Calling all TNs
Comments
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Love to hear that news Simple!!!
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Congratulations Meadow!
Hey Fighter....happy to hear an update from you.
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Thanks to you all!
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Just passed the 3 year mark yesterday....how is this possible. Doc says that the risk of recurrence has dropped dramatically at this point. Preparing for another round with my recon surgeon next week. lots more nipping and tucking to do but ready to be almost done for sure. I know she will make me look amazing. Wish I had not put those 10 lbs on since January...errrrrmags
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Nettie:
I am 5 1/2 years out and my lumpectomy breast is still very sensitive. I had a large 7 inch batwing lumpectomy that went from middle of one side of breast up and around the nipple and thru the middle of other side of breast to sternum. My BS said it would most probably always be tender and sensitive. I hate their breast exams as they actually hurt and I won't even mention the dang mammos. They left 24 of those little clips in my breast, and although the BS and the onc claim that wouldn't cause the sensitivity, I oftentimes think they are nuts if they don't think that could factor into it! While my nodule was only 1.2 cms, it was located 5 cms directly below the nipple, hence the reason for this "artistic" lumpectomy my surgeon did. Wishing you the best.
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Nettie, I had a lumpectomy and radiation five years ago and honestly, I had very little breast sensitivity. My tumor was pretty small though so that could be at least part of the reason.
Mags, congratulations on this excellent news!
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Mags, so happy for you!
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Mags, Wonderful news!!
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To those taking metformin, for how long. When I asked my MO yesterday she said she didn't know and there are no studies saying for how long it is or would be beneficial. but to start on it and we will figure it out. Maybe like tamoxifen? 5 yrs but even that is changing to 10 yrs I think? I will start 850 mg 1x/day and she said to increase to 2x/day after 1 week as long as I'm tolerating it ok without SE. And while I'm asking questions, how about curcumin or tumeric? Who's taking it and how much, brand? And did your doc recommend?
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Lisa, my MO said for me to take metformin for 5 years from date of diagnosis. That's what I plan to do.
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Lisaj - I started out Metformin much slower. I started at 1/2 pill once a day for a week, then 1/2 pill twice a day for a week, then 1-1/2....... until you get to two a day. I was grateful to have no problems and have been on 850 mg twice a day for a couple of years now. I planned on at least 5 years.
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I agree with CatWhispurrer, start the Metformin slowly and be sure to take it with food. The only problems I have heard people had with it were gastro-intestinal if they started on too high a dose too quickly or didn't take it with food.
Doreen
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Simplelife, Is your Metformin dose 850 mg once or twice a day? My MO said No to it after chemo, but I see her again when rads are over and I will ask again. I d
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MomMom, yes, my metformin dose is 850mg twice a day. Also, I did start very slowly to avoid GI issues. I started with a 500mg pill split in half once a day for a week, then twice a day for another week. Next I went up to 500 in the morning and half a 500 in the evening for another week. The fourth week I did 500 twice a day. After the fourth week, I went up to the 850's and split them for a morning and evening dose for another week. I kept stepping it up slowly until I got up to the 850 twice a day.
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Mags - congratulations! I'm elated for you!
Well, I had a BMX with TE's Monday and all went well. I came home from the hospital on Wednesday and no sooner received a phone call from my wonderful, caring BS. She was calling to personally deliver the results of my path report … pathological complete response!! She then officially declared me cancer free and told me I had an excellent prognosis!!
I am over the moon!
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Allydp - Congratulations! I remember getting that phone call too. What a relief! Makes everything you've been through worth while, doesn't it?! I'm glad you've had your surgery and are now home to rest. Allow yourself the time to heal and be extra good to yourself. You're on the downhill side of this journey now. Woo hoo!Kathy
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allydp, smiling from ear to ear for you! That's the best news ever. Having that behind you, you'll sail through the recovery now.
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allydp,
Yippy! Relax, heal some, then go celebrate!
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Allly Let's all do the happy dance.
So very happy for you. Jan
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Ally that is the BEST NEWS! Happy tears happy happy. I know God has answered your prayers. And I know you and hubby are blessed with this great news.
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Ally the best news ever. Congratulations you have beaten this crap. Go celebrate.
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Ally...this is super terrific news...could not be happier for you! So awesome...thank you for sharing. Give hope to all.
Tomorrow marks the 3 year mark when I said goodbye to my girls...god they were gorgeous....new ones not so much but going for my tweak with surgeon and leaving on sunday for that...let's hope she works some more magic.
Maggie
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Mags if they are anything like you they will be gorgeous again. Don't give up the magic will come back.0 -
I'm new here, just trying to get my way around the boards to get this nagging question answered....So I'm having trouble wrapping my head around something my Onc said last week. I went in about 2 areas of concern. 1 small nodule that developed in my mastectomy scar and pain in the rib area on the same side. They were very quick to look at the nodule, Ultrasound was clear and they will check it again next month. I asked about a bone scan to check out the rib. The rib pain didn't seem to raise much concern, she said "we have time if it's mets, finding it now or later won't make any difference to your outcome." It's the second time since my diagnosis 3 1/2 years ago I've heard her make a comment like that about Mets. Everything I think I know about cancer is the earlier the better. Why isn't that true with Mets. If it was a bone met, wouldn't starting treatment sooner be better? I understand finding a primary before it's metastasized is always the best way to go, but doesn't early treatment benefit mets also?
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Dizzy...did you have radiation? I ask because that is known to cause rib pain to the side it was done on. That for me along with the number of lymph nodes taken causes some swelling for me in that area too. I have pain there all the time and have plenty of scans etc and there is just nothing there.
as far as that comment goes I have heard many say that their docs feel that way. My Onc is quite pro-active in that she feels it is best to get it beat down while the tumor is still small. I guess the reality is that you can live with mets for a time but eventually the disease will take your life.
Mags
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Yes, I did have radiation there. I have noticed some relaxing of the tissue in that former breast area and I'm hoping it's actually a symptom of my body healing from all the trauma. But, at the same time, sudden changes also force me to flip the coin and worry about the other side. I had a great response to my original chemo regime. I go back in a month for a recheck on my new bump, by then the pain will either be better or worse I guess. Ironically my next appointment is scheduled exactly 3 years from the day of my receiving the news about PCR. I'm hoping to leave this next one just as happy!
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Dizzy,
Perhaps like your onc, mine says with mets, each person's either will respond or not respond to treatment, so when you start treating them doesn't make a difference in time or outcome. We may disagree (I'm not comfortable either), but FYI that is what she said.
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Simple life, Thanks for your response on the Metformin dose!
Ally- Congratulations on your great news!
Placid - I know your MO is local DC area, does she consider Metformin?
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MomMom,
I asked her about it quite a while ago and she didn't recommend it for me, but I don't recall that she said no. Maybe I will ask her again at my December appt.
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Awesome Ally! So happy for you...what a wonderful feeling that must be
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