2010 Sisters
Comments
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LAGO Thanks for your advice. I am doing a rinse of baking soda and water 2x a day. It does work. I drink about 3 liters of water the day before and the day of treatment. I think that maybe that helped me with not getting any major se. So far the worst day that I have had since I started tx was when my hair fell out:( I enjoy reading your blogs and others who are so positive and doing so well. God Bless.
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Barbara--thanks for being my cheerleader!
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Sherryc - I work in a mobile home/rv park for what most know as snowbirds. The 55+ crowd coming from the north to spend with us in the warmer temps. I have been at this job for 11 years and have found that as the people return, I get bombarded with the questions and they want details. Several other ladies in the park are BC survivors and they are great supporters. I do get tired of the questions. I know they are concerned. Sometimes it does help to talk about it and at other times I just wish they would give it a rest and mind their own business.
Sorry, just a little cranky today. Have some rad burns to deal with over the weekend.
Jo
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Had my 3rd rad treatment today. I did notice that when my DH put the lotion on my back that when he rubbed over the spot that was so painful that it did not hurt quite so bad. Maybe these treatments are working. About the time my system gets used to the increased dosage of Fentanyl they will start reducing it again. Will have to wait and see on that. I have been so sick for the last couple of days, but am feeling better today. Just feel wiped out. I think I will head to bed early. Hope everyone has a restful evening.
Amy Jo
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amy jo been thinkin about you.glad you are doin better.
im reading but not posting too much lately.
still prayin for each and every one of us....
gentle huggggggggggggs to all my sistas.God bless
K
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Lago love the Q&A cards. I just put the Turkey on to take tomorrow so maybe I can find time. LOL I really should not complain because I know that they all love me very much and are just very concerned.
Jo1955 I hope you are having a better evening, if not hopefully you will get a good night sleep and will feel better tomorrow. Hope the burns heal up over the weekend.
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Hi Everyone.. just found this link and guess what?, I fit the bill ... DX 10/20/2010. What a club heh?
Just a short breakdown. mamo- 10/6/10 birads 5- no biopsy- lumpectomy 10/19 results 10/20. IDC-Lymphography and SNB 11/17/10. Dye would not reach the lymph. 2 removed , negative!!!!. PET scan next to be sure since the dye didn't get there. Not doing radiation cuz they are coming off! Both of them, hopefully TRAM flap. Have a consultation with the Plastic guy on 12/8. Wow can our worlds get turned upside down fast. I will have to take a blocker for ER for 5 years.
I just shortened what could have taken me all day to write a couple of weeks ago. I would have had to wipe the tears from my keyboard, blown my nose a few times and cussed.
I have really searched my deepest soul and realized if I have to be here, it could be so much worse. I have a great support system and my DH is retired so I'm in it for the fight.
We lost our 23 year old daughter 4 years ago and as I told by BS, cancer is nothing compared to that, I am surviving that so i can kick cancers butt!
Some advise for Sheeryc. Have you started a caring bridge or care page site? If no do! When your family comes you can give the email address, your link and they can set themselves up to see your page, and read a blog written by you or a family member. Some people do them daily others whenever. They can write to you on the site and you can PM answers. Or there answers will probably be in your blog. It's all free. I learned about it when my newborn niece needed a liver transplant and her parents kept that up and relieved themselves of repeating the same things over and over. Thanksgiving should be your day to be thankful for your blessings! Don't ruin it with reliving your ordeal. Hugs and Strength to you and everyone else on here. We will win!
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Hi Tideknott - Welcome to the group but so sorry you have to be here! Sounds like to have a great attitude.0
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Hi Ladies: Had a lot of reading to do since I was last on to keep up with all the posts. Had my first tx of Taxotere yesterday and so far doing quite well.
Cat - I was just the opposite of Rachel who had little problems with FEC - I was very drugged with each treatment the first 2 the worst and in bed with flu/weakness for 3 to 4 days. I still had some nausea but pretty well covered with the nausea drugs. As for the Taxotere - so far so good but some say it takes day 3 for symptoms to kick in. Taking it day by day, its all we can do.
Diane - Glad you had good node results and are getting out the drain and you will feel better. I can really understand the losing the hair thing as most of us did cry at one point or another. I had my little meltdown cry when I made a snood headcovering and when I tried it on I went back and forth from crying to laughing when I imagined myself bald and wearing this. Now I've been bald for months and am doing just find with it. I wear a variety of scarfs, chemo caps, and a nice wig very similar to my own hair. I even had a bank employee ask my how I grew my hair back so fast while wearing my wig. Just remember this is temporary and maybe a bit of a pain but we will deal with it and we will get our hair back next year. And remember your not alone with the emotions.
Glad to hear that others and doing well, Sweet - hope it keeps up. Granny glad you have decided to try Rads. In my opinion we need to use every tool we can to fight this Monster.
AmyJo- So glad to hear the pain is getting under control and your tx's are helping.
Cheering on everyone else and hoping you get the strength and support you need. Hugs to all my sisters!
Cathy
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Welcome Beckie! This is a great group.
Omaz - Hi, long time.
Cathy - Hi to you, too. Are you feeling better?
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Thanks for the welcome! I am trying so hard to stay upbeat. I have friends that say "how can you laugh through this ?" I just say criying messes up my face and then they laught too!
I lost my best friend of 25 years to IBC two years ago and she had had a lumpectomy for IDIS in 1999 , rads, tamoxifin. Supposedly sterilized that breast 9 years later she got IDC/IBC in the same breast and 9 months later after evry chemo, rad, slot surgery I lost her.
So my personally feeling for me is IDON"T WANT THEM ANYMORE! So bye bye boobs!
Some would say its drastic but it's my body.
Best wishes and hugs to you.
Beckie
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Welcome Tideknott! And that is a good suggestion about the caringbridge site! I started a blog the first time I got cancer for that same reason--to keep friends and family informed and not have to repeat myself over and over!
Amyjo--hope those rad tx continue to help!
Prayin' everyone has some laughs this weekend!
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tideknott - I went back and forth about mast vs lump/rads. I had a single lump and ended up doing a lump, rads to follow chemo. Of all the decisions I think about this one and wonder if I should have done the mast. I think either choice has same odds of recurr/survival and its just a personal one. I did meet with two surgeons and they gave me different interpretations of my options. They also did the lumpectomies in different ways, one going through the nipple and the one I chose through the skin on top of the tumor (which made more sense to me). I don't know what choices there are for you for mast - good that you are meeting wiht the docs and gathering info. There are so many things to consider!0
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Hi there! Well I did it! Had my last chemo on Thursday. So far, so good. I will need to take the neupogen injections this time as my white counts were horribly low the last time, and maybe the trip to ER can be avoided.
To all of you celebrating Thanksgiving, enjoy every second of this with family and loved ones. This year will be especially precious for you.
Big, yet gentle hugs to all and know that you are thought about and cared for as you manage this horrendous time.
take good care and just breathe. . .
Teklya
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Big (((HUGS))) for Tek! Doing the happy no more chemo dance!
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Congratualtions Teklya!!!0
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Sherry and Jo (and anyone else meeting friends and family at holiday functions post dx). Like all of you, I got tired of repeating everything over and over. I also had the attitude that this was just something to get through. When asked how I was doing over and over and over again, I honestly replied "I'm fine, this is just a big nuisance and soon it will be over". Just like when you run into non-cancer friends and ask "how are you doing"? Non of us really want to hear all the details (that's why we come here to talk). Otherwise we would be like Roseanna Danna "my head hurts, I'm constipated, my joints ache...it's always something"! Just when I couldn't remember the name of the site where you can create a personal page updating your care so all your friends know, here comes Tideknott and reminds me. It's called Caring Bridge. A friend who had a son with leukemia used it and was SO relieved she didn't have to constantly repeat everything. It's a great way to get yourself off the hook, you can send your friends there for details. I also did not hesitate to say to friends "oh let's talk about something more interesting"! I really needed to be transported to a saner, funnier, more entertaining place.
Tideknott- Welcome! These ladies are faaaaaabulous, and very talkative these days (SO many posts).
Amyjo- How wonderful that you seem to be getting some relief from your rads already! By the way, I think you should name your bicycle Sir Gallahad! My father named everything. Our John Deere tractor had "Bangladesh" painted on it!
Teklya- You did it! Big congratulations and a jump up and down for joy happy dance for finishing chemo!
BarbaraA- At your suggestion I got the Anticancer book by Servan-Schreiber. I can't put it down, SO much great, well-documented information. Thanks!
Wishing every one of you a joyful, relaxing, festive Thanksgiving. I have so very many things to be thankful for, including all of you, my beautiful friends!
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Aw shucks, DesignerMom. Blushing here.
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Thank you ladies, I was having one of those bum, emotional days but after reading all of your posts I can say I am feeling great. No matter what happens in life, each day is a precious gift. I am going to enjoy Thanksgiving, hopefully my brother can cook since he said he would! (((HUGS))
Peace and laughter,
Cheryl
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Teklya - Woo Hoo for YOU!!
Cathy - hoping for minimal SE's for you, take it easy...
BarbaraA - I ordered that book too, it just came yesterday. Can't wait to use it. And I'll definitely be calling you when it get's close to our trip to Treasure Island!
Tideknott - welcome!
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DesignerMom- thanks for the tip on Caring Bridge. I get tired of sounding like a broken record repeating myself over and over again. There is so much more to talk about than me.
Tideknott - Welcome! Hate to see you here under these circumstances. These ladies have been wonderful.
Teklya - Do that happy dance - Big Congrats to you.
CherylQ - I know about those bum, emotional days. Had one yesterday and it just about wore me out. Felt like crawling under the covers and never coming out. Much better today.
I wish each and everyone of you a relaxing Thanksgiving - we all have so much to be grateful for.I am most grateful to each and everyone of you ladies that have helped me get through this. So glad I found this forum
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Tideknott welcome. You're right down the road from me.
Yeah, glad the rads are done Teklya! Keep using the emu or coconut oil even though you're not having treatments. I still use the stuff and it's been 4 mo. since I finished. The rad boob just stays a bit dryer than the rest of my body.
I actually have only told a handful of people about my BC. Didn't want them to go into great detail about the questions and I didn't want to "feel" any differently when I was around them. My family are in the knowing loop but I decided who I wanted to include otherwise.
I'm actually feeling "normal" today and cleaning out the attic of junk. Had to wait until the weather cooled a bit and because this was a really great day for me decided to tackle the project. (well I'm taking a break now... sitting on the porch with the doors open!) Always at work and don't get to do that very often. YEAH.
Enjoying the Servin-Schreiber book too. Lots of great info, especially about taking time for ourselves. That's what I'm practicing now.
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Teklya - Big Hug and an even bigger congrats on the finish of your chemo. I know how bad it has hit you and you did it. You made it! So hoping the SE's of this last one is much easier for you. BarbaraA- Hi back to you, one of our greatest supporters! So far so good here. I'm tired but not sick. One day at a time. I was so afraid of starting the Taxotere and so far its going good. Taste bud issues and tiredness but doable so far.
Best of luck to all the sisters and their treatments, and congrats on their sucesses (like Tek).
Cathy
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Teklyna..congrats.YAY YAY.
another new member.bc suks.welcome anyway.these ladies are wonderful.
im noticing its the end of they year.thinking of all the members of this ONE thread.
makin me angry.not good.im not supposed to stress.right.?????
GD gettin married tomorrow.better think some real nice thoughts...like maybe ill dance all night so i can spend a week in bed.ha.
prayin for pain free days for all my sistas
hugggggggggggggs
k
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So glad you started this thread - is that what it is called? My daughter is Her+, ER+,PR+ - Still waitng on node info since lumpectomy is Monday. I have so many questions. What has been your experience with the Oncoltype Dx? How many of you were premenopasual and had to go through sudden memopause as part of treatment for the hormone positive type of cancer? How did you cope? How did those of you with jobs manage?
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Hey there sista,
I am totally wiped out my DH said is was talking in my sleep most of the night last night. All the could ever understand was my saying "It hurts" so he kept waking me up to see if he could do anything. Then today he wanted to go mattress shopping! He forgot about the Christmas Parade that was today so the traffic was absolutely horrible. We did find a mattress that is not too soft for him or too hard for me. I have started feeling a little sick again so I have been taking the nausea meds and drinking a ton of water. Do radiation treatments make you tired? I can hardly keep my mind focused on anything or my eyes opened. Think I am headed for a bath then bed.
Thank you all for the thoughts and prayers.
DM - Loved the suggestion for the name of my bike. I think I will paint Sir Galahad on it tomorrow.
Sorry I have been MIA so much lately, but I have so many ups and downs that I cannot keep up with all of them. Hope everyone has a great week and finds this Thanksgiving a special time to be with family and friends.
Amy Jo
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amyjo49 - Hope the new mattress gives you an restful night with sweet dreams. Seems I can't get enough sleep these days. Frustrating that I have to slow down - usually a pretty active person.
I did not have to do chemo - so I can say rads do make you tired. Sometimes it is like a wall jumps us and hits you. Time to stop whether you want to or not. Energy level goes way down. I find that if I can get stuff done in the mornings, I can get more done. Feel like I accomplished something.
Enjoy the rest of your weekend.
Jo
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Amyjo, The rads made me tired but not all the time. It was as if I was physically exhausted and couldn't do anything at the moment... then it would be days before I experienced the exhaustion again. This trend started about half way thru at about 19 rads. Strange, yes but I was glad when I had the good days. I went with the flow and just rested a lot when I was tired. Took naps during lunch at work, and tried to take really good care of myself by not trying to do to much. (and letting go of the guilt of not getting everything done)
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Amyjo - Big hug! I am sorry you are having a hard time today. Radiation treatments definitely can make you tired, that is what I have heard. My aunt had radiation for a different type of cancer and she said it made her very tired but worked.
motherofpatient - Welcome! I cannot imagine how you must feel knowing your daughter has this dreadful disease. Please just take it one step at a time and don't think too far ahead, one block of treatment issues then the next. It is a very long road. I am older than your daughter I suspect (51) but am also 'triple positive' as it can be called and was premenopausal when this all started. My doctor did not suggest OncotypeDX because I was HER2+ and it is thought to be a more aggressive cancer and so they usually want to do chemotherapy in addition to the herceptin (herceptin is targeted immune therapy that is specific for HER2+ cancer and is thought to be very effective). I think some of the other ladies could explain more about the OncotypeDX test.
I have plunged into menopause (often called chemopause in this case) with lots of hot flashes. Each woman is different this way. My doctor says that because of my age it will most likely be permanent menopause. Sometimes for younger women their period can come back. Many women do work during chemotherapy, some work from home and some don't work. Again it really depends on how each person responds to chemotherapy. I am fortunate that I can work from home when I feel up to it. I would suggest that you perhaps start a journal to keep track of your questions, there are always so many at every phase. I always bring a list to the doctor when I go. Also don't be shy about getting two opinions. Best wishes to you. Bring to this thread any questions you may have, there are lots of smart, insightful and caring women here, I don't know what I would have done without their support!
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Amyjo--im prayin for you STILL. easy does it sista,,it will get better.
Motherofpatient...please take a tape recorder with you...best advice the sistas gave me...and a scond opinion is also important.all DRS are not created equal.I wish you and your daughter the best of luck on this rough road to SUCCESS....WE ARE GONNA WIN THIS BATTLE..
hugggggggggs to all my sistas.Please God find a cure for cancer.
K
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