Calling all TNs
Comments
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Jen: YOU GOT THIS!!!!! I will be holding your hand the whole time. xo
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Titan I too hope the bastard is in hell and suffering. We think we suffer but those babies suffered more.
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Jen - you've got this! Good thoughts your way.
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hi all,
sorry melissa cant help with nails, did have a bit of burning during initial chemo treatment but nothing too concerning.
congrats tazzy, over another milestone. if you dont mind me asking what is the trial you are on?
ive just finished rads too, didnt mind them and was more worried to stop treatment thinking the (pip)rascal might be around the corner just waiting to pounce.
been on xeloda for 2 months now just starting naveline, so far no side effects with x just a bit on hand and feet, hopefully navelbine will be no hassles too.
x
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Why We Put Angels On Top Of Christmas Trees
Author Unknown
One Christmas, a long time ago, Santa Claus was getting ready for his annual trip; but there were problems …… everywhere. Four of his elves were away sick and the trainee elves did not produce the toys as fast as the regular ones. So, Santa was beginning to feel the pressure of being behind schedule. Then, Mrs. Claus popped in to tell Santa that her mother was coming to stay for Christmas; which stressed him even more. After a while, he went to harness the reindeer, he found that three of them were about to give birth and two had jumped the fence and run away, heaven knows where to.
Then, when he began to load the sleigh one of the boards broke and several large toy- bags fell to the ground, scattering their contents all over the place. Needless to say, Santa was not in the best of moods. Suddenly, the doorbell rang and he went to the door expecting another problem. But when he opened it, there was a little angel with a great big Christmas tree that she had brought especially to cheer him up. The angel greeted him very cheerfully, “Merry Christmas Santa Claus. Isn’t it just a wonderful day? I have a beautiful tree for you. See, isn’t it just the loveliest Christmas tree you’ve ever seen? Where would you like me to put it?” Thus began the tradition of the little angel on top of the Christmas tree..
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Jen Jen today is my first chemotherapy fast too. I go at 430 tonight. Stress headaches for days already! I'm more scared of the cancer r then the chemotherapy. But I'm so moody if you asked me in five minutes I'd likely say something different. We have to do this. We have to be well! I'll be thinking of you today. Peace my sister.
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Cocker: That is beautiful and made me cry. Silent night is on the radio right now which, probably makes me more emotional. My heart breaks for all those children and families. It would be my worst nightmare. May God embrace them all and help to health those families. The world seems so scary and unfair at times.
Jen and Hope: Good luck today girls. GO get em xo
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Hi Ladies, I have not posted in the longest time, however I have been lurking. I have a question for anyone that has had a lumpectomy/segment mx and rads. I had a segmented mx, and rads- I have lymphedema in my breast an side. Anyone deal with this? I have searched through the lymphedema threads and can't find anything. I am wondering how long this is going to go on- mine seems to get worse, then it subsides a bit, them bad again (like now).
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Lory- I had a right mx/rads and now have "breast" and side lymphedema too. I have to wear a compression bra. It has helped a lot with the swelling and the pain. The brand name I use is Angel Care. Hope that helps.
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Babs, thank you for the info, I will ask my fitter about this one. I have hard spots that are taking forever to go away.
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Hi ladies
I don't post much but I am checking in on you guys every day. Been trying to get ready for the holidays and its just been so busy. Anyway hope you all are doing well. Ladies that are just starting chemo. You definitely can do it! The first is the worst because of anxiety but it is really not as bad as our minds tell us it is. You will get thru it. Think positive drink lots and take the meds and you'll be fine :-).
For those out of treatment I have a question. When your hair grew back did it come back gray?? I was so happy mine was coming back but it is coming gray and now I have something else to be upset about! Does it ever end? Anyway let me know what everyone else experienced. Thanks! Have a 6mo surgery follow up with BS tomorrow. I don't know what to expect so I am nervous. Anyway have I sight on that? I don't feel like going for any scans now around the holidays :-(
Anyway. Hope everyone has a good day. On top of everything else my thoughts have been in CT and with those poor families that list loved ones. So sad and horrible that they have to go thru this. I have been kissing and hugging and saying I love u to my kids more these days....0 -
Hi I am Anne, was just diagnoised with Stage 1, Invasive Ductal Carcinoma, Grade 3, no lymph node involvement. My question is I was given 2 different regimens and not sure what to do. The first one Taxotere with Cytoxin or Adriamycin, Cytoxan and Taxol. How do you decide. I also have the option to be in a trial and they will pick one for me. My docotor thinks I should do the Taxotere and Cytoxen. I'm leaning towards that. just wondering if anyone has similar diagnoises and what chemo they are taking. This is all so hard....
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Thank you for the reply. I hope you are feeling better and that you can enjoy the Holidays. What chemo regimen are you taking? I have 2 options and haven't decided yet. I have the choice of Taxotere and Cytoxan (which My oncologist suggests) or Taxol, Cytoxan, and Adriamycin. He doesn't think I need the Adriamycin, I quess it's really strong. So, decisions, decisions. Thank you for listening. Stay well.
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Hi everyone I haven't been here in awhile, not sure what group I belong in now. I think I mentioned my pathology report came back some hormone recept positive in both Estrogen and Progesterone. My Oncologist said it enough to push me out of the TN diagnosis. I am not so sure. I did put in a phone call to him today I went through my pathology report yesterday and I have so many questions. When I met with him on Friday I hadn't reviewed it myself yet..
I am also struggling with which type of treatment now.. I was going to do the dose-dense A/C then T. Now he says only 4 cycles of T/C. I am just wondering if I should still do the Adriamcycin? However, the Taxotere and Adriamycin are the same type of Chemo Microtubule inhibitors.. I am so confused..
Carla
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Why are doctors asking you to choose what chemo to take? They are suppose to be the professional. That's what we pay them for!!! Plus what if you choose wrong? Then you have that to live with!
My Doctor told me the best thing for me to take was AC and then Taxol
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HopeFaithCourage - nice to know were are on the same starting point. I am having TAC for 6 cycles...every 3 weeks. I had a good experience today. I have really rounded to negative corner in the last 3 days. I am the opposite of you though I am good about the chemo part but scared about the cancer part. Good luck to you!
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russell33: This is just my opinion, and I'm certainly no healthcare professional, but my personal choice would be to go for the most aggressive chemo regimen that's being offered and make sure you kick the cancer as hard as you can upfront. As I said though, that's just the way that I would approach it. I've just finished 6 rounds of 5FU, Epirubicin, Cyclophospamide and Taxotere which my MO said was the "full whack" because I am ER- and in my thirties. I had two nodes involved though, and my offending lump was a bit bigger at 1.5cm.
Hope and jen: Hope the chemo went well. It is manageable.
Melissa: My hair is just starting to come back now. Can't tell what it's going to look like--it's just fuzz at the moment! If it comes back grey, I was thinking I would just colour it. Or is that a big no-no now too? Alcohol abstinence and no hair dye--now that will be tough!
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I agree go aggressive now and knock it out.
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Hi russell33 - Your diagnosis is similar to my own. My onc discussed the same chemo options with me and felt the T&C option was best. The adriamycin has been found to cause heart problems in a small percentage of patients - which was enough to convince me too. Best of luck with your decision and chemo treatments. Hugs!
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hello russell33 - not doing Adriamycin would definitely be my choice - been there and done that - never doing it again. My thoughts are with you.
Sherry
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Hello, TN Sisters!
A special hello to my Michigan sister, Loafer! She and I are also friends on What Next! So...the chemo schedule is set for me. January 9th...6 rounds of Cytoxen and Taxotere. I am stage llA. With the history of heart problems in my family I am not going to use Adriamyacin...I have thought long and hard about it and consulted with several trusted doctors.
Trying to get in the Christmas spirit...our kids are 22 and 18 and I still want the magic! The tree is up waiting for ornaments...of course 2 strands of lights didn't work so it is off to Wally World tomorrow for more lights.
Wishing you all well and saying thanks for being here...
nanc
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Russell...I did 4 AC and going in for my 4th taxol.. They did a echocardiogram on my heart before I started the AC which is routine. I have an aggressive Tumor so they wanted to treat it aggressively which I am glad. I had no problems with that whatsoever. Now, taxol on the other hand is kicking my butt! All kinds of side effects but I am getting through it and even working while doing it. Everyone responds to,the chemo differently.
Good luck to you!0 -
First chemotherapy done! Even with a sleeping pill i woke up several times and then b finally at 430 have up and got up. I'm nausea but it's tolerable like annoying morning sickness. I'm doing my best to keep it to myself for my kids sake because they are terrified. Thank you to everyone for sharing your journey.
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Russell33 -- I am doing Adriamycin and Cytoxan combined every two weeks for 4 rounds. Then I will have 12 weekly treatments of Taxol. I have had the first two treatments. My next will be December 27.
Blood work yesterday showed WBC too low again so they said stay away from public places still -- especially Christmas shopping. Thank goodness I have been able to do all my shopping online. Well except for stocking stuffers. That's always been my favorite -- spending the last Saturday before Christmas finding little things to go into stockings.0 -
Take the anti-nausea meds, Hope! Compazine or Zofran - you should have a script for one of them. Don't try to tough it out. Glad you're doing mostly OK after treatment #1.
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Hi Loafer, thank you for responding to me. This website has so much information and it's nice to chat with people who are going through the same thing. My husband and I decided that I am going to do the TC regimen. That's the one my doctor suggested. Hope I'm making the right decision. Happy Holidays.
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Hi 5thsib, so my husband and I discussed it and I have decided to do the Cytoxan and Taxotere regimen. It was so hard to decide but my oncologist also recommended this one I would have done the Adriamycin but the oncologist didn't think I need it Hopefully I made the right decision.
I hope you are able to get out and get your stocking stuffers. I did most of my shopping online before I had my surgery because I didn't want to have to stress about it. I do need to get stocking stuffers also so I will get out this week sometime and do that. I hope you have a wonderful Holiday. Thanks for sharing your treatment. Russell33
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Hi luvrring, I just got diagnoised and I noticed the first time you were diagnoised is what I am diagnoised with. Do you mind sharing what treatment you had the first time. I'm so sorry that it came back. I hope you are doing well. Have a very Merry Christmas and A Happy New Year.
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I conquer my 1st chemo treatment yesterday. Last night I literally felt like I was having an overdose, I have never taken so many drugs in a day (4 steroids, 1 xanax, 1 celexa, 2 Tylenol, 1 claratin, 1 nausea meds (plus to 2 at injection) and 3 bags of chemo drugs). My goodness, this coming from a mom who pisses and moans about taking tylenol during PMS
The girl next to be was on her 4th round of of chemo and we talked for a long time, she has the same diagnosis/treatment as me. She was so nice and gave me all sorts of tips, advise and phone number. She was a blessing, her name is Renee.
Today I feel really tired and want to sleep but the steroids keep me awake and I can't knock out since the kids get home at 530, the sitter can stay until 630 so that's 2 more hours.
Have a good day ladies.
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Jenjen...glad your done with your first. Now you know what to expect. I remember my first time was so emotional then it got easier. Now, knowing my last treatment is coming, I think it will be emotional as well. I'm not one to take pills either. I will only take Advil if my arm is falling off but NOW, I'm popping pills for this and that. It's disgusting.
Russell...so glad you have decided on a plan. Once you have that set, you can relax, (sort of).
5thsib...stocking stuffers are my favorites too. My boys are in their 20's and I still do them up. Does anyone ever stuff my stocking.....NO!
Off work for two weeks so laying low and enjoying some time alone. I get to hold the channel changer all day!0
