Australian Sisters
Comments
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Thanks Ariom and Chrissy for your words of encouragement, just finished the dishes and trying not to do too much as today's fill feels tight. Hope the incision holds as the skin is quite thin in that area. PS told me today that the BS tried to scrape as much breast tissue off the skin as possible and probably thinned it a little too much. The PS admired his work with the good foob and I have to say it is looking good for an 'ole girl.
Angela, sorry to hear about the lay-off but I guess early notice does give hubby time to look for something else. I think the economy is slowing down, retail certainly is having a rough time. Our high Aussie dollar makes it hard for exporters' and manufacturers' alike.
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Hi ladies
Midnight, the US ladies are very nice. Can I just suggest if you paragraph your posts more, ie shorter paragraphs, it may be easier for people to read. You have a lot of interesting things to say but your long paragraphs can make it hard to follow your story/point.
Hope this is clear.0 -
Hi all
This time last year I had found my lump and booked to go see the GP. By the time I had all my tests etc I didn't have my surgery until April but I remember how scared I was as I just knew that it was cancer, I was freaking out big time. I can't believe that it's been a year all ready. I have my yearly mammo on 22 March, it will be strange with just 1 boob to mammogram.
This year it's my Brother who has had bad luck, he hit a kangaroo just after the New Year and his car is a write off. He and his family live in Bundaberg, luckily on the other side from the floods, they did have minor flooding from all the rain, my sister in law has been quite upset about it all. Then last week my Brother cut his hand at work and had to have 5 stitches. I told them it might be best to go back to 31 Dec and start the year again!!!
I come on here all the time but just don't post that often, I wish everyone the best.
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Aussie, like you I was Dx one year ago tomorrow. I can remember that awful feeling of doom and gloom that we all go through. I do remember someone on these boards saying that it will all feel better once a plan of attack is started and that was so true. I did waste a couple of months trying to come to terms with the Rx but decided to have Mx. My DCIS could not be felt but it was seen during regular 2 year mammo.
I don't think I have heard of many cases where DCIS was a lump that could be felt. So lucky you found it when you did. Did you ask for HER2 to be done? I asked my BS but he just shrugged his shoulders and said it was not necessary. I would like to know so I may ask him again. Wonder if they can just revisit the pathology slides and work it out from that?
Haven't heard from Linda, Kazzie or Karen in a while. Hope you are all doing well.
Well it's goodnight from me!
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Hi Lolalee
I could really feel the lump as it was right under my nipple and my nipple was inverted which i hadn't even noticed !!! After my surgery the pathology said that I had 3mm of invasive inside tumour so I was lucky. My sister is a Medical Scientist, she does all the pathology testing and she said that for her half a centimetre is big, I think she was suprised by how big mine was.
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I should add just in case there are any girls newly Dx with DCIS reading this thread for the first time that I had enormous help from BEESIE, who is extremely knowledgeable when it comes to DCIS.
Beesie very kindly guided me through and I shall forever be grateful to her, a wonderful poster who has given so much of her time. Beesie may be found under "search" Beesie or on the DCIS site.
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Hi Aussie, thank you for the reply. My previous post about Beesie must have crossed with your reply. So your tumour caused the nipple to invert, that is incredible. You are so lucky to have a sister as a pathologist as she would have been so helpful. I think the pathologist plays the most important role in this whole messy business. Their report and findings controls the whole treatment scenario, they are the only ones to actually see the cancerous tissue up close.
I read a post on one of the sites where someone had their pathology read by 3 different labs and the 4th pathologist picked up the invasive component. Totally missed by the other 3. Her whole treatment changed upon this discovery.
I asked to have 2 different pathologists look at my Mx tissue just to be sure that it was pure DCIS. Was it your sister who requested the HER2 result? Can they still do the test on slides that would be a few months old I wonder?
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Aussie and Lola one year! Yay that's a good milestone :-)
Angela I'm really sorry about your husband, it's not what you need at the moment. I hope your tiredness doesn't get too bad ((((hugs))))
Midnight, Racy makes a good point, your stories are wonderful and I love reading them, but sometimes they can be hard to read as you tend to put everything into one long paragraph. Try spacing your paragraphs out a bit, it makes it easier to read. I think that some American women would look at something and think, that's too hard to read so move on, especially if they aren't feeling well, or chemo brain is taking over.
Have a great day everyone!
Trish
xoxox
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Hi ladies - just thought I'd drop by here and see how you were all doing, and lo and behold, 14 pages have been written since I last visited! Holy cow! Didn't think I'd been absent THAT long!
Hubby is still working in Perth and both of us are thinking this has gone on for entirely TOO LONG now. He's scheduled to return to me in March. Not long now, just keeping busy. Really I dislike February on both continents though - it's way too hot in Perth in February and cold, ugly (no leaves on trees) and grey in Colorado in February. Not impressed. I'd love to stick my feet in the Indian Ocean about now.
Just thought I'd drop by and see if everybody was okay, have a whinge about the weather, and send you all some hugs from Colorado. xox
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thankyou Racy and Trish, yes i will do that and i am open to suggestions and maybe yes it could be hard to read in one long paragraph. I dont usually tell the usa girls my stories, its just an answer to there post and supportive more than anything. But thankyou for pointing that out as i can work on it. Love and hugs OOxx
I have a nagging dry cough which is driving me mad, trying to hold a conversation esp on the phone is hard to do, had it for about ten days, going to have see GP. I feel like Hyperchondriact, was trying to talk to mum and it was cough cough cough all the way through. BIL rang me yesterday and in the end i just listen at all he wanted me to do. ring this one and organise this and that and i was so drained, that by the time mum rang i could hardly keep awake. i hate that feeling, i had a short sleep, which was helpful, til the phone rang again and then had a talk on here. Oh well i will have to see Doc again, spending more time there of late. It is easier to communicate on here as the phone does drain me.
Have a good day ladies.
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Hooray - our little baby grandson arrived yesterday. DD's labour was about 10 hours. Baby's name is Cooper and he was 9.3lb. She had no tearing and no epidural so recovery should be good.
Sue have a great holiday.
Alyson great results.
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Kylie - congrats on the birth of Cooper! So happy for you! I'm going to become a grandmother again (grandbaby #2) in July, so excited! My son and his wife live in Czech Republic though - so far away. I miss out on a lot, thank goodness for Skype. I sure hope that you are close to Cooper, your help and support will be invaluable. Hugs!
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That's great Kylie and he is quite a big boy as well. Your DD did well. Pictures please.
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congrats on baby Cooper, he is a big little boy. Yr DD did well with no tearing or epidural, did she have any pain relief at all? If not wow she did so good. You will have alot of fun and pleasurable times coming up, yes photos please.
Marnie, do you have webcam that you at least see the kids even tho its only on computer and skype yes, i have not got it, but it would help when you have so many overseas ralies and of cause your hubby away would make it easier. warm hugs ladies
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Yay Kylie that's great news. Congrats to all of you :-)
Marnie it's great to hear from you again. Yes we are a chatty group down here lol. Not long now and your DH will be home, I can imagine you'll be missing him a lot.
Midnight, you're doing well girl :-)
Trish
xoxoxo
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Yay Kylie!!! Congrats to all on the safe arrival of Cooper!!! He certainly is a good armful at that weight.........lol. So glad your DD will have an easier recovery. Bet you can't wait till they come home.
Love n hugs. Chrissy0 -
Thank you for the good wishes Trisha, i can remember only too well being the last person left at the breast clinic on that awful day, I knew that the news was not good. Jenn put it so well in one of her posts prior to Xmas.
Kylie wonderful news Grannie, is that your first grandchild? Please give my best wishes to the happy family. Fabulous healthy weight for a new bub.
Marnie, lovely to hear from you. I am going to Perth next week after my final fill. Lovely hot weather over there at present. You are quite right about February, very hot on this side of the world and cold over there. Autumn however is gorgeous where ever you are. Are you planning on visiting soon?
Midnight, hope the doc is able to sort out your cough and give you something to boost your energy levels.
I are going to Bowral for the weekend. Heard there is a divine French linen shop there I must visit. I often visit "Lemon Tea, No Sugar" a beautiful French linen shop in Bellevue Hill, unfortunately the owner is closing her shop due to increased rental....I need to find another source to feed the soul lol.
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Congratulations Kylie to you and yours! Lovely name an a big strapping boy!
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Huge congrats and a big hug Kylie!!!!!
Jenn0 -
Kylie - that's my kind of baby - I was 9lb 5oz and my brother was 10lb 7oz - anything under 9lbs in small in my book
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Welcome to a wonderful world Cooper.
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Kylie, congratulations on the birth of your grand son. He is quite a big baby. xoxox
Midnight. I also love your stories, so keep em coming, and I do hope that you get better soon. xoxox
I have been lurking, and I am so pleased that a lot of you ladies are into exercise and relaxation. I missed my yoga last Friday and I am looking forward to my next class.
Lolalee and Ausie, congratulations on your one year cancerversary, and I am glad that you are both doing well.
I have spent the last couple of days looking after my 2/yo grand daughter and today I also baby sat my other 2 y/o grand daughter as DIL had to take 7week old grand daughter for her weigh in and also immunisation. She also had a problem with the baby capsule and took that in for replacement of a different brand as the original baby capsule was not compatible with her brand of car. It just sounds too technical for me.
I will be driving home tomorrow as I am too tired for my 2 hour drive in the dark today.
Good night everyone.
Cheers,
Mandy
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Hi all
Yes I've read lots of Beesie's posts too, she seems to do lots of research and knows excatly what she's talking about. Although I had some invasive I didn't have chemo as it was all in the tumour and hadn't gone anywhere else.
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Happy Waitangi day. I'm thinking of the beautiful treaty site in the Bay of Islands, which I visited in 2009.
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Midnight - Yes I do have a web cam and Skype regularly with my kids and my husband. Don't know what I'd do without Skype! It's a life-saver! Or should I say, a sanity saver. There's nothing like seeing your loved ones face-to-face.
Trish, yes I am missing DH terribly. Counting the days. The other day I posted on Facebook "I am cuddle deprived! When my man gets back, you won't be able to pry us apart with a crowbar!" The only good thing about him being gone so long is that I finally got to put together my how-to-meditate course, a pet project that I've been meaning to get to for months now. I'm very excited about it! It's a downloadable course and I put a lot of work into it!
Lolalee - I wish I could visit soon, but I suspect it will have to be next year. I have so many lovely friends in Perth and although my DH is having fun connecting with all of them, I am missing out! I have another grandchild due in July so my travel funds will be taking me to Czech Republic.
I must dash - got an exercise class to attend. Have a lovely day everyone xox
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Lol Racy, they all ready had a huge argument of who was going to escort the PM on the Maraea, and Dame Harewera got her way and did the honours, that was yesterday, the argument was even b4 Waitangi day. lol But yes its beautiful, up in the B O Islands.
I wonder how may protests are up there though, probably a heap as they were talking about a number od prostests happening. I don't think they would make John Key cry though like they did to Helen Clarke, that was that Harawera woman that did that too. She has mind set and she don't back down for anyone, even the prime minister. lol real old activist that one. .
How many of you Ladies get worn out talking on the phone, As i was saying MY BIL wore me out the other day, whether it was because he wanted me to do all this stuff and its only phone duties of organisational things and then mummy rang me and i wanted to just nod off, the cough wears me out, going to have to do something about it, hubby says i was barking like a dog last night. Its a dry one, which is annoying and this morning a flaming crumb got in my throat and man i coughed myself inside out. I will do these bloods on friday to do with the iron count. They testing all my red cells and white and the platlets etc, complete blood diagnostic test.
Anyway ladies have a lovely day.
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Midnight - I'm like you, I don't care for a lot of phone chat. i really believe my nerves took quite a beating with the chemotherapy. When I finished chemo, I couldn't even handle a quiet night out with friends. If the conversation got a little animated, I just sat there trembling! Weird. I know that the chemo drugs are hell on our nerves and it takes a good many years before they recuperate.
Not a fan of chemo - necessary evil I suppose but I wish they'd come up with something much better than all that toxicity.
xox
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I never had chemo, just that they found my iron levels were well down and the heamoglobin at the bottom end of normal and when i talked to nurse, she said, i had almost zero iron in the cells, they have done test already to see if any bleeding into bowel, but they are ok and doing these blood tests on friday to see if the Blood cells are working properly. etc.
The men, that is hubby and his brother are saying i only have to sit and do the calls or be at the computer to organise, but its the mental part of it, i just cannot be stuffed doing it and then you get b in law saying, you will need to do this and you need to organise that and i just switch off, like my mind just says no more.
I get on here and chat with these girls and i am in my own space and enjoy it as there is no pressure and i hate that feeling of not being able to be bothered doing the things i am good at doing. It was not a problem b4 to do what i was doing with the bussiness, but feels like i have just hit a wall in the past few weeks, like arrange for the job interviews and i had it all under control, now i am in this place where getting out of bed is hassel. i don't like that draining feeling. I do it as it is too much pressure on hubby. Dopey won't ring anybody and arrange things, Dopey is my hubbys nick name for his brother, my nick name for him is Grumpy, we just got to carry on regardless in his eyes. Hubby used to say, i wish i could be in hospital because then i would get a rest and he will have to do things.
It sounds like it was torture for you marnie going out and socialising and you were not ready to do it, i feel for you. it will be good when yr husband returns and you can have your continous loooonnnnng hug.
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Hi midnight, sounds like you aren't traveling too well at the moment. I am so sorry to hear you still haven't found out about the iron levels. Surely that would have to be what is causing the drained feeling. The dry cough doesn't sound like fun either, an allergy perhaps? i really hope you can get some answers soon.
From what I have gathered reading your posts, you have a fairly stressful business with a lot of responsibility. Not surprising you've hit the wall, is there really no way you can get a bit of a break?Couldn't Dopey BIL, (your name, not mine) could have it explained to him in a way he'd understand that you just need to slow down for a bit?
Surely you don't have to be in Hospital for him to "get it". I feel for your Husband too, he's been going through this with you, and I am sure it has been hard on him. You've both had a rough time.
Take care Midnight, i hope you get some answers soon.
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It is hubby who wants to go in Hospital to get a rest. Its the whole thing, They are actually looking at figures today to see if the bussiness is worth holding on to, the Gst, the drivers, One driver is not in a good frame of mind because Hubby told him off as he was negligent about strapping some freight in properly and it was wine and several bottles broke and we as a company have to compensate for that. he was just being lazy, would of taken one strap to secure it and the other thing is that company we are contracted to want us to up grade to brand new trucks, well they pretty dam expensive, it has to do with image and to me, its a no brainer, but convincing BIL, he wants to get a new truck, and only keep the the two runs and give away two. and then they could say, well if you give up 2, you may as well give up all. and hubby is trying to talk him out of it and say PULL THE PLUG< ITS NOT WOTH IT. too much S--T to put up with.
I am on the blink with my health and we have a farm to run, they could both get part time jobs. BIL is a micro bioligist by trade and genetics doctrate and he could teach in any university, and hubby could do anything else, drive for somebody else. ((((we will see)))).we need to slow down and live while we can. so i hope they see wisdom and do the right thing. There will be job losses, but hey they have not been that loyal to us of late. Thats our least worry, sounds horrible, but its the way it is. We have been there for those boys and when we needed help, when i got sick and we had to move house, we had to hire students as they all refused to help esp the one who we helped the most with meat and heaps of petrol.
sound like i am being mean, but when its been so one sided, you kinda get that way yr self. anyway i am moaning AGAIN, sorry. good to get it out. hugs.
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