Calling all TNs
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Cocker that's really funny! Stole it and sent it to some folks
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Your welcome AL Husband and great to hear that your wife is doing well.
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WOO HOO Simple!!0 -
Cute cartoon Cocker
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Does anyone on here take Turmeric? Specifically in capsule form? I see article after article about its preventative/protective properties for cancer but none seems to recommend a dosage! Anybody have any suggestions?
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ALHusband,
WebMD has info about dosing. It doesn't specify dosage for cancer prevention, but maybe the other use doses will help. My iPad isn't letting me copy it here, but i googled it and it came up on webmd. It is the main spice in curry.
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Al, We add turmeric as much as we can, in chicken dishes, beef, if we can sneak it in we do! I love indian curry so thats easy. I figure why not, lots of press about it now helping prevent BC
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It has been a while since I have posted on this board. After chemo and surgery, I just started rads last week. I have had a scary incident last week when my RO felt a bump in my skin during the rads dry run. Biopsy showed it was cancer! I am only 3months out from surgery so you can imagine how shocked I was about this sudden recurrence! I am feeling a lot better today after receiving the PETscan results showing no spreading of cancer.
My prayers to all of you who are waiting on biopsy results! And those of you starting chemo or in the midst of it...you can do it! It will be all over before you know it.
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Optimi,
You are handling all this very well. I'm guessing they will remove this small piece of tissue since there is no spread and the rads will also attack that spot. So glad there is no spread. Great that you RO was vigilant.
I know this news must have been alarming. I have a double mastectomy too and for the past year have been feeling for such a bump or skin abnormality.
I would be going through all kinds of emotions during this additional treatment you must go through. I hope you will feel free to vent here. You can also PM me.
Hugs,
Peggy
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Optimi, thanks for posting and letting us know what is going on with you. I'm so sorry that you are having to deal with this so soon after surgery, but it is also so good that it was caught right away. Do you know if they want you to do more chemo? We will be in your pocket for the rest of your treatment, whatever it is. I was looking at your sugery and see you had diep flat and nipple reconstruction already. I hope what further surgery you need to have done won't set you far back on reconstruction, although that may be low down on your list of priorities right now. Please keep posting. We are here to support you.
ALhusband, I take tumeric. This is what I takeTumeric from Amazon. I just noticed it also has Olive Leaf Extract in it too. If you learn more about dosing, please post and let us know. Right now, I take one pill a day (450mg), but I don't recall that I based that amount on any specific literature.
Wishing everyone good health and a peaceful day.
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PeggySull, I am very grateful that RO found the bump in time before the cancer had a chance to spread! You are certainly doing well to self-examine the skin around MX sides. This cancer is so sneaky that we have to be vigilant. I learned my lesson and will check my skin more often.
Simplelife, I am receiving Xeloda, a chemotherapy drug administered orally in addition to radiation in order to hopefully prevent any spreading. My breast surgeon said that she is afraid the cancer would spread faster if she tried to remove more skin. Thus, we are sticking with initial plan of radiation and afterwards BS will re-examine the skin and decide whether further surgery is needed. Sorry, I have to change the legend. I haven't had nipple recon yet but 'just' mx with DIEP recon. Nipple is next but as you said, all that has moved way down on my priority list
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Thanks for the update Optimi. A friend of mine has done very well on Xeloda. I hope it works for you with minimal side effects.
I just read this interesting article...among other things it says that TNBC is very different from other forms of BC and really needs to be in a class of it's own.
Classification system for cancer not based on location of primary tumor
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I don't belong in this group but wanted to pop in about something brought up on this thread last month regarding the diabetic drug Metformin. On page 854, a few of you were discussing Metformin and its usefulness in fighting early stage breast cancer. I understand a randomized trial of Metformin vs. placebo is ongoing, with results coming out in the next year or two. Since it lowers circulating insulin levels with minimal side effects, it
certainly sounds like a promising drug for early stage TN folks. Very exciting perhaps.What interests me is if this drug is useful for early stage BC patients who are not triple negative. Essentially, I'm wondering if it has any value for HR positive folks (like my wife's diagnosis).
Anyway, sorry if this is old news and been rehashed numerous times. For those that are new here and don't know about it, here's a link that summarizes the trial: Metformin to Treat Early-Stage Breast Cancer and a more detailed look at the trial: Phase III Randomized Trial of Metformin vs Placebo in Early Stage Breast Cancer
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John, thanks for the info. It will be interesting to see what the phase III trial finds. It looks like they were only testing it with patients that didn't have neoadjuvant therapy and less than 2 nodes involved, but the results may be applicable to people with more involvement.
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John, my endocrinologist said that Metformin not only helps breast cancer patients fight recurrence but helps with other cancers as well! Since the drug is relatively benign, except for monitoring liver function, I don't see why it wouldn't help hormone positive people as well. Of course, an endocrinologist and me, a layperson, aren't authorities on the topic, but endocrinologists have been seeing diabetic patients and using metformin often, they may have good anecdotal data on the topic.
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Peggy, Are you taking Metformin? I mentioned this as a possibility to my MO, but she said No..
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Many, many MO say "NO" to Metformin. Mine did too. I went to my PCP with printed info in hand. He said "YES" right away. He even wrote the script for what the study dose is....850mg twice a day. Told me to start it very slowly and gradually get to the full dose. When I went back to MO for a routine follow up appointment, I told her what I did and how I got the metformin. She said that the early research news was showing promise(this was back in 2012). She didn't have a problem with me being on it and was even glad that I was. She just didn't want to be the prescribing physician.
Bottom line here is this: If you want something, do your homework and speak up. Be your own advocate and get what you need. If you meet a brick wall and the door is locked, look for the window and don't be afraid to break the glass. It may save your life!
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I was fortunate because my MO was willing to prescribe metformin. She said the same thing about the early studies and the risk of SE's is low compared to be potential reward.
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I'm seeing my mo next week. First time since ending rads. She said she'd start me on metformin after finishing rads so that should be next week
I spoke at the ACS making strides kickoff breakfast this morning. I did it! shaky voice but no tears. All you girls from all the forums were there with me. I "read" my NO MORE CANCER/what I've learned, end of radiation story that I posted when finishing rads...(did I post it here too? I follow 5 different threads I so forget what I posted where sometimes). We have all benefitted by the research from ACS. The survivors got a cupcake with a candle in it and it was lit and we then had walk in and say our name and how long we've been a survivor. They said from the date of dx so I said 9 months. I was the most recent survivor. Hmmmm, wow, emotional. Anyone else going to be a team leader for making strides walk. I'm going to hate October though. My diagnosis month and all that pink overdone everywhere ugh...(even on garbage pails..what's up with that?!)
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A great video on cancer
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Sadie, great video. Makes me wish I lived on the west coast and could have her has my doctor.
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My MO also refused the Metformin for me today!
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hi everyone
I haven't been on this thread for a while. I've been on the June chemo thread.
I've been reading through everyone's posts. Welcome to all the new folks.
I am getting ready for round #4 of AC next week. So far so good. I've done fairly well I think. I'm not doing DD so that could be why. After AC I get 12 weekly Taxol.
Anyways, just wanted to come back and check in
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Nettie did the Dr say why he refused?
Islandmama thanks for the update and popping in
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Not really, just said no need. But would consider it in November. I'm just so outdone that I didn't ask more question.
Just want the pain gone
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Simplelife...............me too.........she sounds great and really caringWhy is everyone wanting the Metformin so badly?
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MOs often refuse metformin because the "big" study underway sponsored by NCI hasn't finished and published their findings. When my MO refused it I told him I was going to go to my gynecologist (who did prescribe the study dose). I told my MO it was my life on the line, not his.
Just my two cents.
Hugs, Peggy
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Simple, thanks for posting that video...it confirms a lot of the alternative tx that I am looking at, including hyperthermia, high dose vitamin c injections and the circulating tumor test which I have done also.
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