Calling all TNs
Comments
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Nanatwo6- You came to the right place for support, guidance, friendship and comfort. I can offer advise on getting through the chemo part since I am now 14 weeks in to treatment. I have also learned that Oncologosts have different treatment strategies, so use this board as a source of information, but run everything past your own medical team.
Recommendations:
-Hydrate. Drink a gallon of fluids every day
-Watermelon is a great snack food. Cold, hydrates, easy on gums
-Take the Nausia meds as instructed
-Soft children's toothbrush
-Biotene toothpaste and mouthwash
-High protein diet to rebuild tissue
-Redi wear eyelashes (already have glue strip)
-Shave head as soon as hair starts falling out. Usually 2 weeks after first treatment
-All natural soaps and body lotions
-Get beanies, wraps, wigs, etc... In advance. Don't over buy...
-Night caps will help with the discomfort while your hair is falling out (it hurts!)
-Snacks for in between meals. Crackers were good for me
-Sunglasses when going outside. Sensativity to the sun
-Laugh often, love deeply and live a full life through this. Do not let it consume you...
Hope some of this helps. Huge hugs, and sorry you are here.
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Someone asked me today: "why do you grasp onto the postive bits? That' s the part the make you go WWWWWWWWEEEEEEEEEEEEEEEEEeeeeeeeeeeeeeeeeeeeeeeeeee!!!!!!!!!!!!. Ladies I think I have seriously lost it. I find myself puttin more an more stuff on. I know Whashington is the layering state, but it's still in the 80's here! We're talking patterns, styles, era, metals, plasctics,music genres. I will no longer wait for that specil occassion to pull out the thing wih eyes, from grandma. Must post pictures.
Love and layering to you all!
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xoxo Inmate. Oh what a silly question! Looking forward to the pics, especially the grandma eyes.
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Yep Inmate I think you have lost it lol. Not sure what the heck you are talking about - grandma's eyes!! but so glad you are still upbeat and giving everything a go just as you always do.
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Brilliant inmate.
Love the joke cocker - have to steal it.
Bak - same issues with the hip - had x ray in july - shows An Avulsion Fracture - whereby a piece of bone is misplced and stuch elsewhere. No idea how or when it happened, Dr says maybe a fall when i was younger. Too late to treat.
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Lovelyfae......come live with me. I'll share my woderful Dr K and Dr LEE with you wenever you wanr. My husbnad has turned out to be the most handy medcial Cinderfella as well as just aroud the house. Hmmmmmm, who know? Anywho, we have room and fresh sheets and lots of flowes, still.
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Alright Ladies,
Not Grandma's eyes, per se, but she sen me two fox stoles some time back. One actully bites the tail of the other to stay fashioned around your neck.The best part is the eyes. they were replaced my these hand made sewn on ones. Kinda creepy. I also have a monkey fur coat. Sheesh! no faes, claws or oher grossness.
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Inmate-Please post pictures! Monkey fur coat? Fox eyes? That is kinda creepy!!! I am not much into wearing animal parts:) Well, other than the occasional leather on my feet. Right now I would go around naked if I could! Clothing is just much too annoying and hot! For a long while I would not eat anything that once had eyes! Now I find myself not following that anymore, just can't think about it too much.
My lil doggie has been so needy lately. I think he misses the days during chemo where I spent hours, days, on the sofa. His favorite spot is next to me under a blankie.
Bernie-That sounds painful! With all the scans they have done on me in the past they have not mentioned anything wrong with my hip or back.
Any news lovelyface? Good tumor markers I hope! Mine seem to bounce around a bit and it worries me. The last one was at 34 and that is higher than it has been for awhile. Doc said not to worry, yeah right.
Could you just imagine me going to my boss and putting in my 2 week notice saying the reason is hot flashes!? I am so about ready to do this. I only work 2 days a week and I am miserable every minute that I am there. I am sure my coworkers are tired of seeing sweat dripping down my face and listening to me whine, because let me tell you, I have been the biggest whiner I know! It is so all consuming. I wasn't this whiny when I was on chemo! Maybe it is the hormones making me whiny also, well, at least I will blame that. Plus my mental breakdown at work yesterday.
Add me to the list of those losing it!
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(((Inmate)))- it's so great to see you post, although from the time of night I'm guessing you are probably on steroids with the brain rads and not getting much rest. Can you tell us how you're doing? You obviously have not lost your sense of humor
Seriously, I think of you every time I come to this thread and I check to see if you've been seen here on BCO. In other words, I'm stalking you!!! Seriously hoping that the rads are going ok and that they shrink those mets into oblivion. 0 -
Inmate: Lovely to see you posting; always brings a smile to me.
Minxie: I had terribly vivid dreams/weird sensations when I took pain meds (not for long). And I don't think it was a coincidence.
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Inmate- So glad you came in and gave us the usual chuckles for the day.. I am with LUV, I too am stalking you..lol Keep us posted girl. Oh and another thing, my hubby is the best cinderfella ever.. maybe we should start a competition category for the next olympics!!
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Hi everyone, I've been off tied up with Mom in the hospital. I've finally got her home, but she's regressed a bit both mentally and physically so I've been busy.
Inmate - come back and I'm crying already! Just plain fuck!!! I'll keep praying, but I'm getting a bit ticked off with God! I remember those fox stoles, my grandmother had one. Keep fighting my warrior friend.
Born - Yoga? *runs off in fear*. There is a reason it's a 4 letter word!!!!
Tazzy - enjoy your freedom!!
Titan - *claps thighs*. You're "family" here is in awe and sending tons of support
Hope - glad to hear you're doing OK, and hoping the rads did their job.
Cocker - so sorry about your friend. After all she's been thru, there damn better be a heaven!!
Lory - glad you complained, she's a newbie that need some teaching from her co-workers. Young nurses need lessons in telling patients what they need to know, not all the information the nurse knows.
Bak - just be careful with the plums, lol. My friends dog
got drunk as shit eating rotten apples from her orchard!
Jazzy - I agree we aren't often given adequate info and sadly can't depend on our MO's. I asked my MO the vitamin question and told "no problem", to then go off to chemo, and have the nurse bring a pharmacist up to explain to me all the vitamins I had to take, and those I had to avoid.
DesertMama - glad the news was good, and you were entitled to a fit of the screaming memeeees.
EnglishRose - welcome and glad the group has been helpful to you.
Heidi - good to see you and I want
one of those T-shirts.
KareyBeth - if it's any reassurance I had and still have sharp pains in my breast and had a clear mammo. Also, I still take Ativan at bedtime, to shut my damn brain off.
Lovely - hope your markers come back perfect
Minxie - glad you found a supportive ear. I'm thinking of looking for a counselor.
Welcome NanaTwo
Bak - whine away, you have the right.
Luv - how's your treatment going.
Last couple weeks I've been trying to do the denial, head in sand trick. My MO appt is on the 28th. I have been concerned because I've been so tired lately, but realized that stress and depression could be causing that. I saw my primary, and found out I had lost 8 pounds without trying. (last time my fat ass lost weight was before my diagnosis). My PCP, doesn't agree with my MO's theory of no scans without symptoms school of thought. Wants scans approx every year no matter what. What we settled on is he has put orders for scans, that I am to schedule if my MO doesn't. Been 2 weeks and I'm down another 4 or 5 pounds (and eating like a pig). I'll admit I'm scared right now. Keep reminding myself, "it's in God's hands. I'm just really ticked at the thought of another round of chemo. I don't know if I could do it AND continue to give Mom the care she needs. So pray that some miracle angel just decided to let me be skinnier, lol0 -
DesertMama- The oncology nurses looked at it when I went in for chemo today and said that they weren't sure but that it's probably scar tissue or cording. Slightly reassuring, but I kind of want some more definitive answers! They told me to raise it with the oncologist when I see him next week, so I'm going to try really, really, really hard not to let myself get in to a state about it. Not sure how well I'll do on this during those 2 a.m. worry about everything moments! Did you speak to your surgeon yet?
Smelling like a toxic waste dump today after round three of FEC. Having the lovely red pee Epirubicin experience too. Nice...Just thought I'd share that with everyone!
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Thanks Kathy, I am sure I am really stressing. Much better today. Bought a bunch of notebooks at wallyworld and am starting my Journals back up and got on 2 exercise machines today and cleaned the whole house and did laundryies and decided to do some early Halloween decorating and got a REALLY reassuing call from my sister today and from someone who is tryng to help me out!!
Sorrry for And-ing everyone to death. You know how you would keep a kid active all day so they would sleep real good at night, well I am trying that on me. haha ALL CRIED OUT for now and am on what my sister says is BE A B*&CH ALREADY!!
Sooooooooo I am thinking positive and keeping my mind busy. Prayers for a early nights sleep too!!
Inmate can't wait for the pics. I don't know how to post pics in here. Someone wanna help. Tried yesterday and it didn't work. LoL
BBL
Prayers
Karen
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Kathy - Didn't I mention that I sent the weight loss fairy to your house after she abandoned me? LOL! Seriously, I hope everything is OK tomorrow! I wondered what was going on - sorry to hear your mom was in the hospital. I noticed with my mom that any trauma - an illness, hospitalization, this recent move, sets her back significantly. I hope your mom recovers some of her lost capacity. And my treatment is going very well, thank you. I have an appointment this Friday, then in two weeks (10/5) I'll have the big "show and tell" - the CAT scan that will indicate if ARQ 197 is a TNBC magic bullet.
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Fingers crossed for you, LUV.
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Ladies. Haven't posted in a while. Just tried to catch up a bit.
((( Inmate ))) praying the dads wipe out the brain mets and you get back on the trial. Add me to your list of stalkers. I think of you daily
Michelle hope the trial is going good for you.
Hi to everyone else. I miss everyone but my anxiety is so bad I need to stay off the boards a bit more. Husband and dogs have made it up to PA and we are trying to settle in. Hubby still looking for work, it will come. Had my port out on Monday and have genetic testing appt in oct to look forward too.0 -
Kathy - Geez girl bout time you got back on here. I thought she's gone to that bloody casino again. Was even going to ring your mum and tell her lol.
Seriously I'm sure the weight loss is because you have been running around after your mum and is nothing to worry about. We could all do with losing a bit right!! Keeping my finger crossed for you love.
LUV - keeping my fingers crossed that your big 'show and tell' works wonderfully. I do feel sorry for your mum (probably cause I'm old myself). I went to the Doc's yesterday cause I have had this cough since I caught a cold at the end of rads. I had to blow into a machine. The doc said blimey its almost normal, not bad for an old timer. I said bloody cheek not so much of the old timer there's a lot of life in this old girl yet.
Kareybeth - sending a big hug to help with the stress you are going through.
Big hugs also to Bak, Inmate, Hope, Minxie, Tazzy, Lovelyface, Karen, Jazzy, Titan, LRM and anyone else I have missed out.
I am busy back full time working still at home and will go back to work on the 14th October. Quite like working from home although I miss the company of the girls and the old fellar is away all day forgetting about me but the dogs love me being here so thats something. Still got no spring weather yet but I guess it does intend to come at some time. My BRAC tests came back inconclusive. So now I have to think about whether to have an oophorectomy or not. Any suggestions.
Have a good day ladies. Keep smiling rain or shine. Annie
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Chemo. round 3 was 9/11. Last night got WHOLE nights rest and feel human today for the first time in a week plus.
Nanatwo6. Find out if you can do the chemo. First.0 -
Could do with a hug today, feeling down
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Cocker - Here you go - {{{HUG}}}
and to anyone else who needs one, too.
Doreen
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Luv - in that case, I'll shoo her back after 10 more lbs. (at my age, I can't afford to lose more. Makes the wrinkles show more and everything else go South). Crosses fingers for 10/5.
Cocker -(((HUG))) Snerk....I did sneak off to the casino while she was in the hospital, lol. Got my ass kicked!
Fern - yay for a good night's sleep. NanaTwo - autocorrect's playing with Fern, she typed , she if you can do chemo first.
McCrimmon - glad you're all back together.
(((HUGS Dormac)))0 -
Hello everyone - I've been reading and not feeling like responding lately. Dawn's news of her mets put me in a funk. It seems to me this thread has been quieter for a while too. It's hard to joke around when our sister is hurting. I feel like some of my friends must have felt when they visited (or didn't) while I was in treatment: don't know what to say. My bad.
I've been keeping my hands and mind busy making those little quilts for the kids camp. I have about 25 quilts in various states of being. Some finished, some almost finished, some cut out to sew, others in the planning stage. I'm finding it very therapeudic to be clearing out my fabric supply, knowing it might help some child who is probably worse off than I am.
So for Dawn, Luv, Desert Mom, Kathryn, the newbies, I send the softest, most comforting hugs and good wishes I possibly can. Please remember we care for your well-being.
For Annie - I hope all your typing is going better each day.
NavyMom - Were you able to get the turtle pattern?
Wrenwood - I hope we are still on for October.
It's nearly October........prepare to duck, the pink ribbons will soon be flying over your neighborhood.
Love and joy to all, Jan
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Cocker - (((hugs))) from New Hampshire!
Heather - good to hear from you, hoping you get some relief from the anxiety now that your family is intact.
Kathy - OK, that's a deal! You're right about the wrinkles - maybe I should keep this Xeloda weight. Problem is that DH bought me all new jeans and pants last Christmas and these extra ten pounds don't fit in those size 4's!!! That weight was supposed to make new girls for me
Now it's righ where I don't need it!0 -
Seems to me we could all use a squeeze.
GROUP HUG!!! ((((( )))))
FernMF, Just gotta tell ya, Your typo in your post made me chuckle. "Do the chemist first" Yep, my mind went in the gutter and was hoping for Nanatwo6 that the "Chemist" was good looking!
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Drat that auto spell check. I even put a period there to try and stop it. Honestly girls when on chemotherapy who feels like doing IT at all.!!!!!!!
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I want in too...{{{{HUGS}}}} to my loves! I think of all of you each and every day.
got some GOOD news today and thought I would share. I am going to NOLA on Nov 1st for my new "girls" I cannot believe it took a year to get em back. I am feeling happy, scared excited and everything else I could possibly feel. I go for my 3 month follow up and 6 month pet scan in October so the only thing that would stop this was if something shows up--that just is not going to happen...but for now I am good to go!
Maggie
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WoooHoooo Mags!!!! I can't wait to hear all about it!
Now I understand my goats obsession with plums!:)
Luv-Can't wait to hear how good the trial is working!
Hi Jan69-We all need breaks, so sorry you are feeling down.
CS-I never understood what incomclusive means. Is that just a big "we don't know"?
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Jan...hear you on the quietness that we have now and then....sometimes you just have to step back for awhile.....sometimes our friend's news is alot to take in and deal with...but we do manage to take it in a deal with it...each in our own way....
Hugs to everyone!
Had girls night out tonight...Lime margaritas for a $1....now if it were closer to the weekend it would be awesome!
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Another tough day at sea.... Brady & Gisele... pirates extraordinaire
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