Calling all TNs
Comments
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russell33: So glad you've decided on a treatment plan. If you haven't checked out the chemo groups already, I'd advise you to join in with the December or January groups since they will provide you lots of information and support from other ladies who are at the same stage of treatment as you.
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Got my surgery date for a new tissue expander - end of January. I can't believe I'm going through this all again... The surgeon says the radiation doesn't seem to have made too much of a mess of things, so hopefully I can get something like a normal boob back.
I am considering "running away" the week before surgery, spending the week at a beach cottage in NC. I'd bring my drawing supplies, computer, waterproof boots, parka, vodka, hot chocolate, books, my ipad... and just spend the days sleeping late, walking the beach, and drawing. Some time away from it all. Everyone in my family has given me permission - except my 7 year old son, who desperately wants to come with me. I've tried explaining how it won't be like the summer, that he can't swim, that he'll be bored out of his mind, but he really want to be with me. He loves his mommy, and I love my babay. I don't know. The idea is for me to get time for myself, and if he's there, I'll be on Mom duty. But he sure is sweet and cuddly and I'm not sure if I'd get terribly lonely all by myself for a week... Any thoughts?
Good luck to all of you starting chemo! It's tough, tough, tough, but when it's over you'll be glad you did it.
Anyone heard from Inmate?
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Hi all, I'm new here even though I'm finishing up chemo. I noticed this board just for TN and figured I'd join and say hello. I recieved neo adjuvant chemo and am having BMX the end of jan. I just have one taxol left and wanted to share with anyone who has a similar dx that I had an MRI last week and the result was no tumor detectable. The chemo shrunk it, it worked. I hope this helps someone feel hopeful about their own treatment!
Not looking forward to surgery but I chose the prophylactic BMX so that I can put this behind me.
I wish you all the best.
(I'm 37 with 3 adolescent daughters for reference.)0 -
Russell33 - for my first instance of BC, I had a lumpectomy with sentinel node biopsy. The nodes were clear and I was slightly ER positive. I did brachytherapy radiation (5 day Mammosite) and then took Femara until March when my recurrence was diagnosed.
Minxie - I think you're going to have to follow your heart as to whether or not your son should go with you to the beach. I do think you deserve a break and that's always going to be in conflict with spending time with your child. How does one avoid "mother's guilt"?
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NJeanRN...just talked with you on another thread. I am on too many threads.
You and I are on the same schedule. I will finish up taxol on the 27th and then BMX end of January. I haven't had my MRI yet but they nor I can feel the tumor at all. But my boob throbs, my underarms hurt so that makes me nervous. I'm anxious for surgery as well. Two of my sisters are coming out to help me. Take care,
Erin0 -
So glad to hear the two new members, survived their first chemos!!! (placing crowns on your heads for bravery)
Had my gemzar today. WBC down to 2.3 - so I have to have the neulasta shot from hell on Friday.0 -
Hello from Michigan!
This thread is so long and I wasn't sure if I properly introduced myself...I'm Nancy from a suburb northwest of Detroit. 59 and diadnosed this past Octiber. I had a lumpectomy 10/22 with sentinal node biopsy that was clear. I hda port placed at the same time because intital pathology showed I was TN. As I mentioned last night I wll be starting chemo (6 rounds of C/T every three weeks) followed by 7 weeks of rads.
I am slowly trying to read the thread from the beginning but it is a daunting task, isn't it?
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Welcome Nanc! Almost 20,000 posts - yes, very daunting!!!
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yes we are quite the chatty bunch! Welcome to all you newbies and to those just starting chemo...one day at a time..baby steps.
Well today I had to have a woundvac put on my belly scar. I had diep 7 weeks ago tomorrow but the belly scar has opened just a wee bit and needs some help to heal it up.. hopefully I will only have it for a few weeks. what a pita!
Maggie
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Minxie-What a tough choice, I think Luvrving's advice is great.
Hopex3-I think that pain is normal. I felt pain during chemo and after surgery they found no cancer, so I do think cancer can hurt as it is shrinking, which makes since, all the surrounding tissue and stuff is changing!
Last minute we decided to have family over for xmas eve. Well, I threw my back out, I can't even unload the dishwasher. Of course I am worried that it is cancer, but can't get to the doctor until after the new year, which I really prefer! I don't want to worry about scans and such right now. Laying on a heating pack right now looking at my extremely messy house! My back has gone out before cancer like this and it usually takes a week to get better, uggh.
I haven't heard from inmate either. I wish she would stop by. I hope she is ok.
Thinking of all of you!
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Had my 6 month follow up with my BS today and she said everything looks great and see u in 6 months! Yay! Now I can really celebrate this holiday season! My exchange surgery is scheduled for march and 3 month follow up with MO in feb. but til them I am going to try to enjoy the holidays and my birthday in January!
Sending holiday wishes to everyone and warm welcome to the newbies! You will do fine with chemo and before you know it you will see the end if the tunnel!
Hugs to everyone!
Melissa0 -
Hi englishrose , I'm not sure what the cancer groups are. I'm confused because I'm so new to this. Any information would be helpful. Thanks so much.
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Russel I had the same options - act or TC. I chose TC, I had 1st TC on 11/13/12, and going ok. Hard choice. I tossed back and forth for 3 weeks! And canceled and rescheduled.... I thought I would never live with it if I made the wrong choice.... Best of luck
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NjeanRN~ great news on your MRI and finishing your Taxol tx!!
bak94~ lay low and get that back feeling better!
I am dealing with pain in my right hip, which I also had before bc, but getting a bone scan just to be sure. My exchange surgery is Dec 26th. Not too happy with all of this happening so close to Christmas...but there never is good timing with bc.
Thinking of all of you and sending you the best Holiday blessings!
Cyndi
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I found this site from another thread. Just had treatment 5 of 6 today, waiting for the SE to kick in :-( My MO is setting up my BRCA testing in Jan/Feb. very nervous about that.
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OBXK -- I get a Neulasta shot after each treatment. They told me to take Zyrtec twice a day for 5 days starting the day of the shot. I have not had any issues with the shot. You might ask about that if they haven't recommended it already.
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Hi ladies! I haven't posted in a long while, but wanted to stop in and say hello. Welcome to all the newbies! So sorry you are here, but these are the best bunch of girls in the world! I am trying to live life without thinking about the FC, but we all know that is completely impossible! I have a 3 month onc checkup next week so that reminded me I haven't been on here for awhile.
Luv- glad you had a good trip to Vegas and I hope the new combo works well for you.
Bak- so sorry you are feeling so low right now. I don't know if I could make that decision either. I love my kids more than anything, but alone time sure would be healing. I'm sending you good thoughts whatever you decide.
Missing Inmate and Hope. Praying they are well.
have a wonderful holiday ladies!
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To all my friends and loving supporters on this thread. Because I will be heading off for two weeks in the caravan after work tomorrow with my old feller and my girls and their families I would like to wish each and every one of you the best Christmas ever. May you have nothing but happiness and joy with such little side effects you won't notice then. Eat as much as you can, doze when you want to and have a little tipple if you feel like it. Have a very very Merry Christmas and a safe and happy New Year.
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Annie - I hope you have a wonderful time! We will miss you
Maybe you'll bring your laptop and sneak away to a coffee house that has wifi !!!
Safe journey - love you, K0 -
Cockerspan...Enjoy your special time with your family!
Merry Christmas,
Erin0 -
russell33: If you just type December 2012 chemo group in the search area, it should come up. I'm not sure if anyone has set one up for January yet (not sure when you start) but if they haven't already, I'm sure someone will soon. Try this link too. Not sure if it will work.
http://community.breastcancer.org/forum/69/topic/796653/3341373
Annie: Have a great trip! "See" you when you get back!
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day 3 and have felt like crap since tx. This may be more challenging than I expected.
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Annie - have a wonderful trip and a fabulous Christmas. I'm curious - just where does one go on a "caravan"? Whatever it is, I hope you have lots of fun!
JenJen - are you drinking plenty of fluids? I can't stress how important it is; soups, fruits, puddings, ice cream all count toward your goal of 96 ounces a day. And go for small frequent meals - you have to treat this almost the same as morning sickness. If you are getting the Neulasta shot, be sure to take claritin (or zyrtec) for a few days afterwards. It will help with the bone pain. I hope you are feeling better very soon.
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I am trying to get the fluids down it's hard I just want to sleep but my body won't let me sleep. Going to have soup and sprite for lunch, then pudding...good idea. I just feel weird all over like this isn't my body. TOO many drugs and chemicals. UGH.
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Have a great time CS.
Luv: hope you feel better after tx soon.
Hugs to all xxxx
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russell33 - It's a personal decision which treatment regiment you take. I was never given a choice and find it interesting you were. Were others. They put me straight on AC-T. I did the four weeks of AC. They did a muga scan and I thought I was strong enough though everything I get a pain there I worry.
EnglishRose - reading about your "full whack" treatment. I'm wondering how and why treatments are different in the UK/EU. I would be interesting to see a cross study of various regiments for different parts of the world.
Mags20487 - Getting a wound vac should help you with that. I've read they are very helpful. How are you doing today?
Minxie- good luck with that alone time. I have a 7 yo too. I can't imagine she not wanting to go. It'll be good for you and you will miss everything, that's the whole point of going away. Why are you going through it again. Sorry for not following.
Cockerspaniel - Have a great trip!
Jenjen - It's good to know you started the treatments. Try to get some exercise in, it helped me during the AC.
I'm home recovering from surgery and afraid to go out anywhere and catch one of these bugs going around even though my daughter is home from school today with one of those very bugs. She has a bad cough and running low grade fever. I feel like I can't escape sometimes. My boob looks horrendous, like a sac full of blood. I keep wondering if I did the right thing. So horrible to second guess. I have no idea what to do after this, still waiting for the pathology. For those who don't know, I had neoadjuvant chemo which was interupperted after the 5th treatment with pneumonia. They put me in for surgery (lumpectomy on the right breast) on the 14th. I have pain in my armpit incision and in the breast and I don't want to take more pain meds. I finally got a decent bra I can wear in the mail but it's ugly. THey only had white.
I'm thinking about what they will recommend and what I want next. I wish it all would just stop. It's not going to. I am taking my own advice and stay strong. I say that but waaaaah!!!!
I wish I had longer to prepare for xmas and my B'day is coming soon.
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QueenKong - so sorry you are having such a time with your post-op. Does Tylenol give you any relief?
Hope the little one feels better soon too.
Luv - I think of you, everytime I fill my water bottle! Keep reminding everyone, it works. I think the English use caravan for RV/ camper.
xxxooo0 -
Those of you on steroids and in active treatment...you can negotiate with your oncologist to cut back on those nasty 'roids. I took just one 6 mg tablet on the day of treatment when I was doing dose-dense A/C and I was fine. No sleeplessness or any of the other SEs. If you experience a lot of nausea, they can help. But it may be worth your while to try a much lower dose and see how you do. You can always add them back in if it doesn't work for you.
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A touring caravan is one pulled behind your car. A static caravan is more like a trailer, it does not move and is often on a site with amenities. Some are very posh. Some have them in holiday places and visit. Others tow their caravans to a holiday place.
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Hi Yananma, thanks for the info. I hope I am making the right decision. How has your first treatment going if you don't mind me asking. Any awful symptoms yet? I start my 1st treatment on January 8, which I may have mentioned in an earllier post. Best of luck to you too. Happy Holidays.
Oh, I forgot to ask why you decided to have a mascectomy? My doctor didn't think I needed too. I go back and forth about that decision too.
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