Calling all TNs
Comments
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Hi Allydp
you are also young with bc like me. Were your prophylactic surgeries your doctor ' s recommendation or you yourself asked for them?
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Alhusband all I am aware of is that the metformin trial did not yield the positive results against the recurrence of breast cancer they were hoping for but that now they are going down another track of targeting obese women with breast cancer who probably should be on this anyway if their haemoglobin is higher than acceptable, although diet and exercise can reduce their chances of diabetes alone. The Phase II trial has commenced so hopefully something positive will come from this.
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Han - the only reason I had my ovaries removed prophylactically was because I tested positive for the BRCA gene. If I had tested negative, I would have definitely kept them. Medical menopause is no joke. I would not go through this unless absolutely necessary. Have you or are you planning on being tested for the genes? Those who develop TNBC at a younger age are at a higher risk for carrying them, so I would highly suggest asking to be tested. As crappy as menopause it, I'm grateful to have reduced my ovarian cancer risk. If you'd like any info on the different panels that test for it, let me know. I'd be glad to pass it along!
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Got to finally ring that bell and read the poem today!!! good bye chemo, hello slow and steady weight loss! Total: 2 pounds a month= 16 pounds. Yeeks, this gift really gave
But this gift also killed my cancer cells. I am blessed and full of thankfulness.
Lets continue kicking together!
Kath
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Congrats Toby!! So great to be done!0 -
Toby yay! so very happy for you
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Yeah Toby!!!
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Thanks to all! Did any of you gain weight? or just lose?
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Toby, I was a gainer! I was kinda envious of the 16 pounds you lost, but I know for some women that is not a good thing so I did not want to say...Jealous!. I gained about 6 pounds that I want to get rid of but they really want to stick with me!
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Meadow, meant to say I Gained 16 lbs in 8 months, and I hate it! Lost the big weight two years ago.
I know it will take time
Hugs
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oh I got you...I just"heard" it wrong! yes, still got my extra.
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Toby, congrats on being done with chemo!!!
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Yay, Toby! You Go, Girl!
Congratulations!
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Toby wonderful news on ringing that bell. I lost weight whilst I was on chemo and rads but it didn't do me any harm!!.
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Toby= I gained 17 lbs while on chemo. It was a side effect from taxotere.(protein leak syndrome) Fluid retention from the waist down. I am now down to my original weight. However,whenever I eat anything with salt my left foot and ankle swell. I am 4 months post chemo.
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Hi Toby
Happy to hear you have finished chemo. Good days are coming to you.
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Hi Allydp
Thanks alot for your response.
I will have my appointment with my surgeon in three months and I will ask for a genetic test to be done. I wish to get rid of all our fears one day as being young with these conditions is really overwhelming.
Wish you the best.
Hanieh
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Toby
I'm so happy you are done with chemo. Yippie!!! Keep your head up & keep celebrating. :-)
I lost weight during chemo but I was post partum from giving birth and had A LOT to lose.
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Kaththat's so great being done, I could hear you ringing that bell!! I'm a 'gainer' as well, about 15 pounds and it's been very difficult to loose. Seems like chemopause makes it want to stick.
I hope you celebrated!
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Hanieh - no problem.
Toby - wohoo! Congrats on being done!
I lost weight on chemo. I didn't have nausea really but no appetite whatsoever. I lost my taste buds but still had an awful taste in my mouth so everything was just kind of gross to me. I used to nibble on trail mix during infusions and to this day if I see or smell trail mix I get a little queasy. Since my hysterectomy though, I've gained all the weight back and then some. I just started tracking my calories on myfitnesspal and hope to get back on track that way.
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Teka I look like that every day lol. Thanks for the laugh.
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I have a question to ask. Can fluoxentin be of any danger for us with tnbc?
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Hi Ladies,
Congrats Toby! I don't know if I will ever ring that bell but it sure sounds exciting. I was on chemo for 6 months and the center never did anything like that as I was on to phase two of my treatment. I am on a study so on Avastin every two weeks and a daily pill. So perhaps this doesn't apply. However, I don't recall seeing a bell anywhere. Maybe a day soon I will have DH find me a bell and I will ring it at some point on my journey...lol.
Ally, I would like to know some info you could share regarding the testing. I choose not to do it and am wondering if I should. I had my biopsy yesterday and it went well. It was to check a lymph node that the PET found under my collar bone. Long needle and very uncomfortable but smoothly got through it. Neck sore today and meet with MO tomorrow to discuss results and have my treatment I should have had yesterday. Praying for it just being my lymph nodes doing their job...YES...I am claiming that RIGHT NOW!!!
I asked my MO about the Metaform and she said it was not good for me to consider at this time during my trial.
I have lost weight all through my treatment but it has been a good weight loss as it is due to my diet change and working out daily. I have lost 40 pounds and I am ok with it and staying strong. I actually feel better now and still eat plenty healthy and all organic. My onc nurse was a little weird about my loss but my MO was fine because she was looking at my blood work and energy level and she made we log my food for a couple of weeks and said it is a healthy weight loss. Trust me I needed to loose it as I struggled with weight for years and tried everything. Too bad it took bc to finally happen...lol. Got to look for the silver linings, right?
Well have a great rest of the afternoon ladies...Lucy
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Han, forgive my chemo brain: I know what it is but can't recall the word???? Which med is that?
Eileen, that is me exactly. I was on low dose lasix anyway for cardiac issues. But doubled it. Acupuncture does help some, but I try and keep sodium below 700 mgs which I have done for almost three years.
Now, a bite of pizza makes my mouth sore, and ankle/ leg swell
TEKA that is HYSTERICAL
Ally, I had a hysterctomy right before I started my BC journey because they found the beginning of cervical cancer. All clear now. And my current=== OOPS PAST chemo also targeted that.
thanks for all the well wishes! Had three of my closest friends and DH come: while I rang, then we went to lunch, then came home in bloat, steroid, chemo fuzz brain land!
Kat
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Lucy, I would consider testing for the additional treatment options it could provide. There are many trials going on right now for BRCA+ TNBC. More importantly, if you tested positive, it might help give some insight as to which chemos your tumor will best respond. For example, PARP inhibitors and platinum agents are both in phase III trials as they've shown to extend disease free survival and PCR rates in those with BRCA+ TNBC. My BS even went so far as to say she thinks PARP inhibitors are going to be the next big breakthrough for BRCA+. After I found out I carried the gene, I asked my onc to add Carbo (platinum agent) to my chemo regimen. I had a PCR and tend to think it was due to the carbo.
Here's a link to the panel I had. My genetic counselor recommended this one over just the BRCA 1 & 2 because of my younger age at dx. My insurance company ended up denying the test, but the lab, Ambry Genetics, has a program in place where you only pay $100 with no coverage or denial.
http://ambrygen.com/tests/brcaplus
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Han Tagh Fluoxetine is an antidepressant for depressive disorders and also the condition known as obsessive compulsive disorder . A study done years ago on mice showed an increase in breast cancer and it was suggested that antidepressants could increase the growth of breast cancer however, since then further studies have revealed there is no connection between antidepressants and breast cancer. If you take into account how many people take antidepressants in the world that doesn't get cancer then I think you are pretty safe with it.
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Thanks a lot Cocker_Spaniel for your response.
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Ally, thank you so much for the info. I am meeting with my team tomorrow for the results of the biopsy so I will be asking to set up the testing. I recall it is just a blood draw, correct? Also, how long did it take for you to get your results back?
Thanks for the input and support ladies, I am heading to bed to get rested for my long day tomorrow. Praying for good news. Thank you all for support and encouragement.
Lucy
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Hi All
Been running around trying to be sure I have all my chemo supplies. First infusion in 35 hours, but who's counting?
I hope everyone is feeling ok?
Shari...how are you?
And Lucy, I am hoping your node is just a node!
I just got to start driving again a few days ago...am hoping chemo doesn't zonk me too badly...the weather is finally looking better, and I have cabin fever, for sure! It sure feels good to see the sun shining...
arlene
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Hello to all of you brave and beautiful women and partners-spouses!!
I want you all to know you are in my prayers and thoughts, everyday. I have so many questions that cannot be answered, because I realize everyone's situation is different. But, I have learned so much and am still learning, everyday from all your informative posts, thank you so very much.
Not sure what surgery I am having as I'm still waiting on genetic testing results, hopefully I'll hear next week.
Stay strong and smile!!
shellbeach 7
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