2010 Sisters
Comments
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My husband said he was awake for it. He said it was wierd but not painful but I do believe he was numb or something like that.
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My husband was asleep for his. No way do I want to be awake please put me in lala land. The more I go through in this journey the more I say just knock me out please.
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Granny & Kira: Ditto. Gimme drugs. I'm through being brave.
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I have to pile on for this one...drug me baby.
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When they installed my port I was 'sortof' out. It was totally fine, I could feel them working but absolutely no pain. I also remember talking talking the whole time, only when I was done I had NO IDEA what I was saying!
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the first biopsy i was out cold and the dr said i never stopped talkin.he wouldnt tell me what i said and i really dont care.he was the jerk who did everything wrong.who cares.as long as im sleepin.
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when the port was installed last tuesday - i was awake- but very drowsy. The nurse wouldnt shut up and i just wanted to sleep- painless-
however the 1st night, stiff neck, 2nd night better, stil stiff, but 3rd just annoying now- the access tubes are still hanging until tuesday- thank heavens.
my face feels hot.......
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God in heaven!!! My SB was done when I was under. As with two biopsies (B9). For the last biopsy, I was awake, but given really good pain killers so felt nothing. For a colonoscopy they normally give two drugs one of which has an amnesiac effect. No way would I go through any of this stuff without sedation or whatever. I can't believe the morons out there. Don't they believe in "first do no harm".
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anyone here considering DIEP reconstruction- involving no muscle?
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sweetaeobabe - Tyenol 2 or 3 can do that for sure. I'm told its the codine that does it. Hugs. Hope your over it soon and feeling well.
Cathy
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redninrah,
I'm planning on doing the DIEP in July. I like the idea that no stomach muscle is used. I read that recovery can be from 8-12 weeks. I have a TE in right now so I will not need a skin graft. My PS said that the procedure can be done in about 6 hours if everything goes well.
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Geez, some bad experiences here! I've had colon cancer , so colonoscopies are in my future! I've had 2 so far. They give me fentynal and versed (sp?). Some people fall asleep on these drugs, I stay awake, but feel no pain. Its the same stuff they gave me for my port placement. I was awake for that too. I call it my "happy drugs". They numbed me up for biopsy and the snb injections and wire placement. A little uncomfotable , but not painful. The snb was done during my lunpectomy, so I was out for that.
Hope everyone is able to do something fun this weekend!
Tina
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OK - the longer I'm on this journey, the deeper in the woods I feel like I am in terms of being confused- like Wizard of Oz or something with monkeys jumping out of the trees!!!:):) I'm stage 1, 0 nodes;100% ER and 98% PR, post menop and somewhere between grade 1 &2 (because two masses!).
So today I go to the Onc. I was fully expecting her to say with my pathology that I need to take hormone blocker (chemo not indicated). I was correct on that count - no surprises. But here is what is completely different. Both the surgeon who did my excisional biopsy and the breast surgeon who did my mastectomy gave me the same recurrence figures when I was making surgery decision. Survival rate is the same whether you choose lumpec/rads or a mastectomy. Recurrence somewhat lower in mastectomy (about 1%) than lump/rads (anywhere 5 - 10%). So, that has been my understanding about recurrence rates. Today, Onc. said recurrence rate after lump/rads OR mastectomy WITHOUT hormone blocker is 20-30%. WITH hormone blocker, it would be half or 10-15%. So will the real recurrence rates please stand up? I can deal with facts - but these percentages seem to be moving targets. Anyone else w/same diagnosis who can shed some light on this?
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JanetinVirginia - This has been a real frustration of mine as well. I wish somewhere there was a website that listed all the recurrence possibilities for all the different scenarios.0
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Have you guys checked out cancermath.net. The percentages were pretty close to what my oncologist gave me.
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I wanted to chime in on the radioactive shots needed for the SNB. It takes about an hour for the tracer to reach the lymph nodes, which is why you are awake for the shots, it needes to be done in the necular med dept, not the OR. then I needed the wire localization, he said why inject a shot to numb me, when it was 1 shot to place the wire, well, he missed the area, so I got the wire shot twice. Once I was in the OR, I was injected with the blue dye to make the nodes visable (tracer shotes make them detable with a gama ray) but I was alseep for the SNB and the partial mast.I dont believe anyone is actually awake when they make the incision under the arm to remove the nodes.
Kristy
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Granny, since the exlax, it all just goes right through me now. lol
Wow, and kids eat that stuff to loose weight, they must be in constant pain and live in the bathroom.
Kristy
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BTW, should have taken a pic of the beautiful blue color my pee was after the operation. lol
Oh, not sure if I mentioned this, but my DR didnt use any drains. Said I didnt need them. Should have seen the smile on his face when I told him I loved him. Anyone in the South Jersey area, I got a great (and cute) BS for you.
Kristy
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sweetaerobabe - Passing on some advise that was really helpful to me. I had some serious problems with constipation during chemo (have a history of IBS) and the hospital house doctor said I should religiously take Metamucil at least once or twice a day, every day without fail. It worked like magic and is still part of my daily routine. Also, the chemo dietician and my Onc advised me to take a ProBiotic daily so I still do that as well.
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I need to jump on the drug bandwagon. I always tell the drs "the less I know about what happens the better I like it." They did do my port placement with me awake, but I was numbed pretty good and did not feel much except some pressure. I was okay with it, but I would have rather been completely out of it.
imatthew - prayers are with your wife and your family as you continue on this journey. You have come to the right place for encouragement, support and knowledge.
My fever has gone, but a slight cough remains. Turns out my asthma is the root cause of all the coughing. Same thing with my granddaughter. My grandson was sick, but it was a food issue cause when he played with lizards and did not thoroughly was his hands before eating. We are all doing fine now.
Hope everyone has a restful evening.
Amy Jo
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No Kristy, of course I wasn't awake for the incision under my arm or the actual SNB itself. Everything I described occured in the nuclear medicine department. When I later described the proceedure my breast surgeon told me that what I described was the way it used to be. She was also obviously angry and was going to see the nuclear medicine physician to discuss my proceedure. My proceedure was done in a brutal and callous manner that was not necessary and no one should have to experience this just minutes before surgery. .
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Gingerbrew- How it was done to me is just how it happened to you, not sure exactly why, but I was told I couldnt be numbed. (I asked) because I read on the boards here how painfull it was. But that part is behind us, and we survived, like I said earlier, I sent the poor student nurse into a panic attack and she had to leave the room. I agree 100%, with everything we are facing already, we shouldnt have to face any more un-necessary pain.
LilyLou - Guess I better stock up on the Medimucil.Bathroom functions are finally returning to normal. lol
Kristy
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sweet.glad to see you up and around.blue pee.lol.i remember that,,
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Ode to the nodes. One day history will look back and wonder how any of us survived the procedures, treatments, and uncertainties much less cancer! We are definitely still in the 'pioneer' stage. But like the pioneer women, I can only hope we are paving the way for a better future for generations of women to come.
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I'm b-a-c-k! Wow, what a week! The joint pain kicked in and hit me with a vengeance, (I could not even go downstairs to my office). I have spent the week either on my bed, or in our recliner, on our couch, or chair, with hot packs on my joints, semi-stoned on pain killers. I have since developed a throat infection (from the chemo) and needed to be seen in hospital Wed evening. I am home now and recuperating, though my white counts are extremely low leaving me most susceptible to so many things, I am to lay low, do nothing, go nowhere and see no one. Sounds like fun, eh? Thank God there are only 2 left!!!
I hope you are all trying to manage as best you can.
take good care and just breathe. . .
Teklya
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how many of us in this Forum have two left?
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"Two" what left??
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{{{{TEK}}}}} You can do it, only 2 more tx. (((HUGS))))
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I wish I only had 2 left...I still have 4 to go... You guys can do the 2 more! Remember how strong you really are!
Peace and prayers,
Tori
DE COLORES!
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2 more of chemo sessions. I just had my 2nd. And the bone pain is kicking in. its not as bad, but i can feel it in my knees, ankles and wrists. But everything else is excellent, except this anoying port that the access tubing is still attached!
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