Australian Sisters
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Feeling a bit better today.....thanks girls for all your love & support
Saw the onc yesterday & the bone progression wasn't too bad....a few extra spots!
Started on Xeloda today so fingers crossed this one works..
He wasn't all doom & gloom - quite positive actually - so that made both hubby & I feel better...
I knew I was struggling but didn't quite realize how much.......have hardly slept the last week even with sleepers but last night I slept for nearly 12 hours straight WITHOUT any sleepers...
I got a Xeloda pack from the chemist with the cream & gloves etc so just gotta wait & see what side effects I do get & how quick they set in.
So all in all, feeling better & more positive today.....thinking I might even get to celebrate my 53rd birthday ...LOL
Spent 3 hours at a day spa with my sister yesterday.....it was wonderful! Now going to book a trip to Cairns & Sydney in April & hopefully America, Canada & Hawaii in June/July!! Gotta have something to look forward to & memories to make....
Took Jenns advice & I'm having a manicure & pedicure tomorrow....:)
Midnight...glad hubby is feeling better, must be a relief for you...
Hope everyone else is well.....it's been fairly quiet on here lately.
Karen xxx0 -
kazzie ((hugs)) brilliant you sound so good, considering! booking holidays, spas, you go girl!! party everyday, best therapy.
xx
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Kazzie, you will be here for many Birthdays to come, in the mean time you go and get a holiday and enjoy every moment and laugh yr head off. Happy you sound positive today and that a better picture is being painted. Lets just think that the next picture getting painted will be with bright Beautiful colours that resemble you, and yr future as you have alot to do here still and a lovely hubby standing by yr side. Take care. OOxx
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Thanks Liv x
A couple of quick questions......how soon after you started Xeloda did you get any symptoms?
I took my first dose this morning & I'm waiting for something to happen....LOL
And why did you go on Navelbine as well?
Also, what dosage are you on?
Just been PM'ing Chrissy & she asked about you! I said you never stopped exercising & I wished I had half your energy...LOL You are a bit of a Superwoman!!!
We're talking about catching up mid March....Chrissy is off to Tassie for 2 weeks on 28th Feb...:)
Hope you don't mind the questions......
Take care...
Karen xx0 -
Midnight.......thankyou for those very positive & calming words!!
Love all you girls...:)
Karen xx0 -
gorgeous Kaz
of course i dont mind you asking anything or anybody asking
we are all the same here~!!You make me laugh, i picture you sitting there waiting for something to happen.
best chemo so far, hardly any side effects. feet hot & burning thats the most i could call a side effect but what i found even at home i wear those fitflop things you buy them in david jones or one of those arcades in the city...not the most feminine things but they have heaps of sponge in them and so far havent got the blisters like i hear others do and im sure its because i wear them all the time at home.
as far why combo with navalbine, when i was hunting for new onc to give me more chemo., new onc put me on xeloda whilst having rads & i had read somewhere that xeloda worked better in combination so once i finished rads onc agreed and put me on navalbine... cant find that link where i read it but have a look at this link.
http://www.breastcancer.org/symptoms/types/recur_metast/treat_metast/chemo
dose xeloda 1500mg morning 1500 night - total 3000
navalbine 100 mg lst week once off & 100 mg once off second week.
kaz i really hope this xeloda is good for you and you do all those amazing things you have planned, you will definitely be here for your 53rd., 53 is my favourite number. won my first pair of 501 red tag levis jeans at bingo when i was 12 years of age, well number 53 came up, bingo and i won $50.00. no way back then would my mother pay that much for jeans so off i went my first pair of red tag 501's and No.53 has been with me ever since.
would love to catch up with you and chrissy, let me know.
xx
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Morning all
Moving slowly again this morning, just so sick of the pain.
Susie, saw on another thread that you were dissapointed with the South Island - dry, barren and often hot. Yes it is up Central, if you want green and beautiful you need the Nelson area. New Zealand isn't green at this time of the year, winter is beautiful but not summer. But great that you did ride the Rail Trail I certainly wouldn't. I think how hard it must have been for settlers up in that area just as it was for so many in Australia. We were stunned by the Flinders and to think people tried to farm such places in both countries.
Had better get dressed - have lots to do today.
Big hugs to all.
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Morning girls! Just thought I'd pop in and update you on my doings......lol. Have had a great couple of days and am just about to set off to hydrotherapy with my sis.
Aly sure hope you pain eases up for you soon.
Sue.....disappointed? Wow!
Karen, hope you get a good result from the Xeloda. Glad your report was better than you thought.
Oops gotta fly! BBL!
Love n hugs. Chrissy0 -
Hi girls......still waiting for side effects....LOL Drama Queen or what??
Off to get a luxury spa manicure & pedicure before the hands & feet turn to shit...LOL
Spoiling myself a bit....& feeling much better
Chrissy.....glad you're enjoying your time with your sister...:)
Aly....so sorry you're in pain & hope you can somehow ease the pain soon x
Liv.......thanks for the info. It's all so confusing......& it doesn't help that all the chemo's have more than one name!!
Take care lovely ladies...
Karen x0 -
Ooooo Karen! Enjoy the mani and pedi! you are going to feel a million dollars when you are done!.......love, love love 'em!
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Hi Girls, i went to Doc today, hubby went in with me, several things happening to me, i am falling apart. I have to have a colonoscopy, gastroscopy, i have to also go to a endocrine specalist as there is a swelling on the left side of my neck, and he got me to swallow some water and as he felt my throat when it went down, i have some pills to help my burning gullet, called ranitidine, to be taken at night, and the thyroid is eleveted and saying to the body i am producing some thryroid hormone as thie body is not giving me enough, and yet i am on a high dose, its saying its elevated, but the body is not producing it and he wondering with the swelling on the left side if there is growth, i am a complicated person, i have not got a gland, i was born with out one, so the only one who will be able to fill them in on my history is mummy, as she had a sick baby right thru my infancy.. she would tell them what they need to go on to get a picture. i will get back to you, the iron is a symtom he thinks of either that or something bleeding slowly in my upper abdomen area. catch you later.
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So sorry to hear about your complications Midnight, hope they are able to sort it all out. On the positive side at least they are aware of your problems and taking steps to rectify. Hoping you are up to speed in no time at all. Keep us posted of your progress.
Hugs, Lola.
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Oh Midnight I am sorry your health is getting complicated. It is good that hubby is with you on this. You sound like you are losing faith in your body with so many possible areas of concern.
I love reading your posts and hope that you start to get clear answers very soon. We all know how much better we feel when we have clarity of our situation and a plan to work to.
Here's hoping for better outcomes and feeling well.
Cheers
Angela0 -
Massive yet gentle hugs midnight. I hope they get this all sorted out and you can get back to being healthy. One the good side, as Lolalee said, at least its being taken seriously by the dr's. Sometimes its hard to get them to look into things properly.
Hope you feel better soon mate.
Karen, so glad you got a good vibe from the onc. Fingers are crossed you get no side effects and the xeloda kicks those stinking mets right out of you quickly.
Chrissy glad your enjoying yourself.
Everyone else, hope your all well and having fun
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Midnight, I am glad that hubby accompanied you to the Doc, and I sure hope that they can get to the bottom of it all. ((((hugs))))
Karen, I have just finished my 4th round of Xeloda. My first round, day 7 or 8, I noticed that my feet were getting hot and painful and any slight friction from my sandals caused blisters. I also started getting tummy aches, but no diarrhoea. The second round, again on day 7 or 8, feet started tingling and I started to wear cotton socks and closed in shoes. I also had tummy problems, but they would subside as soon as I stopped taking Xeloda. I started on 4 in the morning and then 4 in the evening, and the Onc changed it to 3 in am and 4 in pm. This round, I took 3 in am and 4 in pm until day 5 when my feet started tingling again, and then I decreased the pm dose to 3 for the rest of the round. I hope you will be OK with the Xeloda, as I think that the SE are pretty mild compared to the IV chemo drugs, and I hope that X will work for you and kick that Cancer's butt!!!
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A lot going on as usual!
Midnight, I know how you feel about falling apart...I had a clear colonoscopy 18mths ago but just had a positive faecal blood test so I'm off for another colonoscopy. I need to finish my rads first though, just 7 to go. Also, my arthritis is starting to really trouble me but I'm trying to ignore that for the moment and I'm now to start Tamoxifen. To think that just 4 months ago I would have considered myself a picture of health!
To everyone else, enjoy the precious moments with family and friends...0 -
I have got to know you girls pretty good on here, so i will introduce myself, u can call me what you like, midnight or Annette. I named myseld midnight after chinchilla we have. seemed apropiate at the time, but i am formerly introducing my self and i am Annette. and today Annette is going to her dishes,that she promised she would not leave til there is alot, its not hard stuff, just plates, i am hanging for a cuppa tea, but my jug blew its stack. so will go and heat some water up, catch u later hugs
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Hello Annette
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What a lovely name Annette.
I hope everyone is coping with all their side-effects. It is so hard when people say 'well it's all over now' and I feel worse from meds side effects than I did after the ops.
I went out to a breast cancer group lunch this week. Approx 16 women, some up to 8 years out all with the same short haircut. I am definitely going to put up with the angst of growing my hair out.
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Hello Annette!!
Isn't that interesting after all this time, none of us knew your name. I hope you're feeling better & those dishes & other little jobs get done....
Kylie.....I thought that was quite funny re all the post chemo hair do's! After me first diagnosis (2 years & 4 months ago!!) it seemed to take forever for my hair to grow & the choice of hairstyles was so limited! I couldn't stand the 'growing out' & would get it cut every 5 to 6 weeks.......now i'm bald again
Good luck & I hope it doesn't take too long to get the hair you want
I had my luxury mani & pedi yesterday.......the skin on my hands & feet feels so nice & soft (& of course they look look great with professional nail painting) it's such a shame there's a strong possibility they'll be a mess shortly from the Xeloda!! Oh well, if it works I really don't care what side effects it gives me! LOL
Mandy.....how many rounds of Xeloda have you now done & do you know if it's working??
Angela.....sorry if you've already mentioned this (chemo brain!!) but what chemo are you on? I do remember you got a stable result.....yay!!
Having my regular weekly lunch & shopping with my sister today She really has been my rock & so very supportive since getting this crappy secondary diagnosis........
Hope everyone has a lovely weekend.
Karen xx0 -
Hello Annette, I hope that you are starting to feel better. Don't do too much ((((Annette)))
Karen, I have just completed round 4 of Xeloda, and my tumor markers started to go down after the 2nd round of Xeloda. So, they went down after round 2, and then after round 3. I will get my blood test done today (thank you for reminding me, coz I would have forgotten) and get the results on Tuesday when I see my Onc. Xeloda looks at being effective, because I was put on Aromasin last May until November, and my tumor markers kept going up on AI. I am going to push my onc for MRI scan mainly of the brain as one of my mets is leptomeningeal carcinoma, which Xeloda is the only hopeful treatment for as it can pass the blood brain barrier. The prognogis is dismal for LM and I am hoping that X will keep this under control. (Isnt it funny, I also have mets in the bones, lungs and liver, and I don't even focus on them because of LM.)
I spent Monday and Tuesday looking after Grand daughter number 1 who is 27 months old. On Tuesday, after my daughter fed the horses and went off to work, my GD went out the back to play and the 3 dogs were having a romp around as well. I just slipped off to go to the loo after telling GD to stay under the verandah, when I came back less than 2 minutes later, GD was standing on top of a mound of dirt. I quickly put on my shoes and realised that she was standing on a bull ants nest and they were covering both her legs. GD was too scared to scream. I quickly picked her up and tore off her sandals and then brushed as many bull ants off her as I could whilst carrying her inside. I undressed her and got rid of all the other bull ants and put her in a luke warm bath and then sprayed all the bull ants that were inside with fly spray. I put stingose on my GD's legs as she was covered in red dots and that did the trick. After a few minutes, she was playing and eating and drinking and completely oblivious of what happened. I must admit, that I just felt sick after the incident.
Later that day, GD got her leg stuck in the safety gate, and after much manipulating and pulling, we got it out. She had the biggest bruise on the inside of her knee.
I got home just after 9 that night, thinking that maybe I am getting too slow, or else my GD is just getting to quick. lol.
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Karen, it was hubby who suggested i tell you who i am, he said, you talk with those girls alot like a 2nd family, so tell them your name, so i thought, yea, its about time i did and so i did, just putting an identity to this person you call midnight lol and also Alyson asked me what it was too, so that was another reason. Yes i did those dishes and i am going to wash the floors shortly. i keep getting interupted, so thought would have lunch while i can, even tho its after 3. Hubby rings me alot, he is a bit clingy and calls in and checks and wants to know if i am ok. i think he realised that there was more going on than he anticipated,
Kylie, i was named after My mother's best friend when she was a girl and my nana added the name Sharee and we are were Bradley's, so it was Annette Sharee Bradley and as there is a bank called Auckland Savings Bank, i had the initials A>S>B so i was told i owned the bank, (I WISH). I am now a Ward, so i no longer own a bank, but partly a transport company, which is more stress than its worth at times. It is more settled at present thank God.
Hope everybody else is fine, there are a few ladies i have not seen for abit, Jedbra, Tammy and Ariom, hope you ladies are all fine. Jenn. hope you ok too. I think Chrissy is busy and so is Trish with her photos. Good to be busy.
cheers
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Hello Annette, Moira,Ariom here.
I haven't had anything to post, but I have been keeping up with everyone's news.
I am so sorry to hear what has been going on with your health issues, but glad to hear that you're going to have the tests done to see what's going on.
I like your Husband Annette he sounds like a good man who cares a lot for you.
Oh my gosh Mandy, I would have beeen beside myself in your position with your GD. You reacted so well to the emergency and got it under control. I hate Bull Ants, since we have moved to the country I am amazed at the size of some of those critters.
Kids are so resilient aren't they, bull ants and a knee stuck in a gate, it sounds like you had quite a day.
I wish you all the very best with your treatment, and your MRI Mandy.
Kazzie, glad to hear the Mani and Pedi were a success. I hope you and your sister have a great day together today.
Hoping Chrissy is enjoying her holiday.
To everyone else, I wish you all a safe and happy weekend.
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Mandy, i think Yr GD is probably too quick, they move and telling them to stay put, they seem to develop selective hearing lol, the poor little mite, that would of freaked her out as it did you.she recovered quickly as well which is good.
Hubby found this little tiny baby kitten, about a day old, its mother has obviously abandoned it, so it is in a cage, i need to feed it soon, ginger and white, no bigger than the palm of my hand, don't know if it will make it, but we given a chance, so i better check it out. its like a baby,2 hour feeding. we have a little feeding bottle witha little teat. Cheers
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Hi Annette, lovely to see you! We have gotten to know and love your alter ego but its nice to actually see you. I hear you on the dishes thing.....lol......I leave them in the hope that DH will take pity on me and do them......which he does sometimes......but still I often have to do them myself........sigh!.......if only there was a dishes fairy that visited. Why oh why to we have to eat?! oh yeah....lol.....so we can live.....i forgot that bit.......hahahahaha!
Hoping you start to get some answers to all your problems as there is nothing worse than feeling like crap and not knowing why.
Tammy hope your rads are not giving you too much trouble and your skin is holding up well. Not many treatments to go..........thank goodness I hear you say........lol.
Hoping the rest of you are having a good day!
Love n hugs. Chrissy
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Hello Annette Bradley, glad you are feeling upto doing dishes and floors. Your hubby sounds really nice, great to have such support.
Mandy I tell ya your GD is streets ahead of you, wonder what DD thought when you returned her bruised and all...lol. Hope your MRI head scan turns out ok.
Great to hear you are feeling more upbeat Kazzie and that the latest chemo works well.
Hope you all have a good weekend, I am heading to Margaret River in WA for the weekend to catch up with old friends. Still hot on this side of Australia.
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There are floors here that need doing, Midnight.
DGS has just gone - we had a lovely day and he is so funny with his talking now. Went to playgroup this morning then his little cousin came round and after that we had a walk and I had coffee and Sam slept.
Friends have 'made' me play words with them on FB - I knew it would be addictive so if any of you see me on I would love to play.
Have a great weekend all.
Big hugs.
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Hi Annette :-)
I'm sitting here in the chemo suite waiting for my port to be accessed for the last time for Herceptin. I had my first chemo infusion here on January 12th last year and so it's been a very long haul!
My port is coming out next Wednesday :-)
Jenn0 -
Happy dancing kangaroo. Yippee, great event.0 -
Ariom, you have such a lovely name. Moira, i have had a nap, i swept the floors and then i snuffed out like a candle.. so went and had a sleep. Gee when you see under water programmes like our programme, animal planet, GEEZ our lives resolve around them. but the under the ocean pictures on the big tv, amazing. anyway having a cuppa tea. so will go and drink that, hopefully hubby goes and gets me a jug, i using a pot on the stove, lol like that boarder hubbys parents had Ariom, moira. with the bloody jug. lol
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