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  • Jennt28
    Jennt28 Member Posts: 1,095
    edited August 2012

    Yay Kylie! You are braver than me...

     I'm going "topless" at home and at work but pop the wig back on whenever I leave either place. I keep telling everyone it's because it is winter and my head is cold - but the reality is that I'm just not ready to walk around in public looking like a pin-head. And before anyone tries to reassure me I don't look like a pin-head I can assure you I do. I'm currently sitting at 90kgs and I have always had small head and so without my hair I just look ridiculously out of proportion.  Undecided

    Looking forward to Saturday!!!!

    Jenn

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    ((((hugs)))) Jenn

    Trish

    xoxo

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012
    lol Jenn. Nevermind about the pin head, if it helps I really hated how I looked in the mirror till well after the steroid swelling reduced and the hair grew, I just didnt care what anyone else thought as stuff it, Id been through a hard time and if they were rude enough to comment, that would be on them and their poor upbringing Cool. The hair and facial swelling are the only outward signs (cause we dont walk around the shops naked haha) of the utter hell we went through, so to me, they were just visible battle scars that slowly receded post tx. Probably also helped that I didnt go around looking in too many mirrors Laughing. Clean the teeth, brush what hair I had in the morning and that would be it for the day lolz.
  • kyliet
    kyliet Member Posts: 587
    edited August 2012

    Depends on the weather if I have a hat on Saturday. It amazes me how many people don't recognise me now, I had long red hair which I think everyone defined me by.

    I get the steroid thing. I had an 'aquaintance' come up to me and tell me my face and neck had gotten fat. I have put on 14kgs but she is rather short and large to put it mildly. I took a deep breath and gritted my teeth. I am feeling fairly sensitive at the moment.

    Linda, I like the badge of honour idea. I clean my teeth but the hair isn't long enough to brush yet. LOL. 

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited August 2012

    Call me stupid - I thought you girls had been really quiet - just discovered
    I'd accidentally removed the thread from my favourite topics.

    Kate - glad you are in one piece.

    Trish - how goes the Aromasin??

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012

    lmao at Suzie. Btw mate, I much appreciated that thread you started in the alt section and I replied but the mods closed the thread and it never showed sigh. I thought the info was posted in the correct thread and actually seeing some statistics was fascinating. I do wish we could all discuss all the various areas of BC without having people jump on us cause they dont agree with any of the specifics. I read every word of those studies and thats the first time I can say that with any honesty lol. usually I start and get mind numbed.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited August 2012

    Sue you are not the only one who has done that.... lol. Using the iPhone makes that a given if one is not very careful.



    Love n hugs. Chrissy

  • KelpieAU
    KelpieAU Member Posts: 201
    edited August 2012

    I have absolutely nothing to say 'cause I'm tired, sore, sick and generally flat at the moment !!! But it's nice just reading about how everyone is going and what you are all up to :)

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012

    Hugs to you Kelpie, really hope you feel better after a good nights sleep.

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited August 2012

    Night kelpie - I hope things improve for you :-)



    Hey everyone - dark choc covered macadamias are healthy aren't they? ;-)



    Jenn

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012

    rofl, Jenn, in our dreams, But I cant talk since I just finished half a packet of chocolate wheatens

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited August 2012

    We had little Nana's apple pies and thick cream for dessert - loved it. I figure, if we have salad with dinner, we're allowed something naughty after it.

  • Kate60
    Kate60 Member Posts: 523
    edited August 2012

    Good to see everyone here today/tonight.

    I splurged today on a new smartphone as my old mobile was crap (hey Trish?). Well I must say it IS a lot smarter than me.... Do any of you clever cookies know if it's possible (and I'm sure it is) to somehow add a favourite website (BCO) for easy access. I have hooked up email and facebook and for me without Paul (My IT Guru) here to do it all for me, I am pretty pleased with myself.

    I just wish I had it 6 months ago when I was in recovery. Oh well. I've got it now and I'm enjoying it.

    xx 

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    lol @ Sue - yes I've done that too.  Aromasin - so far so good.  The nausea has stopped (you said it would!) and my brain is still working which is great.  I have to take it with dinner, if I take it in the morning I'm too tired to get through the day, but apart from that all's good! I had a bad day yesterday, but I've now started exercising more (using the Wii) and I was a bit sore, but today's not too bad so far.  No hot flushes, which is great as I was pretty much through them anyway.  I'm hunting to see where I can get some of Linda's liquid calcium, but haven't had the time to get to the chemist or health food shop yet.

    Kelpie - hope you feel better soon ((((hugs))))

    Jenn - don't you know that anything brown has absolutely no calories in it?!!  Well, we can hope anyway.

    Kate - well done on the new phone, maybe now I'll be able to hear everything you say lol.  But sorry - don't know how to add something to a fav website on the phone - I don't really use my phone for the net much.  Someone else may be able to.

    Have a good one everyone!

    Trish

    xoxo

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012

    What a sad week we've had Cry. Ive read many of Reesie & Ma111's posts over the time Ive been in BCO and really liked and admired them both. Their attitude in the face of adversity was truly remarkable.

    I will miss their presence here in BCO and hope their families can gain peace and comfort in the coming days, months and years.

    Damn BC

  • chrissyb
    chrissyb Member Posts: 11,438
    edited August 2012

    I met Reecie when I went to the states last year. It was not long after she was dx'd. She was truly a lovely woman and way to young to have left this world. A sad week all round and it's only half over.



    Have a good one.



    Love n hugs. Chrissy

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    What a terrible week it's been for you Chrissy and your Stage IV friends.  So many have gone this year, it really is a crappy disease.  (((((hugs))))

    Sue - I seem to have now developed a headache - did you get that?


    Trish

    xoxo

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited August 2012

    Hi Trish - no headaches at all. BUT weight gain without even trying. It will be interesting to see how you go with that. Don't blame everything on Aromasin - there might be other reasons.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    Thanks Sue - I know it's easy to blame the meds on all new symptoms lol At least so far there's been no weight gain - I've actually taken half a kilo off - but I am trying to lose weight.  One of the things I really don't want to happen is the weight gain, I've worked too hard to lose the 12kg so far.

    One thing I'm really struggling with though is the tiredness.  At least here at work they are pretty flexible and I'm finishing earlier in the day.  I'm fine in the mornings, but really start winding down after lunch.  I'm sleeping really well.  I'm hoping that this might iron itself out as time goes on.

    Trish

    xoxo

  • KelpieAU
    KelpieAU Member Posts: 201
    edited August 2012

    Why is it that I feel like I'm winning until I go to the doctors ?? Tongue out

    I felt almost good yesterday. I'd managed to keep a protein bar down and all fluids that I'd drank - without relying on wafers !!. I'd survived without imodium. I'd slept OK the night before. Yesterday - up until my doctors appointment - I was having a top day.

    Then I had a rountine check up and blood tests yesterday afternoon. I was sporting my new hairdo . . . or should I say "lack of hairdo" and the doctor looked at what I thought was a relatively average shaped skull with the usual dips and bumps from years of adverturous activities such as skiing, horseriding, abseiling etc.

    But no, he looked at two particular bumps or 'mounds' (which I have never seen before as they were previously covered in hair), felt them a little and said "They need to come out and we need to get them to pathology". So I nonchalantly said "Sure, I'll come in next week" . . . . to which he answered "No, tomorrow".

    I left that doctors appointment feeling nauseated, weak and miserable.

    Off to the hospital today for surgery. Fingers crossed !!

  • kyliet
    kyliet Member Posts: 587
    edited August 2012

    Oh Kelpie, my thoughts are with you. If there is any good side to it, at least you had no hair and he was able to spot them. Hopefully you won't have to wait too long for your results. Please let us know how you are. Hugs, Kylie x

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited August 2012

    Hello girls, hey i went for an eye exam Tuesday, getting reading glasses next tuesday, but she wants to dialate my eyes, anyboby had that done and what is she looking for please. they know i have had BC and on Tamoxifen, does she suspect something in my eyes that could be sinister and does it hurt.?

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    Oh Kelpie, keeping everything crossed for you, please do let us know how you go.

    Midnight - dilation of pupils isn't anything scary.  It's standard practice when the eye doctor wants to see the back of your eye properly.  It not scary - just a drop or two in each eye and then over about 20 mintues or so your pupils (the black part of your eye) will grow really big.  Then the dr can look inside your eye a lot more easily.  She may have seen something and wants to make sure it's harmless - for example you may have cataracts growing - chemo can cause cataracts and that's nothing serious either.  A lot of people get cataracts just by growing older and they are very easy to fix and means your eyesight will be much better afterwards.  I've had both eyes done - no stress at all.  The doctor could also be making sure that the back of your eye is healthy, so don't worry about it at all.

    And no it doesn't hurt at all - you wont be able to drive for a few hours afterward as it can make your vision quite blurry - and you'll have to make sure you bring sunglasses - even if it's not sunny - having dilated pupils means your eyes will let in a lot more light and you'll be very aware of the glare.

    The scariest thing is for other people to see you with huge pupils lol it does look weird.
    Trish

    xoxo

  • Linda1966
    Linda1966 Member Posts: 441
    edited August 2012

    Gentle Hugs Kelpie, my fingers and toes are crossed for you too.

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited August 2012

    Can someone please "remind" me what the name of the cafe is where we are meeting on Saturday? I want to look up the address so I can program it into my GPS...

    Jenn

  • luv_gardening
    luv_gardening Member Posts: 362
    edited August 2012

    The Olde Magpie Cafe

    Are we meeting at 12 or 12:30?

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited August 2012

    thankyou Trish, that settles my mind alot more. you start and get paranoid after you get BC, everything they look at, you start thinking, Gosh what are they doing that for?  i can tell you reading her paragraph with the glasses i am getting and they give you a sample, i can  actually read it, not have the page in my face, reading it with the naked eye has been getting so bad, i end up shutting one eye. so will be good when i get the glasses, i love my mags lol, esp that's life and lucky break and sometimes womans day. not much fun when you can't see and the phone book, well that is just so difficult. i end up searching the net  for phone numbers for things.  thanks for that Trish.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited August 2012

    You're welcome Midnight - no point in stressing over something when you don't need to.

    Joy, Jenn and Kylie - how about we make it 12.15?  I'm really looking forward to it.

    Trish

    xoxox

  • kyliet
    kyliet Member Posts: 587
    edited August 2012

    12.15 it is. Trish I bet you are the negotiator at work. 

    I started Tamoxifen last night. I am feeling a bit spacey today, I presume it will take a while for SE's to start?? 

    Jenn - macadamias have 'good' oil in them and dark chocolate is meant to be an aphrodisiac. I figure with chemo pause and tamoxifen we can use all the help we can get. 

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited August 2012

    (((((((Kelpie))))))

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