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Calling all TNs

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Comments

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Ally, I'm so happy your doc feels confident about this! I've been thinking about you all day and am glad you posted! Get some rest. XO

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited March 2015

    Ally, - so happy to read that 'so far so good'! You're on a roll! ;)


  • SpiritBlessing
    SpiritBlessing Member Posts: 552
    edited March 2015

    TNBC love the video.  What a positive experience you made it for your kids.  Haven't been on here long but hoping you have an easy journey.  Maybe you can share and update your plans coming up so I am a little more aware.

    Lucy

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited March 2015


    Great news Ally and glad you are feeling more confident for a good outcome.  Really glad your doctor doesn't seem concerned.  Sending hugs.

    Becky great video.  It's so much better when you decide on when you want to lose your hair and not when cancer does.  I did the same thing with my girlfriends and we made it into a hair loss party so there were no tears at all but lots of laughter.  One of My friends even shaved hers off in support.        

  • allydp
    allydp Member Posts: 361
    edited March 2015

    ARRGH!!! I have a popping/clicking noise and feeling in the breast they biopsied!!! My BS spoke with my PS this morning who thinks my implant might have been damaged during the procedure yesterday. It's either ruptured or there's air trapped between the implant and skin. I'm really hoping for the latter. Stitches come out on the 19th and if the noise is still there they'll do an MRI to look at the implant. I'm annoyed, but to be honest, as long as it's not a recurrence, it won't be the end of the world. I was going to have a revision in about a year anyway, so I guess this would force that to happen a little sooner. Never a dull moment, ladies! On a good note, I have no pain or swelling at all. I feel great.

    TNBC - loved your video. You are beautiful! I also tried to make shaving my head a positive experience. I had some friends over for a "buzz bash" and it turned out to be a really great and memorable day. :)

  • simplelife4real
    simplelife4real Member Posts: 341
    edited March 2015

    Ally, that's frustrating about the popping/clicking...but you are right. It's a problem that can be fixed if it doesn't go away on it's own. Keeping my fingers crossed for an "unremarkable" pathology report. I hope they get it to you Friday

    Greenae, I hope your postop bleeding is completely over and done with and you can be on the mend now. Be gentle with yourself. It takes time to heal.

    Shari, thanks for thinking to get your daughter to post here. I'm so glad you made it through surgery and got that darn cancer out!

    Luv, that's great that they were finally able to figure out what was causing your pain and it's something that can be corrected.

    TNBCinSTL....great video! Love it.

    I just had a checkup with my MO this week and my BS last week. Everything is normal. I love normal!! It give me hope. I'm 20 months out from diagnosis and counting each month that passes without problems as a WONDERFUL month.


  • allydp
    allydp Member Posts: 361
    edited March 2015

    Well, that was fast! My breast surgeon just called me personally and everything is benign!! I had a ton of scar tissue/fat necrosis encapsulating my implant. She cleared it all out and was glad to do it now so it doesn't cause me more worry in the future. She thinks there's air or fluid in the dead space now, which is causing the noise I'm hearing and the sensations. If my body doesn't absorb it by next week, she'll run an MRI to check on the implant. So very relieved. Thank you all so much for supporting me through this.

    Green - hope the bleeding is under control. Sending you gentle hugs.

    Simple - wonderful news! Normal is awesome! Time to celebrate :)

  • simplelife4real
    simplelife4real Member Posts: 341
    edited March 2015

    Alicia....fantastic news! I'm glad it came fast too!

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited March 2015

    YAYYYYY ALLY!!!

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    WooHoo!!!!Simple I'm so happy you got a good checkup!!

    Also happy dancing with you Ally!!

    Man this is good news from you two. Thank you God!!!

  • Tobycc
    Tobycc Member Posts: 578
    edited March 2015

    Happy Happy DANCE Ally!!!!

  • meadow
    meadow Member Posts: 998
    edited March 2015

    Yes loving the news Ally


  • allydp
    allydp Member Posts: 361
    edited March 2015

    Thank you all so much!

  • Gramof2boys
    Gramof2boys Member Posts: 60
    edited March 2015

    Great news Ally!

  • JohnSmith
    JohnSmith Member Posts: 61
    edited March 2015

    I've never posted in the TN section, but I was curious about something.

    Cancer cells have a variety of receptors on them that fuel their growth. With hormone positive folks (like my wife), estrogen tends to be the major driver since they have estrogen receptors on the cells.

    So, what drives the growth of TNBC? Essentially, what receptors exist on TN cancer cells that drive the growth?

    just curious...


  • allydp
    allydp Member Posts: 361
    edited March 2015

    JohnSmith - there's a lot of research going into this very question. There's some studies that suggest TN tumors possibly have androgen receptors or folate receptors or opioid receptors, but nothing concrete has been proven. I know a few women who's tumors started out hormone positive and morphed into TN, so who really knows. Hopefully they can zoom in on something concrete soon.

  • placid44
    placid44 Member Posts: 179
    edited March 2015

    JohnSmith,

    I've also read that at a molecular level,TNBC is similar to ovarian cancer...more similar to that than other breast cancers. Almost like an ovarian tumor that appears in the breast.


  • JohnSmith
    JohnSmith Member Posts: 61
    edited March 2015

    Hmmm... if there's no obvious receptors that are driving TN cell growth, than there must be other mechanisms (that have nothing to do with receptors) fueling growth. But, if cell receptors are utilized, maybe there's numerous ones activated, yet each one is so subtle that they aren't significantly detectable / measurable. Perhaps the sum total of all of these subtle receptors add up enough to allow significant cell growth.


  • placid44
    placid44 Member Posts: 179
    edited March 2015

    cancer cell growth can occur because something is fueling it or because nothing is available to inhibit the growth.

  • honeytagh
    honeytagh Member Posts: 447
    edited March 2015

    Hi. Im a new member to this thread diaognosed with tnbc at 32 without any family history. I have had lumpectomy chemo and rads. Yet my oncologist has prescribed dipherline every three months for five years as he believes my periods should be shut down.Has anyone heard of it? Im really embarrassed and dont know what to do as my surgon who is a well known professor does not agree with my oncologist


  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Hi there Han, I've never heard of those injections you asked about for TN.

  • Coopdizzle
    Coopdizzle Member Posts: 29
    edited March 2015

    I don't know what to tell you. I had a hysterectomy because I'm BRCA1. I haven't heard of TN women getting any aftercare meds.

  • MomMom
    MomMom Member Posts: 334
    edited March 2015

    Ally & Luv,  So, so happy for you both!!! Awesome!!

    Shari, Thinking of you and hope your recovery is problem free.

    Arlene, Sorry for your complication, may that be a blip that passes quickly.

    Simple, Congrats on a great report!  Words we all love to hear.

    Paula

     

  • slv58
    slv58 Member Posts: 486
    edited March 2015

    Hi everyone, I'll have to go back and read the couple of pages I've missed but I can't concentrate for to long yet!

    Ally I am so thrilled you got great results! You've brightened my day- shuffle shuffle shuffle (best I can do right now!)

    Had horrible effects of morphine causing extreme nausea-given anti nausea that made me dizzy that made me nauseated! Managed to get off the morphine and am doing well with Tylenol. Had low oxygen levels which they are working on, thus I tire easily but forcing myself to walk. Still in hospital because of lung issues but may go home mon or tues. Wifi is sketchy here, so will try to read up bit by bit and watch the video! Hugs to everyone for seeing me through this with your love, prayers and positive energy! Love to all, nighty- night ;-)

    Shari

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,188
    edited March 2015

    HanTagh my understanding of Diphereline (another name for it is (Triptorelin Embonate) is that its a medication used to treat prostate cancer by lowering testosterone in men.  It belongs to a group of medicines for the release of hormones and should not be taken by women. In some cases, although its not a cure,  it can help men with prostate cancer but in others it can increase the growth of cancer.    I'm 100% sure you don't have prostate cancer so I would be having a very long discussion with my oncologist before I would even consider taking this drug.   

    John Smith it is universally known that the scientists do not know what is causing the TNBC cell growth.  It does not have any receptors. They have come up with so many different theories over the years such as androgen and folate  but as yet nothing has been found to inhibit the growth.   I do believe though that they are on the brink of discovering exactly what causes such an aggressive cancer and it is only a matter of time but of course we all want to know how much time.  It is reassuring to know that they are working on it at this very moment.     

  • Tobycc
    Tobycc Member Posts: 578
    edited March 2015

    Shari, we all know it is hard to rest in a hospital but know you are covered in prayer and warm in our pockets! Try and rest, one step at a time

    Kath

  • Luvmydobies
    Luvmydobies Member Posts: 476
    edited March 2015

    Shari, I'm so sorry you're still in the hospital but am glad you checked in. Hang in there and just try to get some rest! Praying for you for comfort, speedy healing and rest. XOXO!!!

  • simplelife4real
    simplelife4real Member Posts: 341
    edited March 2015

    Shari, thanks for the update. I'm sorry you have had so many complications. That sounds miserable! I hope they release you soon and you can get back home to your own bed (and your own internet). I'm glad you made it through the surgery okay. ((hugs)))

  • greenae
    greenae Member Posts: 246
    edited March 2015

    Shari

    Good to hear from you! I hope you are feeling better and getting stronger. Sending Hugs and positive vibes...

    love, arlene

  • anothernycgirl
    anothernycgirl Member Posts: 821
    edited March 2015

    Shari, - Feel better and go home SOON!!

    Arlene, - Good to see you posting! How are you doing?

    Hugs to all here!