Calling all TNs
Comments
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Llizz and Seashore - welcome. I'm sorry you're joining us, but this is a wonderful, supportive group. Us TN's have to stick together. As others have said, try to shield yourself from outdated info. I'm a googler and had to take a long break from the internet after first being dx. I was scaring myself to death. I stayed in my own little cocoon here for quite some time. Also know that the first month is the hardest mentally, as you feel like you're in a free fall. It's all too much to grasp and comprehend. Once you have all the facts in front of you and devise a good plan, you will feel much better. Sending you both lots of hugs, good thoughts and well wishes.
Simple - thinking of you as you wait for the path report. I'm so glad to hear everyone is expecting fat necrosis.
Bunnygirl - sending you many hugs and prayers. Please check in with us when you can and let us know how you're doing.
Meadow - thanks so much! Surgery is scheduled for August 18 at noon. I'm trying not to think about it yet as I'm a nervous wreck!
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Everyone, thanks for the warm welcome!
Jan69 - great idea to use this time to plan a trip. Our 15th anniv is next yr, perfect timing! Love Hawaii (our honeymoon was there) but may think about an Alaska cruise?
Hello to fellow Missouri gals, Meadow & TifJ. My chemo was also at KU Cancer Center South and my surgery will be at KU Hospital.
LLizz - will be thinking about you today as you wait...
Allydp - After dx I was also all over internet about all the new terms and was so frightened. When chemo started I took a break and focused just on it since it would last a while. Slowly started back mostly researching reconstruction (I felt like that was the phase I had the most choice about). Now ready to start connecting with others here at bco. Wow, your journey and mine have been almost identical this year!
So glad I found all of you!
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Seashore - I know, I couldn't believe it when I read your intro on the August thread. I hate to think someone else was going through what I did, but it's great we have each other's support here. My friends and family are wonderfully supportive, but sometimes they just can't relate or fully understand. I say plan that 15 year trip! It will be a double celebration as you'll be cancer free!
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Welcome to all of our new ladies. You may not think so now but there really is light at the end of the tunnel and the time will go by in a flash.
Jan is right, focus on something or somewhere you really would like to go to or set yourselves a goal and it will give you something to fight for.
Luvmydobies the fact that your nodes are all clear is an excellent outcome for you and your Doc was right. I had cancer in four nodes but as far as I know (and keeping my fingers crossed) radiation took care of that wee problem.
Looking up information on the Internet can scare you silly for no reason and can increase your anxiety ten fold. Your Onco is the best person to refer your questions to. He knows you and he knows your cancer and he will be honest with you at all times. Because I want to live positively and happy for whatever time I have left in my life I don't want to read outdated info about recurrence or metastasis. I just cannot go there and continue to live my life without worrying.
Allydp my family and friends are very supportive as well but after a while I kept my fears and worries to myself as I didn't want them to worry or fret. Coming on here helped me a great deal. The tips I was told by the ladies on how to overcome problems with chemo and radiation were just great and helped me get through a very trying time not only that I made some beautiful friends as well.
Simple wishing great results for you. In your pocket.
Cat and Fighter haven't heard from you for a while. Hope all is going well for you.
Big hugs to those in treatment and those waiting for results and those friends having a great time living their lives. xx
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Thanks for the words Cocker! I don't read anything on the Internet anymore except for here of course. I saw the thing about the nodes on another thread, but like you said I just need to trust my Onc. You are correct about radiation taking care of the nodes.
Also I hope everyone waiting in results are hanging in there. Please keep us posted. Thinking of everyone and praying you all have a good day!
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Lisa,
Congratulations and I thank you for listing all the positive things you learned during this long and difficult journey. It encourages me to again revisit the positive things I learned during and right after completion of treatment, several of which coincided with yours!
Again, congrats!
Hugs,
Peggy
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Is ACT the typical chemo regimen for triple negative BC? I will be starting chemo within the next month. Six sessions of adriamycin, cytoxan, and taxotere is my oncologist's recommendation. I already had radiation for my first BC (lumpectomy) five years ago so I don't believe they will be able to give me radiation again, even though this would normally be the recommended approach for the lymph node involvement in my newest BC. I would like to have a comfort level that the chemo I'm going to do is at least the routine standard of care for us triple negative ladies.Thank you for thoughts on this.
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Yes, purplegirl, I believe that is the standard, but I have seen that some are now adding carboplatin. My treatment was 4 A/C and then 12 weekly taxol! The A/C was done over an 8 week period, once every other week! Luckily for me, it was very doable, I was even able to work full time! Just took a little more rest!0 -
Purplegirl, I had the exact chemo as Nettie, 4 rounds of DD AC, ended up having a 3 week break & then 12 weekly Taxol. I was also one of the lucky ones and tolerated all the chemo with relatively minimal side effects. Just knowing that the chemo was doable for two women I knew who had their bc diagnosed 23 & 12 years prior (they're still doing great!) implanted the idea that I just might be one of the fortunate ones too. And I was. Best of everything to you as you start your treatment.
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Purplegirl, I had 4 dose dense adriamycin and cytoxan every other week and 4 dose dense taxol every other week followed by 33 radiation treatments. That was four years ago. The chemo and radiation did not bother me, but the shot they give you the day after chemo for your white blood count gave me a fit. First time around I got a really bad sinus headache and mouth sores. I took Mucinex D the day before and 3 days after chemo the 2nd-8th treatment and did not have any problems with the shot. My doctor had me take valtrex for my mouth sores. I continued to work all through treatment, but during chemo week I worked from home and took a lot of naps. Make sure you get plenty of rest and fluids and try to get some exercise. I walked 2 miles daily throughout all of my treatments with no difficulty. The worst part for me was losing my hair, but after I got used to it, I kind of liked being able to be ready to go somewhere at the drop of a hat. Feel free to ask this group anything. We are all praying for you.
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Hey Purple,
Just finished round 4 of A/C every other week. Next Tuesday I start Taxol every other week and my oncologist tells me that part will be much easier. It was that blasted Neulasta shot that got me every time! Come visit us on the starting chemo June 2014 thread and read some posts. There are a bunch of us doing AC/T.
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Just dropping in to say hello and check on everyone. All is well, I am still in remission. Every three months I go for follow-ups (tumor markers and to get feeled up).
So sorry to hear that we lost another fighter. Sending prayers to her family.
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Purplegirl - I had 12 weekly taxol/carboplatinum chemo treatments and then 4 dose dense (every other week) A/C treatments. Also for me, the taxol/carboplatinum seemed easier (but also at the beginning). With A/C fatigue REALLY set in for me. Similar to GuyGirl, M/O recommended I take OTC Clariton tablets the day of the neulasta shot and for 5 days or so after to lessen the bone aches - which I never got but I still had stiff/sore muscles a few days after the shot.
Fighter - thanks for sharing your good news!
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Hi Purple - I'm so sorry you're going down this road again. I did 4 rounds AC (dose dense every other week) followed by 12 weekly taxol and 4 dose dense carbo every 3 weeks (so every 3rd taxol I would also get the carbo). I breezed through AC, but struggled with the taxol/carbo. Lots of fatigue. Also, the carbo was hard on my counts and I ended up needing a blood transfusion about half way through. I did neulasta with AC and neupogen with taxol/carbo. Both gave me pretty bad bone pain for about 48 hours. I tried the claritin, but it didn't do much so I ended up not taking it. My onc made mention on more than one occasion that without the carbo, I would've been in great shape. I agree with her. I really think it was the dose dense carbo that put me over the edge. I wish you all the best and hope you're one of the lucky ones who get through without too many side effects. Keep us posted on how you're doing. Hugs.
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Thank you all for your info on chemo regimens. It seems like many had dose dense. Also many mention taxol vs. taxotere, and several had carboplatin. I'm asking my MO some additional questions based on your feedback.
Thanks also for the heads up on side effects and possible help for those. I will take a look at the June 2014 starting chemo thread as Radical suggested for more good info.
I appreciate you welcoming me to the group. I sailed pretty easily through my first BC five years ago but this time around the support definitely helps.
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Hi Purplegurll,
I also had A/C four rounds, DD...but it was hard on me. I am currently on 12 weekly Taxol...#9 tomorrow! It is definitely easier on me except I have been developing neuropathy and edema. I sure hope you do well with your treatments!
Hugs to all, lilyrose
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hello everybody..its always a pleasure to read thru all the messages.
i was so shocked to hear that fierceblue passed away. i pray for her and her family.
fighter: lovely to hear from u girl! you and me and most of us here are in remission now. hopefully this too shall pass..
newbies: i am sure by now you know that this is a very good forum for all doubts and discussions
simple: pls let us know your biospy results. i am anyway sure its nothing
ally": all the best for your surgery. keep us posted
cocker, titf, radical, lily, jianchi, titan, stupid, kathy and all the old timers here...helloooo
where is inspired by the way? she suddenly vanished? anybody in touch with her?
i m doing fine. i do have on and off random aches and pain. onco has asked me to take a few physiotherapy sessions.
keep writing ladies... we are together!
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Today is the 1 year anniversary of my wife's last chemo. Since there seems to be no definitive right or wrong calculation of the "cancerversary" date, I guess we'll celebrate all of them! So thankful to God she's doing wonderfully. Newbies and ladies doing chemo currently, there is indeed a light at the end of the tunnel. Best wishes to all of you!
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AL,
Congrats on your wife's chemoversary! I like the idea of celebrating all the anniversaries!
Dxaversary
Surgaversary
Chemoversary
Radiaversary....
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Thank you for the shout out BanR and the morning giggle- you typed my name in as titf! What an appropriate site to accidentally type in tit instead of tif. I know, very juvenile to laugh at that word, but I couldn't help myself!!
Hi Fighter!! Thanks for checking in and congrats on the remission!!
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Hi Ladies,
It has been over a year since I last wrote. In the past year we moved from California to North Carolina. It's beautiful here. I have been really busy at work.
How are you girls? Navymom, Luah, Titan?
I just saw my new doctor and I am still in remission. Feeling Happy.
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Hi All,
I just wanted to let you know that I got the biopsy results back on my lump today. It IS fat necrosis! Hooray, hooray! That's what they thought it was, but it is great to get it actually confirmed with a biopsy. They will do another mammo on the lump again in six months just to keep an eye on it. I'm obviously very happy with the report. My first biopsy (that diagnosed my bc) was done almost exactly a year ago, so it is so nice to have such a different result this time around. What a difference a year makes!
Purple, good luck with your chemo. You can do this. The chemo thread for the month you start will be a huge, huge source of support as well as all of us wonderful ladies (and gent) on this TNBC thread. It will help you a lot to be connected with other people that really get what you are going through.....particularly during chemo. Wishing you the best.
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simplelife4, that is great news! I'm "yahoo ing" with you!!
Purple, chemo is very doable, my MO told me that if I felt nauseated to tell her right away because that meant she wasn't doing her job-that made me feel so much better
Fighter__34, I've been thinking of you, I'm so happy to hear you are doing well, so a "yahoo" for you as well!
Everyone else, wishing those waiting for results an easy wait and hoping everyone going through tx minimal SE.
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Simplelife, So so happy for you!! Yes, what a difference a year makes.Doing the happy dance right along with you!
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Fighter - Wonderful, wonderful news!
AL - congratulations to you and your wife! I hope you guys are doing something special to celebrate.
Simple - YAY! I am thrilled for you!
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Happy Dancing for Simple!
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Simple...woot woot woot!!! HAPPY HAPPY HAPPY FOR YOU!
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Great news Simple!!!!
ALHusband, wonderful anniversary!!!
Yay Fighter!
Wishing you all well!
Hugs, lilyrose
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BanR, Are you doing ok? I haven't heard anything from Inspired...it's been several months since I've seen her on here. I hope she's doing alright.
Hugs, lilyrose
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Thought this might make you giggle. I must admit though she does look younger than the real duck!!0
