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  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2013

    Have  a wonderful trip Karen and holiday and a good rest.  enjoy every moment. take care,  lots of hugs XX

  • Australia
    Australia Member Posts: 128
    edited March 2013

    Yes, have the most wonderful trip! I am envious as I was having a holiday to cairns also but put off due o bad weather and now we can't go as son is flat chat t uni. Oh well, hopefully soon. Will love to hear where you stayed and what you did.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    Karen I didn't realise you lost your son at 23. I also lost mine at the same age and he would have turned 36 last August. What is it with boys and the age 23? I seem to hear a lot going at that age.



    Have fun in Cairns! If I go I usually try to go there mid year when the weather is just a bit cooler........all my DHs family is there and we lived there for fifteen years before moving back to SA where we were originally from. I really missed the four seasons as up there you just get hot and hotter and wet.........lol.......give me cold anyday!



    Enjoy your time alone with your DH and come back refreshed and ready for the next battle.



    Aussie hoping you are feeling a bit stronger and Angela hope you are doing okay as well.



    Can we start organising the get together? I know it's early but if we can get a date sorted soon we can start to try and save a few $ with getting our air fares booked. I've seen some advertised as low as $69 one way lately........just a thought.



    I'm not going to hydro today.......I've had a mouth full of ulcers for the last week and to tell the truth they are really getting me down at the moment so don't quite feel my bubbly self. I know this is nothing compared to some but I'm so over these things as I never seem to be totally free of the darn things. For me they are the way my body handles stress but when they are all down the side of your tongue......ouch!

    Going to make a cup of tea hopefully it won't have to go cold before I can drink it.......lol.



    Love n hugs to all. Chrissy

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2013

    Chrissy, you must be feeling pretty uncomfortable with Ulcers, they are horrible things, you are run  down Chrissy, that is usually a sign and  not enough sleep, like i should talk. But they are very painful and i feel for you. I heard that happens in Chemo  as well, ulcers. I hope you get some relief from them and how is yr Breathing, you had an issue with that, is that any better, a trip to the Doc for you to i think.  I really hope you feel better and yes they get you down alright, one does, but a mouthful, not nice. Take care Chrissy.  and rest rest rest.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    Annette I always have breathing problems as I have COPD but of late there is a cough that won't quit and the sneezes that just about blow my head off. Yes, I know........lol.......next scheduled visit is only a couple of weeks away so I will bring up the subject .......lol.

    The ulcers are something that I've had all my life, even as a child and my grandsons have the same.......poor babies........but mine are caused by body stress. I just keep painting them with SM33 and rinsing my mouth with DiflamC, bicarb and water and anything else I can think of. The worst one is right at the back of my tongue at the edge of my throat........now that one hurts even with drinking water........ugh!!!!!!!

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2013

    Well Chrissy, i hope they won't last too much longer, not good and that one you mentioned, sounds really horrible.take care.  love annette

  • Angela-R
    Angela-R Member Posts: 109
    edited March 2013

    Ok ladies, time for the news.



    After a very long story I don't want to go thru again, I am in hospital with intense nerve pain and loss of movement in one leg and partial in the other. I have a massive tumour wrapped around my lower spinal column. Not operable. Start radiation tomorrow with aim to shrink it. Hope to reduce pain but may not return mobility. I am now dealing with the palliative care arm of my health service.



    I think I will not post any more, but may change my mind. I will read occasionally because I've come to care about you all but I need to focus on me and my family.



    So I send my love.



    Cheers,



    Angela xxx

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited March 2013

    Hi everyone,



    Hubby and I are sitting on a balcony in Eden on the south coast of NSW. We drove down from Sydney today and tomorrow will be driving from here to Rye on the Mornington Peninsula. Staying in a house down there with some good friends for Easter.



    We are by ourselves too. Kids have all stayed home to fend for themselves over the long weekend. Hubby is missing the kids like crazy already - me, not so much ;-)



    We are staying tonight in a building from the 1840's. A B&B with victorian furnishings (think high beds) and the bathroom is hidden behind a mirror!



    Have a lovely Easter everyone :-) (and edited to add extra thoughts for Angela...) Love Jenn

  • lolalee
    lolalee Member Posts: 164
    edited March 2013

    Angela, just want to say I am thinking of you and hope the radiation shrinks the tumour.  I know you are going through an awful ordeal and my heart and hope goes out to you.

    Love and best wishes Lola.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    Oh Angela.......Im so sorry you are facing this part of the journey so soon.  Of course you want and need to spend your time with your family and doing the best you can from day to day........just know that we love you and will be here anytime you need us. 

    Love n hugs to you with thoughts of strength and peace.   Chrissy

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited March 2013

    I missed Angela's message here (we posted at the exact same time) and just saw Angela's post on the brain mets thread...



    If you are reading this thread Angela, many gentle hugs from here. I hope the radiotherapy shrinks that lesion!



    Love Jenn

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    Jenn enjoy your time away with your DH.......you work so hard you truly deserve the break.

    Love n hugs.    Chrissy

  • Angela-R
    Angela-R Member Posts: 109
    edited March 2013

    Hi Jenn. It's ok, I saw we posted at the same moment.

    Have a lovely time away.

    Love Angela

  • aussie12
    aussie12 Member Posts: 421
    edited March 2013

    Hi all

    Angela I don't know what to say except to wish you good luck with your treatments, best wishes.

    Work sent me a hamper today with all sort of goodies in and some flowers, it's nice to know that they care.

    Have a good Easter everyone.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2013

    Oh Angela, I'm so sad to see your post.  You do need to concentrate on you and your family now, but know we are all with you and holding you in our hearts.  I'll be thinking of you every day sending warm ((((hugs)))) and gentle thoughts your way.  xoxoxoxo

    Jenn, enjoy your little holiday :-)

    Chrissy - book those fares, I'll be there too let me know what the dates are and I'll block them out in my diary.  I'll drive up and can pick you up from the airport and we'll find somewhere cheap to stay.  There are a few girls around the Sydney area so I'm sure we'll have a good get together.

    I hope everyone else is travelling well, I'm coming down with a cold virus :-(  There's been a few people at work with it and this time I've succumbed.  So I think my easter will be spent in bed for the most part.  

    Love to you all


    Trish

    xoxox

  • kyliet
    kyliet Member Posts: 587
    edited March 2013

    Angela, wishing you and your family love and strength. My thoughts will be with you all, sending love and gentle hugs. Kylie x

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2013

    Dear Angela, I haven't been posting here for a while, but I have kept up with the Aussie thread.

    I was so sorry to read your post last night. I wish you love, hope and strength for your treatment ahead. Gather your family close, and know that we are all thinking of you....Moira

  • mandymoo
    mandymoo Member Posts: 632
    edited March 2013

    Angela, my thoughts and prayers are with you. ((((((hugs)))))

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2013

    Good Morning everyone!

    The hot spell has finally broken, and I woke to "bucketing" rain this morning. It went from 38c yesterday to 16c this morning, and it is so dark I have the lights on to type this.

    I wonder if it is raining where you are Jenn. Eden was our first stop when we were looking for our new "life". It was beautiful, but much to hilly for Colin's wheelchair, and the driveways were terrifying if you wanted a good view. We worked our way down from there, and discovered Paynesville completely by accident. You'd have been very welcome to drop in if you'd been traveling the Princes Highway to Melbourne.

    Trish! That was quite a fall, I do hope all is well now, and the bruises are fading.

    I was so thrilled to hear of your amazing sale and purchase of your new home. How fortuitous to meet those people. I am not a believer in coincidences. I wish you all the best for the move. It's tough, so accept help when it is offered. I am speaking from experience here, This move was the hardest I have ever done, so glad we did it now, and didn't wait any longer.

    Annette, I love to read your posts, and am sorry I haven't been here to answer you. I thank you for keeping me in mind.

    Chrissy, and Karen, I am so sorry to hear of the loss of your boys at the same age. We lost our adopted boy two years ago, he was 36.

    I have been busy with a steam of visitors over the past month or so. After a big push, yesterday we finished the gardens, which has been a big job. I have found a retired couple who help with the heavy work, and they have done an amazing job.

    My daughter arrives for a few days tonight. I can't wait to see her, and I can't wait for her to see how well I am now. She was here right after my surgery, and hasn't seen me since.

    To everyone else that I have missed, I apologise, but wish everyone a safe and Happy Easter! Take care....Moira

         

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited March 2013

    Girls - when are you planning this get together in Sydney?

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited March 2013

    Angela, i almost wept reading yr post, i am so sorry this happened to you. yes devote the time to your family and most important yr self. As chrissy, says we all love you and care. take care.

    Chrissy, sorry, what was it you said, about bee stings, one little bugger stung me on the tummy, i can see the puncture marks, got enough going on with my  tum at the mo with out being stung on it, i can't remember which you said, to put on it. How is yr mouth today?

    Ariom(Moira) lovely to see you again. hope you ok. missed you.

    Jenn, enjoy yr self, you lucky lady,

    Ladies, have a super easter and keep safe those who are on breaks and going away.

    And a big extra hug to Karen and Angela and anybody who is having a hard time.

    Trish, take care of that cold, you seem to be prone to these colds, i notice you get them often, or am i getting mixed with someone else. You have a rough spin lately as well with that other incident just recently.  hugs

  • Kate60
    Kate60 Member Posts: 523
    edited March 2013

    Angela, I am so very sorry and I send hugs to you too. Love Kate x

  • Kate60
    Kate60 Member Posts: 523
    edited March 2013

    Hi everyone. I'll try to get to Sydney too. Trisha, could I hitch a ride back to Canberra with you? I would like to spend some time with friends there before coming home. I can't promise that I will definitely get there as I will need to fit it in with Paul being back here on his break (to look after the hounds). I guess I won't be able to work it out until he gets his rosters but I'm sure we can work something out.

    Sadly, my friend here Nga has got BC. She rang me yesterday. She moved over here end of last year from Sydney. She had had a biopsy last June and Dr said it was Benign. Unfortunately that is not the case, as was found from the lumpectomy. She has to  now go back in for further surgery next Tuesday to clear the margins and also do sentinal node extraction, which the sugeon didn't do this week because based on previous Dr's dx, it was just to remove an enlarged cyst.

    I am seeing her today and also taking her my spare package of material sent to me from BCNA with all the information. I was sent two packs for some reason. She was told it is Grade 1 and she will only need radiation. I have already alerted her that things can change in an instant and to basically expect the unexpected. Would be good though if Rads is all she has to have. Oh and she will be on hormone blockers too.

    I'm wondering if I have some sort of kidney problem. I have this terrible constant stitch deep in the middle of my back but not on the spine, and then I get sort of an intense ache with a cramp sensation. It has been driving me mad as the only relief I can get from it (especially the stitch pain) is to sit really straight and push my hand into the spot. It is worse when I am upright walking around. It has only been for the last 48 hours so will leave it a bit longer before forking out to see a Doc. I am not unwell from it and urine is clear. It's just annoying and constant.

    Not much other news from me. It was a huge relief not to have to go into work this week. Paul comes back from Perth this afternoon for Easter then back up to Perth on Tuesday morning. I will go with him to be there on our anniversary.

    Lots of love to everyone. xxx

  • lolalee
    lolalee Member Posts: 164
    edited March 2013

    Hi girls, count me in for Sydney, hopefully I will not be working out of town, should know schedule soon.

    Annette, your question about Japanese cheesecake - not sure of the ingredients as I have only ever had them from a bakery.  They are made without the usual biscuit crust, the cheese is beaten until really light and fluffy, almost a mousse or souffle consistency, very light and melts in your mouth.  It is baked and keeps its shape when cutting, I could eat the whole cake in one sitting so only buy it when I have company so I am not tempted.

    Hope everyone has a great Easter break.  We are going to Queensland so hope there is no rain.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2013

    Sue we haven't set a date - just "early December" sometime. Similar to last year I guess, but it will depend on when Chrissy can get cheap airfares, Kate can get over etc. I'm pretty flexible :-)

    Annette I haven't had a cold for a while now - last one I remember was June last year :-) I don't normally get them, but sometimes I can have a run on them lol

    Kate - of course you can hitch a ride with me - anytime :-)  If you need a bed in Canberra I'll have a spare one.

    Lolalee it would be good to meet you - let us know when you know your schedule. 

    Hmm ... seems this might happen, I'll start a Sydney get together thread and we can put our schedules on there.

    Trish

    xoxo

  • Alyson
    Alyson Member Posts: 3,737
    edited March 2013

    Hi all

    Once you know dates for Sydney I will certainly try to get over to meet up.

    Its me with a chest infection and asthma today. Just got no energy today so have done nothing. chest is so sore.

    Big hugs.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    If its more convenient for everyone, the last weekend in November will be best for me. We need to decide the date first then everything else will begin to fall into place. Hope I'm not being pushy here, but DH was offered a paid air fare from one of his friends who wont be using it all I have to do is pay for the change of name on the ticket and the date but I need that date settled by Tuesday if possible as that is the last day before the ticket runs out.

    The numbers are growing.....woohoo!........gonna be a fine howdy doody in ole Sydney town!........lol.

    Aly, please take care of yourself and make sure that infection doesnt turn into pneumonia.

    Have a great Easter all!

    Love n hugs.    Chrissy

  • kyliet
    kyliet Member Posts: 587
    edited March 2013

    Chrissy any date is fine by me. It would be lovely to meet you and any savings for you would be wonderful.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited March 2013

    Okay, I'll put it out there.....lol......how about arrive Friday 29th November through to Sunday 1st December?  There now, we have something to work on......lol

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited March 2013

    Sounds good to me :-)

    I'll have to make it up to DH though 30 November is his birthday lol - but he's not big on birthdays.

    Trish

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