2010 Sisters
Comments
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Sweet - First cycle I was told to take tylenol until they see that your platelets respond to the neulasta shot well, then next cycle you can take either. Be sure to take claritin or zyrtec for the neulasta shot. I start the day I get the shot and continue for many days.0
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Sweet - good luck tomorrow!!0
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Good Luck sweetaerobabe..... Let us KNOW how it goes. tylenol or advil??? I will let someone else answer since I'm allergic can only take aleve. As they have told me DRINK DRINK....
Got my drain out the surgeon said he hit paydirt as far as nodes go. He removed 27 i can now understand why my armpit hurt so bad. He said the drain tube was on the nerve. Thank You God for all those suckers being clear.....Night Ladies.....Keep the SMILE!!!!!!
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Good luck tomorrow sweetaeerobabe...many good vibes and prayers being sent your way...
You will do great!
Tori
DE COLORES!
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sweet--I was always cleared for ibuprofen (Advil) until my platelets went down, then I had to switch to Tylenol only. After my shots I would alternate them both throughout the day to keep the pain down from the Neulasta. Good luck tomorrow!0
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Welcome Jo! I've had 16 of 33 (just about half!) rads so far. Sorry you have a jerk for a rad onc! Mine is very nice, and I love my techs (I'm glad they are all female too!) You are almost done--hang in there!!0
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TINA!! You are 1/2 way! YAY! I hated going there every day. Soon, girlfriend.
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sweet- You are going to be just fine, you have a great attitude. The first chemo was very emotional for me. I got all choked up, just couldn't believe that it was really happening to me. Then things got rolling and they really weren't that bad. Though chemo was no picnic at the beach, it was doable and before I knew it, I was done. Make sure you stay on top of the constipation. Try to boost your fiber today, stewed prunes were great on yogurt. If the chemo didn't kill me, the constipation from the anti nausea meds nearly did.
Jo- Welcome. So sorry about your Rads Onc. Sometimes they just forgot to hand out the compassion and personality when they finished doctors. I have been so very lucky with my RO. He is not only brilliant, but such a compassionate, caring man. I wish I could share him.
Just finished rads #23. Just 3 more regular then 5 boosts...I think, sort of lost track.
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Jo1955, sorry to hear about your rad onc. Mine was really great, a bit super intelligent, if you know what I mean at first but really became very caring. Had to meet with him once a week for checks. The tech that did the actual rads was fantastic. Very understanding, caring and discrete. In fact all the people I met at the facility were absolutely unbelievable. They must have to pass a personality test to get in to work there!
Can't say the same thing about the onc dr office.... UGH! Give me another place to go! Such night and day experience.
Trying to make up my mind if I want to go for a MRI or mamo. My rad dr gave me a choice and I'm not sure which to chose, or both. Don't like the thought of more radiation. Trying to find the pro's and con's. Sometimes it seems it's the best of two evils.
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samsue - you said that right, the best of two evils, sums it up.0
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Hi Ladies, been really bad trying to get, ready for next chemo on mon.d after last chemo, blood counts totally tanked and took 3 more shots to get it up so I can be ready, plus the hair fall out and tryin to work with high end clients, Having a really BAD day... myDH felt bad for me and helped me buzz off the rest of my hair because it was hurting... we cryed as we did it but I am relieved... I HATE THIS... sorry to vent ..hope you all are doing alittle better under the circumstances... HUGS to all, Cat
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Hug back to you Cat! Your DH sounds very kind.0
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Jag - How are you doing? Miss you!0
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Sweetaerobabe check with your doctor but I use Aleve. Fewer pills, easier on the stomach but I only take them for a few day for the Nuelasta and maybe at the end of the week when my back hurts again. If my gums or nose starts to bleed I will not take Aleve because that can make the problem worse.
I call my port Agent Smith because it sticks out so much it reminds me of that scene from the Matrix when Agent Smith was in Neo's body under his skin. The chemo nurse found that pretty funny.
BTW my new best friend: Metamucil!0 -
I read most of the posts to my DH when I read yours Cat about the hair we both broke down(we know it is coming) may be superficial. We don't cry with the pain cause we understand cuts and meds hurt. It's just MY HAIR has always been ME and my DH knows that. This is gonna make things different for me. Ladies I respect all of you for posting your thoughts your demons and VENT all you want. I guess I'm really glad I'm old and don't have to worry about work and caring for kids. I'm 63 and along about now really glad we moved to the mountains. Away from just about EVERYTHING........HUGS to all of you !!!!!!!!
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Sweet-Good Luck (((HUGS)))
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cat54 hugs back to you and hope today will be a better day for you. I think there was something in the air yesterday I was an emotional wreck, but am good today. I did not have to go through chemo so I don't know what you are going through but will pray for you. My best friend went through lung cancer a few years back and when her hair fell out she decided to get a wig in every color. She said since cancer was making her a different person she was going to be different every day. You just never knew if she was going be a blonde or a red-head!
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DianeMoe - Happy happy news about your negative nodes! I finished chemo about 4 months ago and am now really enjoying my new "do". It is short but wavy grey - and absolutely no work to take care of. I HATED being bald as it seems to set you apart from everyone else more than anything else. But I would never have had the nerve to get this kind of haircut in the past. Have dyed my hair for so long I really didn't know the real color. I think I will keep it this way unless the wave goes away. I think it is part of the new me. Best to all!
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Hi Everyone,
I am having my 2 tx of tc on Monday and was wondering if you had any advice on how to prepare. My 1st x went well. Just constipated for 5 days, a little thrush and tired for the 1st 3 days. In your experience, did your treatments SE mirror eachother? I would like to avoid the constipation and thrush, but especially constipation.
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Just had my 3rd tx of TCH (taxotere, carboplatin, herceptin) on Tuesday. Last time I had constipation on Friday that started a little on Thursday.
This time on Wednesday I made sure I ate lots of roughage/veggies, low salt and fluids. (Made a great chicken veggie soup with broccoli and bok choy). I also made sure I exercised (yes you need to get out and at a minimum walk to keep things moving).
The yesterday I started to have the issue so I took some Metamucil. Took some more that evening. Took more this morning at 7am. By 9am I was all clear.
Also note that daily I eat dried apricots and have a daily probiotic (stool soften) anyway to control my IBS. This also helps.
Next time I will start the night before I know it's going to happen with the Metamucil.
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The first time Milk of Magnesia worked well. Not so much the second time so that's when I started the Metamucil. * You should not be consiptated for 5 days without calling your doctor. Call if you haven't had any movement after 2. This could be serious.
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Thrush is a yeast infection. Try to stay away from eating sugar. Eating garlic is good also and yogurt (unsweetened) with active cultures of acidophilus might help stop it. I might have had the start of thrush last time. I just took one of my acidophilus capsules and sprinkled the contents on my tongue. All I know is it didn't seem to progress.
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I made it. Took about 7 hours wiith the pre meds, meds, and post meds, but no SE's yet.
Next week when I am due for the herceptin only, the part of the hospital they do it will be closed, so I gotta get the dr to work that one out. Tomorrow morning I have to go to the Emergency room to get my neulasta shot.
Im so tired right now, the steroids and a bunch of coffee didnt keep me up.
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Thanks for the advice. I will definetly use metamucil & acidophilus, hopefully it works! Have your se been about the same for each tx?
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So far I would say this time the SE have been pretty identical to the 2nd so far. I don't seem to be having as much fatigue as other folks. I'm told that fatigue usually gets worse. The trick is writing down when things happen so next time you can medicate before they get out of hand. One of the things I did differently the last 2 times is start take Aleve 12 hours after I get my Nuelasta shot. I still get sore from the shot but the Aleve really takes the edge of it.
The neuropathy is annoying but so far I can deal with it. My left heel went numb again today with a little pain in my back leg. I had that last time too. It was better in a week… almost gone by next treatment.
I might not be the best person to ask because I am finding I'm doing better than most so far. (Lets hope it stays that way).
*BTW if you do get thrush you should contact your doctor for medication. What I am suggesting is only as a preventative and not a solution.
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yes girls,
Im curious when the side effects will start.....
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We are having our Family Thanksgiving tomorrow as I have a really large family. This is my immediate family and there will be 40-45 people there. I am starting to get nervous about seeing everyone for the first time since my dx. I know everyone will be asking me the same questions even though they have called and checked on me. I have been avoiding large crowds just to avoid all the questins people have. Does anyone else out there get anxious about this stuff or maybe you have not thought about it yet.
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hi sweet Kristy...hoping the Se never start.i should say prayin it will never start.
good luck tomorrow
huggggggggggggs
k
prayin for all my sistas/friends.God bless us all.YES WE WILL BEAT THIS MONSTER.
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Granny, TX was today, tomorrow is the neulasta shot.
Kristy
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Sherryc Why don't you make up Q&A cards. This way you can hand them out when people ask. Explain that everyone askes the same questions so you decided to make it easy on everyone with a Q&A card… and be able to talk about more fun stuff.
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THANK YOU LADIES,Sheeryc, Omaz and Dianemoe. Dianemoe you nailed it on the head, no pun intended, I too was realy bumming the HAIR thing,But now I feel much better no mess, no hurting scalp, you will still be the same person without the Do, your husband sounds as tuned in as mine and will be there as myDH says bald is beautiful!!! It did help to finally get a wig I liked , bought it frm American cancer society catalog, was cheap and color is great, ... Sounds like some of you all are just starting chemo, very important to hydrate and start treating constipation imediat, ly, DON'T wait, my first and second chemos were no problem then my blood counts dropped but they are good now and they watch you very closely so don't worry....I had a much better mental health day several clients cancelled so I found a radio station here thats playing Christmas music, did my food shopping and bought meds and cleaned house to get ready for tx#3 Bless all of you as we are now into the holidays dealing with this...I couldn't do it without you, HUGS everyone Cat0
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Cat--Glad today was a better day for you!
Sweet--the SEs usually start about day 3--after the steroids wear off. Hope all goes well--not everyone has bad SEs! Keep drinking!!
I don't post as much as I used to, but I'm still here thinking and praying for you all.
Tina
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