2010 Sisters
Comments
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Granny,
I have 10 lbs (and then some) that you are more tham welcomed to have! xoxo
Tori
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Today I ate some Godiva chocolate and so far no headache! Will try more tomorrow. This may turn into a nice SE for me. Tomorrow I go to the PS to get my first fill of saline in the TE's. Not sure what to expect from that as I still have some huge deep bruises from my surgery back on 9/2!
The 300 mg Gabapentin that the surgeon prescribed yesterday made me very dizzy so I will not be taking it if I have to drive anywhere. This maybe a night time only med. I did sleep good last night, got up once at 2 am to go to the bathroom and then at 5:30 am when I looked at the clock then went back to sleep until 8:30 am! My DH rubbed my arm with Aspercream last night before I went to bed to see if that would help. I don't know if it was the drugs or the arm rub that helped, but we will be doing the same thing tonight.
I start my physical therapy "exercise program" this week, so I will let you know how that goes and we will see if I gain or lose weight from this. Dr is hoping I gain a few pounds and I am hoping I lose some more. We will see!
Hope everyone has had a good day and has a wonderful evening.
Amy Jo
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YAY Amy Jo! Chocolate should be the sixth food group in the food pyramid
:) And arm rubs are just as good! God bless & sweet dreams tonight!0 -
Hi there. After chatting with my counsellor this morning, I realized that I have been feeling some real mood swings and emotions and find out they are related to the Steroids and the anti-nausea meds (which contain some steroids in them too). Every time I had chemo several days later I would get so moody and blue and weepy and I thought I was actually losing it! Apparently there are many who are very susceptible to the steroids and this would be one of the many side effects when going off them. Also we go off them so abruptly, take them for several days and then just stop taking them!
So glad as I will now be a little gentler with myself (I can be hard on myself at times). Also was told how incredible the body is and how hard it is working when trying to help get back to "normal" after each chemo. That fight is marvelous and unbelievable. No wonder we all feel so wiped! That is amazingly dfifficult work and we need to relax, take it easy and let out bodies heal without feeling guilty, or antsy or like we are doing something wrong. (I personally am not very good at putting myself first and usually feel a fair bit of guilt when I am not able to do what I think I should be doing). How sad. Anyone else out there like me?
take good care and just breathe. . .
Teklya
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Enjoy that chocolate Amyjo!!
Well said, Teklya. I think many of us are hard on ourselves. It took me many chemo tx to realize I just had to let go and sort of "go with the flow". I let my husband wash dishes (harder than I thought!), I slept when I needed to (sometimes all day), and ate what I wanted! One of the toughest things was learning to take pills when I needed and not "tough it out".
Well, I'm on my steroid buzz now. Had my LAST CHEMO today!! Got my 2nd "Graduation" certificate from the nurses (they all write a little note to me and sign it), and they said "No more!!" This was the 2nd time I've been through chemo (colon cancer last year), and I told everyone today that this was my last chemo EVER!
Hope everyone has a good evening and a peaceful sleep!
Tina
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tmarina- Tina, you just made my day with your chemo graduation! You have been such a steadfast inspiration to me. I am doing the happy, happy dance with you!
amyjo- Now that is a SE to celebrate! Life is too short to not indulge in chocolate from time to time. I'm hoping your arm pain settles down. Do they think it is nerves reconnecting? I know I am having some weird shooting pains for the first time since surgery, wondering if it is nerves reconnecting. I wonder if acupuncture might help you. Some ladies say it is the only thing that has given them relief. Sweet dreams Amyjo.
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Tina: Happy dance! That's great.
Teklya: Thanks for that post. I have a bad day or two about a week after chemo where I cry at the drop of a hat and feel really down. Good to know it is probably connected to the drugs and I'm not just losing it!
AmyJo: I had BMX with 14 nodes removed. I had odd pains in the arm on the node side for a good 2 months after surgery. It started above the elbow, moved down to the forearm and at the end was in the wrist/hand area. I chalked it up to nerves reconnecting. It's gone now thank goodness, although I'm still numb on the back of that arm from about my shoulder to almost the elbow. My BS says that is likely permanent, but it's not a big deal. Hopefully your pains will resolve with time. And I agree, chocolate is definitely a food group!
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TMarina - Congrats big time on finishing Chemo - yay for you!!!0
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hello Ladies........
Just a little note to say I'm still here. Not posting but still reading and praying for each of you.
Amyjo- I have no words right now. Just admiration. Just keep showing up!
Hope everyone has a good nite tonight. <<<Hugs>>>>
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Bug Hug back to you!
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Quick question for you ladys, Im about to order my medical alert bracelet, it comes with free engraving on both sides. What should I put on front, and what should be on the back? I know, No needles, No BP right arm, but should that be on the back, and my name on the front? or Lymphodema <sp> on the front?
Kristy
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Kristy,
Can I ask where you are ordering the bracelet from?
Thanks!
Tori
DE COLORES!
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Found a guy on ebay. Waiting for my bf to log in and order it. it's 15.00 I believe. I'll check his computer, hold on.....
Ok, it IS just the back, 4 lines, 20 spaces per line and the sellers name is idstuff
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I ordered already, didnt want to wait till the last minute.
Kristy
Great deal though, 15.00 and free shipping and engraving.
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Tina - doin' the happy dance for you! No more chemo ...ever!
Amyjo - for some reason chocolate never sis it for me. I really don't like sweets. Would rather have a sweet potato. How weird am I?
Tek - bigs (((HUGS))) for you. I see the shrink today. I'm sleeping better but I totally get the moodiness.
Hi Mac and Omaz!
GO RAYS!! Going to the game after the shrink!
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Hello ladies- Haven't posted in a while. I have been down in the dumps. Feel so alone these days. I'm truly happy for those of you finishing chemo and those of you doing better with SE. Went for my weekly Herceptin yesterday and even the nurses saw how bad I was doing. They called in the PA to see if there was anything she could do...not much she could do. She called in the social worker and his great advice was, "well, you are between a rock and a hard place". I told him he could leave my "room"! This is my "good" week, I have to laugh because I'm losing my hair in handfuls....what's good about that?
I hope to get out of this funk and post when not so blue. I think and pray for all of you daily.
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Jag, I'm sorry you are feeling so down in the dumps. I hope things get better. I am sending good thoughts your way.
I went for my first chemo treatment Wed. and things are going well so far. I am going to have my sister buzz my hair off this week before my next treatment. I dont think I could stand to see it fall out. What is your treatment plan?
lakefront
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Morning ladies - hope everyone finds some small joys of life today!
Tori & others - hadn't thought about a bracelet. Is it that BP and sticks should NEVER again be in the arm where they took nodes? I know they had a sign up when I was in the hospital for mastectomy last week.
Shout out to Tmarina - good for you!
Jag - just keep telling yourself Herceptin is a miracle drug. After your body recovers from all this, I'll bet your hair grows in thick and beautiful once again. Are the leaves turning yet in Maine? Still green here in Virginia.
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My treatment is TCH x's 6 with weekly Herceptin for 18 weeks. I'm 15 days out from first Tx. My 2nd TX is next Tuesday, I've had a total of 3 Herceptin TX
The leaves are starting to turn, usually my favorite time of year.
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Jag honey - big warm ((((HUGS))))))) for you. See if you can get an appointment with a counselor. It really is helping me.
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I got a bracelet from the National Lymphedema Network web site.
http://www.lymphnet.org/usefulLinks/NLNStore/alertBracelet.htm
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I got mine at Lauren's Hope,
http://www.laurenshope.com/category/87/medical-id-alert-bracelets-and-necklaces-for-women
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Jag--> Sorry you are feeling so down. Yes, ask your onc for a referral to a counselor. Hopefully there are some in your area that work with cancer patients. You are not alone in this, I've known many women who have had to seek out help and even meds. I hope things get better for you as treatment progresses. Remember what you are fighting for. Have someone take you out for a drive to see all the pretty leaves and get an ice cream cone--works for me!
Before I lost my hair I tried a shorter hair cut, and really like it. Then when it start to fall I sat out on the deck and had hubby trim it way down with a scissors. It was kind of fun and we took lots of pics. He was nervous at first, but when I convinced him it didn't matter how it looked, he had a little fun too. We even did the "faux hawk" pics! I think having 3 young adult daughters watching how I would react to all of this made me decide to try to have some fun with it and not mourn too much. But it was still difficult, and I can't wait for it to grow back!Hope you are all having beautiful fall weather like we are in MN! Enjoy your day!
Tina
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Morning ladys.
I checked out those other sites for medical bracelets, and to be honest, they were just too much money for me. I and my boyfriend are on unemployment and he is full time in college, (Plus the medical bills comming in) I found the basic bracelet for 15.00 to fit my budget for now. After he is finished college and we have money rolling in, (or maybe for Christmas) I will find a pretty bracelet.
And honestly, if it's too pretty, they (Nurses) may not even notice it is a medical bracelet.
So it was EBAY for me.
JAG- sorry to hear your feeling so bad. I'll be going through the same treatment.
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Hang in there jag. Sorry you're having such a rough time
Free lymphademia bracelets herealthough not pretty:
http://www.lymphedema.com/alertband.htmBTW met with rad oncologist this morning. She doesn't recommend rads. Yay!!!
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YAY for lago! No rads!! Good job, girl
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Jag- BIG Hugs for you. When I was younger and get moody and down my Dad would tell me "to remember what brings you joy" That would at least get my mind on searching for the things I loved and gave me joy and it always seemed to help. I know you have gotten a lot of suggestions, but you do what is right for you and remember we all care about you through the good, bad, and the ugly.
Tina - Joining in on the Happy Dance for you! Congratulations!
I had the first fill of saline in the TEs and boy do I hurt! They put in 250 cc in this first time and there is a very noticeable difference in the size of my boobs. I can hardly move it hurts so much. Hopefully it will be better before Saturday when we fly to CA to see the grandchildren.
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Jag dear sister. Huggs! Your not alone, we are all in this together. I've had a very bad last couple of days also. Not only did I lose almost all my hair but I lost my old dog who had been my dads dog and who I received after he passed away Oct. 4, 2003. My dog (his dog) passed away Oct. 4, 2010. 7 years to the day. I'm such an animal lover and it's so hard for me to see a pet go as I get so attached. And the fact that it was my Mom and Dads dog too makes it even sadder. I know it will get easier as I have lost pets before. Its just like its the last thing we need right now. Another chemo coming up Friday so I'm trying to get things in order like I always do. Laundry done and shopping done and other chores. I work tomorrow so I'm debating to go in with very little hair and wait till I go back the following week to wear a cover or cover it up now. I'm really to the point that hey this is me, I'm the same person just with VERY little hair.
Cathy
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Cathy, so sorry about your dear fur child. It is hard to lose a member of the family. Big soft {{{{HUGS}}}}} for you.
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Cathy, so sorry about the dog. I "inherited" my mother's german shepherd when she died and about 9 months later I had to have him put down because of incontinence and hip dysplasia. It was such a hard decision because I felt like I was killing my mother's dog. I understand that it seems like a double whammy - the loss of a pet and the memory of the loss of a parent.
AmyJo: Have you talked to the doc about any precautions you may need to take before flying, like a sleeve to prevent lymphedema since you've had nodes removed. Just checking, don't want you to come back home with a new medical issue.
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