Calling all TNs

15755765785805811190

Comments

  • christina1961
    christina1961 Member Posts: 450
    edited September 2012

    Dawn, Cancer sucks! You are frequently in my thoughts and I am also adding to the hugs coming your way from our group!

    Lory, ditz is an understatement.  I hope she learns to keep her mouth shut in the chemo room.  Our nurses never said anything like that - and my sister still has her port 5 years later and she was Grade 1 ER+PR+ ILC. I still have mine, too.  I don't like to get stuck in the arm and get blood drawn every 3 months, so I'm probably going to keep it for a while. I agree with Fighter - and I've become much more outspoken since going through all this crap.

    Titan, you go girl!  Proud of you!

  • Luah
    Luah Member Posts: 626
    edited September 2012

    (((Dawn))) Thinking of you, and wishing the best for you, from the bottom of my heart. Your spirit still shines through all the crap... what a strong, inspiring woman you are.   

  • journey4life
    journey4life Member Posts: 223
    edited September 2012

    Dawn - sending healing vibes your way. Hugs and love to you. I HATE F*CKING CANCER!

  • swiftbird
    swiftbird Member Posts: 78
    edited September 2012

    Dawn,

    I'm feeling for you, thinking of you and saying prayers. I don't often check in. Not that I don't want to support but I have to take breaks else I obsess about recurrence in a very destructive way myself - but I check back now because I want to see how you're doing with this crap disease. You're in such a great headspace... I get angry, for you (because you're so positive, guess every light has its shadow...),  and pissed at the randomness of this. ARGH!!!! 

     To all us TN sisters, stay strong and so glad we're here for each other.  

  • sugar77
    sugar77 Member Posts: 1,328
    edited September 2012

    ((((Dawn)))) so sorry to hear your latest diagnosis. Sending healing vibes your way.  You are such a shining light on this thread.

  • Lovelyface
    Lovelyface Member Posts: 563
    edited September 2012

    Dawn, my sweets, I am so devastaed to read this, am crying!!!!!  Why, why and why?  You are such a bright star, one of the brightest on this thread.  I wish I could do something to comfort you, hold you and say that everything will be okay.  Well, some say 13 is actually a Lucky number and maybe it will be a lucky number for you.  I am very very proud of you!  What a strong woman you are, girl.  Sending you tons of love and hugs! 

  • mags20487
    mags20487 Member Posts: 1,092
    edited September 2012

    $#@%$#@  that is all I can say right now.  Tears and pain in my heart.  These women are right inmate.  you have such an amazing spirit that you positively glow, like a shining star.  You are currently living what we all fear with recurrence.  We are all here for you, forming a circle of strength around you.  13 has always worked wonders for me!

    xoxo

    maggie

  • Titan
    Titan Member Posts: 1,313
    edited September 2012

    Oh crap Inmate.....love you kiddo...and hoping your rads work dang it...I just hope soo much....I hate freaking cancer, hate hate hate...

    Thanks for the support you guys..about my running...I'll do my best...but I had pizza and wine tonight...so you never know..lol

    Fighter...laughing at the age stuff...I want you to know that I'm in the 50-60 age group and it is usually the 59 year olds that do that best...soo there is hope for you yet...you can do it!  But it takes time to build up to it...for me it has been 3 years....and there is no way that I'm where I want to be yet...

  • rachelvk
    rachelvk Member Posts: 564
    edited September 2012

    Dawn - Crap! Keep pushing through. Sending only good thoughts your way.

  • DesertMama
    DesertMama Member Posts: 25
    edited September 2012

    Inmate, sending you healing vibes, warm thoughts for your continued incredible strength and courage. 

  • Babs37
    Babs37 Member Posts: 320
    edited September 2012

    (((Dawn)))) I'm so sorry......…. We are here for you. xx

  • TifJ
    TifJ Member Posts: 804
    edited September 2012

    Dawn- Son of a b***h!! My thoughts are with you and I hope with all my heart that the rads eradicate the brain tumors and you can get back to the trial.

  • DorMac
    DorMac Member Posts: 153
    edited September 2012

    Inmate - So sorry to hear about the sh*t this FC has thrown at you again. Enough, already! Sending you healing vibes and many {{{HUGS}}} that #!3 is your lucky number. We are all here for you.

    Doreen 

  • ksmatthews
    ksmatthews Member Posts: 743
    edited September 2012

    Dawn (((hugs))) and lots of healing thoughts coming your way.  Cancer SUX!

  • Ka-cey
    Ka-cey Member Posts: 15
    edited September 2012

    Hello ladies, I don't post very often, but I do read everyday to see how everyone is doing. 

    Dawn - sweetheart, keep fighting and please know that healing vibes are being sent your way. 

    Titan, I don't know if I have ever thanked you for starting this thread, and, now thank you for inspiring me to get my rump out of bed and dust off the runners and hit the path for a run, (I may curse you later on when the aches and pains kick in).

    Ladies, you are all in my thoughts everyday.   

       

  • bak94
    bak94 Member Posts: 652
    edited October 2012

    My good things for today:

    My animals are being crazy today! I let the chickens out and they ran over to my neighbors yard and started walking in a line like cops in crime scene investigation, they were looking for bugs. It was too funny.

    Then my goats jumped the fence to go to my neighbors to pick up the plums that have dropped from the tree. Neighbor says he doesn't mind, less cleanup for him.

    My dogs are acting like puppies, running around in fast circles. They all must know summer is coming to an end and want to enjoy every last minute of the nice weather.

    Thinking of everyone, it has been slow on this thread.

    Dawn-I am hoping the rads are offering some relief for you and knocking those tumors into oblivion.

    Hope-Thinking of you.

  • OBXK
    OBXK Member Posts: 689
    edited September 2012

    Bak - I love your day!

  • BernieEllen
    BernieEllen Member Posts: 2,285
    edited September 2012
    Just home from a brilliant weekend at my Uncles 80th Birthday Party.

    Had a smashing time - well my nose and cheekbone did.

  • mitymuffin
    mitymuffin Member Posts: 242
    edited September 2012
    Inmate, You are wonderful and beautiful lady. I'm sending love and wrapping arms around you. 
  • xxxxx
    xxxxx Member Posts: 23
    edited September 2012

    Was sent to this thread from another thread. I am a little over a week from getting all my tests from all my treatments and the painic, tears and sleepless nights are back agian!!

    Inmate I know I am new but BIG OLE PRAYERS going up. Once in a lifetime is enough!!!! AND ENOUGH ALREADY is being screamed right here and now. Being new to this board, I do not know how to pm on here yet but I fb a lot Cool As for me I usually figure things out sooner or later. LATELY later has been more of me than sooner Tongue out

    Lory48 you already answered one of my questions. DA PORT!! I sware I hate mine and I hate getting it flushed but that should be the least of my worries. Had someone tell me she has had hers for 7 years and I panicked without thinking DUH she must have been going through a lot more herself. Cancer does S-U-C-K!! bigtime!! So I am just going to nickname mine and be grateful they have progressed from when all my mothers veins collasped from her treatments and cancer. BE GRATEFUL....BE GRATEFUL....BE GRATEFUL....Sealed

    PRAYERS to EVERYONE!!

  • TifJ
    TifJ Member Posts: 804
    edited September 2012

    Welcome Kareybeth. To PM someone, just click on their name and their profile will come up and there is a box that says, send member a private message.

  • Reality
    Reality Member Posts: 532
    edited September 2012

    Bak - love the animal escapades - especially the chickens - too funny. thanks

  • xxxxx
    xxxxx Member Posts: 23
    edited September 2012

    Thanks a bunch Cool

    Karen

  • JazzyJ
    JazzyJ Member Posts: 124
    edited September 2012

    Hi Ladies - Need some input please. When starting Chemo, my MO said that there were no diet restrictions and to eat whatever I wanted to including my daily high protein and vitamin packed smoothies. I read on a blog yesterday that Vitamins and other suppliments may have a negative impact on Chemo treatment. Did your MO's tell you to stop taking Vitamins during treatment? I'm freaking out now wondering if I trashed 4 months worth of challenging treatment......

  • borntosurvive
    borntosurvive Member Posts: 194
    edited September 2012

    Welcome Karen.  Sorry about your diagnosis but you will find nothing but love and support here on our TN site. 

    JazzyJ: The only vitamin my MO told me to avoid was vitamin C in supplement form - in food form was fine.  She also said not to take any antioxidant supplements but other then that I was good to go.  I ran EVERYTHING by the pharmacist in the chemo suite and he was amazing and knew what affected what.  Most to all supplements I asked about were totally fine.  

  • JazzyJ
    JazzyJ Member Posts: 124
    edited September 2012

    Thanks Bornto..... CoQ10 is one of the antioxidants that I've been taking. Will stop now, but really worried about the impact of the last 4 months of a vitamin packed diet. Shouldn't they tell us these things?! Like this cr@p isn't hard enough on us!

  • rachelvk
    rachelvk Member Posts: 564
    edited September 2012

    JazzyJ - Just run them by your MO. Regular multi-vitamins should be okay, and I was okay taking B complex and vitamin d (which is supposed to be important for TNs), but other supplements might have an impact. I think I saw even Iron supplements might interact, but it all depends on which cocktail you have.

    The only other dietary restriction I had was no raw fruits or vegetables that couldn't be peeled because of the possibility of contamination. I spent my chemo time craving salad, which is a good thing because now I'm making up for it. I wasn't a big salad person in the past, so that's been good for my diet.

    Kareybeth - I hated my port (and now that it's out, the site still irritates me and I have this bump where the button was; hoping it's just all scar tissue that I'm trying to work out), but you're right on about protecting your veins. That's a big silver lining. Mine came out a few months after I finished treatment. I'm praying I never need it again. 

  • Titan
    Titan Member Posts: 1,313
    edited September 2012

    Jazzy  I didn't take any supplements at all during chemo...but those were additional supplemnents...my onc never said I couldn't EAT good stuff...the only problem I had that good stuff didn't appeal to me at all....now I take all kinds of supplements...

    Ka-cey..good for you!  and you can cuss at me any time....remember that those muscle aches are a GOOD pain...lol....

    My 5k in Amish country was cool..we ran on this trail ..there were Amish buggies going by us and I had to watch for road apples.my time was 29 min..which is excellent for me...I was thrilled...haven't gone below 30 min so it was cool

    Hugs to you Inmate....you are probably having more treatments this week...our arms are wrapped around you girl..you know it.

  • LuvRVing
    LuvRVing Member Posts: 2,409
    edited September 2012

    Welcome, Karen!  I have to say I loved my port.  It was little, never bothered me and always worked.  I should have heeded the advice of my surgeon to leave it in, but I had a clean scan in October and so I had it removed.  Another one is in my future, I am sure.  

    Jazzy - during  DD AC/T chemo I took a prenatal vitamin for the extra iron and folic acid, 3000 mg Vit D, Calcium, some Vit B6, Acetyl L-Carnitine, L-Glutamine, generic pepcid and generic prilosec.  I am being treated by Dana Farber oncologists and I had no restrictions except for Vitamin C.  I was told I could eat anything, including fresh/raw fruits and veggies, unless I became seriously neutropenic.  I had a neulasta shot after every treatment, so that never happened.  Different oncologists have different opinions about all this stuff. 

  • browerl
    browerl Member Posts: 77
    edited September 2012

    I always took vitamins (multi, b12, c, glocosomine and fish oil) however, when I went to my onco she said stop all of them because they could interfere with treatment.  On days when my energy is running low I would love to take my b12.