Calling all TNs

15745755775795801190

Comments

  • Titan
    Titan Member Posts: 1,313
    edited September 2012


    About the drugs....hm...I would say hell yes to anything..no need for any of us to suffer dang it...personally I don't take the pill stuff..wine is my drug of choice...

    Ok..ladies..get those thighs going...(ha ha ..only on here would I say this stuff)....goingfor my 3rd 5k on Saturday....this one is in Amish Country, Ohio...on a wide bike trail...but i understand that we have to watch for buggys and road apples....and if you don't know what a road apple is I will be happy to tell you...think about it for awhile....

  • JazzyJ
    JazzyJ Member Posts: 124
    edited September 2012

    Titan - Is it Horse poop? Good luck!! We will be cheering you on!

  • OBXK
    OBXK Member Posts: 689
    edited September 2012

    Titan - you put me to shame! I hope you have a great time!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited September 2012

    Way to go Titan... will have those thighs clapping. 

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited September 2012

    Titan - Yep those clapping thighs are out again for another 5km run.  Geez you are a gluten for punishment.  I'll get out my flag again and wave you on while I sit and do nuffink as usual. You go girl. By the way is it horses doofers ie poo.

    Tazzy  - have you started rads yet.  You will just sail through it. Just remember to put on the cream everynight.    Do you have to go away from home to have the treatment - I hope not.

    Luv - good to hear you are going well on the trial.  Your poor mum I feel so sorry for her.  You just stop scolding her there is nothing worse than wanting to go home and you can't. Give her a big kiss and a hug from me.   

    On the drugs I say take what makes you feel better.  What with the treatment and shock of the diagnosis I think we need all the help we can get and if wine does it, then go for it.

    A friend of mine lost her daughter to cancer at age 23 yrs.  Then her son died at age 22 yrs with a berry aneurysm.  Now she has been diagnosed with metastatic lung cancer.  She has refused all treatment because she just wants to see her children.  Its just so sad.  She has been through hell and has more to come.  Makes you wonder why those bastards that abuse, kill and ill-treat children and animals  can still be alive and well.  I used to believe in karma but ......    She is such a terrific lady too.  Has made my day so sad.

    The old fellar is doing well but I'm not sure he is missing me much cause we hardly see each other.  He gets to the cafe at 6am, works until 5pm, has dinner, showers at 8pm and then goes to bed before 9pm.  Sometimes I wonder what he looks like now.  But the cafe is doing great and he is enjoying it so thats something.

    Started off very cold here in Taupo but it has been a lovely day and the moutains look gorgeous.  Supposed to be spring but not warmed up enough for that yet so I'll keep hoping.

    Where is Inmate and where is Heather. Haven't heard from Heather for ages.  Time to write a post girls.      

    Sending you all a chilly hug.  Roll on summer. Annie  

           

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited September 2012
    There's an old priest who got sick of all the people in his parish who
    kept confessing to adultery. One Sunday, in the pulpit, he said, "If I
    hear one more person confess to adultery, I'll quit!"
    Well, everyone liked him, so they came up with a code word. Someone
    who had committed adultery would say they had "fallen."
    This seemed to satisfy the old priest and things went well, until the
    priest died at a ripe old age. About a week after the new priest
    arrived, he visited the mayor of the town and seemed very concerned.
    The priest said, "You have to do something about the sidewalks in
    town. When people come into the confessional, they keep talking about
    having fallen."
    The mayor started to laugh, realizing that no one had told the new
    priest about the code word.
    Before the mayor could explain, the priest shook an accusing finger at
    the mayor and said, "I don't know what you're laughing about, your
    wife fell three times this week
  • borntosurvive
    borntosurvive Member Posts: 194
    edited September 2012

    Annie:  This is terribly sad for your friend.  No one should ever have to go through so much in their life.  And I agree with you that the world seems backwards.  Why do such horrible things happen to those people who want to live, who treat people well and who do good things in life?  And then all those people who murder and steal get to sit in jail and live?!  I use to believe in a lot of things......now not so much. 

    I joined the 40 days of yoga program at my gym and have been plugging along.  I am doing 6 yoga classes/week with 1 rest day.  And on Sunday we meet as a group to meditate and learn about health and wellness.  There is a really good book to go along with it.  It's helping me to get grounded and learn to BREATHE!!!  

    Love to you all oxoxo

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited September 2012

    Annie - LOL, that was a last-ditch effort to get my mom's attention and change her mood.  I've tried everything else, and I know it's the dementia ruling her thoughts.  And that's a very sad story about your friend with lung cancer who lost both her children.  Life is so unfair, really.  The good die young and some people seem to be too mean to die.

    Bernie - too funny!

    Inmate - how are you doing, dear?  I hope things are improving and the side effects are tolerable.  We miss your candor and your humor, so hopefully you can muster up the energy for a few words to let us know how you are doing.

    Heather - I think you are getting settled with your boys, right?  Hopefully all is going well now that your family is all back together.

    Go Titan!

  • Tazzy
    Tazzy Member Posts: 1,442
    edited September 2012

    Annie - no I am very lucky that I only live 20 minutes away from the Cancer Agency here.   Have my appts with the RO and mapping session on 17/18 September.  Then I guess I'll start the following Monday... maybe sooner.   That is just too much for your friend to go through.   So sad.  And I agree - how come all the nasty bastards live and the good ones get so much crap to go through.  Not fair eh?

    Good one Bernie.

    Born... I am going to take up yoga again when I am all healed.  Yours sounds like a really great program.

    Michelle.... hope the trials are still going well for you.

    Well it is a beautiful day here in the the Okanagan, so I am going to tackle cleaning windows and then off to meet friends for dinner.

    ((Inmate & Heather))

    Have a wonderful day if you can today and find some happiness and sunshine.

  • Lory48
    Lory48 Member Posts: 266
    edited September 2012

    Mags, A friend and fellow TN gal is also having DIEP, in Nashville.
    If I had to have a MX that is what my surgeon suggested (I have enough belly
    fat to do that).. lol

    Titan- You go with your bad self, thigh clapping to 1st
    place! Sounds like a nice place to have the 5K, road apples and all.

    Annie, We have all heard it said that only the good die
    young. It just pisses me off that the sicko, violent, criminals are walking
    this earth still when the good are taken from us so early. Just a sad, sad
    thing for that lady to endure during her life. A parent should never have to
    see their children go before them.

    Bernie, I nearly spewed coffee on my laptop .. thank you
    again for the laugh

    Born, yoga is quite the workout! 6 days a week is awesome. I
    just joined a gym and will start Monday on a get back to fitness routine. This
    old gym rat is not happy with the weight gain and lack of energy.

    Inmate and Heather hope all is well with you.
  • bak94
    bak94 Member Posts: 652
    edited October 2012

    Wow, daily yoga, 5k's, you gals ROCK!

    lory48-my doc said I had a bit much fat in my belly for diep:( for the best results I need to lose some weight, which I am trying to do! 10 pounds down so far!

    My rooster just let out the most pathetic cock a doodle doo! He sounds like he has laryngitis!

  • Titan
    Titan Member Posts: 1,313
    edited September 2012

    bak...was just at the county fair where I live and of course had to go to the poultry barn...my husband and I were of course trying to get the roosters to crow...it just cracks me up....we stand there and crow at them...once they all get going it's like they are all trying to out do each other....chickens are really cool...their eyes are so human...we used to take pigs to the fair and I just loved them...i cried when they had to go..well..you know where...it hurts taking a "terminal"project...

    Thanks for the support you guys in my running...to be honest I really don't get much support at home...from the family..I KNOW it is not that big a deal..but to me it is...blah..I can run..yes run 3 freaking miles without being tired and I don't even get a pat on the back..ok..I'm whining...but I guess I just need some love and you guys give me that...THANKS SO MUCH!  I NEED your support just like I have had it all during this cancer crap

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited September 2012

    fly like the wind baby1

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited September 2012

    There you are, Inmate!!! How are you doing?  We are all thinking about you and hoping you are doing OK.  Is the clinical trial drug being kind to you?

  • rachelvk
    rachelvk Member Posts: 564
    edited September 2012

    Fern - Good luck as you make it through the rest of chemo. And your doctor and husband are right - you have to slow down. It was one of the hardest things for me, and I still did manage to push through with work and some other activities, but I finally had to pull back and take care of my drug-addled body.

    Hope - Thinking of you and hoping the chemo is kicking some good cancer butt.

    My xrays came back clear, so that was a big relief. I had my last PT session today - I just need to see him in 3 months. And I don't have to see the PS for another six months (unless I make up my mind sooner about nipples and tatoos). So that means I don't have another cancer-related appointment until November. It's nice to see the calendar starting to free up. Though I do have to go in for a D&C (polyps...) and a colonoscopy. 

  • Lory48
    Lory48 Member Posts: 266
    edited September 2012
    Hey Inmate.. great to see you back on the thread. Hope all is well.. Laughing
  • OBXK
    OBXK Member Posts: 689
    edited September 2012

    Fighter - like you - I guage my response to what the feeling is behind the question.

    Bernie - I'm bipolar too. Pain meds can send me down a dark path.

    Annie - are you going to be too busy to vist me? Kudos to DH on the new venture. I am so sorry to hear about your friend - I think I would feel the same way. Hugs to you!

    Bernis - Loved the joke!

     Bornto - keep up the god work. I love yoga.

    Bak - loved the rooster story. I live "in town" Yesterday husband says - there are chickens in our driveway. I went out and called to them, opened the gate to their yard and they went right back in! What lovely ladies.

    Dawn - thanks for checking in! I hope the drugs are working their magic and have few side effects. Good thoughts your way!

  • inmate4232010
    inmate4232010 Member Posts: 288
    edited September 2012

    Well, laidies.  It seems that the killer headaches were a sign of something more ominous.  I now hve 3 tumors my frontal lobeI have already started full brain radiaion.What a trip the set up was for that.  Had my .CT scan in the morning an then started radiation by 3:30 that aftrnoon.  Thy move fast around here  It Looks Like noe more trial for m.  The chemo does no play well wih the radiaion.  So on to hemo number 13.  Lucky 13 lucky 13!

     The bs hing tha happenned o m this week is I got my very firs BCO facebook friend.  If anyone else wants t be my friend pleas send m a PM...................................

    love to you all!

  • OBXK
    OBXK Member Posts: 689
    edited September 2012

    Dawn - fuck! Honey I am so sorry you are going through this. What can we do? We all feel so helpless.

    Wishing you all the strength you need.

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited September 2012
    for all you beautiful ladies
  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited September 2012

    Inmate - like Karen said -  Fuck.  Fuck to cancer and everything to do with it.  All I can say is apart from swear is thank god they have started on treatment straight away,  but that news is just the pits.  I just cannot believe how much you are going through, when will it fucking end. I don't care if the moderators don't like my choice of words,  that is the only one I can think of for this dreaded disease. How you stay can upbeat, courageous, positive and still be there for us beats me.  You amaze me with what you are like and how you keep on plodding on and trying everything you can when I and lots of others would have given up long ago. You are nothing short of an inspiration to me.  Luv you and sending you the biggest warmest hugs you have ever had for chemo 13.

    Karen - I will never be too busy to visit you. I might have to come without the old fellar though cause he might be too busy. I got a book out of the library today and its a story with the characters living in the Outer Banks, North Carolina. What a coincidence.    

    I'm back to slogging my way through typing again full time.  Don't seem to get as much out of the job that I used to.  Getting pretty tired by the end of the week.

    Catch up with you later ladies gotta pay some bills on the internet.  Don't suppose they will wait. Annie        

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited September 2012

    Dawn - I sent you a PM.  I am so saddened by your fast progression, but I have to add that there are many women over on the Stage IV Brain Mets Sisters discussion board who have come out on the other side of brain rads and are doing well. 

    http://community.breastcancer.org/forum/8/topic/777599?page=55#idx_1641

    Lots of helpful information to get you through treatment and help you know what to expect.

    Flowering almonds - the victorian flower for hope

  • Hope60
    Hope60 Member Posts: 150
    edited September 2012

    Dawn.......crap! I'm so sorry to hear this latest development!!! Your resilience amazes and inspires me. I had surgery to remove one huge brain met, and then radiation to hopefully shrink the others (don't know if it worked yet) so its hard to say. What side effect were caused by what.....however I think the brain rads mostly caused fatigue that lasted for a few week after. I will pm you. Hang in there honey!

  • onvacation
    onvacation Member Posts: 521
    edited September 2012

    Dawn - Cancer Sucks!  

  • Tazzy
    Tazzy Member Posts: 1,442
    edited September 2012

    Dawn.... as others have said - fuck.   Seems there are no other words... hugs and positive thoughts honey xx

  • JAN69
    JAN69 Member Posts: 731
    edited September 2012

    Dawn - I join the "Chorus of Swearing Sisters."  This is just way too awful for you to have to face more treatments.  I'm holding you close in my heart and thoughts.  Jan

  • Lory48
    Lory48 Member Posts: 266
    edited September 2012

    Dawn- Thanks for accetping my friend request- I ditto what everyone said FUCK cancer.. I went to have my port flushed yesterday and had a "new to the chemo suite" nurse. She asked why I still ahd my port when I am done with treatment. I responded that my onco beleives to leave it in for a yr. She then asked if my doc was so an so. She then responded with OH, you must be TN.. he leaves it in that long because you have a higher rish for recurrance in the first year. I mean really, I did not know that, and with my first mammo coming up and the "spot" on my lung.. talk about upset a cancer patient.. what a freaking ditz.. and yes, I complained..

     I am also noticing I am typing words backwards.. got a call into the onco AGAIN..

  • FernMF
    FernMF Member Posts: 274
    edited September 2012

    Titan - I used to run . . maybe after I'm through this nasty chemo I can get back at it.

      FLY LIKE THE WIND!  OR, just RUN Forest RUN!

  • lrm216
    lrm216 Member Posts: 534
    edited September 2012

    Dawn:

    I am sick to my stomach that you have to face yet even more from this f*cking disease.  As if it hasn't exacted enough from you.  Know that I will continue to hold you close to my heart and will keep you in my thoughts.  I have complete faith in you and your indomnitable spirit, I just so hate that this is all happening to you. 

    hugs,

    Linda

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited September 2012

    (((DAWN)) Hugs and sweet prayers coming your way sweetie. 

    Lory- You should have corrected her right then and there and told her how you felt. I find that so liberating now more than ever. Especially when you don't have to walk around with anger over something someone else said next time let it out. I got your back!!!!

    Go Titan! Go Titan! You still can out run me at 36 what a shame. I have no excuse either. Maybe one day I can catch up.