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Calling all TNs

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Comments

  • eileenpg
    eileenpg Member Posts: 431
    edited January 2015


    inspired= This is the part that gets me about all the info on diet and exercise. I have not eaten red meat in 39 years. No processed foods for over 20 years. No deli meats. I have exercised 5 days a week for about 1 to 1/ 2 hours for 32 years. I am not overweight in the least.I have been taking vitamins for years. Flaxseed,calcium,multi,and fish oil.  Never sit in the sun. Never smoked. My only vice is I drink 2 glasses of red wine with dinner for years. So,what gives? I truly believe this comes from living with stress. I have had for many years due to situational circumstances a low level stress.  I think this is one of the main components. Besides a healthy life style. Reducing stress it a major part of cancer reaccurance.  So now I am trying to RELAX,enjoy life and trying to stop worrying over stuff I have no control over.

  • allydp
    allydp Member Posts: 361
    edited January 2015

    Hi all, sorry to barge in. I have a quick question. Last year some time there was a discussion here about those with BC being advised to never take vitamin C again. Does anyone have any literature or information on this? I'd like to start taking a daily multivitamin, but I'm worried about the vit C.

  • allydp
    allydp Member Posts: 361
    edited January 2015

    I also wanted to ask if any of you ladies have a good healthy breakfast smoothie recipe? I've tried a few and don't care for them enough to drink on a daily basis. I'm on the hunt for a yummy but healthy go-to recipe. Thanks!

  • Spica16
    Spica16 Member Posts: 71
    edited January 2015

    Hey Titan, Zen and all of the Ohio ladies...GO DUCKS!!!


    Okay, I must admit that I'm originally from Michigan, and know all too well what kind of damage your Ohio Buckeyes can do to an opposing team. Ohio vs Michigan was always a big game in my Michigan childhood home. So...with fear in my heart and hope in my soul, I stand up and cheer "GO DUCKS!" today, and hope I won't be eating crow (duck) tonight!

    ~ Shar aka former Dearborn/Garden City, MI native)






  • Luah
    Luah Member Posts: 626
    edited January 2015

    lovesBoston: As a fellow Torontonian, just wanted to welcome you to the discussion group. We have a little (but growing! and spirited!) TN group that meets 2-3 times a year in the west end (Mississauga). PM me and I can give you details if you're interested. We just formed a facebook group too. Good luck with the chemo; all I can advise is to take all the meds they give you... and take the extra ones at the first inkling of nausea... easier to prevent it than to make it recede. And drink lots of water day before, day of and 2 days following chemo. Hope that helps.

  • Zenful
    Zenful Member Posts: 394
    edited January 2015

    Spica, I am indifferent. Good luck with your Ducks. I am going to bed early and will feel better than most of my co-workers that will stay up until midnight watching their beloved Buckeyes. I am a U of M fan, so no love for the Bucks here. Enjoy

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 987
    edited January 2015

    Eileen - I understand what you said, and it's probably very frustrating that you seemed to have done so much right and still developed bc. Obviously, we are all unique and the fact that one person developed cancer may be a different reason than why someone else had developed cancer. When it comes to information regarding nutrition and exercise, discuss with your Onc to see if there would be any benefit.

    Ally - I have never heard of the vitamin C thing, and I Google'd it and also couldn't find it. Have you tried doing a search directly within the forums? You go to search, and in the search fields type in whatever words you thought were part of that conversation. If you replied to a post about it, than type your name in the member name field and see if it shows you the post/conversation that you remembered. If you do find it, please let me know. I'm curious, because my friend's Mom has TNBC 3 years ago, and her cancer center strategically put her on Vitamin C infusions, and she really stressed the importance of Vitamin C. I've been supplementing with Vitamin C as well. I remember reading about Vitamin A, and that it was best as a specific form, and not to go over a specific amount on a daily basis, but I don't have the details anymore. I just made sure to get a multivitamin that did not go over 100% of daily values.

    Ally - Here is my morning smoothie recipe for you. Blender full of kale, add 6 frozen broccoli spears, 1 cup frozen blueberries, 1 tbsp flaxseed and 12 oz. cold water. Add in 1 scoop of Garden of Life Raw Protein Powder - organic vanilla. It tastes yummy. Frozen strawberries make it taste even better. :)

  • Tobycc
    Tobycc Member Posts: 578
    edited January 2015

    Ally: my DH makes me one with Kale, vanilla protein powder strawberries, spinach, banana, cantaloupe, and bit of frozen organic vanilla yogurt. Delish

  • meadow
    meadow Member Posts: 998
    edited January 2015

    SA8 I agree with Husband, Taxol neuropathy can last for years, unfortunately, or even be permanent. I still have "Taxol Toes" a year out from my last chemo. Sometimes they are better, then backslide. But it is a small thing in the big picture. Hope you get some relief.

    I agree with R2S about the chemo group for your starting month/year being a must join. Mine too has been a blessing.

    Hello sweet Ally, and thanks for the smoothie question, I will be trying those too! Thanks for the recipes ladies.

  • Spica16
    Spica16 Member Posts: 71
    edited January 2015

    Dear Titan, Do you have a good recipe for roasted Duck smoothie? I need it to wash down some humble pie.

    Congrats on your Buckeye champions!

    ~ Shar

  • simplelife4real
    simplelife4real Member Posts: 341
    edited January 2015

    Meadow, I like your description "Taxol Toes"! I have them too....actually Taxol Soles, but it doesn't sound as cute.

  • allydp
    allydp Member Posts: 361
    edited January 2015

    Inspired - thanks so much! I knew I could count on you for a great smoothie recipe. :) I searched the forum and can't find the post about vitamin C. It's driving me crazy. I might be confused. It could have been vit D...and it might have not even been this thread...but for sure I read that those with a history of BC should never take one of those ever again. I can't imagine this to be the case though considering so many of us are told to supplement with them. I'll keep looking and if I come across the post, I'll let everyone know. I have my first post treatment follow up with my onc tomorrow and will ask her, but I'm sure she'll tell me both are safe.

    Toby - thank you! That sounds delish!

    Meadow - hi! Hope you're doing well. :)


  • Titan
    Titan Member Posts: 1,313
    edited January 2015

    Thanks Shar! what an awesome game! and you have to go with your heart...cant believe I said this to a team up north fan..lol....but love you anyway...I was born and raised a Buckeye...my husband works there, my son and several members of my family graduated from there...season ticket holder forever....we love our
    Buckeye's like you love M((ch99gan...glad that they have a new head coach in Harbaugh...the Big10 needs M**c88gan to be a power again and they will be...its all good

    Zen..I'm thinking you are from NW Ohio?

    I don't think duck is that good for us to eat....kinda greasy....nuts are much better for us

  • lilyrose53
    lilyrose53 Member Posts: 120
    edited January 2015

    Ally, It's definitely NOT Vitamin D. Most of us who have TNBC are Vitamin D3 deficient. My PCP checks my levels several times a year. He has me on 4,000 IU daily. My levels were 14 before I started the supplement. Last check I was at 40. He wants me to get to 60. I wonder if you check on the Triple Negative Breast Cancer Foundation website-you might ask the question there. They have a lot of good information.

    Good luck!

  • Fighter_34
    Fighter_34 Member Posts: 496
    edited January 2015

    Just dropping in to say HELLO everyone!  Take it easy and take care...

  • ALHusband
    ALHusband Member Posts: 342
    edited January 2015

    My wife's PCP says regarding Vitamins C and D, "You have to have the C, to activate the D". That's what HE says. Then again, maybe he graduated Med School with "C's and D's". They'd still call him Doctor I guess. LOL!

  • eileenpg
    eileenpg Member Posts: 431
    edited January 2015


    Alhusband= You need D to activate Calcium. That is why if you take a calcuim supplement it must have D for absorbtion.

  • MomMom
    MomMom Member Posts: 334
    edited January 2015


    Inspired,  Thank you so much for your posting on what is considered the anniversary date for TN.  Really happy to have it confirmed that it is indeed the date of diagnosis.

    Ally, I think the Vitamin to avoid you may be thinking of is Vitamin E.  I was told to avoid this while on chemo & rads as it is a strong antioxidant and it was thought that, as such, it may be promoting the cancer rather than acting as a preventative.  However, don't know whether or not it needs to be avoided post treatment.

  • Mikesgirl17
    Mikesgirl17 Member Posts: 24
    edited January 2015

    Hi ladies. Ally, I try and do a breakfast smoothie whenever possible and my go to recipe is spinach, vanilla or chocolate protein powder, coconut milk and frozen blueberries as well as frozen mixed fruit. I hate being "labeled" TNBC. We are all different and we have no idea how our treatment will affect our outcome long term. I have a check up Feb. 5 and I've started to spiral with thoughts of doom and gloom. Plus I live in Maine and now realize I have been dealing with seasonal affective dissorder for as long as I can remember Realizing this after going through my old journals. I know I'm worried more because of my depressed mood, but don't know how to snap out of my funk. I think cancer is just bad luck. What they do to our food, pollution, plastic containers, etc. I refuse to believe I caused this. This is my second time around. The first being D.C.I.S. at 34 years old. I went for a double mastectomy to not have to worry. 6 years to the day I was diagnosed, I was told I had it again. (In the same initial spot.) This time TNBC. One cell must have survived. I had clear magrins. They think that it must have escaped through fluid during one of my 2 biopsies. I just needed to vent. Thanks for listening. When I'm in a good mood I live each day to the fullest :/ Hoping to be unstuck soon!!!!

  • allydp
    allydp Member Posts: 361
    edited January 2015

    Well, I can't find the info on the vitamin thing anywhere. I'm starting to think I conjured it up myself or dreamt it. My onc said she encourages her post chemo patients to take a daily multivitamin and that vit D and C are both very safe and a good idea. Sorry guys for the stink about all this.

    Mikesgirl - thanks for the smoothie recipe! I just ordered some vanilla protein powder today. :) I'm so sorry you're dealing with a 2nd bout of this awful disease. I can completely relate to having good days and then bam...a not so good day. I think we've all been there, so vent away. Sending you good thoughts and hugs.

  • Zenful
    Zenful Member Posts: 394
    edited January 2015

    Titan, yes, I am a NW Ohio gal, but no loyalty to OSU, but it's nice that they won the first college playoff championship.

    I take 10,000 Iu's of Vit D daily and my level went from 21 to 81 over 6 months.Staying on 10,000 through the winter, then I will cut back to 5,000 daily and see how it goes.

  • natL12
    natL12 Member Posts: 48
    edited January 2015

    To EileenPG - my PCp suggested that my breast cancer was related to my long time drinking of some, but not very much, red wine with dinner.  I told him not to play the blame game, because I'd read that long term use of hormone replacement therapy also had  been shown to lead to increases in breast cancer, and that the reason I took the HRP was because the MEDICAL COMMUNITY had claimed it had great benefits to women. (They changed their recommendations after they found the cancer link.) So he shut up, and we've got along ok since then!

    I also had tried to do all the "right" things as far as exercise, diet, life style, etc. that I could control, all my life, just because I felt better when I did all that. So I don't know what caused the cancer.  I just know that I'm over it now, and grateful for every day I live.

    Nat

  • eileenpg
    eileenpg Member Posts: 431
    edited January 2015

    natl12= I have read a lot about alcohol consumption and breast cancer. It increases you chance of BC by 20% . However,that is estrogen + cancers. We don't have that. My MO told me he has no idea where this came from. However,after talking to my RO who I really trust i have now stopped my drinking of wine with dinner. I will only have wine 1 to 2 night a week with dinner. He said that is fine. I drink no more than 2 glasses with the meal. We talked about quality of life and how we need to live and not remove everything from our lives. I have always eaten super healthy. Low fat,etc. So,did not have much tp change.Thanks for you input.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2015

    NatL12- & Eileen I have never drunk any wine or spirits in my life yet still got breast cancer. So that theory goes out the window.  Life is short so go and have what makes you happy girls and go and  live!!

  • Titan
    Titan Member Posts: 1,313
    edited January 2015

    Zen...I like NW Ohio...my nephew married a girl from Ottawa...fun time at the wedding...my son went to Ohio Northern for two years until he transferred to OSU... the president's wife of the company I work for came from Hicksville...it is all good..except for Ohio winters!

  • Zenful
    Zenful Member Posts: 394
    edited January 2015

    Titan, I can't disagree with you about Ohio winters. This year hasn't been as bad as last year, but each year (I get older) I long for warm southern sunshine. It's only a matter of time before I become an official "snowbird".

  • DorMac
    DorMac Member Posts: 153
    edited January 2015

    I just saw this story on the news and felt I had to share it. It's about a breast cancer survivor who has dealt with metastatic cancer 7 times. I know some people will not be happy about the "pink" aspect and the "having fun" attitude but I ask that those people don't view it so they won't be offended. To my mind, the story is, essentially, about a loving 2nd husband (first hubby was a cad after her initial bout) and what they need to do to get through what is a devastating situation. More power to them! While it isn't what most people would do, it shows that anything goes - do what YOU need to do for yourself and to he** with the naysayers. Hope some of you will enjoy the message.

    http://www.cbc.ca/news/canada/saskatchewan/cancer-...

    Hope the link works.

    Doreen

  • slv58
    slv58 Member Posts: 486
    edited January 2015

    Sentiment shared, thank you Doreen-I got goosebumps reading.

  • MomMom
    MomMom Member Posts: 334
    edited January 2015


    Wow!  They are an amazing couple and an inspiration.  Thanks for sharing this.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited January 2015

    Doreen great story.  Dionnes attitude and Grahams love is what is keeping her going.  Together, they are living life and have a lovely pink truck to help them along. I think this is Grahams way of showing her how much he loves her   Neither of them are prepared to let cancer win so I hope they go on enjoying dressing up, laughing, dancing and taking rides in that lovely truck.  

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