2010 Sisters
Comments
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JaniceAMarie, welcome to the place no one really wants to be but these folks are a very fine group of people. Sometimes our antics can even make us forget about cancer for a few minutes!
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janicemarie- Welcome! These ladies are great. I will pray for you and your little ones. I know a few ladies who are Stage IV and find the Stage IV threads very helpful. I hope you talk to those ladies too. Many of them have been there for many years and have lots of good information.
amyjo- So glad your cough has settled down. I think you just needed to get away from all that clean, California air! Don't wear yourselfout with your appointments!
granydukes- "Warden Granny" I like that!
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JaniceMarie, welcome. I find this a great place to come and read and learn and laugh. You will find women here who have your exact diagnosis and those who are like you in other ways. A great meeting of women here. Lots of support and good humor too.
I have been to Baraboo, it is a beautiful area, especially this time of year.
Your sister
Ginger
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JaniceMarie-welcome.sorry.no words today.whenever i see another newbe i really get sad.
nothin but sad new lately.has anywone gotten any good news today????
still prayin for a cure.God bless my sistas
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It is unbelievable to me that so many of us are all in the same boat. I was diag in Sept 2010 had a lumptecomy with clear nodes and margin. Waiting for my oncotype dx test to come back this week to find out if I need chemo or not. I don't like the waiting game. Had to stop my herbal menapause medicine and now the hot flashes and sleepless nights have returned. The lack of sleep does not help the anxiety I feel about all this. I pray that this week passes quickly.
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I almost got good news today! I had such a screaming one-way fight with DP in the doctor's office today that I almost was lucky enough to be carted away to the looney bin!! Too bad, they decided they just want us "out" of the office. We just returned from there a few minutes ago. Had to go back again for the same problem! I stayed away from DP and let him go in alone like a real adult! So guess you all are still stuck with me for a while.
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Aw SherryC, I remember the waiting. ARGGGHH!! AMyJo, glad you are back home withOUT the cough! Cathy, Tek, Tina, Red, Rach, Calleigh big {{{HUGS}}}} for all of you. I know you are bravely facing your chemos. Cindy and Janet, what's next for you? And Jalsmomma, what's up on your plate? Whew, so many of us. Where's MrsNice? Haven't seen her in a while! And GrannyD, when do you get the word on the Oncotype? I bet you'll come in a 2. We can do the happy 'no chemo' dance!!
I feel like such a weeny whiner what with my not sleeping and you all have been through and are going through the wringer!
A big group HUG for everyone!
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Medical, We are never stuck with you.
Sherry, it's sad but you're right there are alot of us here. Hoping you get a low oncotyype number.
JaniceMarie, welcome sorry you have to join the group no one really wants to be a part of.
grannydukes, hope you get a low oncotype score.
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I get results on the 27th.somehow this waiting game is not bothering me like the others.i guess im just numb now.im prayin for a low score but most of you know im not gonna do chemo anyway.at least for now i feel that way.
Barb.I thought you were sleeping better????
Where is Mrs Nice?
Medigal-you always make me laugh.
and thank God amyjo stopped coughing. God bless my sistas all fighting this huge monster.
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I will start TC x 6 plus herceptin on Wednesday at 2:00 so please send me some healing thoughts!! Thanks ladies and I will send them right on back...
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{{{ELAINE}}}}}} (((HUGS)))) coming at you!!
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Boy a lot of catching up to be done.
Welcome to the new girls on the block - er, blog... Glad you're here and if you're like me, will find everyone so helpful.
I'm so confused about the treatments though. I see that some that are receiving chemo have the same diagnosis I do and it wasn't an option. Sure don't understand if there is really a protocal for any of this.
I didn't have a needle biopsy just went ahead and had the lumpectomy, then another to clear the margins. I continue to be sore around the incision. Does anyone still have soreness? The surgery was done in March! It feels like they stitched the muscle under the arm to the incision because it pulls from behind my armpit. I do have some lymphodema but found the massage the therapist does help some.
I drove (by myself) 10 hours to see my DD. Supposed to have a baby any day... hope so because I have to get back to work soon. This was a major accomplishment for me so I had to brag about it. I guess BC does make us stronger and big things that kept us back are just a small bump in the road now. I was planning on flying but gave up my ticket. The last time I flew I had caught such a bad cold it took weeks to get over.
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(((SAMSUE}}} where you been? Missed you! Jeez, our thread is so big now, I need to start a list so I can make sure I can keep track of everyone.
Hope this week is a 'at least' tolerable one.
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Seems I finally get to the thread after work and find myself just catching up! So many new people. (((hugs to all)))
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Samsue--you are still sore from the surgery in march???? id get that checked if i were you.by the BS.i had the surgery 4 wks ago. 6 nodes removed.im sore and still a little pulling but the dr said thats normal healing..the sistas always told me if it hurts go have it checked.im a good sista and i drive my BS crazy but hey its better to be safe then sorry.Prayin that its nothin.God bless.K
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Hello ladies. Missed you all! I've been keeping up with all the posts. I had my second TCH last week. Felt pretty crappy over the weekend, better today. No Nuelasta shot this time, so the bone pain didn't hit me, thank God. Been pretty down in the dumps for awhile. My son finally came home from his emergency surgery. Not complaining, but it's been difficult trying to care for 3 sons, 1 who can't walk or get up by himself for the next 3 weeks, he's 17 and 6' and 260lbs, work and oh yeah dealing with all the lovely SE's of chemo. I'm still thankful for all I have, and I know it could be worse.
Anyone having any foot, hand and fingertip pain with TCH?
To all the new ladies, this thread truley is a saving grace because of all the beautiful hearts who help each other.
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Is there a thread that lists all of the acronyms? I got lost on DP? As well as others here and there.
Ginger
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Granny, I went the to BS about a month ago and he cleared me and said everything looked great. I still have a hard spot where the fluid hasn't dissipated. It just feels as though everything is just stitched together and when I move my arm there is a pulling feeling (which is painful). I did have the boost with rads under the arm and 8" around to the back. It was really sore at the time. I'm due for a mamo at the end of Nov. and just dreading it. The rad md gave me a script for a MRI but not sure if I want that because of the extra rads.
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Shout out to Barbara - I nominate you for the class of 2010 head cheerleader!!
Seriously, your spirit really comes through! Plus positive thinking is huge part of healing & fighting the beast. Anyone a LOST fan? Cancer reminds me of the black smoke monster.Still in process of seeing a couple of oncs & researching all the threads on hormone therapy. I figure if I have to spend the next five years with one, want to be sure the practice is one where I feel I am a partner in decisions and not just follow blind. First one didn't think oncotype test was necessary. I'm not buying it. So we'll see. I've seen more doctors in the last couple months than my entire life - and beginning to figure out how to navigate.
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Jag...sending you an extra prayer .....right now....one for strength and one for this darm bc.
hugggggggggggs K
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Hello Everyone ,I have found you all thanks to a friend who mentioned it ,and just as I thought I was going to go crazy, I find people just like me... I am Having a really hard time after second surgery to clear margins and remove more nodes only toI find out today I have 17 out of twenty nodes positive, my BS says this doesnt change anything ,but she has previously staged it stage II, This can't be still stage II..she told me she is finished with me for now and my oncologist who I see tommorrow will take me thru Chemo next and explain the schedule, needless to say I am terrified... Has any one got some advice...I certainly appreciate all of you being here, sad but true, Cat
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Hi Cat - glad you found us. Others will also be along to respond, but my advice is to talk with more than one oncologist. You'll learn more with two opinions and you want to choose a practice with which you are totally comfortable. Are your docs associated with a cancer center? You just want to find the BEST care that's available near where you live.
Here are 2 links that someone gave me when I first joined & found really useful (national cancer centers and top US docs).
http://cancercenters.cancer.gov/cancer_centers/map-cancer-centers.html
http://www.castleconnolly.com/doctors/index.cfm?CFID=8648601&CFTOKEN=69481619
There are TONS of threads and posts on this site so you'll find a lot of information here and women with your same diagnosis to compare notes. And if you can't find what you're looking for, start a brand new thread. When you're new, they limit you to 5 posts per day, but you can always send personal message by clicking on someone's user ID.
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sorry we have to welcome you Cat54 we will help you. I have the same diagnosis. I had 1 of four nodes positive. Please just breathe. I know it's difficult right now. Ask your doc for some mild anti anxiety meds, I never took any meds before all of this, but trust me a little something will help you relax and think clearly. I hate to say it, but we are lucky to be triple positive. Take someone with you to onc appointment and take notes. Ask why to everything and keep asking questions. I am on weekly Herceptin for the HER2 and I am scheduled for 6 TC treatments one every 3 weeks. I have completed 2 of the 6 and believe me when I say I was TERRIFIED! I am doing it. I do get through the rough days and I do have good days, so far more good than bad. I wont kid you the bad days are bad. Please ask me as many questions as you need to. If you want to send a Personal Message (PM) I would be happy to do what I can.
Big hugs to you....
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Gingerbrew you have a PM
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cat54- I'm so sorry you have to join us. Those early days were the scariest, most bewildering of my life. Initially I was node negative, then that changed after more testing and I was node positive. I was terrified, thinking the cancer was spreading. Thankfully I found a thread here on BCO where several of the ladies explained that it was actually a good thing. Those nodes caught the cancer cells, preventing them from going elsewhere. That hadn't occurred to me. The lymph nodes were doing their job. There was even one lovely lady who WISHED she had positive nodes. In her case, she was node negative, then later found out it had spread to her bones and liver. I am hoping and praying your nodes caught every one of those cancer cells. We will be right here ready to help you in any way we can. Keeping you in my prayers tonight.0
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TMARINA: I will be having taxotere and cytoxan every 3 weeks x4.. Then will be on Tamoxifen for 5 years. Although if my BRCA testing comes back positive, I'm electing to have complete hysterectomy and oophorectomy, then I'll be on Armidex for 5 years...Supposed to have rads also but think I might forego it because i already have lymphedema in my right arm after BMX and had ALND on right. Rads could exacerbate my already existing condition and I'm not sure I want to take the chance at having chronic, and possible intolerable pain for the rest of my life, Right now its nagging but tolerable. Plus I'm a nurse and this could permanently disable me from ever going back to work. I'm on permanent disability until April next year to allow for all txs and recon.. With my job it would be taking a huge risk for me to continue working with the infection risk being so high.. Thanks to you all for welcoming me! Its so unfortunate yet I'm honored to be a part of a group of such amazing strength! Prayers, love and good juju to you sisters!!! XOXOXO
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Thanks, Tryntostaycalm (not an easy feat!)
You're absolutely right, each case is different. The more posts I read, the more I realize that while we share being breast cancer survivors, every woman's experience is unique. The sharing highlights the common areas of our experience, and, though I seldom join in, has become a life-line for me.
BTW, the form for Diagnosis has no room for multiple tumors with different characteristics, which is my situaltion. Is there a suggestion box around here?
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Connie, just put it in your signature. That's where I put my blog.
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Hi- any of you ladies you recently had a port in- how come it still hurts to pick up my 25pound daughter, how long more before i can do this without screaming?
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