Australian Sisters
Comments
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(((Angela))))
Here's hoping it is nothing serious. And please, let us know how you went. This site is great for venting and communicating.
Mandy xxxxx
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Gentle hugs Angela, I hope the news is good and that your all clear.
Trish Im sorry, I had somehow missed that Gus was declining. Im so sorry, as you know I too am a huge dog lover and I do know how your feeling.
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Thank you so much dear ladies. I am going to sleep now and should find out tomorrow. Your support is indescribably reassuring.
Thanks
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Hope you get a good nights sleep Angela.......:)
As I said earlier, thinking of you.
Sweet dreams!!!
Karen x0 -
Bugger bugger bugger
I have lesions in the cerebellum. Just as we get the body under control. Now this is scary.
I have started on massive doses of steroids that will hopefully ease my symptoms immediately, will have an MRI to rule out spots elsewhere in the brain, then start radiation, not sure yet where and how. Onc will continue with Abraxane around the rad treatment so that's a good sign she sees it worth keeping the rest of me going while we sort this out.
Bugger. My girl is doing year 12 and I want to be healthy for her. I want to see their blossoming into adults and I know now that is unlikely, bugger. My darling husband believes his sacking is great timing. We are ok for money, relative to so many, and I think he wants to spend some time at home and find an enjoyable, low pressure job in a few months time. How lucky am I?
You know, brain mets was always the most terrifying thought to me. I used to make deals that I would accept any other location and the consequences but not the brain. My brain is ME. I have avoided reading anything about brain mets. Now i am going to pop over to the brain mets sisters threads and hang out there for knowledge, but I'll be back here for support.
Not much else to say really. Thanks for being around me. I don't feel alone.
Love Angela0 -
(((Angela)))
I am so sorry that you have bad news. Brain mets are the pits!!! Don't panic, just listen to your onc and radioologist. Technology is marvelous nowadays, and a lot of treatment now works in shrinking or even eradicating the tumors.
Thinking of you and sending positive thoughts to you. xxxxx
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Oh Angela, Bugger is right, i was really hoping for good news today for you,actually came back in to check to see if you had posted and i saw the bugger, oh no, am so sorry, i can't advise you much, but only to be a support for you, keep us posted and yea good idea, the brain mets girls will be able to help you and advise. take care Girl. love and lots of hugs. Annette (midnight)
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Bugger is right. Angela I'm so saddened to hear your news. I'm sure the brain mets sisters will be able to help you understand a bit more, and hopefully ease some fears.
Of course we are all still here for you too.
((((((hugs))))))
Trish
xoxoxo
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Angela, I am so sorry you are having to go through this. Hope the new treatment works and you get back on track. Will be thinking of you and send hugs and best wishes to you and your family.
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Oh Angela.....when I read your news my heart just sank.....
Yes, I think for us Stage 4 sisters, brain mets is our biggest fear but hey, we deal with whatever is thrown at us (((hugs)))
You have an amazing hubby & daughter & you're still here for them.
Sending you the biggest love n hugs I can find xxxx
Karen xx
PS on a less personal note, you mentioned finances.....you can get all your super & life insurance - PM if you want any info. xxxxx0 -
Angela, so very sad to hear about this for you. Sending big hugs your way.. xxxx
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Oh Angela! I'm so sorry that the results came back as mets. Bugger! Double bugger!! The girls over on the brain mets threads are really great and some have been around for quite some time so hopefully so will you.
As we all do at stage IV, take a deep breath and forge on forward.
Love n hugs. Chrissy0 -
Angela really big hugs from over here. Thinking and praying for you and your family.
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Girls, i am confused, lol whats new? i got an appointment for the colonoscopy on the 23 April at 1.15, now today i have another letter from there for an appointment at the same time for appointment to see a clinican, they probably think i am a thick tart, my GP also sent a referral for the down the throat one and the other one down below. Is the endoscopy the one down the throat or up thru the posteria. i always thought that was a colonoscopy and the other gastroscopy which is down the throat, so what is a endoscopy. you see there are certain procedures that have to be taken care of b4 the bottom end one, they not particuarly clear on what the appointment is for in todays one, its just the same time, surely i wont be having two procedures done together. i have asked them, i cant be in two places. so am i dumb or they double booked me. I get the feeling she was thinking i was dopey and i was clear yesterday, but today's letter has confused me abit. so i thought i would ask you girls at least i won't feel dumb, they make you feel like a dumb arse, thanks
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Midnight a colonoscopy checks your bowel an endoscopy checks your esophagus and stomach. They can be done one after the other but I don't think they are done at exactly the same time.
I would ring the place where your appointments are and point out the problem. I think they will reschedule one or explain how it's going to happen. Good luck!
Love n hugs. Chrissy0 -
Thankyou Chrissy. i have rung and got there answer phone and left a message and said, i have two referrals, one for colonoscopy and the endoscopy and was just making sure i didn't end up with the both on the day as the letter was not very specific on what procedure i was having in the second letter just the clinician name. she did say, i would get another letter with instructions on the colonoscopy, the before hand procedure i would say, but this one didn't ,have not got that as yet. thanks Annette
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Hi Midnight. These 2 appointments(treatments/examinations??) can be done at the same time, "Combining the two procedures allows them to be done with one dose of anesthesia, which is safer."
CheersMandy
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Mandy, i went to look at the web page you sent and it said, web page can't be found, so i will look for it again tomorrow, thanks for that, yea well, it would save me getting a 2nd anesthetic, which is safer, thanks you.
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Hi Angela, I'm very sorry to hear of your new mets. There are a lot of ladies on this site dealing with brain mets, some for a long time.
There is no harm in getting a second opinion on treatment options. Between that and the knowledge of members here, you should be able to discern the best treatment option.
Don't worry if you don't feel up to posting. We will be thinking of you, and I will pray for you.0 -
Hi Mdnight. Oops, sorry about that, it didn't work for me neither.
I have copied and pasted the article below, I hope this one works.
http://www.livestrong.com/article/161655-preparing-for-a-colonoscopy-endoscopy/
Cheers
Mandy xx
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Hi all
Angela sorry to hear about your bad news, hopefully with treatment it will improve. Do they do much research on metastic cancer or are they just trying to stop cancer from forming in the first place? It would be nice to know just how the money is spent on different research for breast and other cancers.
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Thankyou Mandy, i found it, ewww i don't know about the enema thing, i guess i will cope, why can't you just have pills, be easier that using an enema bag and doing all that stuff, oh well, i will do what is required as it will be more beneficial to be done correctly.
Hi aussie12, nice to see you back again, have not seen you for abit, hope you ok.
Ariom, Where are you and how are you?, miss seen you lately, hope everything is cool with you.
Trish you ok, you have more photo sessions? glad it is going well.
well catch you's later, go and do some toil and then ring my mummy. see how she doing. hugs everyone.
Chrissy, hope you ok. you working hard too?
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Annette, me? Work hard? You got to be kidding, aren't you?.........lol. Now that's something I really try not to do........lol. All kidding aside, I really do have to do some hard work, like scrub my bathroom.....ugh!.....all that bending and stretching is something I put off and that's why it now needs scrubbing. I have seriously thought of getting someone in to do the heavy work for me as that really is what I find hard to do but then I feel guilty about the thought and just keep plodding along.
Every time a thought like that enters my head, I can hear my mother telling me not to be lazy.........mind you, she had someone doing her heavy work even when I was a kid......that is, when us kids weren't doing it. I learned how to clean a house at a very early age maybe that's why I hate doing it now.......oh well, right now I'm working hard on not getting it done..........lol
Have a good day all!
Love n hugs. Chrissy0 -
Hi Annette, I am fine. I am back to doing pretty much everything I was doing before.
I have kept up with what has been going on, but truth be known, I feel bad coming here and saying how well I am when I see what is happening with you girls here. I certainly isn't that I don't care and don't think about you all.
I am just so sorry that Angela has this to contend with now, and Annette, you've had a bugger of a run too. I do hope that your "double ended, picture show" is clear too.
I went to a BCNA Forum last week to hear about the newest research and what may be on the horizon in the way of new meds and changes in protocol.
It was a really interesting day, I learned heaps, and got to speak to some of the speakers. Raelene Boyle was the first speaker, she didn't pull any punches. Her story of BC and then 2 bouts of Ovarian Cancer, all batlled with the media camped outside her door was not a pleasant journey.
There were 200 women there, most either living with BC or fairly newly diagnosed and treated, like me. They were all from the Gippsland region. Question time was amazing, but not long enough. There was a young woman speaker, who is an Oncologist and her presentation was riveting. Spoken in layman terms, by a woman who is passionate about her job. Hers was very much a message of hope for the future. She spoke of new drugs coming that will work in conjunction with the ones that are working now. How Radiation treatment for early cancers will be lowered to 3 weeks instead of the 6 weeks that is standard now.
I know many aren't interested in the whole "Pink" thing, and I do see why, but these forums are held all over Australia by BCNA. If anyone is interested, take a look at their website. I met some amazing women, I went with the group who welcomed me when I was first diagnosed. We have become firm friends, and I am helping them out with their monthly meetings.
Love to all of you....Moira
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We're back - so sorry to hear the news Angela - I hate bloody breast cancer.
(((((((((((((((Angela)))))))))))))
Had a great trip - did not do all of the riding - it was ridiculous - all gravel - I stopped after the first 3 days and didn't do all of it on those days either. I started getting pains in my neck and arms from the constant jarring - I can't believe anyone pays to do it. Loved the following 2 weeks though, but I love the Nth Island more than the Sth Island - I did however fall in love with Akaroa.
I did manage the winery tour by bike in Blenheim - 24 kms or so. There was an incentive though - lovely wines to taste
Will post photos tomorrow - got to get dinner on - now I nkow why I love holidays.
Sue
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Hi there, Moira, that must of been very interesting to listen to, but also emotional at some points, i am sukky bubba, even hubby is, he cries watching tv, when it is sad or happy, he said, you married a suk. i said, no i married a man with feelings for other people. we lay there watching the tv, both crying trying to hide it and then we both say, what are you crying for, i not, he said, neither am i, tears flowing down his face. But it would of been very interesting that meeting.
Suzie, glad you back home safe and well, lots of people say, welcome to nz when you go to,the sth island, i think the north is just as good. yes cooking ??? ok if you know what to cook, i say to hubby, what do you want for tea, I DON"T KNOW. surprise me. he is not hard to please though.
Chrissy, i cleaned my pantry and fridge out today, its good when i do as the pigs get all the food that i throw out, so not wasted, i was not planning to do the fridge, but something had leaked, ewww and made a hell of mess, so i was forced really to do it, glad its done tho, more room. bending down, is hard and it would have to be on the bottom part, it was sweet and sour sauce, lid came off, bugger. and then well the pantry got some attention, i am going to dishes shortly, i was going to have meat rissoles, but i had no onion, so will do that tomorrow night.
well better go and do the dishes, have a good evening ladies.
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Hi Midnight - leg of lamb for dinner - how much a kilo is it over there? I was told it cost $50 a leg. I didn't get a chance to check out the price in the supermarket. It was on special here today for $9 a kilo - great big one for $26 - lots of cold week for the coming week.
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Annette I did get off my keister and make a start I the bathroom.....lol......I got most of it done, just the floor left but I'm pooped so that can wait. Going to make chicken curry with Singapore noodles for tea.......something easy and tasty......besides, I get to have the left over for my lunch tomorrow so I reckon that's a good deal.
Suzieq nice to see you back and posting......we missed you! I've never been to the Sth Island so can't compare but what I saw of the Nth (not a lot...lol) I really loved and want to see more. One of these days I'll talk DD into doing some travelling with me before it all gets too hard. Mmm lamb roast......yummm. My niece calls that a Tom Cruise dinner.....lol.
Well if I'm going to get some food I'd best move.
Love n hugs girls! Chrissy0 -
Suzie, i am not sure as we kill our own sheep for meat, but we did look at chops one day and they were forty bucks for 12, disgustitating.
Chrissy, enjoy your dinner, glad you got yr bathroom done, i will attack mine tomorrow. nite nite ladies love from me
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Welcome back Suzie & glad you enjoyed your holiday.....once you ditched the damn bikes!! Doesn't take long for reality to set in & the cooking & cleaning begins!!
Nice to hear from you Moira & your BCNA Forum sounds very interesting. Everyone's story is so different.....
All this cleaning going on is making me feel a bit lazy...I'm sitting in my patio having a nice cold G&T & my daughter is cooking dinner tonight!! Hubby took me out for a lovely lunch & shopping ........got a nice new pair of shoes...:)
Oh well, might as well enjoy...:)
Hope everyone has a nice evening.
Karen x0
