2010 Sisters
Comments
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Cathy, so sorry you are feeling bad. Hope your doc will Rx some relief FAST. (((AMYJO))) I am arriving in Raleigh on Wed., have an all day meeting Thur. Then Marybe's plane gets in at noon, then GrannyDukes' (Karol) train at 5 then off we go. StillVerticle (Melissa) lives in Duck and will be staying with us. We are going to go looking for the wild horses in a 4 wheeler (with heater, thank you very much). Just let me know if you can come. Karol's train is out Mon. at 9 and MB's plane at 4 then my plane at 6:30. MB and I plan to sightsee Monday so even if you can't make the weekend, we could at least get together for lunch.
I promise a link to all the pix we take. SV is wanting us to horseback ride on the beach but I haven't been on a horse in 30 years. Don't know if my butt can handle it. Not much padding there these days.
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LadyinBama - thinking of you today0
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BarbaraA- This party is gettin' rolling!!! Stillvertical sounds like the ultimate party girl. Amyjo is a horsewoman, so she will guide your butts into the saddles! We are going to all enjoy your antics virtually!
Cathy- So sorry for the SE. Did you take the Neulasta shot? Some people say that is what causes the pain, not the chemo. I didn't take them, but why am I remembering something about taking Claritin before those shots to help? Maybe someone else can chime in.
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I borrowed this lovely sentiment from a friend: "We pray in Thanksgiving for the well-being of our children, healing for those who are sick, courage for those in harm's way, comfort for those who are grieving and for all who need our prayers." {{{{{ HUGS }}}}}}
Happy Thanksgiving everyone................. Diane0 -
I was also diagnosed last month. October 28 to be exact, so I am where you are...getting 2nd and 3rd opinions, trying to figure out what kind of surgery to have, etc. I've decided on the mastectomy, but I'm trying to decide on getting just the single, or a double to lower the chance of having to go through this again. I'm considering the "tran flap" procedure. Have you heard of that? So far, my lymph nodes are negative for cancer cells and all my scans were negative for cancer anywhere else, so I'd like to get this done before any of those results change. It's scary, but we'll get through it. It'll be so great when this is all behind us...right?
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DesignerMom - Yes I do get Nulasta the day after my chemo but took it after every FEC and I had no problem with it at all. But with Taxotere tx last Friday I was fine till Sunday afternoon then it started. Kept trying to take something stronger but nothing takes away the pain totally. I only have a couple of Tylenol 3's left so hope I get something to help me soon. Still waiting for a phone call back from the onco. I've heard that Claritan can help with allergic reactions but not the bone/joint pain.
Cathy
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Cathy, I also got extreme pain with the Taxotere. For me it was the 4th day it started. I had to take the pain meds, the over the counter stuff had no effect. I had planned to try the Claritin next time around, but of course the 2nd treatment never happened. I do seem to remember it was to help with the pain as well.
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Cathy--> I had a lot of pain with Taxol and I took Percocet. Sometimes I needed 2, and sometimes just one. I took them for aobut 3-4 days. That is not long enough to become addicted, so I didn't worry about that. Hope you find relief soon!
ewt12--> I had a single mx, no recon yet. I wish I would have had a dbl. Being large breasted I am akwardly lopsided, and very uncomfortable around others, like when I have to wear a gown everyday for rads. If I do recon, I think it would look better to have both breasts look the same, instead of one real one, and one recon. Also, I do now worry about more cancer, because most of what was in my left breast (the cancer breast) wasn't seen with mammogram or MRI, so, of course, I now wonder what they aren't seeing in my right! At the time of surgery, I wasn't ready to give up my "healthy" breast, and had a very difficult time having any mx at all. But now I really wish I would have done both! That's just my 2 cents on it--good luck with your decision!! You need to do what's best for you, and it's good that you are getting 2nd opinions.
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TMarina - They are reluctant to give me percocet as I get sick from Demerol or Morphine and Percocet can upset your stomach also. My onco nurse called me back and had another doctor in the cancer center order me more T-#3's so I can take 2 at a time as my Doctor is not in today. She did say that there is something they can give me before my next Taxotere but won't work now as its too late. I was almost out of T-3's and starting to panic but will be ok with another prescription and taking 2 at a time (I hope).
Cathy
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Shelley: Thank you. Treatment 5 down, one more to go, woo hoo!!!
Barbara: I am sooo jealouse. Chemo is on for me on Dec 6 or I'd try to be there. I have a stepson in Raleigh I owe a visit to anyway. I've read some stuff from Still Verticle on another thread, so with you, her and GrannyD, it should be a hoot!
Cathy: My onc's nurse told me to take 800 mg of Advil for the tax pain. It didn't totally kill it but helped. She said the narcotic drugs actually don't do much for that particular type pain. Fortunately, mine just lasted a couple of days. I took Advil PM at night to help me sleep. By all means call them and see what they suggest. There is no reason for us to be in pain, and unless you've had drug dependency problems in the past, I doubt you could do yourself harm by taking something for the short haul. They didn't mention anything to me about something they could give me prior to treatment. Do you know what that is? I've got one tx left.
Designer Mom: Love the story about your mother, I've got to remember that trick! My mother was also one of those sweet looking, tiny ladies that everyone oohed over, "she's so sweet" ... little did they know she could have a wicked streak in her. I miss her so, I lost her two years ago on Nov. 19.
ewt: I had the double mast although cancer only in one. I had large breasts and I couldn't see removing one of them and then trying to match up a reconstructed breast to a saggy 53 year old D cup boob. I elected to do both with implant reconstruction, just because I didn't want the extra surgery, pain and recovery of the tram or diep flap. Plus, I didn't want it hanging over my head to worry about cancer recurrence in the other breast. Not that removing them is 100% but it's close enough for me. It's a personal decision, no right or wrong, just whatever you can live with after research, talking to the docs, and much prayer. Good luck.
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Cathy--Glad you are getting a refill! I'm hoping 2 will do the trick for you! Percocet is my wonder drug, worked great for the bone/joint pain, but I know it doesn't work the same for everyone. Thankfully I never had any stomach problems with it, and only mild constipation, which, since my colon surgery, is kind of a relief! :P0
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BarbaraA - It is a go for the weekend in Duck. DH says it would be good for me to get away with some of my new friends, and who am I to disagree! ;-) If you want we could meet for lunch or dinner on the Wed and then I can go with you on Thurs to pick up Marybe and GrannyDukes. If you need me to pick either one of them up due to your meeting just let me know and I would be happy to do that. My DH did say he would prefer it if I rode with someone instead of trying to drive by myself since we are going out of town. My last radiation treatment is on Wed (1st) at 9:30 and I have been sleeping most of the day after these treatments. If you and MB want to go sightseeing just let me know what you are interested in and we can go do whatever there is time for on Monday before you have to leave. Horseback ridding sounds like fun. I have not been in a while, but it is like riding a bicycle - once you learn, you don't ever really forget. (We can get you a padded saddle if you need one.) ;-)
I had my 5th rad treatment today at 9:30, home by 10:30 and went to bed for a quick nap and slept until 3:30!! I seem to sleep a lot better during the day than I do at night. A friend brought a chicken pie to my DH office for our dinner tonight. And the timer just went off so I am off to eat something. I am so excited about the weekend, hope more can join us.
Amy Jo
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(((AMYJO))) Wahoo! we are gonna have a blast! I sent you a PM with details but I get there Wed, meeting Thur, then MB arrives at 2:30 Fri and GD at 5 then off we go. I can come pick you up in the AM and we can go grocery shopping or just hang out til MB's plan gets in then shop w/all of us. I will be staying in a hotel in Brentwood so just need directions to you!!
I am SOOOO excited!!
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BarbaraAIt sounds like so much fun... I'm going to be in NC this weekend for Thanksgiving so have to miss your get together. Take tons of Pic's. I checked out your house and IT IS fabulous.0
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Cathy, you can take up to 3 regular ibuprofen at a time (600 mg). Didn't I warn you??? Come on now, you gotta listen to me. It should last 3 or 4 days then you will start to feel better. You won't have the drowsy SE of tylenol 3. But maybe you want that, sometimes it helps to sleep it out. My lower back hurt a lot and I used a heating pad when I wasn't working. Taxotere...torture, remember? I think you named it! It's that lovely "hit by a Mack truck" feeling....oy.
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Cathy- I'm hoping something has knocked you out and you are resting comfortably by now.
Barbara, Amyjo, Granny- You guys are going to have so much fun! I'm hoping you will scout all the best things and think about doing another get together down the road. I would love to meet everyone and celebrate someday. I know a lot of the ladies go to Vegas every year. I'm thinking we might need a yearly East Coast get together.
ewt12- Welcome. I didn't have a MX, so can't give you an opinion about that. I'm sure some of these other lovely ladies will give you great information.
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ewt12 I had a bmx. I initially wanted the bmx because I was pretty irritated that my tumor had to get to 5.5cm before they found it in my former dense breast tissue. I did not want this to happen again. My BS initially talked me out of it saying there is no need to remove healthy tissue but would support what ever I decided. He wanted to wait till we did the MRI.
The MRI showed several suspicious areas. There was one that my BS was concerned about. He said I would have yearly MRI's and biopsies to monitor this since mammogram/US didn't pick it up. He then recommend the bmx. It ended up being a small area of LCIS… that would have had to be removed. The BMX was the correct choice in my situation.
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Lago - About a year before my dx they saw a 1.1cm area on screening mammo that we followed up with US and diag mammo. They cleared it. About 14 months later I found the 2.7cm lump in the same place. It appeared to be isolated so I ended up choosing lumpectomy and radiation (start January) but I seriously considered the bmx because the tumor was so hard to find. I actually had two biopsies, one of the tumor and one of another very small suspicious area on the other side of the same breast (B9 thankfully). Because of the choosing the lumpectomy I do worry about the other breast. Hopefully radiation will take care of any possible lurkers in the tumor breast. By the time the tumor was 2.7cm it was apparently easy to see on both mammo and ultrasound!0
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Omaz I wish they found mine at 2.7cm! Under 5cm is good. Under 3cm is even better. I'm sure if there is something they will find it. They are watching much closer and they did find these others. The LCIS usually isn't something that can be detected with mammo/us. That's what I had in the other breast. Although considered pre-cancer it still needs to come out.
Yes us grade 3 HER2+ gals have fast growing shit don't we.
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Barbra, Whoo Hoo... you ladies have a ball,I'm a little far away on the west coast but send us lots of pics... will be there in spirit HAVE FUN and HAPPY THANKSGIVING TO YOU ALL!!!CAT
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We really do!
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ewt12 i was diagnosed in 8/23, bilateral mx w/latisamus flap reconstruction 9/29. i was so frightened have having to do this again that it wasn't even a question of bilateral or not. so now i have a back lift and my boobs are still a part of me. ps recommended the back rather than the stomach because i was a long time smoker (stopped the day before the surgery cold turkey). the reconstruction made it easier to wake up in the hospital to find something under the gown. started 1st round of 6 chemo 11/3 next round 11/30. you'll make the right decision...0
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It's so quiet on the boards today...I hope this means everyone is not thinking about effing BC!
I thought I would check on on Cathy (Tryn2) and LadyinBama, how you girls doing?
I'm waiting for my kids to get home from college tonight so they can see my hair!
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Hi Shelley and others: I guess everyone is starting to be busy for the holidays. I've been trying to get some stuff done while I'm hopped up on steriods and feeling ok. I figure my crash will come Thanksgiving Day (treatment was yesterday). I got out some Christmas decorations yesterday. I don't usually like to put anything out before Thanksgiving, but didn't want to put it off in case I feel like crap after Thanksgiving. Hope everyone is doing ok this week and are just busy.
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Hey there sistas,
I had my 6th radiation tx today and glad my DH took me. I was throwing up before we even got home. Not too sure if these txs are helping or doing more harm than good. Will see the RO tomorrow. Not only does my back still hurt I now have the hiccups a lot and get nauseated several times a day and now I am throwing up after every treatment. I supposedly have 4 more to go. The Fentanyl patches may not let me be feeling whether my back is better or not. I am so looking forward to Thanksgiving. We will be spending it with some friends and I plan on taking lots of pictures to show my girls that we had plenty of fun even though they could not make it this year.
I am also looking forward to the "retreat" the next weekend with BarbaraA, GrannyDukes, and Marybee. We will take lots of pictures to share with all of you. We will have a ball, but wishing more of you were there to join in on the fun.
Got to go to bed so I can make it to my early morning tx and RO appointment. Hope everyone has a restful evening.
Amy Jo
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Hi there. I am under the weather and feeling poorly right now as this is the side effects from Taxotere. The joint pain this time is also skeletal, like my shins, my fingers, my ribs as well as all joints, etc. I am taking the neupogen shots as well and have 7 left to go! They leave me feeling rather sick as well. I cannot win this time. The only consolation is that I know this is the last one and I will not go thu' this again. Hang in there and just breathe, , ,
Teklya
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((((TEK))))) Gentle hugs coming at you. So sorry you are feeling so lousy but HOORAY on this being the LAST ONE!!!!
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Going in for rad tx #25 today. That will be the end of 5 weeks. So glad to have a 4 day break and the boost week. I have had such a terrible time with rads. First itchy rash and then rad burns with blisters. Slowly healing. Going to try and do some baking this afternoon and tomorrow morning. Haven't felt like doing anything in such long time. It will be good to do something I really enjoy.
Gonna stop whining and get baking as soon as I get off work.
Thanks for all your love and support
Have A Happy Thanksgiving.
Jo
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Tekyla: So sorry you feel so bad. I had my second Taxotere on Monday, so far I'm ok, but it didn't hit me until about the 4th day last time. (((HUGS))) and prayers coming to you. Hopefully, we'll never face taxo-terrible again.
AmyJo: Hate to hear about your problems too. Hopefully the RO can give you something that will help when you see him/her. And you do have the trip to look forward to; wish I could join ya'll.
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Tek - Yay for finishing!0
