Calling all TNs
Comments
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Ally, I'm so happy your doc feels confident about this! I've been thinking about you all day and am glad you posted! Get some rest. XO
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Ally, - so happy to read that 'so far so good'! You're on a roll!
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TNBC love the video. What a positive experience you made it for your kids. Haven't been on here long but hoping you have an easy journey. Maybe you can share and update your plans coming up so I am a little more aware.
Lucy
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Great news Ally and glad you are feeling more confident for a good outcome. Really glad your doctor doesn't seem concerned. Sending hugs.Becky great video. It's so much better when you decide on when you want to lose your hair and not when cancer does. I did the same thing with my girlfriends and we made it into a hair loss party so there were no tears at all but lots of laughter. One of My friends even shaved hers off in support.
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ARRGH!!! I have a popping/clicking noise and feeling in the breast they biopsied!!! My BS spoke with my PS this morning who thinks my implant might have been damaged during the procedure yesterday. It's either ruptured or there's air trapped between the implant and skin. I'm really hoping for the latter. Stitches come out on the 19th and if the noise is still there they'll do an MRI to look at the implant. I'm annoyed, but to be honest, as long as it's not a recurrence, it won't be the end of the world. I was going to have a revision in about a year anyway, so I guess this would force that to happen a little sooner. Never a dull moment, ladies! On a good note, I have no pain or swelling at all. I feel great.
TNBC - loved your video. You are beautiful! I also tried to make shaving my head a positive experience. I had some friends over for a "buzz bash" and it turned out to be a really great and memorable day.
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Ally, that's frustrating about the popping/clicking...but you are right. It's a problem that can be fixed if it doesn't go away on it's own. Keeping my fingers crossed for an "unremarkable" pathology report. I hope they get it to you Friday
Greenae, I hope your postop bleeding is completely over and done with and you can be on the mend now. Be gentle with yourself. It takes time to heal.
Shari, thanks for thinking to get your daughter to post here. I'm so glad you made it through surgery and got that darn cancer out!
Luv, that's great that they were finally able to figure out what was causing your pain and it's something that can be corrected.
TNBCinSTL....great video! Love it.
I just had a checkup with my MO this week and my BS last week. Everything is normal. I love normal!! It give me hope. I'm 20 months out from diagnosis and counting each month that passes without problems as a WONDERFUL month.
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Well, that was fast! My breast surgeon just called me personally and everything is benign!! I had a ton of scar tissue/fat necrosis encapsulating my implant. She cleared it all out and was glad to do it now so it doesn't cause me more worry in the future. She thinks there's air or fluid in the dead space now, which is causing the noise I'm hearing and the sensations. If my body doesn't absorb it by next week, she'll run an MRI to check on the implant. So very relieved. Thank you all so much for supporting me through this.
Green - hope the bleeding is under control. Sending you gentle hugs.
Simple - wonderful news! Normal is awesome! Time to celebrate
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Alicia....fantastic news! I'm glad it came fast too!
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YAYYYYY ALLY!!!
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WooHoo!!!!Simple I'm so happy you got a good checkup!!
Also happy dancing with you Ally!!
Man this is good news from you two. Thank you God!!!
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Happy Happy DANCE Ally!!!!
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Yes loving the news Ally
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Thank you all so much!
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Great news Ally!
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I've never posted in the TN section, but I was curious about something.
Cancer cells have a variety of receptors on them that fuel their growth. With hormone positive folks (like my wife), estrogen tends to be the major driver since they have estrogen receptors on the cells.
So, what drives the growth of TNBC? Essentially, what receptors exist on TN cancer cells that drive the growth?
just curious...
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JohnSmith - there's a lot of research going into this very question. There's some studies that suggest TN tumors possibly have androgen receptors or folate receptors or opioid receptors, but nothing concrete has been proven. I know a few women who's tumors started out hormone positive and morphed into TN, so who really knows. Hopefully they can zoom in on something concrete soon.
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JohnSmith,
I've also read that at a molecular level,TNBC is similar to ovarian cancer...more similar to that than other breast cancers. Almost like an ovarian tumor that appears in the breast.
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Hmmm... if there's no obvious receptors that are driving TN cell growth, than there must be other mechanisms (that have nothing to do with receptors) fueling growth. But, if cell receptors are utilized, maybe there's numerous ones activated, yet each one is so subtle that they aren't significantly detectable / measurable. Perhaps the sum total of all of these subtle receptors add up enough to allow significant cell growth.
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cancer cell growth can occur because something is fueling it or because nothing is available to inhibit the growth.
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Hi. Im a new member to this thread diaognosed with tnbc at 32 without any family history. I have had lumpectomy chemo and rads. Yet my oncologist has prescribed dipherline every three months for five years as he believes my periods should be shut down.Has anyone heard of it? Im really embarrassed and dont know what to do as my surgon who is a well known professor does not agree with my oncologist
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Hi there Han, I've never heard of those injections you asked about for TN.
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I don't know what to tell you. I had a hysterectomy because I'm BRCA1. I haven't heard of TN women getting any aftercare meds.
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Ally & Luv, So, so happy for you both!!! Awesome!!
Shari, Thinking of you and hope your recovery is problem free.
Arlene, Sorry for your complication, may that be a blip that passes quickly.
Simple, Congrats on a great report! Words we all love to hear.
Paula
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Hi everyone, I'll have to go back and read the couple of pages I've missed but I can't concentrate for to long yet!
Ally I am so thrilled you got great results! You've brightened my day- shuffle shuffle shuffle (best I can do right now!)
Had horrible effects of morphine causing extreme nausea-given anti nausea that made me dizzy that made me nauseated! Managed to get off the morphine and am doing well with Tylenol. Had low oxygen levels which they are working on, thus I tire easily but forcing myself to walk. Still in hospital because of lung issues but may go home mon or tues. Wifi is sketchy here, so will try to read up bit by bit and watch the video! Hugs to everyone for seeing me through this with your love, prayers and positive energy! Love to all, nighty- night ;-)
Shari
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HanTagh my understanding of Diphereline (another name for it is (Triptorelin Embonate) is that its a medication used to treat prostate cancer by lowering testosterone in men. It belongs to a group of medicines for the release of hormones and should not be taken by women. In some cases, although its not a cure, it can help men with prostate cancer but in others it can increase the growth of cancer. I'm 100% sure you don't have prostate cancer so I would be having a very long discussion with my oncologist before I would even consider taking this drug.
John Smith it is universally known that the scientists do not know what is causing the TNBC cell growth. It does not have any receptors. They have come up with so many different theories over the years such as androgen and folate but as yet nothing has been found to inhibit the growth. I do believe though that they are on the brink of discovering exactly what causes such an aggressive cancer and it is only a matter of time but of course we all want to know how much time. It is reassuring to know that they are working on it at this very moment.
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Shari, we all know it is hard to rest in a hospital but know you are covered in prayer and warm in our pockets! Try and rest, one step at a time
Kath
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Shari, I'm so sorry you're still in the hospital but am glad you checked in. Hang in there and just try to get some rest! Praying for you for comfort, speedy healing and rest. XOXO!!!
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Shari, thanks for the update. I'm sorry you have had so many complications. That sounds miserable! I hope they release you soon and you can get back home to your own bed (and your own internet). I'm glad you made it through the surgery okay. ((hugs)))
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Shari
Good to hear from you! I hope you are feeling better and getting stronger. Sending Hugs and positive vibes...
love, arlene
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Shari, - Feel better and go home SOON!!
Arlene, - Good to see you posting! How are you doing?
Hugs to all here!
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