ain't bad applies here for you!
Inmate...hope today was a better day for you...love and hugs
Tooky we all understand the need to take a step back once in a while and we will always welcome back any sister with open arms after a bc.org vacation. That is how it works around here...never alone unless you need to be!!! Hugs to you.
Bernie...awsome as usual..thanks for the pick me up
today is 1 yr since my BMX and I had PT today for my (formerly) good non-LE arm...now I have to wear compression on both arms as she said there is swelling in the arm now...sadness abounds for me as I really am hating the daily compression on just one arm and cannot imagine what it will be like on both....SIGH!! Someone I have known for a few years asked me today how I was doing and I told her about my dilemma with the LE and she says "well at least your are alive" Thanks for the reminder and have a great day. Guess some people just do not get it at all. That's why I love you all here...you truly get it
Maggie
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I thought I would share this link with all of you from Life Extension. It is very interesting regarding some clinical trials for TNs. Here is the link.
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Mags-wearing the compression sleeves on both arms truly does suck!!!!!! I am suppose to wear them, especially when I work, today I said screw it and did not wear them. I am a hair colorist and those dang things are a pain! They get wet, I get color on them and they are HOT! And not hot in a good way! I am now suppose to get all the stuff for wrapping, oh what fun that sounds like, not. Oh, and I wear a compression cami, because I also have swelling under my arm kinda on my back. Add that to taking tamox. and hot dryers all day and it equals me sweating like a pig! (sorry pigs, I really do love pigs!)
One day I was in a bad mood at work and I was complaining about my hair not cooperating, my friend said the same thing your friend said, "well, at least you are alive and and added at least your hair is coming back". Oh I was pissed and went off on her. I said can't I have a bad hair day like anybody else? WHy do I have to be thankful that I got cancer and lost my hair and now it looks terrible? People without cancer can complain about their hair so why can't I? I almost made her cry and then I felt bad and apoligized to her! A better response from her, as we were in the salon, would be, oh, can I help style it for you? That would have made me much more happy! I know she was trying to "be positive" but I wasn't in the mood that day! She is about the nicest person and I still feel bad that I snapped at her!
Boy, I guess I am in a mood today! I have been enjoying work but am so frustrated about being hot and sweating, it is so embarrassing. I have a fan, I dress as cool as I can and I keep a towel near by. It is gross!
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Hi ladies - wow, this has been a busy board. I was away for a few days visiting my family & just got home tonight. Physically I feel OK, but I guess I'm still trying to adjust to my new reality....so I haven't had much energy for reading or posting. But, I hope to catch up here this weekend. Hope everyone is doing well!
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Bernie - loved it
Tazzy - stay put
Bak - wishing you a better tomorrow.
Hope - rest well.
Luv - I hope everything lines up perfectly for the trial.
Hugs all around.0 -
GLADIATOR:
My name is Maximus Decimus Meridius, commander of the Armies of the North, General of the Felix Legions, loyal servant to the true emperor, Marcus Aurelius. Father to a murdered son, husband to a murdered wife.TATTOOIST:
Right...I'll just put "Max", shall I?0 -
Hi Ladies
Well Bak94 my day today must have started off like your bad one did. I was so excited as it was my last radiation, then a visit to the genetics team and then HOME. I could hardly wait to get on the road. Anyway I arrived at 8am for my radiation and the machines were busy so after waiting for 40 minutues they decided to put me on another machine. By 10.45 I was really pissed off as it still wasn't done and I had missed my genetic appointment which I had waited six months for. I complained and the poker faced bitch on the pink machine had a right go at me, so I took off my gown, shoved it at her and told her exactly where she could put her radiation. Then I drove home. I thought stuff it missing the last one won't make any difference.
When I arrived home my family had decorated all the house with balloons and streamers and congratulations, welcome home, and sent me beautiful flowers but that cow had really made my day go downhill. Then I got a call from the oncologist to say I had to go all the way back again (three hours driving) for the last radiation (15 minutes) on Monday. So I told her I don't want that poker faced bitch doing it or I wasn't going. So I am having it done on another machine.
She really stuffed up my last day which I was so looking froward to. Anyway I am home with my family now and its wonderful.
The Lodge was a lovely place and I made many friends but it wasn't home and I missed them all so much. I see the oncologist in six weeks and they will only do scans etc if there are any further issues. So I guess from now on its wait, see and hope like hell.
My Mandy see's the specialist on Monday for her results and I was going with her but I can't now because of the further appointment. I will let you all know what he says. I am keeping my fingers crossed like hell for her.
Tazzy good for you with your results but you aint going nowhere girl.
Inmate so sorry you are feeling unwell. I hope everything goes ok and you manage to get your trial. Sending you my hand to hold onto
To all you ladies who have been thinking about me I haven't forgotten you but it was hard at the ldoge to get the computer going with everyone wanting to use theirs but I am back for good and back onto posting.
Love you all. Annie xx
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Annie - congrats on "almost" finishing. And if I were you, I'd reschedule that last rad treatment on Tuesday so that you can be with your daughter. She needs you and one more day waiting for that last rad treatment probably won't make a difference.
Bernie - funny! You always make me smile!
Whaevah - hope you recover over the weekend. Taxol should be a little easier so try to hang in there.
I am going for my pre-trial testing today then off to Old Orchard Beach near Portland, ME for the weekend with my son and his lady partner. I don't think my DH is coming - he wants to play golf so he'll stay home. We'll have lots of togetherness next week when I go with him on a business trip. He has to go to Philadelphia and we are staying in Atlantic City. Woohoo! Beach and slots! And the long-range forecast looks very beach-worthy, so I'm a happy girl!
Inmate - hope you are feeling OK and your docs are coming up with a plan for you. "When you're going thru hell, keep on goin' " And I know, easier said than done.
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Just a quick check in, been keeping up with the posts, just been quiet.
Cocker - congrats, and I agree with Luv, make the appt for Tuesday,
Tazzy - don't EVEN think of leaving!
Inmate - I' m joining hands with Cocker for you!
Hope - good to hear your doing well.
NavyMom - woohoo on Navyson's visit.
Love to all. I'm escaping to the casino today.0 -
Had to come back to tell you what an "event" a casino day is for me, lol. I told my Mom last week that I was going to the casino today, and my 86 y.o. Mom promptly told me "no your not"! (picture the head spinning scene from the Exorcist. I'm 58 yo, and my Mother is still telling me I can't go out and play, heheheheh). I asked why, and she said, I don't want you bothering Dick and Betty Ann for that kind of foolishness. (they are our dear neighbors, and if I go any distance away, I have make sure they are home, just in case Mom has an emergancy. They have URGED me to go anytime I want, to get a break from my Mom, lol, before she drives me nuts). I just nicely told Mom, that it was no problem and omitted the other part. Two hours later, she again told me I couldn't go, "your car has a lot of mileage, what if you breakdown"? I smiled sweetly and told her my friend Mel was on vacation and told me to take her car. (already outsmarted you on that one!). Dear Lord, I know she'll make me pay for misbehaving, but I'm damn well gonna go and enjoy myself today!!!!
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Kathy - LOL, we will always be thier children. Glad you can go out to play. Hope you win big and have a blast! What wonderful neighbors your mom has, so glad they are there so that you can enjoy some R&R.
Annie - While I'm making a voodoo doll for the buyers, who backed out of my beach house sale on the day of closing, I'll go ahead and stich one up for the radiation bitch. I had threw a very simular fit. Hope all goes well with DD. Enjoy being home.
Hugs and healing wishes all around...
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Morning ladies
For goodness sake Kathy do as you are told. You know you are too young to make decisions and mother always knows best. Whats so special about the casino anyway --- you meeting someone there lol.
Karen - on my way to help you with those voodoo dolls. They are just what we need.
Luv - you go and enjoy yourself at the beach but remember not too much sun. (Mother talking again)
Lory thats a great video. Brave girl.
I am doing absolutely nothing at the moment and its bliss and I might do nothing all day too.
Have a great day ladies. Annie.
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FOR INMATE
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I agree with everyone I have had 2 treatments and right after the first one the hearburn started kicking in. I have been using an over the counter ant-acid but it is not working I think I will tell the doc I need something stronger. That and the fatigue has been the worse everything else is going good. Ready for round 3 of 6 next week. Yeah almost half way, then surgery!!!!!!!
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You know what ladies I need a minute, I work at a school and just started back to work on Monday after having the summer off, I am exhausted. I have had 2 rounds of chemo with 4 more to go and then toatl mx. I am wearing a wig and a smile, everyone is so impressed with how well I am doing my family, friends and co-workers but the truth is I am really depressed I cry all the time until someone is around and then I just smile. This journey is way too long and I want my life back. Don't get me wrong I am staying active and I know I am lucky that I am not sick all the time but the emotional toll is something I think people don't realize!!!!!! Thanks for listening.
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Loretta - ((((HUGS)))))
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Hang in there, Brower. Things will get better. Sometimes tx can be overwhelming. I remember the feelings of betrayal...I had what I thought was a very healthy body and life style and BC still reared its ugly head. Tx takes so much from us and sometimes it feels like it can rob you of your spirit, too. But don't loose faith......you will get through this and soon you will be feeling stronger in mind and body. Your not alone....we get it.
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> REUNION - 3 old girlfriends
> Why People Hate To Attend High School Reunions.
> Jan, Carolyn and Mary haven't seen each other since High School.
> They rediscover each other via a reunion website and arrange to meet for lunch in a wine bar.
> Jan arrives first, wearing a beige Versace. She orders a bottle of Pinot Grigio.
Carolyn arrives shortly afterward, in gray Chanel. After the required ritualized kisses she joins Jan in a glass of wine.
Then Mary walks in, wearing a faded old tee-shirt, blue jeans and boots. She too shares the wineJan explains that after leaving high school and graduating from Princeton in Classics, she met and married Timothy, with whom she has a
beautiful daughter. Timothy is a partner in one of New York's leading law firms. They live in a 4000 sq ft co-op on Fifth Avenue, where Susanna, the
daughter, attends drama school. They have a second home in Phoenix.
Carolyn relates that she graduated from Harvard Med School and became a surgeon. Her husband, Clive, is a leading Wall Street investment
banker. They live in Southampton on Long Island and have a second home in Naples, Florida.
Mary explains that she left school at 17 and ran off with her boy friend, Jim Hupp. They run a tropical bird park in Colorado and grow
their own vegetables. Jim can stand five parrots, side by side, on his penis.
Halfway down the third bottle of wine and several hours later, Jan blurts out that her husband is really a cashier at Wal-Mart. They live
in a small apartment in Brooklyn and have a travel trailer parked at a nearby storage facility.
Carolyn, chastened and encouraged by her old friend's honesty,
explains that she and Clive are both nurses' aides in a retirement home.
They live in Jersey City and take vacation camping trips to Alabama.
Mary admits that the fifth parrot has to stand on one leg.0 -
Loretta - Your post sounds like something I could have written. I was a teacher, now retired, but I remember the first weeks of school were a shock to the body. I was exhausted and I was young and healthy at the time. I had been on antidepressants for a year when TNBC hit me. I handled MX pretty well, but chemo and rads put me down for the count. There was no way I could have carried on with the demands of teaching; I could barely get to the bathroom by myself. I'm OK now and will take my last antidepressant tomorrow, but I want to let you know you are not alone. Cancer is cruel, and you don't need to be strong and brave all the time (and perhaps not ever). Your feelings are real. I understand your despair; I've been there. You will get through this. Please vent here as often as needed. You know we care. Holding your hand as you plow through this. Jan
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good one Wren!
Cocker...I still swear (ok..won't swear)...I can "hear" your voice
Kathy..how was the casino..I'm going tomorrow...and yeah..sometimes my mom and dad come with us...or we go with them....they are very secretive about it...too bad you can't take your mom with you...one of the casinos we go to has an ..well..older crowd...I have never seen so many walkers and oxygen tanks at any other casino as this one...have heard that someone came in on a guerney once...that may be me sometime..you never know.
Brower..my friend is going with chemo right now...she has 3 more to go...I was hanging with her a little yesterday and the onc walked by...he came in and actually talked to us...he is my onc also...she is so upset about being tn plus one bad node...he was soo good with her...very good at calming her fears...so good he took the time to chat with us when you know he is so busy...he said that during chemo the drugs can play havoc with your mind..not only your body...he said that once she is done with active treatment things may calm down a little...
I remember when I was first diagnosed it seemed like everyone at the treatment center was very very sick...I heard a woman tell her family that the cancer was in her brain....a friend of our's wife was going through a very bad time....it was bad news everywhere I looked...and here I was..just starting out with this crap....I wondered if I was even going to make it....
I dunno...I go there now to visit my friend and everyone looks pretty dang good...I must have been there a particularly bad time....I still think about it.
but wow....I sure feel good when I walk out of there...
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Titan I can just see the casino. All the oldies puffing away on their smokes, oxygen at the ready and the walker for when they run out of money and wanna go home, hilarious. The picture just cracked me up. You enjoy yourself there but don't take Kathy cause she is not old enough to play with real money yet her mum told me so. lol
Wren that was a good joke.
Annie
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A man was walking one day, when he came to this big house in a nice neighbourhood.
Suddenly he realised there was a couple making love out on the lawn. Then he noticed another couple over behind a tree. Then another couple behind some bushes by the house.
He walked up to the door of the house, and knocked. A well dressed woman answered the door, and the man asked what kind of a place this was.
"This is a brothel", replied the madam.
"Well, what's all this out on the lawn?" queried the man.
"Oh, we're having a yard sale today."
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Inmate - Are you feeling up to checking in? Miss you xoxoxo
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Hope-so glad to hear from you. Sounds like you have been busy! Glad you are feeling ok. Sometimes it is the emotional side that gets us, I am sure it is so very difficult to know how to deal with the new reality.
Kathy-Tell us about your casino trip! Did you miss curfew?
Luv-So happy you got into the trial, I hope the drugs treat you well!
Tazzy-Did they tell you what % positive you are? Now I have another person to commiserate about se's from the anti-hormonals!
CS-That is terrible!!! Sorry you have to go back for another treatment:(
Inmate-I hope you are feeling ok. Can I bring you anything? Thinking of you all the time, really hope you are feeling ok.
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Wow... you have been chatty. I will not even attempt to respond to you all, but want you to know that I am thinking of you and wishing you all well.
Bak... they didn't tell me my ER% - and to be honest I didn't even think to ask ??? DOH! Guess my head was full of NED
I fully intend to call my docs office and find out though. ((((((Inmate))))))
Hugs and love to you all xxx
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bak - I'm on anti-hormonals as well, for my 1% estrogen+! Letrozole. So far no SEs but I've only been on them a week.
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