Calling all TNs
Comments
-
NavyMom, congrats on 5 years and LOVE your gift to yourself! You deserve it! What a nice reminder... we all need to treat ourselves as special!
0 -
NavyMom /Red Cadillac WOW!!!!! Way to go. You will look HOT on the road. Enjoy!!! You can live in your car but,you can't drive your house.
0 -
Anyone to add my own appreciation and thankfulness to all you ladies (and husbands) on this board. Happy Thanksgiving to you and all of your families!
Navy mom, I'm singing Cadillac Ranch in my head as I read your post....except in the song the car was black, "Cadillac, Cadillac, long and dark, shiny and black, when I die baby put my body in the back, take me to the junkyard in my big-ol Cadillac!.....sorry. I always loved that song but never had the Cadillac. I'm living it through you.
Eileen, I love your quote...I can see myself saying it the next time someone asks me why I buy a new car every three years or so. In reality it's because I drive a lot and sell my cars just before they hit 100,000 miles but I'd love to see the look on people's faces when I say, You can live in your but you can't drive your house."
0 -
NavyMom, good for you for getting a new Caddy! You must post pics! So happy for you!
Happy Thanksgiving to everyone on this site! I'm so thankful for all on here, including the wonderful hubby's! May we all have a good day tomorrow and put our fears and worries aside for a little while. God Bless!
XOXO!
Stephanie.
0 -
OMG Navy Mom, I didn't know you had a wild streak! I can imagine you gained a lot of strength surviving the last several years. Now go and drive the wheels off your Caddy. I have an image in my head of you driving up to a girlfriend's house in your red Cadillac. Bet that was (or will be) fun.
Here's to all of you: GOBBLE TIL YOU WOBBLE. Diet next week.
Jan
0 -
NavyMom....I'm really happy that you decided to treat yourself with something as wonderful as a new car! Awesome.
0 -
Hi Everyone!
I last posted in May, and then life happened! Hello to new friends as well as those I know. With Thanksgiving being tomorrow I wanted to check in, say hello and wish everyone a wonderful Thanksgiving. I will be at 3 years out on December 27th. Things are great, I'm still following the same plan as in my signature line and graduate to semi-annual Onc visits in Jan. Similar to Navy Mom, I ditched a 15-year old car, and bought a brand new luxury car during the summer. My Onc has the same car and each year we take a holiday photo together in December, usually requiring him to wear a Santa hat. This year he wants us to take a photo together with our cars. LOL I also earned another credential, which required a lot of focus and studying. We had to part with a beloved pet who ran into serious complications following 1 dose of joint medicine and lost my Sister-in-law who was only 42. Life really is a journey and my wish is that all of us can find a way to embrace it. I owe several replies and messages and I do plan on saying hello more often. I will sound the party bells and update you all at the 3-year mark so that we can celebrate together. Much love to all of you - I pray everyday for our health and a cure. xoxo
I wanted to edit this, to clarify that when I said "and then life happened", that I meant I really started living, looking forward to the future, setting goals again and living and loving life like I had previously done. So when life happened for me, it was a good thing. I moved forward by leaps and bounds.
Happy Thanksgiving!
0 -
Sweet Dolce, So glad you posted, I have missed you. So glad all is well. Congrats on the 3 year mark, and the car! Happy Thanksgiving to you and all the sisterhood. Love you all
0 -
inspired - how lovely to hear from you - we have missed you. Great to hear that you are feeling well, but sorry that you lost your pet - that leaves a big hole in the heart for sure. Saddened to hear about the loss of your sister in law - 42 is way too young to die. Look forward to hearing from you again soon
0 -
math666: Thanks for posting all that - it reminds me of the soy controversy... and I believe the current thinking around that is that soy may be beneficial (not harmful) if taken moderately through diet, which I do. In any case, it sounds like your onc forgot (
) your wife is TN which makes all of this a bit moot anyways. Our cancers don't feed on circulating estrogen. Of course, TNs can always grow another, ER+ cancer but that's the case with every woman out there. Would he advise no flaxseed for everyone? I'd be inclined to take in my research on the next visit and challenge him on it, politely of course 0 -
Inspired,
Happy Thanksgiving! I can't wait for "life to happen" to all of us! Happy for you!
0 -
Great to hear from you Inspired!! I love the way you so beautifully put it.."Life happened"!!
Math: let me paste a link here
http://scienceblog.cancerresearchuk.org/2014/03/24...
I would recommend everybody to have a look at this. It is a logical article and covers most of the myths/fears/ doubts associated with cancer.
0 -
Inspired, glad to hear from you! I wondered where you've been!! Life does go on, eventually. I just made my 1 year mark!! I had a CT scan last week and all is well! NED!! I'm trying to get back to normal. We just came back from Disney World with my kids and grandkids. It was a great trip and beautiful to see decorated for Christmas! Next week I will have stage 2 of my reconstruction surgery so I'm trying to get my shopping done. Hope everyone had a great Thanksgiving!!
0 -
Hi Inspired! Nice to hear from you again! So sorry to hear about your SIL. But I'm glad you are doing well.
Hope you had a great Thanksgiving! Hugs, lilyros
0 -
Debra, we have all missed you but glad you are getting on with life! This is something we all aspire to and I find I am achieving this one step at a time. It's hard to believe that one day you realize that cancer has not been on your mind constantly. Hope you and everyone had a nice thanksgiving!
I'm sorry about your SIL, this is such a cruel disease. Stay strong
0 -
Glad all is well Inspired! I too am sorry about your SIL and dog. One of our dobermans is a little over 9 and is slowing down a bit and her arthritis is catching up. She's okay but it's hard seeing her slow down so much. Anyway so glad you're doing well. Thanks for checking in!
0 -
BanR,
Thanks for the article! Very well written with some great links. I'm getting a little tired of being told I should try cannabis oil by one friend while simultaneously being admonished for eating a Snickers by another friend! Lol
0 -
anyone been on the CMF regimen? Saw MO this morning for 4th scheduled taxol. Said no way no how due to same darn reaction as I had with taxotere.....hand foot syndrome, rash all over, can't walk well
0 -
Toby, - I was on cmf in 2000. It was fine. I didn't lose my hair, continued to work, and most people never knew I was undergoing treatment. My infusions were on Thursdays, and I was able to work on Friday, and then had the weekend to rest up.
Hope you find it that way, too!
0 -
What's CMF, and under what circumstances is it given to triple negs? Thanks!0 -
it is Cytoxen, methotrexate, and Flourouracil. I can't do adriamyacin due to heart issues, and my allergic reaction to the taxol family isn't healthy or tolerable.
My doc consulted some "experts" from around the country to determine this course .
AnotherNYCity....that is GREAT news!!!!!!!
Karhryn
0 -
Hi Everyone,
I wanted to post a quick update. My Sister-in-law did not pass away from breast cancer, she's never had that. 2 years ago she had a double brain aneurysm. She was not expected to make it through that original night - yet she persevered and survived. She had a series of brain surgeries and had made remarkable progress. Learned to walk and talk again, had very little memory loss. Had improved significantly and started using a cane and walker. She went into the hospital for a surgery to correct something and help ease the headaches she had been having. The surgery was expected to be a typical surgery for her, not any higher risk than the previous ones. This last surgery (last week), during surgery a blood vessel popped and she passed away during surgery. It was a shock to everyone. I just wanted to post this update as I wanted to make sure everyone know it was not from breast cancer.
0 -
Inspired....I'm so happy to see you back here again. I'm sorry to hear about your SIL and your pet. I'm glad things are going good for you. I had been thinking about you. Hugs.
0 -
I am really curious about my genealogy, no particular reason. Has anyone used ancestry.com?
The pain under my right breast is concerning me but i will have answers soon enough - scan on Wednesday. I keep telling my self that I had a mx, radiation, diep recon and that generates a lot of scar tissue which can hurt. It's not actually a lump i have but pain right at the bottom on my breast where it connects with the ribs. Doesn't hurt all the time but isn't getting better and maybe a little worse...so on and off. I have a dinner planned with a friend that night so it will be a good distraction. My mom and dad come down the next day for a long weekend for an early xmas. A clean scan would be the best gift I could get.
Off to go roller skating with my daughter...go go go!
0 -
Ancestry is great, and a bit addictive. I have supplemented that with google searches- for lost cousins of my parents who's obituaries are available on line, more recent info that ancestry doesn't have. It allowed me to connect with long lost second cousins, who it turns out are also BRCA 1 positive. I am glad to be able to explore and share my findings. It turns out they already knew about the mutation.
I hope scan is clean! Happy roller skating!
0 -
Jenjen, like jj I am an ancestry addict. I've been tracing my tree since I was 12 and even had Italian cousins from Australia come stay with me when I was 15. At this point I have over 4000 family members in my tree and have traced some ancestors back to the 1500's in Germany.
When I found out I had the BRCA mutation, I easily contacted anyone else from the lineage I traced the gene down from and they could choose to be tested or not. Only one other (4th cousin) already knew about and has our 2000 year old mutation... I don't know if any others have since been tested.
A warning about ancestry.com... I find I sometimes prefer the stories of my dead relatives to the current stories of my living family!
0 -
Wow Radical, if it's addictive I should probably stay away!
I'm starting to worry about the upcoming scan. I'm going through the process of preparing myself for bad news and then I start thinking STOP IT. Ugh this is complete mental torture. I won't stick my head in the sand but I so want to! Thank goodness for sleeping pills.
0 -
Jenjenl F=False
E =Evidence
A=Appearing
R=real
You know nothing until it happens. Stay in today
0 -
ooooooo! Nice Eileen! That must be hung on my wall!
0 -
Hi All,
My mother was diagnosed with Triple Negative Breast Cancer in 2008, she had lumpectomy, six chemos and radiation. Since then she was doing well until this January when she was diagnosed with lung mets. She had 8 rounds of taxol and carboplatin chemotherapy. The chemos got over in June end and the scan showed improvement. Suddenly on 1st November she had a seizure which made me took her to the neuro and he asked for immediate MRI, which showed brain mets. The doctors had started decmax (steroid) and whole brain radiation(WBRT), with 37.5 cGY in 15 fractions. Currently she has undergone 14 fractions with manageable side effects and tomorrow will be her last radiation.
Doctor's told me even after radiation the chances of her survival are dim. She has very less time in her hands. It feels like end of the world when you hear those comments from doctors and in a era when science has improved so much. But since she is TN, the options are less and cancer is more turbulent.
I would appreciate if any one can help me with some suggestions, I have heard miR-708 work for people with TN. Anyone having any idea would be appreciated.
Thanks
Saile
0
