Calling all TNs
Comments
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estero... You are across from me
work in Naples0 -
Toby I'm due for a pap in January but I've had three pelvic exams since August. My PCP is great about doing what I ask most of the time. She also does my Pap tests. So she has my history on those. I also had a uterine biopsy in September but the Gyno who did it didn't get enough tissue to sample. All he got was cervical tissue. Although that showed no abnormalities, he said he probably didn't get enough tissue due to the uterine lining not being thick enough, but who knows for sure? My PCP and Onc have both said they really think the bleeding is due to my ovaries waking up. But this was all before the constipation and nausea. My PCP had told me she would send me for an ultrasound if I really wanted one. I'm really debating that right now! She and the gynecologist both said everything "feels" normal but I haven't had a pelvic since September. The blood does look like menstrual blood, but I'm still nervous like I said due to the other symptoms but I'm praying they're not related.
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I think whatever brings you relief. It was the biopsy of my uterus that found mine. Remember, YOU are the expert of your body
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My PCP and the Gyno both said since there wasn't enough tissue from the biopsy, it was probably because the uterine lining was thin which is actually a good thing. I'll see how things play out though and will at least mention an ultrasound to my PCP. That biopsy was really painful and I wouldn't want another one unless it's a must. I am having stomach cramps now. Maybe the Taco Bell food I had for lunch is working or the MOM is just starting to work! I know I need to get rid of the constipation but cramps and diarrhea always bring back fear of C Diff! It scarred me for life!
Edited to add: One reason the ER doc didn't do a CT scan was because of radiation exposure. Do they pose that much of a risk? I'm still having off and on abdominal pain.
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Just and FYI= Someone got in me in touch with a school mate from high school. Graduated 1976. She is 5 years cancer free TNBC. Her 5 year anniversary is Dec 22. Just talking to her made me feel better and not so anxious. Yeah Marcie!!!!!
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That's awesome Eileen! That reminds me that I spoke with a woman in the ER waiting room the other night who was 10 years cancer free. She wasn't TN but her sister in law was and she and she will be 11 years out in January!
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Luv .... Another thought: Probiotics are great for constipation as well. I read that a healthy gut is important so I started taking Garden of Life Raw Organic Probiitcs 85 billion. My On said no problem for me to add this to my regime. It's 3 pills a day so he said for me to only do 1. I think it takes all 3 to get the entire count.
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Thanks Inspired. I did go a decent amount this morning. I do take Florastor probiotics. I still just don't feel right. My rear is sore and it feels like there is some swelling. Hoping that us just my anal fissure! My insides just don't feel right either in the abdominal area if that makes sense. Maybe it's just inflammation from constipation but who knows? I should've pushed for the CT since the ER doc said she would do it if I really wanted it but she said she didn't want to expose me to radiation. I'm trying to trust the doctor's, but at least I would have known if an abnormality was there. On the other hand though I wasn't bleeding or constipated at the hospital. Ugh. I just wish someone would figure out what's going on instead of just chalking things up to IBS and stress. My bowels have been off ever since treatment ended and the Vancomycin taper was finished after C Diff, which was about a week after chemo ended. I haven't had constipation until this recent bout. It's usually loose bowels when I have an issue. But I've had bloating, heartburn and irregular bleeding for a few months. Maybe it is just my hormones being out of whack from chemopause. But like I said I'd like some confirmation at least! I know I need to stay off Dr. Google too. The thought of Ovarian cancer or mets is looming! My mind even goes to intestinal blockage. God help me! Haha
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luvmydobies= if you have c diff the odor is incredibly foul. So, I do not think you have that since you have not mentioned that. If your bleeding is bright red and rectally. That is your lovely fissure. Stay off google or you will GO CRAZY. Good luck and stay in the moment. If ER MD thought it was something she would have pushed for the scan. She has her license to protect.0 -
Thanks Eileen! I just have PTSD from C Diff and anxiety. I had it three times during treatment. Well once after surgery and twice during chemo! I did well with chemo, but the C Diff wiped me out. It's what caused my fissure in the first place. The irregular bleeding I was talking about is from my vagina but it does look like menstrual blood. My fissure does bleed sometimes though. My poo does smell but I thinks it's because I was constipated and it's working it's way out after being stuck. Sorry for TMI. I remember the C Diff smell, it's disgusting, and I haven't had antibiotics in over a year. You "can" get it without antibiotic exposure but they say it's very uncommon. So I keep telling myself that. XOXO!!!
Jen, let us know if you get results from your scans tomorrow. Praying for you. HUGS!!!
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Did anyone happen to catch 60 minutes today? Check out this clip...interesting stuff!
http://www.cbsnews.com/news/billionaire-doctor-fights-cancer-in-unconventional-way/
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Interesting stuff for sure Jen, but a little scary also. Thanks for posting!
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For my Navy0 -
Jen Jen...very interesting! My brother always said the same thing...not cells growing out of control, but the inability of the cells to die. I theorized that since we all have cancer cells in our bodies as humans, those of us who develop cancer that can kill us simplify don't have the ability to kill it off like a normal person.
The part that is most awesome is that this guy is a doctor, a scientist, AND a freaking millionionair!
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drum roll please.......
Scan is negative. Conclude that the latest surgery inflammed the scar tissue. NED from ribs up to neck, scan in summer said NED ribs to privates. I asked if I should have a bone scan to confirm the rib pain and MO's opionion is the CT scan would have indicated additional testing on that area needed. Told me to start 2015 with cancer in my rear view mirror.
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Jen, that's the best news of the day!!! So happy for you!!! Breathe easy now!
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YAYYYYYYY JEN!!
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Oh so happy to hear your news! Absolutely wonderful news!!! So glad you found out today. I didnt realize you also had a scan during summer. What was that for?
Now you can really move forward. From what I read from others and my own experience and absence of bc, you will start to gain some momentum on moving forward between 2 1/2 to 3 years out (and if you start now even sooner!). 2015 is going to be a great year. Put some goals in place and you will start to transition more as you focus on those goals.
Did your Onc have any suggestions on healing or the inflammation?
My PS had me eliminate caffeine for 6-months during surgery recovery. If you currently consume caffeine you can try reducing or eliminating that to help with inflammation. Also you can try to consume more anti inflammatory food . And check with your Onc or PCP about curcurmin .. which one study found that it might work by targeting molecules that are responsible for inflammation.
What a happy day! Enjoy the very special season now and look forward to your very healthy and long life!
xoxo
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Doing the happy dance for Jen!!!!!
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So so happy for you Jen!!!!
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YEAH JEN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!0 -
mammo and us today. bilat...well here we go again, prayers and pocket parties. we are really getting tired of this, arent we?. bilat Mammo showed nothing although usually cant due to density but no calcifications either side. US showed complicated cyst on L, (my cancer side), in a different area than the malign lump. at about 6:00 just below nipple. Due to history (this kind of lump was found prior and thought nothing but then showed cancer) they want to biopsy.These can be benign or not as you all know. its small 6mm, cant even be felt. Will have biopsy monday at 11:00 and results 2-3 days later. im ok. Thought id be more upset. Trying to stay in the moment and not think too far ahead. I know what the possibilities are but will try not to get too far ahead. Will try "not to waste energy worrying until there is something to really worry about" now its all speculation and fear. My friend said to "occupy your mind with things you can control"...lets see, I can see my new home care patients and help them be more functional in their homes, keep working on learn the new electronic medical record tablet for new job, clean and cook (always feel like ive accomplished something when an area is picked up or i make something yummy!), meditate, eat well, exercise or stretch, go to yoga, wrap presents (i shopped online and everything is almost done!), enjoy fam and friends, get along with husband...(he is trying but is clueless sometimes on what to say or do,but ill give him some slack
). Let see how my mind goes this next week. GOing to try to stay grounded and not get all hysterical0 -
Jenjenl
I'm so happy for you, I've got tears in my eyes. Have a lovely wonderful Christmas with your family.
Hugs, love, prayers and general good wishes all around from a rather cold London UK!
xxxxx
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Lisa, you're in my thoughts and prayers. I think I can speak on behalf of all of us when I say "in your pocket"! HUGS!!! Keep us posted.
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Lisa, - what's a 'complicated cyst'?
In 2001, I, too, needed a biopsy after my first mammo/sono after treatment.
These drs make us crazy, - I am sure the spot is B9!
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Jenjen wonderful news. You rock girl
Lisa in your pocket every minute and staying there until all is good.
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Nycgirl, A complicated cyst has some debris in it but is not a solid mass. A complex cyst is more solid. A simple cyst is empty or just fluid. Small chance of a complicated cyst being malig but my last one was and was not expected to be. It was a surprise for the radiologist that did the aspiration. A simple cyst never is malig and usually just watched or aspirated if it is very large or painful. So I'm hoping that I had one unexpected result with a low chance of malignancy, can it happen again? They're being very cautious and careful which is good, but I know the reality of what might happen
NYCgirl, Where are you from? Living in NYC I assume. I'm From LI but living upstate ny now. Fam is still on LI, they go into NYall the time. Did you have treatment at Sloan Kettering?
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Lisa=wishing you the best. You are in my prayers.
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Thank you Thank you - pretty happy about that. I asked for them to mail me the results. They thought perhaps the last surgery (11/10) might have aggravated or inflamed the scar tissue. Of course my hips been hurting since Saturday but I am SO not going there...off to heat the old hip
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Lisa, I'm thinking of you and will be watching for your results. Like you mentioned, they are being extra cautious. Many prayers are going up for you.
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