Calling all TNs
Comments
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bak - Happy, Happy, Happy, Angry
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Congratulations Bak!! I have been checking back and forth to see your update. That's a relief to hear. And sometimes husbands can be real jerk off's!
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Good morning ladies
Thanks for all the posts on the port. I had decided to see if I could get it out until I read Kathys post. I forgot I was 50/50 so I think I will keep it for a while longer just in case. They have never been able to do blood draws from my port (don't think I have much blood lol) but if I do have to have more chemo at some stage I would have to have it put in again as my veins always hide so keeping it will save me the trouble.
Bak94 - wonderful wonderful news all clear. Doing the happy dance for you. You can stop worrying now. Why are hubbys such dicks at times like this.
Jan69 - spring in NZ is a wonderful time of year. We have all the blossoms out now and the days are getting warmer. Not only that we have summer to look forward to as well, I feel like I have been waiting so long for it to come.
Minxie - so glad everything was good for you, about time, and glad you have more energy. I think that makes us feel better on its own. Nothing worse than dragging yourself through the days.
Wouldn't it be wonderful if they could say to us "you have gone through treatment and are cured. The cancer won't come back". It would take away all the when's and what ifs and make us feel so happy again. But like Minxie I fear happiness now because we just don't know. It's like sitting on a ticking time bomb and I'm not sure I will ever feel normal again.
Loveyface - hope you get your eyes sorted. You certainly seem to have had your share of problems with your specialists etc. Hoping the new eye drop will help.
Well ladies I seem to have done nothing but clean since I got home and today is no different. I am gradually working my way through the house so god help the old fellar if he mucks it up. I might have a coffee before I start though.
Hugs to you all. Keep well and stress free. Annie
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woot woot dancing for BAK!!! absolute music to my ears (and eyes)
Mags
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For Bak. *HAPPY DANCE -KICKS UP LEGS*. *HAPPY DANCE -OOPSIE KICKS HUBBY IN THE ARSE*
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YES BAK!!!!! Great news!! I agree with Kathy, just kick him in the behind- unless he was really mean then in the front would be a better choice!!
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You ladies make me die with laughing but I agree.
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Hi ladies - sorry to be debbie downer, but this was a really bad day for me. Had a PET scan yesterday and got a call this morning from my MO's office....could I come over there today? Good thing I brought a friend with me because all I remember hearing is "widespread disease" and then my head started spinning. I had been told in the hospital that I "might" have something in my lung. Turns out the FC is all over my lungs in the lymph nodes, and also possibly my hip bones and ovaries...they're not as sure about that yet. They want me to start chemo---carboplatin and gemzar--on Tuesday. I just feel so lost right now. Thanks for listening.
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((HUGS))) Hope. So sorry for your diagnosis
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(((((Hope))))) I'm so sorry.
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Hope - Oh, I'm so sorry. Sending hugs and prayers.
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{{{{{{HUGS}}}}} to you HOPE
Maggie
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(((((Hope)))))) so sorry !
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Hope I am so sorry for your news. Praying this chemo is just what it takes to kick butt. (((hugs))
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Watching the national news: Wow, that Issac is a monster! I'm sending my heart-felt good wishes to all my Southern Sisters. Please stay safe. Jan
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Hope - I am so sorry to hear of your test results. Sending a hand to hold you seems so inadequate but I am sending you the biggest biggest hug with lots of love. This chemo will kick cancers arse I know it will. Just hang in there girl. Annie
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Hope, I am so sorry for your horrible new, but I'm so glad you came to share it with us. Like I said before we're here for the good, the bad and the ugly, and your news is ugly. I'm praying they find a combo that works for you. ((strengthing hug))
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Hope - OMG, holy shit and f*ing cancer. Sending you big hugs to help you stay strong and get the best drugs to kick FC! ((((((HOPE))))))0
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Hope - sorry for your horrible news. How are you feeling? Big hugs.
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Oh crap Hope...praying that the new chemos work for you....ya know I was creeping on the stage 4 thread awhile ago..and while there are not alot of us tn's on there...there is this one lady....tn stage 4 for quite awhile and she is NED...soo..it can and does happen and hope it does for you..love you!
Bak...here we go...thank heavens for clean scans....wonderful news
the ups and downs of this thread..wow...happy, then sad to laughing my arse off...we NEED each other...
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HELP-Tried to change my avatar after deleting my previous one and it will not load. I keep getting an error message "is not included in the list". So I tried to just put my old picture back and I got the same message. Does anyone know how to fix? I am faceless
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Titan - you are so right. We do need each other for all the bad and good times and the laughs are what gets us through. None of us can leave this thread because we are truly sisters and understand and love each other through everything. Annie
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Oh, Hope.....So sad to hear your news. Praying hard that this next chemo is the magic potion you need right now. Truly hoping that you can feel the love from all of us.
Bak, so glad to know that your scans were good. Enjoy your dance with NED even though DH is being a big poop.
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Hope - I am so very sorry to hear your latest news. Like your other "sisters" on here, I am sending big {{{HUGS}}} to you! With us holding your hand, kick that FC to the curb.
Doreen
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Hope, I'm so sorry to hear this. Sending you hugs and I hope this chemo combination works for you. There is a lot of information and personal experiences with chemos on the tnbcfoundation.org site in the recurrence section if you haven't already checked it out. I believe there may be someone who has received this same combination with good results. She has liver and lung mets
Bak, I'm so glad your scans were good!
Lovelyface, thanks for checking in! I hope you get some answers and solutions to your eye issues.
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Hope-I am so glad you stopped by to let us know what is going on. I am sorry you have to go through all this. Of course, one can only imagine, until it happens to them, how it really feels to get news like that. My heart aches for you, but also has hope for the chemo getting in there and doing its job. I felt relief to get my scan results today, but still there was a deeper sadness. A sadness for those that get bad news, or those that may get bad news in the future. There has to be a bigger picture about why this crap happens. In the end there has to be some incredible reward for those that suffer so much in this life.
Life for me today was a major emotional rollercoaster. So much happened and not all good. I am sure the prednisone I had to take before the scan did not help with anything! I have to take it because I have a problem with the contrast. So, I have to share a funny part of the day. I was waiting for the results of my scan and my mo went down to talk with the guy that reads the scan and to look at the scans himself. After what seemed like eternity he comes back and said all is fine. He said he asked the scan guy to find something, anything, different on the scan. The scan doc says, well, she has gained some weight since her last scan! OMG!!! How embarrassing!!! And sooooo funny at the same time!
Thank you all for the good wishes and hand holding, I needed it today! I looked all over for inmate, I know I will run into to you at some point!
And sorry for all the typos in my posts! I was using my phone. And apologies for being so self absorbed, I get that way when I get into my little tizzies, or big tizzies. Oh, and hubby and I moved past whatever happened earlier, I think we both had our heads spinning. I got so mad I swear I sounded like an evil witch when I yelled at him, and then he got louder! We were in the car and I am sure people in the cars next to us could hear everything!
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Hi..Isaac..wet..a wee bit windy..schools all closed today due to road flooding..even our small town has a hwy closed...looks like more of the same today..all day..
went to rads doc for check up..yep..boob still there..come back in 3 months...but did get enuf nerve up to ask about recurence rate for me..he says 25 or 30 %..so that is 70..75% it won't..right?
happy dance for the good reports..and thankful I feel good enuf to dance..I did notice my taxotere was infused way slower this last tx..could that have made the diff in my se's?
Hugs to Hope and all that need an extra boost...
best wishes to all..
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bak: SO glad you got the all clear. Awesome news. I am glad you and your DH could move past it. Sometimes emotions run really high. I know in this house there are days my DH is super great and other days I'd like to put him on the curb for pick up.
Hope: (((((((((((((hugs))))))))))))) I don't know what to say. Just know we're here for you and I wish you all the best as you move forward and past this beast. Stay strong!!!!
Any thoughts on mammo after BMX? I have been sent for my first mammo follow up at the year point (November) but I had a BMX. I have heard some conflicting info about having them done after a BMX. They're looking to make sure there is nothing in the scars and/or any remaining tissue left over. Has anyone had a mammo on their MX side? Just looking at myself and wondering how this is even possible to do. I do have a bit of extra skin on each side but kinda giggling at the thought of how they'll do this.
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Hope I am so sorry. I just feel sick when one us gets this news. I hope the Carbo/Gemzar will help. Sending you a giant hug!
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Born, I have never heard of having a mammo after bmx. Seems to me an MRI would be a better choice, as it would also be able to check for possible implant rupture/leakage at the same time as looking at scars. But of course, an MRI usually needs insurance approval because it $$$. And sometimes the almighty dollar speaks. Let us know how it goes...Always ready to learn something new about how various docs manage this crap.
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