Calling all TNs
Comments
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Happy New Year to all. Just had a clean mamo and a clean PT/CT Scan. Have graduated to one year apart for mamo and scans. Yippee. Thanks for all the prayers and support.
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erin - you can steal anything that makes us stronger. love to hear they are doing lots of research so i definitely have to hang around till at least 2014 to get the heads up on all the positive new treatments for trip negs. and have another excuse to go out and say goodbye to 2013 with a blast.
im with you erin.
guygirl - congrats so happy clear mammo pet scan, well done.
xx
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Luv- just wanted to pop in and wish you all the best on the carbo!
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Thanks, Tif! Happy New Year to you and your family!
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Hey ladies, I hope everyone had a wonderful Holiday.. Mine was quiet, just DH and I, then on New Years eve we celebrated with friends at the Legion hall. It was a fun and loving night.
On a different note, just came back from the doc's to review MRI results of my neck and back (ongoing pain). Well the neck MRI shows a nodule on my L thyroid and my L clavical lymphnode.. This was not what I wanted to learn about. Anyone of you have nodules on your thyroid?
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Happy New Year to you as well, Luv! I will be sending you strength for your New Year's resolution!
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Tif - when I come back to KC for a visit, we have to get together
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I would love that!! Please let me know! By the way, did I mention Monaghan is retiring? I will see him for the last time in April and then some gal that is currently in Joplin will be taking over for him.
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You did mention it, but I don't think you said when. I hope you like the new onc...you know how I felt about Monaghan
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well 2013--a new year full of new insurance decuctibles and copays--=sigh
Wound on belly is still taking it's time to heal so still dealing with wound vac and possibly more hyperbaric tx in my future--waiting on insurance for that one. Love my "good" diep boobie. It looks so amazing and super great in clothes. March is my next surgery date to restore the left one this time with a gap flap.
Luv--you are amazing the way you encourage us all...we are your personal cheerleaders! GO LUV GO!
Pet scan friday to take a second look at nodule on lung found last time...here to hoping for scar tissue!! Will keep you posted.
tonights dinner--wine and cheese...fantastic
Maggie
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I hope I like her too. It will be weird having someone new do my follow ups, but having a woman will be nice!
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Thanks, Mags! You all give me energy to carry on...along with my 4 kids, 3 grandkids, hubby, great friends, etc.
And my fabulous oncologist who was disappointed that I didn't wear my deranged Easter rabbit suit in for chemo. I promised her she'd see it one of these times, probably when both my DD and DH are there...it was their doing that I got it from Santa Jammie. I might have to play A Christmas Story on my laptop for some of the nurses to get the joke...lol!0 -
Hi ladies. Just stopping by to wish everyone a very happy new year! It has been so crazy with the holidays and tomorrow is my sons 7th birthday! I am ready for a vacation! Lol! Hope everyone is doing well. Been trying to catch up on the posts :-).
My best Xmas gift was that I had enough lashes back on Xmas eve that I could actually use mascara! My eyebrows are also almost back although still a little more sparse than normal. I am still a little freaked out about the whitish fuzzy hair though....hoping that changes soon though.
Wishing everyone a happy 2013... Much health and happiness to us all! We deserve it!
Melissa0 -
Hi ladies! I have been away from the boards for awhile, just wanted to stop in and say hello and wish you all a very Happy New Year!
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Wow, I don't think I've ever seen this site go so quiet for so long. Guess everyone is recovering from the holidays, eh? Just hope everyone is dealing with tx and SEs well and that the new year brings good fortune to all!
Doreen
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hello,
think this might be a dumb question but im confused, doesnt take much these days!
im a ibc trip neg, if i have progression/mets, will the mets still be trip neg inflammatory, say i progress to liver or bones is that too trip neg inflammatory?
xx
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Hello everyone. I hope all had a wonderful holiday season. Unfortunately, all I could do was lay on the couch and watch everyone celebrate on TV New Year's Eve -- next year I will have to make up for it!
Liv-, I can't answer your specific question, but I do know that even if BC comes back in the breast, the next time it might not be TN, or a person who was not TN the first time might be on a recurrance, so all this is confusing -- a good question for your ONC.
I have a question for anyone who has gone through every 2 week AC and had a hard time with it, then went to weekly Taxol -- did you also have issues with Taxol? I go through 7-8 days of just feeling really sick then a few days of somewhat bad (mostly headache, dizziness and weakness), and just a 3-4 days of feeling ok before I have my next treatment. And I live for those few days. I can't image weekly treatments and am really getting worried about them. I have one more AC to do on Thursday (10th), then I think they will give me two weeks before starting the Taxol for 12 weeks.
Our insurance offers a free second opinion from Cleveland Clinic -- they gather all your records from everywhere and have one of their oncologists review them and then give you a written report on their findings and recommendations. They did recommend AC, followed by T, but they said they only do 4 rounds of the Taxol every 2 weeks (instead of the 12 weekly that my doctor is planning). I am going to discuss with him on Thursday, but wondered if anyone else had this particular treatment?
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Liv: I have never heard of TN inflammatory. If it progresses or metastasizes to the liver, I believe it's called metastic liver cancer. Correct. Me anyone, please, if I am wrong.
5thsib: I just had 4 AC every two weeks and 4 Taxol every two weeks so I can't tell you how the every week taxol is. Usually, you don't tolerate one of the chemos's well and then the other, it seems as if you do better. I did ok with the AC but not with Taxol. That is interesting about your insurance and the second opinion. I would ask your MO why the 12 weekly taxol. Many people do the every week taxol..so it's not uncommon at all. But, I'm curious to see what he says. Sorry, I'm not much help. Take care!!0 -
5th sib - I too had AC followed by 12 weeks of Taxol. I had virtually NO side effects to Taxol. With both regimens (4 or 12) you get the same overall dose, but when you do it over 12 weeks, your weekly dose is lower (since it is spread over 12 weeks instead of 4 treatments), so the likelihood of side effects are less. Good luck.
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Hello ladies, hope everyone is enjoying the new year so far. My mom wanted me to ask about losing eyelashes. Her eyelashes grew back after she finished treatment, but they are falling out again. Is there anything she can do for this, and is this common? Thank you!
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5thsib...
I had biweekly AC and the 12 weekly taxol. For the AC I actually felt pretty good. Maybe a day or two of fatigue and some about 2 days after tx. Then I did have some dizziness and lightheadedness on and off. I never had nausea and stayed on top of meds for that reason. So it was ok for me. For the weekly taxol I never even took the anti nausea meds which my mo said I wouldn't need. She was right. I felt pretty much normal thru taxol. My mo said that the weekly taxol is actually easier because the dose is smaller. She had found that it is much less se than 4 bi weekly. The only side effects I had from taxol were minor neuropathy at the last 4 treatments but it never lasted long. And my nails hurt during the last two and after I was done for about 4 weeks. Most of my nails lifted and I lost one but irbid already growing back. That was my biggest se from taxol. So it is in my experience much easier. Hope you do we'll with it too :-)
Melissa0 -
5thSib,
I had the four cycles dose dense A/C (every 2 weeks) followed by 12 weeks weekly taxol. My 12th taxol is on Wednesday. I had a much easier time with taxol, compared with A/C, despite the weekly treatment.
My taxol treatments are on Wednesdays. My good days are sunday, Monday, and tuesday. I don't mind chemo day either. Thursday and friday I am tired, but nowhere near as sick or tired as on AC. I do find I am more emotional on those days. Saturday can go either way. The bad days aren't nearly as bad as AC.
I have neuropathy in feet. Hardest part during taxol was effects on hemoglobin (red blood cells). White blood cells were fine, but early on I was tired from having less oxygen in my blood. My hemoglobin counts have been coming up over the course of taxol. I'm not sure whether RBC were down from taxol or delayed effect from A/C.0 -
Hope - it is still breast cancer when it spreads to the liver or anywhere else. Metastatic breast cancer. Liver cancer would start in the liver.
LNBCA - yes this is common with eyelashes. Normally they fall out on a cycle to you don't notice. Now, they all grew back at the same time and so all fall out more or less at the same time. As time goes on things will return to normal.
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Thank you Gill! I will let her know.
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Thanks everyone for sharing your experiences. I'm not dreading the Taxol treatments as much now.
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fifthsib....I did ac and t dose dense...handled ac very well..for some reason I just freaked out about taxol....was nervous as heck...but it wasn't soo bad....took longer than ac...and they watch you for the first few minutes to be sure you aren't allergic to the drug...and they take your blood pressure alot also.
I guess I freaked out because I KNEW what ac was like and the taxol was an unknown....but like ac ..once the first one is over you will be good to go cause you know what to expect....you don't have to worry about nausea with taxol...and your appetite comes back a bit...and so does your HAIR!
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Hi I'm new to this group. I start chemo next week. My understanding is it will be 4 rounds of AC every 3 weeks (I'm not sure DD, but I'd guess it is - I'll have to ask), and then either Taxol or Taxotere (is there a big differnce) every week for 6 weeks. My doctor gave me a bunch of choices and said it's a crap shoot, and they all should work. What am I in for? I'm still waiting for the results of the BRCA test. Thanks! Lauren
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Hi Lauren. Sorry you have to be here with us but you will get lots of support and advice here. I just finished my chemo. Had 4 of AC and 4 of Taxol, every other week. My tumor started out to be about 2 cm and now they can't even feel it so my doctors feel that the chemo really worked. I have surgery the end of this month. I didn't have any side effects with the AC other than fatigue but taxol, I did have some side effects. I got through it all and didn't miss a day of work except for infusion days. Good luck to you and keep us posted.
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Lauren - if you're having AC every three weeks, then it's not dose dense. It would be the "normal" (haha) protocol. Find the discussion here with women who are doing chemo in January so you'll have some company along your way. It's a good way to learn what to expect and share experiences and helpful hints. Here's the link:
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