Ladies in their 30s
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I am 36 and got diagnosed in Feb 2011, that too on my wedding anniversary. No one in my family has had any type of Cancer. So, I was completely in shock. Now I getting used to it. I had cancer detected on my right breast. I didn't want to have to worry about my left breast, so I went for bilateral mastectomy. Completed my chemo. in August 2011. I am going for Implact reconstruction now, as I cannot have radiation until the metal expander comes out. I understand that there will be skin complications, when Radiation is given with Implant. My plastic surgeon just wants to put the implant more as a placeholder..
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I am 36 and got diagnosed in Feb 2011, that too on my wedding anniversary. No one in my family has had any type of Cancer. So, I was completely in shock. Now I getting used to it. I had cancer detected on my right breast. I didn't want to have to worry about my left breast, so I went for bilateral mastectomy. Completed my chemo. in August 2011. I am going for Implact reconstruction now, as I cannot have radiation until the metal expander comes out. I understand that there will be skin complications, when Radiation is given with Implant. My plastic surgeon just wants to put the implant more as a placeholder..
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Hi ladies!
I've been away for a long time...I lost my cousin and a really close friend to this awful disease earlier this year. I just had to try to escape as much as possible once I finished my treatments and had my port removed.
But I'm doing great, I have HAIR again, and although cancer is never too far from my mind I am moving forward.
I wanted to share some exciting news with my sisters here on BCO. In November I'll be speaking to doctors and researchers, including Dr. Dennis Slamon. For us Her2+ gals, he's the cancer researcher behind Herceptin.
So share your thoughts- what do you want these doctors to know?! There are so many things I want to say... I'm writing away and trying to figure out how to get these clinicians to FEEL a bit of what it's like from the patient's point of view.
Speak up sisters!! (It's good to be back, I missed you guys
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Well found out some great news on Friday. The surgeon phoned and told me bits of my pathology report. I was diagnosed with stage three breast cancer with possible lymph node involvement. The report stated that the tumour was 8 cm and no lymph node involvement , I hope that means I am not stage three anymore. I am meeting with the oncologist soon to discuss treatment options, and given that Im pregnant with no lymph node involvement Im hoping it will be less intense as orginally planned. Hope everyone is doing well.
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Hopingforthebest33- that is encouraging news that there isn't any node involvment! I will cross my fingers for you that the oncology visit promises a less cumbersome approach for you and baby.
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I am 39. Four days away from BMX and I am terrified.
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Nell2109-
Sorry to hear that you are terrified about your upcoming surgery. I was 38 at the time of mine and it is quite a surreal experience to be undergoing that type of procedure at such a young age. It is a scary thing to have to do but so is cancer. Are you scared about the surgery or the cancer part?
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Nell2109,
I had a BMX in December 2010 at the age of 37. BC was definitely not in my 5-year plan! Are you having reconstruction?0 -
Nell - I'm 38 and had my BMX with reconstruction last week. I was very scared, but it wasn't as bad as I thought it would be. Sometimes, you just have to take it 1 minute at a time. Wishing you the best.
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Thanks diviajmusic
I'm feeling tired too, did u have ur ovaries removed too? ... I'm very frustrated I got re tested for the her 2 , three times and the third turns positive???? I don't get it!!! Has anyone had this my number on the FISH test 2.51??0 -
Hi there
i was 29 when i was diagnosed with stage 2b breast cancer. Within a year I was diagnosed with Stage 4 Breast Mets to the lung. I am now 30! The chances of having kids is out of the window but that doesnt bother me now. I have decided to adopt instead once i meet a decent guy who can put up with me having cancer as a managable disease and share the joy in adopting a child. Plus the chemo and nausea has seriously put me off pregnancy! Its too much and I am trying to shift the previous chemo weight I had put on! Now the munchies have started again with this round of chemo!
I will evict the cancer from my body!
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Hi everyone,
This is my first time posting to this particular board. I'm 34, married to a wonderful husband and have two beautiful daughers (ages 4 and 18mo). Our world was completely turned upside down when I was diagnosed with IBC, IDC and DCIS (Yahtzee!) on Sept 2. Obviously the focus is on the IBC given it's aggressive nature and advanced stage (IBC is at minimum stage 3 at diagnosis). I just had my 3rd round of A/C yesterday after geting my port implanted. I also started Zometa for the isolated bone lesion they found. I am sort of clinging to the hope that the lesion on my spine isn't a met, though it's unlikely. They don't want to biopsy until after I've been on the Zometa for another dose tho (not that I'm looking forward to a spinal biopsy!). Will follow up my 4 rounds of A/C with 12 weekly infusions of Taxol and Herceptin and go from there...
Anyhow, so awful to see so many of us in our 30s going through this. But somehow nice to not be alone. You are all in my thoughts and prayers as we all work to kick our cancer to the curb!!!
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hopingforthebest-oh my goodness, I'm so glad you got good news! Good luck to you and your baby! There was a pregnant women who did chemo at the same time as me and everything turned out fine.
nell, hope your surgery went well.
coni, I only had the other Her2 testing (can't remember what it's called) It came back as 4.2 so there wasn't any doubt. I had all my pathology read by two different labs.
I can't believe all the new ladies on here constantly- it's crazy! WTH is going on? And deep81 and beverlymom, you guys both being stage 4.
I'm so sorry any of us has to be here instead of out enjoying a carefree life. At least we can be supporting each other- this is the place!
Sending lots of love to my sisters. Don't give up the fight!
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Hey Ladies havnt posted on this particular board in a small while but that doesn't mean I have not been lurking around, gosh........this group is growing and growing and growing
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It has been a while since I posted on this topic, I was dx @ 29 with triple negative Stage IV right of the gate. I have been NED since Sept 2010, nice two years with no Chemo just scans every three months and my doctor is a little perplexed since I am the only Stage IV patient not on Chemo. The docs think the autoimmune disorder they just discovered I had sjogren syndrome is keeping the cancer at bay. Problem is when I have new pain I have no idea which is causing it the sjogren's or the cancer, damn crap, Oh well sttill kicking and working full-time at my dream job.
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hydeskate that is so awesome!
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This is my first post on any board and first time I've reached out. I'm a 35yr old mom of two girls. I have a supportive husband, that listens and is great. Howevwer, I don't have a lot of girl friends that I can just call anytime. My mom and sister worry too much so I don't like talking about fears with them. I'm hoping this forum will help fill a need. Right now I'm on cycle 4 of 6 and will be done the end of november '11. We are scheduling surgery after chemo. Looking at the beginning of jan so my vacation time at work starts over, but I don't want to wait too long after chemo. Lots on my mind. Just need to get it at there.
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Welcome mebert, but sorry you have to be here. You will find lots of support, advice, encouragement, and love on these boards.
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Mebert- Sorry u had to join us! I am 36, stage 2b triple positive. If u ever want to talk, let me know. Only the people who have gone thru this can fully understand what u r dealing with (or that's my take anyway). I am assuming you are getting TCH? There is a great thread on the Her2 forum. One is Triple Positives and the other is taxotere, carbo and herceptin. They have a wealth of info.
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Thank you ladies! Kriskat, I am on TCH and it's going well. The primary tumor has shrunk some so I am encouraged. My onc was out of town during my last infusion so I am anxious to get her opinion on the mri results. I'll check out those other threads, thanks for the info. Take care.
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I am 36 years old with daughters who are 11 and 8 and a husband who is not supportive at all. He has no clue what is going on! Thankfully, I have a wonderful family support system who is willing to help out in any way possible. I had a BMX on Sept.28th with immediate DIEP reconstruction. My surgery was 17 hours and for the first week afterwards I thought I had made the biggest mistake. I felt awful. Now about 3 weeks out, I am so glad I had it done. I am still very sore under my right arm from the lymph node removal, but am doing my stretches as I've been told. I will probably start my chemo the first week of Nov. I am just waiting for the PS to release me. My chemo will be 4 AC then 12 TH then RADS then finishing up with just the Herceptin. My girls are very active in sports and my husband works late every night. I hate being so dependant on others to help out. (taking girls here and there) It just doesn't seem fair that this happens to women when they are so young and have families to take care of. It is nice to see others on here with the sam issues.
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*edited for spelling, still have the chemo brain!*
mebert, Glad you reached out! I was never a person to post to boards either, but bco helped me SO much! This is an amazing sisterhood
I know what you mean about your mom, mine's the same way (no biological sister, just bc sisters.) THIS is the place to talk about all your fears. Go ahead, get it out! kd, So sorry you're going through this. Many of us have a hard time being dependent, it's our nature as women to take care of others but this is one time you should let your family and friends take care of you! Your husband may come around or he may not, but don't let him get you down. You have to stay positive! We're all here for you too.
There's definitely nothing fair about bc- it royally stinks. All this "pinktober" stuff has me on a rampage to get people motivated to quit selling stuff and find the damn cure!!!
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Diagnosed at 38,I did suspect it was coming. My husband was crushed,that will teach him to be an optimist
He has been great though,he was the first to strongly suggest I go w/bmx. Although I didn't understand why enough to make a decision so quickly. He however had the idea immediately that I had to better my odds for a healthy life. He was right and I realized that. And for a squeamish guy he doesn't even flinch when he sees his bi-lat wife shirtless. He's pretty cool. We have 2 "kids"-a terrier and a pekingese. Just trying to live a normal life until it gets back to normal-whenever that will be.0 -
Thanks for the encouragement Lady Madonna
It is nice to know that there are others out there feeling the same way. Yes, this pink stuff is a bit overboard, but my little girls enjoy wearing their "fight like a girl" wear. It would be nice if my husband came around, but I just have a feeling he won't. So glad to have my mom! I go to the oncologist tomorrow, hopefully we can set a date to start my chemo and get things going. Ohio winters are long, at least now I have something to keep me occupied. 0 -
Hello all! I was diagnosed with DCIS throughout 50% of my right breast by excisional biopsy & MRI on 9/9/11. I had a BMX with TE placed 10/13/11. My final path has remained no invasive cancer, DCIS only. Negative nodes x 14. I am 31 years old, single mother to a 13 yr old son. My boyfriend of 3 years has made the cut! he took care of me pre-op and stayed with me post-op at the hospital. Not only did he feed me, help position me, hydrate me and keep my lips moisturized. He also provided support to my Mother and provided comic-relief for my son. He is a keeper!
I work as a Public Health nurse for the State of Georgia. One of the programs I work closely with is the Breast & Cervical Cancer Prevention Program. I love working with high risk and newly diagnosed women.....I just never planned on being one! This is a whole new level of empathy for my patients0 -
Hi ladies! Sorry I ahve been MIA for a while, ALOT going on!! I am 38 yrs married with 2 beautiful kids (4.5yr girl and 3yr boy), i have a loving & supportive husband (Thank God) and a supportive family!! I was diagnosed in April 2011 when i was 37yrs!! I felt a lump on my left breast, didnt think much of it (because i had the same 8 yrs ago which turned out to be a cyst). I have no BC in my family, etc etc. I was BRCA1 & 2 negative, oncotype score of 11 (which meant that i did not need chemo). Had a lumpectomy in may 2011, had a SNB 1 of the node had microcalsifications, so my doctors (BS, MO & RO) advised me to have chemo because of my "young age" age:-) so that we can hit this cancer hard!! SOOO I had 4 cycles of TC and finsihed in Sept 2011, I am 6 weeks PFC Yaayy!! I am now undergoing radiation, I am 12 out of 30 rounds! After that i will be on the good ol Tamoxifen!! planning to start in Dec.
Its sad and amazing to see how many of us in our 30's are affected by this horrible disease. I jsut learnt yday that another celebrity (Giuliana Ranciz, who is on E!) was diagnosed with BS and she will have a lumpectomy on both breasts!!
This board has been amazing and very helpful for me. I do not belong to any support groups apart from you ladies, and i truly appreciate this.
Take care & hugs to you all.
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So a little update, or edit should I say...my sentinel node had micro invasion of isolated tumor cells, greater than 200. Sooooo, my oncologist believes there had to be an invasive component to my DCIS. I had a chemo port put in today. Starting 4 rounds of AC on Nov. 17th, followed by 4 rounds Taxol, 1 year Herceptin and 5 years Tamoxifen. May also have rads thrown in after chemo......let the games begin! ugh! Any advice from others with similar treatments is always appreciated
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Kim, thank goodness it's just micro invasion and they're being proactive in your treatment! I had a different chemo but it wasn't as bad as I thought chemo would be. Had the year of Herceptin and that was a piece of cake, even tho my ejection fraction did drop during the year. Never enough to delay treatment. Sounds like you're in good hands! Go get 'em!!!
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Thank you for the encouragement Lady M! I do feel like I'm in good hands and agree with the proactive, aggressive treatment with my age. It's always good to hear from people who have made it to "the other side" of chemo. It is reassuring to know I'm not alone, not the first person to survive this and I won't be the last.
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Kim, I did A/Cx4 and Tx4 too. I can't say it was a pleasant experience, but it shrunk my tumor tremendously (neoadjuvent) and it's definitely the "big guns" as far as attacking your cancer. Every time I felt sick or sorry for myself during chemo, I visualized the chemo drugs attacking the cancer, and while it may sound silly, it really did help. Wishing you the best for a smooth process with minimal side effects!
I posted on this thread a long while back shortly after my diagnosis, and promptly forgot about it...Belated thanks to all who posted and welcomed me back then - looking forward to getting acquainted with you all.
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