Calling all TNs
Comments
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Hi Another!
Feeling ok, still with some discomfort and the drain, but 0cc today. so hoping to lose it tomorrow. Starting chemo in a couple of weeks...looks like it will be TC, getting prelim labs Wednesday. Just still so tired...dumped the pain meds during the day...and going to try to quit at night, starting tonight. Afraid to read about Cytoxan and Taxotere, yet...don't want to have myself experiencing every SE before chemo even starts...lol How are you? Hope all is good!
love, arlene
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Greenae= I did Taxotere and Cytoxan. You can do it!!! It is manageable. I worked part time the entire time I was on chemo and continued to exercise. 3 1/2 months since my last chemo. Feeling better than ever. Glad your surgery went well and you are done with that part.
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Arlene, Chemo for many (and I was one of them!) is very doable. You can see from my signature that I had it all - ACT. I exercised every day through chemo (albeit at a slower pace) at age 67. My gym friends were a huge source of encouragement. If you can manage some exercise, it will serve you well. Thinking of you as you continue to recover from your surgery.Shari, Prayers and healing thoughts your way as you continue to recover. So sorry for the horrible SE's from the morphine. Huge hugs to you both.
Paula
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Paula and Eileen
Thank you!! You both made my day! I really would like to give up the worrying and researching and just get through each day. Maybe spring coming, along with my chemo will help, as both of you just did. Muhwaaah!
arlene
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Though I m new to this thread and I dont know the members well I send my wish and prayers to Shari and all.
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Arlene, great to hear from you! Hope you lose those drains tomorrow! You'll feel much better after that. I'm also one that wasn't bothered by chemo. Never once even felt sick, until I got CDiff but that was NOT from chemo. You'll be alright! HUGS!
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I just wanted to tell you how much I enjoyed your video. . So lovely and fun for your children, thank you for sharing, you made it special, so real, yet lighthearted. I've just been diagnosed and also just joined this sight, this is all so new, but your video was so comforting and inspiring, along with all the posts I've read so far.
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Continued prayers & hugs for Shari.
Ally & Luv so happy to hear your great news. Yippie!!!!
Arlene you can do this!!! I was 2 weeks post partum from delivering my son & really wore down when I staterd chemo. The Sancuso patch (for nauesea) was a life saver for me. I wore that on my upper arm day of and 7 days after chemo. Never got sick once. You got this!!! Hugs & prayers your way.
HanTagh & Shellbeach7 welcome to this wonderful support group. I'm sorry your here but know that this group is full of love & support for you. It has brought me much encouragement. :-)
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Thank you so much for your kind message SA8PG. . I'm waiting to have some genetic testing done, from there decision will be made as to what type of surgery will be scheduled.
There is so much to learn and process, but I will say, for getting this kind of "bad news", it has been a such beautiful experience. Everyone I've encountered in the last two weeks has been so kind and helpful, from my Incredible nurse practitioner who found the lump during my annual, everyone at our local cancer center, to the posts from this particular discussion board (I haven't been on any others, I chose this particular board because it was for Triple Negative patients like myself.)
A Big Thank you again to you and to all the other bloggers for such inspiring, encouraging and amazing stories, kind and loving words and for making a newcomer feel so welcomed. .❤😊
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The patch has worked wonders for me as well. I did the zofran during the taxotere round, until I had the reaction and switched to CMF. Now since I have been on that, been on the patch. Worked for 7 days for 5 tx, now I am switching out every 5-6 days.
You can do this, and welcome to the new ladies. I too am sorry you are here, but so glad you found us!
Kath
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Han and Shellbeach, welcome!
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Thanks everyone, for the encouragement...eating steak (don't really like) every night to get my HGB baCK up after my post op bleed. And just want to feel a little better before this chemo begins,
You are All the Best!
arlene
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Thanks alot dear meadow
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Han and Shell - welcome
Shari - how are you feeling? I had low oxygen levels after my hysterectomy and it was not fun. I hope you're feeling better and released soon. Sending you hugs!
Arlene - hope you got those drains out today! I had 6 of them with my BMX and felt like a million bucks once they were all out.
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Shari: home yet?
Kath
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Hi All
After 19 days, I AM DRAIN FREEEE...feel like a new woman! Thank you for sending all those positive vibes...(Ally- I am a wimp...you had 6----yikes!, and I was freaking with one!)
Shari, feeling better, I hope?
Hugs to all!
arlene
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hi greenae
congradulations. Are you going to have chemo and rads?
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Happy Saint Paddy's Day to all!
Wishing you a rainbow
For sunlight after showers—
Miles and miles of Irish smiles
For golden happy hours—
Shamrocks at your doorway
For luck and laughter too,
And a host of friends that never ends
Each day your whole life through!0 -
Ladies, especially research enthusiasts, has there been anything published as to how the Metformin clinical trial(s) are going? Any "early results" of any kind? I've searched but can't seem to find anything recent.
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Thank you, and welcome, Han Tagh!
I should be starting chemo in 2 weeks, for 12 weeks. I wasn't supposed to need rads but am told there are cells near margins of my skin and nipple sparing MX, so strong possibility that rads will be a few weeks after chemo is finished. Then hopefully, recon on left can be finished and reduction/lift for the right breast. I am In for the long haul, guess we all are? I haven't decided which recon I want/should have? Just have a left TE in now, and am very lopsided. DDDD on right and B-C on left, and totally looking square, instead of round. I know it should be the least of my worries, but I am wondering how I will dress when the weather gets warmer?
Hope you're having a good day!
Happy St Patrick's Day!
arlene
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Arlene, so glad you got the drains out!! Rest up and just relax for a bit. Don't worry about chemo or rads right now. One step at a time and you will get there! For me, chemo seemed to go by fast. Like I said before the CDiff is what got me down. I thought chemo would never end when I first started everything but after I was like wow, that went by fast!! I didn't have rads but for most they aren't bad. Hang in there and we are here for you, as you know! XOXO!!
Welcome to the new members! This place is AWESOME but we are sorry you have to be here.
Shari, I hope you're hanging in there and hope to hear from you soon. Miss you!!
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Dear Greenae
I m about 6 months after chemo and 3 months after rads. Though a tough time, chemo sessions passed quickly and now just a memory. Every thing will get better and better......Wish you the best
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Hi Arlene! So glad you are drain free! Keep feeling better and better! (Chemo and rads are very do-able. hang in there!)
Shari, - hope you are on the mend and we hear from you soon!
Welcome to the new members here!
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ALHusband I do know that the Phase II trial has commenced which seems to be targeting overweight women with an elevated BMI (Body Mass Index). There have been no known positive results from the Phase I trial and this has been closed. The Phase II trial seems to be concentrating on hormonal changes and density of breasts in obese women who have/had breast cancer. If my HbA1c was elevated then I would consider Metformin but only to reduce my insulin level and to prevent hypo's otherwise I wouldn't be interested for myself but I believe a lot of women on this forum do take Metformin in the hope that it helps them.
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Thank you, Luvmydobies, Han Tagh and Anothernycgirl
How Amazing a drain-free shower feels...lol.
Guess I am already worrying about chemo because I just realized it starts in 7 days.
I am glad you are all saying it's doable...just am such a "planner," wondering what I should be planning, besides making sure I get a buzz cut before the hair falling out starts.
THANKS for being here!
arlene
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Am thinking of Shari... Anyone heard? I hope she is resting and feeling better.
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Greene= Take a claritin the day of the neulasta shot and for the next 4 days. I also took an aleve the day after chemo. As if you are getting a shot the day after chemo. I had the BIG C. A 8 ounce glass of prune juice warm every night helped. Biotene toothpaste for a dry mouth. You can always buy this stuff if you need it. Good luck!!! You can do it!!!!
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Thanks, Eileen, I will keep the Claritin and Alleve on hand, for sure, and I actually like the sunsweet dried prunes...can eat a bag, no prob...lol...
Another question...I am trying to plan which day of week I should have chemo, So I guess I am asking...when do you feel the worst, counting from the actual chemo day? Was thinking of picking Friday, and hoping won't feel crummy til after the weekend? Or does the fatigue, etc kick in right away, and should I ask for Mondays? Work is not an issue, so I guess I would prefer to feel best on weekends, when family and friends are around.
Yes, I have Control issues...lol,
arlene
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All great words of wisdom from everyone. Funny how quickly you forget the little things that helped you get through it. Totally agree with the Claritin that was important with the neulasta shot pain. Drink A LOT of water esp with AC. Flush those kidneys. I love the Biotene tooth paste helped so much with the dry mouth.
I did Friday so that I would have help on the weekends. Honestly it's such a personal preference. All of us differ on when we come down off the med high of energy. My tired days were day of chemo & then on Tuesday or Wednesday.
Ally-how are you doing now that your scans are done?
Prayers for Shari. Thinking of you.....
G
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Dear Greenae
For me it took a bout one week after each chemo session to get back to my normal self.Yet, the first three days are the hardest. Have some people near you to help. Stay positive about every thing as everything will pass so quickly. Hair,though a difficult issue, will come back and you will enjoy seeing your hair grow back.
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