Calling all TNs
Comments
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Liv I do the same as you. If my old fellar goes for a blood test I always tick the boxes for his cholesterol and prostate to be done if the doc hasn't done it. I might get sprung too but what the heck.
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hello all
luah - what do you mean most tnbc dont recur at all? I wish but i have not heard this, tell us more please?
cocker spaniel - thx great video -everyday i walk down the park and all the doggies are there.
so unique are they and nothing puts a smile on my face like a dog no matter how im feeling.tazzy - brain fog is moi - seriously i forget what i was doing 2 seconds ago..never mind we have a good excuse when we need it.
mrsrenicka7 - im waiting for my results and no matter what they are im having the other good breast off and have put it to my bs to do this asap and whilst im under have asked to take ovaries out and for the life of me cant understand why they never took 2nd breast of or recommended it with such a bad path report as i had...figure if i get 2nd one off asap then i can have both reconstructed in 8 months.
kidandlabs - whoop whoop - such a good feeling, now time to nurture and build up those bloods again.
loafer - rads were a walk in the park for me and most say the same.
so much more research is going into triple negative all over the world and hopefully in the near future we might be given a bit of confidence. they are putting a lot more dollars to research tnbc.
when we look back over the last 10 years tnbc was so behind and didnt hold much hope as far as any sort of treatment at all and with mine being ibc also it was a death sentence with no hope. i have a good feeling that finally we are on the move, they are getting closer.
try and keep strong ladies & have a great day
xx
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Now that our Bernie has left us you will have to put up with me for the joke of the day but I warn you I will be a poor substitute for her.
Bet you never thought of this ..... New Treatment for Sunburn.
A guy visiting in Hawaii fell asleep on the beach for several hours and got horribly sunburnt specifically to his upper legs. He went to the hospital and was promptly admitted after being diagnosed with second-degree burns.
With his skin already starting to blister and because of the severe pain he was in the doctor prescribed continuous intravenous feeding with saline, electrolytes, a sedative and a viagra pill to be taken every four hours.
The nurse was rather astonished at this and asked what good will viagra do for him doctor.
The doctor replied it won't do anything for his condition but it'll keep the sheets off his legs.
I have heard they have started to do this in rest homes too. It stops the old fellars from rolling off their beds. I might even get some for my old fellar.
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Cocker: good one - ha ha ha!! OK here's my contribution. Off to work now - have a good day everyone.
Love & Hugs xxxxxxxxxx
A successful rancher died and left everything to his devoted wife. She was a very good-looking woman and determined to keep the ranch, But knew very little about ranching, so she decided to place an ad in the newspaper for a ranch hand. Two cowboys applied for the job. One was gay and the other a drunk. She thought long and hard about it, and when no one else applied she decided to hire the gay guy, figuring it would be safer to have him around the house than the drunk. He proved to be a hard worker who put in long hours every day and knew a lot about ranching. For weeks, the two of them worked, and the ranch was doing very well. Then one day, the rancher's widow said to the hired hand, "You’ve done a really good job, and the ranch looks great. You should go into town and kick up your heels." The hired hand readily agreed and went into town one Saturday night.
One o'clock came, however, and he didn't return.
Two o'clock and no hired hand.
Finally he returned around two-thirty, and upon entering the room, he found the rancher's widow sitting by the fireplace with a glass of wine, waiting for him… She quietly called him over to her.. "Unbutton my blouse and take it off," she said.
Trembling, he did as she directed. "Now take off my boots.". He did as she asked, ever so slowly.
"Now take off my socks."He removed each gently and placed them neatly by her boots.
"Now take off my skirt.. He slowly unbuttoned it, constantly watching her eyes in the fire light…
"Now take off my bra.." Again, with trembling hands, he did as he was told and dropped it to the floor.
Then she looked at him and said, "If you ever wear my clothes into town again, you're fired."
(P.S. - I didn't see it coming, either)
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loved it tassie & cocker
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Hi ladies, just wanted to give a quick up date. I had my first treatment on Tuesday. What a long day...Then only problem I had was a reaction to the benadryl IV they gave me before chemo. I had extreme restless leg syndrome and had to urninate every 2 minutes. A lot of up and down until the 2 ativan they finally gave me, relaxed me. Slept a little through infusion. Felt pretty good after just tired and kinda had a high feeling. Went home and shortly went to sleep with no problems and slept like a baby all through the night. Probably the best night of sleep I'v had since my lumpecomy. Finally the pain and swelling from that has went a way. Slept like a baby last night also. No nausea or side effects yet. Just trying to keep busy......I did the shot yesterday and so far no pains and aches. Hopefully I won't have to experience that. But if I do I know what to exspect. So glad to have the 1st round done. 3 more to go:: I hope everyone is feeling well. This board has helped so much getting prepared. I wish all of you the best. I definitley don't have much of an appetite but trying to push some foods. The water thing is the hardest. Trying to drink cranberry juice in between. I'm not sure if this is normal but I didn't have a period last month (sure it was because of all the stress) but I did start today. Hopefully it won't be to bad. Good luck to everyone who is starting treatment this week, next week and so on. I wish you nothing but good days. Hugs to all, Anne
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liv- Here is one study: http://jnci.oxfordjournals.org/content/100/16/1179.full.pdf+html
Within 5 years, 93% of hormone neg women had no recurrence, 89% within 10 years.
There was another more recent study cited on these pages somewhere, I will try to locate it. But as I recall the recurrence-free outcome at 39 months was in the high 80s. Most TNs, thankfully, do not recur. But it is important to bear in mind that TN is made up of many subgroups (basal, BRCA etc.), with their own risk factors.
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I saw a recent story on a lady with mets that is going on 12 years after diagnosis. She gets monthly Herceptin. This is interesting since just awhile back, someone posted the study that showed real progress treating BC, even if HER2 neg with anti-HER2 drugs (I assume herceptin). See the article here:
http://www.myfoxatlanta.com/story/20524202/woman-defies-odds-in-battle-with-breast-cancer
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thx luah great read.
thought you were saying no recurrence at all, right from day one, would be very nice but ive miss understood you. made me think though, your words that it was not so good if you didnt respond to chemo. well i stopped responding after the 4th dose and tumor grew another 3 cm from 4th to 6th treatment. shocking onc would not listen to me and i was green as we are when first diagnosed and just shut my mouth until i learnt what a head farrkkker that onc was., dreadful dreadful!
by the time i had finished treatment tumor was a whopping 10cm.
so that chemo i did not respond to but it appears since i have been taking xeloda and navalbine ive had good results that being the nodes in chest have shrunk 80% whilst on the last 3 months.
my question now is, does that put me into the category does not respond & the above stats are saying 5 years 93% no recurrence would not apply to me taking into account new chemo since finished standard treatment have had good results..
gawd im talking in riddles, have i made any sense at all?
xx
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Dont post often but...wanted to share..Three years ago today, I got the phone call "you have breast cancer" - what a journey it has been! Just had my 3 month check up on Tuesday and everything "looks good"...we now need a cure so our daughters, friends and sisters dont follow in our footsteps! Have a great day everyone...
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congratulations ms kelley another 333 years to go
xx
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minxie
Did they say if they catch it before it spreads that its curable? I cannot seem to find many women with this story.
Thats why they do alot of chemo before removing tumor now . Because it will show if your cancer responds to the chemo.If it does not they switch to one that does.
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Hi ladies! I havent posted in a long time but I do read when I can. Still on chemo - carbo/gem - and it's been knocking the cr*p out of me. Plus I've had some "extracurricular" activities....port installment, rbc transfusions, etc. Seeems like its been all BC, all the time.
But I did want to wish you all a belated happy and HEALTHY New Year!
Love,
Hope xoxo
PS - any news from Inmate? I've been thinking of her a lot.
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Happy New Year's everyone. All is well just taking things one day at a time and enjoying life.
That's my new motto from here on out ENJOYMENT!!
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Hi Hope! So glad to hear from you! I hope the rbc transfusions are helping you feel better. Sending you a PM.
Inmate has posted on facebook recently.
Love,
Christina
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Finished chemo, just need to get through the next few days. BRCA Testing next month. Fingers crossed for it!
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I am so glad I popped in today- Hello Hope60 and Fighter! Good to "see" you both.
Hope60- sorry chemo is whipping you- I too hope the transfusions help. Is everything back to normal for you (whatever that may be!) after Sandy hit NYC? I understand there is still a mountain of problems both in NY and NJ.
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Finished round 2 of chemo today 1/3 complete. The modifications they made have helped tremendously (fluids daily for 4 days and percocet for the bone pain) - I can't believe the difference. I go back to work (working from home for the majority of this year) this monday and am quite excited to socialize and talk about more than cancer. It's gonna be great.
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Catwhispurr ..I asked my onc about the Herceptin and your level of her2 has to be below a 1 and I am a 1+ she said. She said I was too high of a "negative" to go on Herceptin.
She does have TN patients that were able to go on it but not for me.
So you ladies may want to ask your onc your numbers.0 -
Hope60 - So nice to hear from you. Thanks for stopping in, with all that you've got going on.
liv - a few thoughts. Many of us had adjuvent chemo and have no idea if the chemo regimen worked or not, yet we are (so far, knock wood) doing fine. I can only imagine the anxiety of knowing the chemo didn't work, or stopped working - but the good thing about neoadjuvent is that they/you can move on to something else. Second, whether the stats are 75%, 85% or 90% for 5-year recurrence free survival, at the end of the day it comes down to 100% or 0% for each of us. We're fine or we're not. Although I'm a bit of a research junkie, I've also come to accept that it's a bit of a crap shoot. And speaking of that, I know a woman who had a 10 cm tumour, 26/27 nodes positive... she was diagnosed about a year before me and is still doing fine. Wishing you a similar outcome...
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thx luah, yes the bottom line... its all or nothing...100% -or 0% so true.
a search junkie, we could hold our own clinical trials, if we did it on all the members on here we could tell the medicos a thing or two...you can do the research and ill process it for you.
encouraging 26/27 and 10 cm going strong..whoop whoop.
xx
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Kelley41, thanks for posting. It's always encouraging for people like me who are closer to diagnosis to hear positive news from those who are further out. Congratulations.
Luah, such sensible words as always. Thank you.
Nuke number 7 of 20 today. Rads has been an eventful process so far. They are expecting an inch or two of snow here over the weekend and the excitement is building. Would make all you Canadians and New Englanders laugh.
My mind has moved on from chemo but my body is lagging behind. Feel like an old lady at the age of 37!
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Todays giggle
A man escapes from prison where he has been for 15 years. He breaks into a house to look for money and guns and finds a young couple in bed.
He orders the guy out of bed and ties him to a chair, while tying the girl to the bed he gets on top of her, kisses her neck, then gets up and goes into the bathroom. While he's in there, the husband tells his wife:
"Listen, this guy's an escaped convict, look at his clothes! He probably spent lots of time in jail and hasn't seen a woman in years. I saw how he kissed your neck." If he wants sex, don't resist, don't complain, do whatever he tells you. Satisfy him no matter how much he nauseates you. This guy is probably very dangerous. If he gets angry, he'll kill us. Be strong, honey. I love you."
To which his wife responds: "He wasn't kissing my neck. He wwas whispering in my ear. He told me he was gay, thought you were cute, and asked me if we had any vaseline. I told him it was in the bathroom. Be strong honey. I love you too!!"0 -
Hope60- good to see you. I hope the transfusions give you the energy you need. This cocktail can sure flatten you. Wishing you all the best.
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Cocker: ha ha ha ha ha !! Good one.
Hugs to all
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I have a somewhat odd question that I am hoping someone can answer. Men also get breast cancer and since their bodies do not produce estrogen, are they considered TNs?
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good question wrenwood i have no idea but would also like to know. they do carry the brca gene.
xx
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Wren and Liv
Men can and do get triple negative breast cancer and overall they have a poorer prognosis than receptor positive BC in men so mainly they have the same prognosis as us.
Annie
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annie - that joke was just awful - and i loved it, just told my friend laughing my head off.
& thx for reply re tnbc men.
xx
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Annie...thanks for the jokes. Told the one about the sunburn today. Got a lot of laughs.
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