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Calling all TNs

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Comments

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    TNBCinSTL, welcome but sorry you find yourself here. This is the most supportive, caring, knowledgeable, positive group of women you will ever find. Any question or emotion you want to express- this is the place!

    Luv and Kathy, we are jumping in your pockets to be with you. We will try not to wriggle around too much, so wear big pockets! Will be saying prayers for both.

    Thank you MomMom ;-)


  • TNBCinSTL
    TNBCinSTL Member Posts: 8
    edited March 2015

    thx shari, I'm so sorry you have to do this again.

    all of you, I will pray that you get all clears and the best news you can possibly get. sending lots of love and healing light!!

  • meadow
    meadow Member Posts: 998
    edited March 2015

    Welcome TNBC in STL, from another Missouri gal!

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Kath, I also depend on God but am still nervous, mostly about drinking the contrast as I'm scared it'll make me sick. I'm nervous about he results but I have to focus on getting thru the test first. Thanks for praying. I'll pray for you as well!! I'm not on a limited diet for the CT, just can't eat or drink anything, except for the contrast, four hours prior to the scan. I'm sorry you can't have anything with sugar! Ugh.

    Thanks to everyone else for the prayers and for being with me tomorrow! God Bless everyone!

    Becky, welcome! Sorry you have to be here but we are here for you! Keep in touch and hang in there!! Sounds like you're doing just fine.

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    luv, don't be nervous about the contrast. My DH wanted to know what it tasted like (assuming they are all the same) and I said imagine drinking water out of an old dusty tea cup! No real taste, just kind of stale. It didn't make me gag or give me the runs or anything. You will be fine! We are here with you -bottoms up ;-)

    Thanks Becky- first time was practice.....now I'm ready to kick cancers #%£€!!!!

  • meadow
    meadow Member Posts: 998
    edited March 2015

    yes slv!

  • lisaj514
    lisaj514 Member Posts: 289
    edited March 2015

    slv, you go! You are awesome. Go kick some booty! Cancer should be scared now!

    Welcome TNBCinSTL, we are a great group of gals (and a few great husbands too). Your avatar looks awesome. Another kick a** chick. Tell us about the story of your hairdo. How many chemo treatments will you have? Join the chemo group for your month if you have not done so already. I assume there is a feb 2015 chemo group started. You'll get a ton of support there as well as here. You're getting taxotere, check out info on icing hands and feet to decrase chance of getting neuropathy. I did it. I think it helped

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    Thanks Meadow and Lisa!

    Becky, Lisa has given you good advice. I found joining my 'chemo month' group was very supportive. My advice, drink lots of water and take anti nausea meds whether you think you need them or not as it's much better to take pre-emptively as opposed to trying to control once nausea starts. Rinse with baking soda as much as possible to keep mouth sores at bay and the most important.....be kind to yourself- you are going through a lot, so don't push yourself and rest! Hugs!

  • lisaj514
    lisaj514 Member Posts: 289
    edited March 2015

    yes good points shari. As much as we are all going through ourselves we are still present to help our fellow sisters through with love, kindness, support and even humor. You are a beautiful giving person slv. It just feels good to help. Helping others, helps ourselves, doesn't it?

    Anxious/worried about not hearing from Arlene in a while. Hoping and praying all is ok.

    Arlene, a quick check in if your reading but just not posting.

    Luv, ally, good luck. Love and support for good outcomes

  • TNBCinSTL
    TNBCinSTL Member Posts: 8
    edited March 2015

    awww you girls are great. once again, the universe putting me where I need to be....

    Meadow, we moved from NJ 6 months ago, and I didnt know a soul here in MO. As I like to joke, cancer has opened so many doors for me, really got my social calendar buzzin' ;o)

    Lisa- The hair happened sort of a progression from diagnosis to now (I'm still rocking the faux hawk although my head is tingling and I'm calculating I've got about a week of hair left?!) I called myself pink ninja walking, little did I know how great minds think alike, and we are a collective group of pink ninjas in this fight. I didnt want this to be a time when my 3 little ones looked back and thought of how sad we were when mommy got cancer, but remember that time mommy got a pink mohawk, and then we had a party and daddy shaved her head, and then we had a bald head painting festival on mommy and daddys (already bald) heads, etc. etc. Life goes on, it doesnt stop b/c I have cancer. The kids don't get put on a shelf and I get to take them down when I'm done. I want this time to be less about me being sick and more about the lessons we learned along the way....for the full hair story: http://bbkap.blogspot.com/2015/02/i-am-my-hair.html

    Shari - HiiiiiYaaaahhhhh, ninja the @#%@#$ out of that B#$%!

    Anyway, I'm happy to be in some good warrior company, and to get little shards of beauty and wisdom together in this gift we've been given (I tried to return in but life didn't offer a gift receipt!)

    to all of you having a tough night/week/month/year, tonight I pray that anxieties are softened, minds are quieted and hearts are open, and that tomorrow brings an easier day.

    xoxo


  • eileenpg
    eileenpg Member Posts: 431
    edited March 2015

    TNBC inSTl= I did 6 rounds of cytoxan and taxotere. My advise is take and aleve and claritan for 5 days. I assume you are getting a nuelasta shot. I drank gatoraid G2 constantly for hydration. Also, I walked everyday if possible. Go find a treadmill. I never had neuropathy Good luck. Welcome to the club. Best group of people you will ever meet in your life. i used biotene for my mouth. Toothpaste and rinse.

  • lisaj514
    lisaj514 Member Posts: 289
    edited March 2015

    TNBCinSTL (Becky is easier!), wow what an amazing post. Read your blog, your words are captivating, honest, funny, emotional, real. We've got a spitfire here girls. We can laugh and learn from our new bc sister here. Do you write or speak for a living? Your posts could be a book. You are destined to be a help to others here and on the feb chemo thread. Glad you are with us (well not really) but you know what I mean.

    As you see I did 4rounds of A/C, 1x every 2 weeks, then 4 rounds of taxol (dose dense every 1x every 2weeks also. Had lumpectomy first and 4nodes removed which were negative. Then pathology from surgery found the TN. Did not know that from biopsy. Initialky thought dcis and only lx and rads. tN changed it. BRAC1and2negative. Kept my lumpectomy. did chemo then 33 rad treatments. Rads are easy. Chemo not so much but that's when your ninja warrior will show up on some days (and some days she'll be hiding but will show up when needed, I promise). Go get it done girl. We look forward to reading your progress and helping where we can

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited March 2015

    Welcome Becky,  wow what a way to go,  with an attitude like that you will sail through.  I echo the girls,  drink at least 2 litres of liquid per day, and take nausea meds even if you don't feel sick.  I ate a lot of melon because it was cool and refreshing. The one horrible problem I had was constipation.  Never had it before and what a pain in the &^%%$## it was.   Was prescribed coloxyl and senna but the senna gave me tummy pains so they changed it just to coloxyl.  If you can a little bit of exercise it helps each day but also rest as much as you can, although hard to do with little ones.  Glad you found us and ask away if you have any questions or just want to rant.      

    LUV hope all goes well.  The contrast didn't make me sick or feel sick at all.  Just keep thinking to yourself that hopefully this could be the end to your problems.  Sending prayers and hugs that everything is ok.

    Toby sending heaps of prayers and hugs and hoping there are no problems and that all is good for you.

    Slv  Ok girl practice over time to kick A****  In your pocket for Tuesday.  It's coming up fast. Hopefully this will kick cancer to the kerb once and for all.  Big hugs. 

  • TNBCinSTL
    TNBCinSTL Member Posts: 8
    edited March 2015

    thx for all the helpful tips girls, will do! Water water water!

    I'm thinking of all the ladies that need a hand to hold. Your friends here got you and you got this. Close ur eyes and draw from that. You'll get thru and hopefully with good news!! Xoxo

  • allydp
    allydp Member Posts: 361
    edited March 2015

    Luv and Toby - thinking of you both today and in your pockets! Let us know how it goes.

    Arlene - hope all is well and recovery is going smoothly.

    Becky - welcome! I love your hair! I'm sorry you're here, but this is a wonderful group of women.

    In regards to a Facebook group, I'll go wherever you all go. :)

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 21
    edited March 2015

    We just found out yesterday that my DW has TN bc and is stage 3c and not the stage 2 that she was originally dxed with.


    Toss this in with the fact that she had terrible comlications w her tram flap procedure, this has been a rotten two months.

  • TNBCinSTL
    TNBCinSTL Member Posts: 8
    edited March 2015

    I'm so sorry Alan. I wish I had words of wisdom, but that just plain sucks, and it IS rotten. I'm sure it's going to be a hard year in truth. Be there for her and let your friends be there for you, and vent away, we will listen. big hugs (())

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Thanks everyone for the good wishes! We are home. The contrast gave me diarrhea right before the scan and my stomach still feels rumbly and gassy. Ugh. But the scan itself wasn't bad.

    Alan I'm sorry to hear about your wife. My thoughts and prayers are with you!!

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    Luv, I'm happy your done. Sorry you had SE!

    Alan why the change in stage? I'm sorry, don't let your mind go- we are here for you. My recurrence was measured at biopsy as 2.1 now it's over 3-again! I've decided to not be defined by percentages and just go with the positive info I get from my Dr.s. I hope they have given you the info you need- hugs

  • allydp
    allydp Member Posts: 361
    edited March 2015

    Alan - I am so very sorry to hear this. You and your wife are both in my thoughts and prayers. And we're all here for you.

    Luv - that stinks about the tummy issues, but glad it's over and you're home. Now we just need the next couple to fly by so you can get the all clear!

  • Tobycc
    Tobycc Member Posts: 578
    edited March 2015

    thanks for all the good wishes: had you under my blankets during the scan as it was so cold! Home now, wait begins. Luv, glad you made it also: hope the rumbly tummy goes bye bye

    DH: I want to say it truly is just a number, but somehow I don't think that is going to make it any easier for you. Am wishing and praying that March and April begin two GREAt months. Please know we are all here, as Ally said

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Toby, glad you're home. Hope you get good results soon! I was more worried about the contrast earlier but like you said, now the wait begins! Did they say when you should expect results? My paper said maybe a week but my doc's nurse said a few days at my appointment on Monday. I'd be lying if I said I wasn't worried. Trying to let go and let God!!

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited March 2015

    LUV sorry about the diarrhoea and the rumbly tummy but at least it's all over apart from results. I know it doesn't help to say try not to worry but perhaps try and fill your mind with something you really enjoy doing.  In your pocket for good news next week.

    Toby why do they make us wait when they know we are so anxious.  In your pocket as well as LUV for good news next week.

    Alan sorry for such bad news.  Cancer sucks big time.  Sending hugs to you and your wife.

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    Toby, glad your home and done! I always wish it was warmer in there- when I had my MRI I asked for more blankets.

    I hope the wait is quick, time to indulge yourself!

  • lisaj514
    lisaj514 Member Posts: 289
    edited March 2015

    I like the way this was expressed as sometimes I did not feel like I was fighting but just accepting the things that had to be done to me and tolerating it. This is from a book that this gentleman wrote on his experience with Hodgkins lymphoma, chemo and bone marrow transplant. He is a professor at syracuse university and he wrote a book called The Boring Patient.I like the thought that the chemo is battling the cancer and we are at the home front sacrificing to support the war effort" So hard to accept a lack of control. Sometimes we are the fighters but usually we are behind the front lines of that fight

    image


  • meadow
    meadow Member Posts: 998
    edited March 2015

    Alan I am so sorry and please let your wife know we all support her and hold her up

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 21
    edited March 2015

    Thanks, I'll keep it mind.

    It so bizarre. I'm a veteran who's seen combat, I've been divorced and had a nasty custody battle (my first marriage was a terrible experience), haa stroke, and all kinds of horror in my life. 

    Yet, nothing compares with this. It just doesn't.

  • concernedhubbyalan
    concernedhubbyalan Member Posts: 21
    edited March 2015

    My darling's oncologist is an excellent surgeon, lousy communicator. 

    The chemo oncologist went over the pathology report with ud and explained what it all meant. It's how we found out she has stage 3c and that her cancer is tn. We're not exactly sure where we got stage 2 from, but it seemed right, so we figured that's what it was.

    The big monkey wrench in all of this is the fact that her tram flap reconstruction got massively infected and she had to have one of the breasts removed. (my dw calls it a trilateral mastectomy--God bless her, she still has a sense of humor). So far, the only thing we've concentrated on was wound care and recovery.

  • TNBCinSTL
    TNBCinSTL Member Posts: 8
    edited March 2015

    Lisa, thanks for that excerpt. Awesome, I love it!

    Luv & Toby - waiting & praying with you. I'm sure as with all waits - nerve wracking! pls know I'm thinking of you.

    Alan - glad she has a sense of humor, her attitude will help get you through, as will your love and care. Sometimes boards like this and internet are good in that they help you know what questions to ask so you can be her best advocate. I felt the same way w/my docs - not so forthcoming about stuff. Glazed over triple neg as if it was just more information that didnt mean anything. I had to look it all up myself.

    If there's anything you need help with, I'm sure this board is a great place for you to land as it will be a great resource or place for resources (not to mention support to know you're not alone!!)

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Thanks Becky! I didn't hear anything today. Trying to keep the scary thoughts at bay! I keep thinking if it was negative they would've called today but hopefully the doctor just didn't have time to read it or something like that!

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