Calling all TNs
Comments
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Cocker ~ This is the perfect handbag, I love my wine too!
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Yodie...bottoms up! You will find many a wine lover (aka wino) here on this thread...myself included. As far as diet...I have come to the conclusion that I am going to enjoy life and eat what I want. So many women have lived "clean" and still got cancer so makes me wonder if it is all just a crap shoot. Do what makes you feel good--be that a special diet or a free for all--LOL! and welcome to the TNBC thread...be sure to check out www.tnbcfoundation.org also..lots of good stuff there just for TN's
Maggie
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Yodie, I couldn't agree more with what Mags said. You have to do what feels best for YOU!. I do think that living a fairly healthy life style helped me get through treatment with minimal SE but I don't think that it could have prevented me from getting BC. And after tx I have made better choices to decrease my sugar intake but continue to enjoy a good cocktail whenever I feel like it. Ice cold beer on a hot summer day, a dirty martini with a steak dinner or a glass or two of wine with the gal pals is a good way to enjoy life! But that is what works for ME. I do not take supplements except for calcium and do worry about some of the claims that are made about some of the "natural" treatments. The more time that goes by, the more I am convinced that BC is a crap shot. So many are dx with less severe stats and go on to recur and then there are the gals who have scarry numbers right out of the gate and go on to live long lives. I am not saying toss healthy habits in the trash bin, but just saying that trying to find a balance and live life and do what makes you happy and comfortable.
Edit to add: Love that handbag!
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Hey Mags..watch it with the "wino" comment...but seriously doesn't wino sound better than "drunk"?
Like the purse but wondering why we need a glass...
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Love the bag! Love the comments! Love you gals! So! Since you had such great advice on diet, etc, what's the scoop on getting rid of these horrid hot flashes and night sweats?!? Driving me nuts! Can't take estrogen. And, anybody else having arthritis issues now that chemo is over (I'm 7mos out)? I feel like a 90yr old when I get out of bed and off a chair. Feet hurt, in particular. I don't let it stop me from exercising, however, it does impact how fast I move and, I'm typically a hyper Type A.
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Also forgot to mention, my oncologist said to take a baby aspirin and Ibuprofin everyday, to decrease inflammation. Something easy to do and fairly harmless, unless you have platelet issues!
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I love my red wine. Anyway, grapes are fruit0
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I am right with you girls - red wine and chips and dip are my weakness.
Welcome Yodi. I am on the metformin study too. I will try anything that will or might help. It sounds like you're in the best hands with your MO being so well respected and informed. Our pathology looks almost the same.
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Lovely- I know what you mean. We were diagnosed at about the same time, and our stats were so similar. But right now there's just no way to know why a treatment works for one woman and not another. Personally I believe it's a matter of luck, mixed in with all the science. I also understand where you're at right now. I think we all numb out from this stuff and need to take break from time to time. Even in my current situation, I find I can't have FBC on the front burner all the time or I'll just go crazy. It's easier said than done I will admit...I'm happy if I can have a 1 hour mental vacay right now. BUT you are in a different place. PLEASE continue to have your tests, exams, and have everything checked out that concerns you.
kathymn- That's a good question, and I plan to ask my MO on Tuesday. The brain mets were an emergency situation, so they treated them first. While in the hospital I had a chest xray - was told I "might" have a little something in my lung, and abdominal CT scan that I was told was clear. I really don't know how all of this happened between now and then but I certainly plan to find out.
Thanks for the hugs ladies...sending them right back out to you!!!!
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Welcome Yodi! I am about at the same place as you. Found the lump 9/17/11 but my team dragged their feet and didn't have surgery until Dec/2011. Then had a port put in that ended up collapsing a lung, so didn't start chemo until late Jan. Then 34 rounds of rads. Just finished June 28. My feet and hands still hurt, especially when I get up in the morning. It is leftover neuropathy from Taxol. I try to ignore it too when I take my walks and do yoga. I am also taking Metformin that my MO prescribed for me when I asked for it. I also take a baby aspirin a day and a few other supplements, like vit D3 which was low when I was first diagnosed. That is one vitamin that I will keep taking (5000 IU/day) since low D3 is linked to BC.
I am so wanting my hair to grow faster. It seemed to grow so fast before chemo, but now it is a snails pace. I have already dyed it too but I hate the way it looks. Just want my long hair back. I had to get a new driver's license yesterday and wore my wig as I didn't want my picture on the license without hardly any hair for the next 4 years. I look so much younger with the wig! I wonder what they would have said/done if I would have whipped off the wig after the picture was taken? I didn't have the guts.
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Bernie-Sounds great! Invite our dear friend Sylvia also! I haven't been over on the UK thread for awhile.
So I did not qualify for the metformin study after all, too long out from diagnoses. I think it is good though because now my doc just prescribed it for me, so no placebo, I will be on it for sure! I am happy it turned out this way. Any side effects or quircks I should know about? I feel like a walking pharmacy! Tamox, metformin, levoxyl, lovastatin, effexor, wow.
Going to see the onc gyn on Thursday and finally get my hysterectomy scheduled:( My mo said he treated a woman for breast cancer now she is fighting ovarian cancer and it is not good. I am brca 1 so I need to get the surgery asap. Like others have said, I want off this train!!! Tired of medical stuff! And just plain tired, but I should not complain. I started walking, my doc said 20 minutes a day no matter what and then move up to 25 in one week and so forth. I am treating it as if it is my medicine and I have to take it! I am sooooo out of shape.
Love to you all! Hi inmate!!! Come visit us soon when you feel up to it!
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Love the handbag cocker, thanks for sharing!
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TifJ....congratulations......I think it is much harder to ignore the what ifs. I say acknowledge it each day and then say, "but not today". It has helped me in the past tremedously.
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Thanks Inmate. I love the "but not today"! Any news on getting the trial started?
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hot flashes...oh boy..hate em...my MO suggested taking the new product called Ice ( I think ) it is available at all the big chains and Walmart too. As long as chemo is done you can take almost anything from a health food store except hormones or synthetic hormones. Just go in and ask a clerk if you have a good store nearby.
Mags--off to pour me some red wine!
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Inmate - good to see you posting. I hope you are getting some relief from the coughing. I love the "but not today" answer to the what if's.
I went to Dana Farber this afternoon and I now have my clinical trial drugs, which I will start taking tomorrow morning with breakfast. I am particularly excited about this trial because it's targeting triple negative cancer, so ladies, I am one of your pioneers! There was has been excitement in the HER2/neu + world with a few new drugs, now it's our turn!
I hope everyone has a great weekend!
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Luv - a pioneer woman! Love it! Good luck with your first dose tomorrow!
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thank you Luv
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Luv, thank you - wouldn't be wonderful if this turns out to be TNBC's herceptin?!
Bernie, that would be great! I don't post much on the triple negative sites that are already on facebook for privacy reasons, but if it was composed of the ladies here, that would be great!
Inmate, good to hear from you and "but not today" is a good tool.
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Luv- thank you for being our "guinea pig", so to speak. I hope the new meds treat you well!
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Mumtobe, I have swelling on the inside of my elbow since dec while doing chemo. I had a port. I have had a ER dr,my reg dr,my sub mo,my mo look at it,they all felt it,went hmmmm. No one can tell me what caused it or what it is. I think it is getting bigger. When i go back to my mo in oct,i'm going to insist on some type of scan. I hope you find some answers.
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TifJ - Congratulations to you!
Luv - Thank you from the bottom of my heart for being our Pioneer Woman. And good luck with your first dose tomorrow!
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Luv - I echo the sisters who thank you. I'm so happy you were able to get on this study.
Inmate - I'm going to make "but not today" my mantra. Keeping you in my heart.
I saw my BS yesterday to arrange having my "surviving" breast removed prophylactically. I'm going to go FLAT! My breast form is so heavy and hot and uncomfortable and on and on. Friends think I'm crazy, but I'm so ready to burn my bras!
Hoping each of you found some joy today. Jan
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wish there was a like button here...thanks Inmate...I live that way also...for today I'm ok..maybe not tomorrow..but today...it is good..
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Luv--UGOGIRL!!!! Thanks so much for doing the study for all of us!
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belleeast-is it lymphedema? The inside of my elbow is a place fluid collects for me from le. I am sure your docs would have known though if it was le....
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Jan.......good for you. you will absolutely love being flat. flat chicks are hot!
Luv........thank you!
welcome Yodie!
Hope.....well FUCK!
ladies, I started my trial yesterday. Love the doc and nurse and am very hopeful this is going to do its job. she said hat thankfully my skin mets had not burst through the skin yet, gross! Yeah, ya think? i'm pretty happy they haven't yet either!i i get a drip of abraxane once a week for three weeks and 4 times a week i administer a lotion to a target area of my mets the trial drug is called imiqumid.ithas had great results in the first phase. since i am a healthy cancer patient she is hopeful i will have limited side effects. most of the side effects come from abraxane. well, i'm already barely able to function from the fatigue. so far it all just sucks!
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Inmate - I hope you can take the long weekend to rest. After that, I hope you take each day to rest, rest, rest so that what energy you do have can be used to fight the beast.
We are staying home this weekend. The highway into Yosemite was bumper to bumper already this afternoon. Tomorrow it will be even worse. I'm planning to celebrate the holiday by baking bread and making a key lime pie. Jan
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jan............we are all about the staycation. i need to start getting stuff ready to sell in one epic garage sale. i am a life long junk picker and want to get rid of my stuff so my husband doesn't have to deal with it when i'm gone.besides to him it is all just junk.......foolish, foolish, man it is all super cool amazing stuff worth lots of money. he won't be manning he price gun or the cash register.
enjoy your long weekend ladies!
love to you all.............................dawn
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