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  • Kazzie61
    Kazzie61 Member Posts: 418
    edited June 2013

    Good to hear its nothing too serious Kate but sorry to hear you have one north facing & one south facing boob.....lol. Take care x



    It's been pretty quiet on here, can only assume everyone is busy getting on with their lives...



    So I may as well give everyone something to read with my woes......



    First of all I've lifted a heavy crate (not once but twice) & have done some harm to my back.....wondering if its a pathological fracture, not much can be done if it is, just take it easy & NO lifting...lol



    Second, & this might sound petty to some, my hubby was talking to his parents on the weekend (they live over east) & they asked if they could come over when 'Karen's time comes'!!!! They meant when I'm in hospice at the very end, obviously at the saying goodbye stage & it's had a major impact on me emotionally. I've gone into a very sad place & all I can think about is when that time does come. It might seem silly, but we choose not to talk about that stage until we know its getting closer, we prefer to concentrate on now & living. I don't blame them for anything, they don't get what it's like to go through this & I know that they meant no harm!



    It also hit me that everyone is thinking about my passing.......which is pretty stupid coz of course they are, I do..



    Anyway, I've been pretty down in the dumps all week & living like a hermit! Even cancelled my regular Friday lunch with my sister.... Not sure how to get myself out of it....I guess I just have to ride it out.



    Thanks for listener girls & I don't wanna put anyone on a downer but who else is gonna listen??



    Take care all.



    Karen x

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Oh Karen

    You poor thing, I don't know how I'd take that either, sending you big warm (((((hugs))))  And you naughty girl!! Lifting??!!  Really!!??

    I have no idea how to cheer you up - but going out with your sister may have been the best thing for you, as you said yourself - you need to live now, and enjoy what you have now.  That other place may still be a great many years away.  Wish I could just turn up at your place and make you a nice cuppa and sit and have a chat.  Know I'm thinking of you sweetie.

    Kate - not great news about your breast, but I am looking forward to see them - one pointing north and one pointing south should make interesting viewing lol - along with Jenn's new breasts :-)

    Trish

    xoxo

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Ladies,

    Check out the Sydney get together  thread - I've put down all the people I think are coming, but need some clarification.

    Trish

    xoxo

  • chrissyb
    chrissyb Member Posts: 11,438
    edited June 2013

    Oh poo Karen! I sure hope you haven't broken anything! You're a naughty girl for lifting but I do understand about the 'just get it done' thing as I do the same sort of things and then pay the piper later.........all the same you really should not lift especially heavy things.



    (((((((Hugs))))))) I know we all want to avoid the thoughts of what will happen at the end and concentrate on the living and now but I could spank your parents in law for asking that right now. I know they were just trying to plan but I'm sure they didn't think how the question would effect you.

    Don't be doing the hibernation thing, you still need to try and put that behind you and enjoy your days........there will be enough time later to hibernate. Go out with your sister and friends for your coffees and your dinners and do try not to obsess because of others insesitivities.



    Kate, oh my, what a funny picture you paint of yourself! My imagination is running wild!.......lol. It's not funny, far from it and just another of the things that go with this disease that just keeps coming up with new things in order to remind us of the fact that it was with you.



    Roll on November! We all need this get together ASAP ........we need to share hugs and laughs.



    Love n hugs to all. Chrissy

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited June 2013

    Karen, this life is  for living and i think it is abit distasteful that you are being reminded of passing on, you may have more years than they do, nobody really knows, they can estimate, but nobody knows.  so go and enjoy yr sister and yr outings and try not to let comments get you down, easier said than done i know and i am not in  yr position, but i really do think that you don't waste a minute, you go girl, you sweet lady, take life and give it all you have, you have some good reports of late, not all down, so just enjoy and eat yummy food when you go out and don't even give it a thought, celebrate.

    I went to the gym class, well the diabetic gym, shit i am unfit, lol, i plan to change that, my bsl was 7.4,  they take my BP heaps and did an ecg to see what my heart could handle with the exersise bike,  but i am stiff as a poker. Gosh its quite embarrasing, i go for the next twelve weeks, i might be able to get into that dam truck with out hubby shoving me in from the rear, what  makes it worse, they have tons of crap where i need to put my feet in the truck and that makes it awkward to climb in, but i will get in that dam truck soon without a hassel, good night and bless you all, i  am nackered.

    Dx 8/12/2011, IDC, 1cm, Stage Ia, Grade 3, ER+/PR+, HER2-Surgery 08/31/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 10/10/2011 ExternalHormonal Therapy 11/23/2011 Tamoxifen

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited June 2013

    Ahhh Karen... IN-LAWS!!!!!!



    None of us have our use-by date stamped on us anywhere, and you are doing well and may continue to do well.



    My in-laws are staying from NZ for a week. My MIL presented me with a pink ribbon calendar last night. Each month has a picture of a naked body painted woman who has breast cancer. I thanked her nicely for her thoughts but declined to accept it. I nicely pointed out I have my own scars to look at each day and don't really need a reminder publically on the wall of my home. IN-LAWS!!!!!



    Had our daughter's uni graduation today. I'll put a photo in our Aussie Facebook page.



    Jenn

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited June 2013

    Jenn, can you put one in this as well of your daughter, would love to see it but not in yr face book page, love seeing things like that.

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited June 2013

    Here is one I tweeted. See if this link works... http://flip.it/qv2iG



    Jenn

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited June 2013

    thanks jenn, yes it did and its a lovely photo.  lovely picture. thankyou for doing that/ hugs xx

  • mandymoo
    mandymoo Member Posts: 632
    edited June 2013

    Karen (((hugs))). I remember when I first contacted everyone on this thread and that was when I was also at my lowest, as I had just come out of hospital with a Pleural Effusion and diagnosed with mets to the liver, lungs, and brain and I was told to get everything "in order". Now my tumour markers have gone down lots and the cancer is shrinking. I know that it will come back again with a vengeance, but I hope that it wont get me down.   I am sure that you will get over this (I hope you do). Can you speak to your Breast Care nurse? orGP? We all have to go sooner or later, but we never know. You may live for a very long time... Pick yourself up when you can and do the things that you enjoy to take your mind off things. Your mind is a powerful tool with your overall health, so I hope that you can overcome this soon.  

  • Kazzie61
    Kazzie61 Member Posts: 418
    edited June 2013

    Thanks to all you lovely ladies for you kind words of encouragement....I knew I just had to post on here & you would cheer me up....



    I took all your advice & did go to lunch & shopping with my sister & actually had a nice day!! She turned up with flowers...she is very sweet & supportive.



    Yes Jen....IN LAWS,!! I know they didn't mean for it to effect me the way it did but I still think it was insensitive. Just as your mother in law didn't mean to hurt you but yes, quite insensitive!! I don't think any of us need any reminders of what we've been/are going through. How did your mother in law take it when you refused her 'gift'??



    I know Chrissy....as soon as I lifted the crate I knew I shouldn't have!! I will see how I go over the weekend, if its no better by Monday I will go see me GP - & I'm sure she'll say the same as you did & tell me I'm a naughty girl!!



    Mandy....I know exactly what you are saying, none of us know our use by date & mine isn't coming up just yet. You're doing so well girl, that gives me hope too xx



    Annette.....thanks also for your very sweet words (((hugs))). You sure do tell some funny stories & I'm sure you'll be fit as a fiddle in no time.



    And last but not least, dear Trish....it was your words that first shook me out of my self pity & made me decide to snap out of it & called my sister. She said to tell you're a very clever lady & thank you!! X



    Hoping everyone has a lovely weekend & thanks again.



    Karen xxx

  • aussie12
    aussie12 Member Posts: 421
    edited June 2013

    Hi all

    Glad to hear that your feeling better Karen. I'd be like you Annette, I have never excersiced my whole life so I would be stuffed after any amount of workout.

    There's some good news from another Breast Cancer website that I go on that is based in Perth. One of the ladies there had BC 7 years ago, aged 25. On Wed she had her first baby, a healthy boy, she didn't think that she could have kids after chemo. It's been so exciting for us all on the site.

    Have a great weekend all

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited June 2013

    Karen, it is a wonderful group here, we are very lucky to have the support of all these wonderful ladies....thanks Trish for starting it!





  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Oh Karen, your post has lifted me today, I was worried for you. I'm so glad you went out with your sister, and that you had a good time.



    While we lower stages have no real idea how you stage iv girls deal with life, we have all gone through the horror of bc, and this little group has become so close, I feel you are all my "real" sisters and best friends and love you all. We share a very real bond, and are always here for each other.



    I'm hoping that when we get closer to November you will be able to get to Sydney - but know you can't decide on that yet :-)



    Well I've been out and spent even more money, buying an oven, hot plates and dishwasher. Spending money is good for the soul lol.



    Trish

  • mandymoo
    mandymoo Member Posts: 632
    edited June 2013

    Karen, you are one tough cookie (and smart). I am glad that you went out with your sister. Keep moving forward. I know sometimes that we fall down, but we have to get right back up again as soon as possible. You go girl!!! This website is a great place to vent, and we are all in here together. 

    Trish, thank you for organising the Sydney get together, as I am so looking forward to it. By the way, I remember when I was stage 3b for 5 years and I think that is just as bad as knowing that you are stage 4. It still feels like Russian Roulette, no matter what stage you are at. That is my opinion anyway. xx

  • kyliet
    kyliet Member Posts: 587
    edited June 2013

    Karen, the other ladies have expressed it so well. I know my FIL doesn't seem to realise that my hubby can brush off his comments because he has been hearing them all his life, but I don't find it so easy.

    Send big hugs to your daughter, Jenn. You must be so proud.

    Midnight, I can relate to your getting shoved up into the truck. My hubby took me for a drive during chemo so I could get out of the house. We were at the big truck area and he was trying to get me up there - I was bald, overweight and holding a pillow to support my breasts. All we could do was laugh, certainly were getting some strange looks.

    I met my Mum in Sydney yesterday and we went to the NSW quilt show. It was fantastic - a bit like walking in a giant kaleidescope with all the colours. I was thinking how amazing you are Chrissy, the lace work was incredible and 5 hours flew by.

  • Alyson
    Alyson Member Posts: 3,737
    edited June 2013

    Hi all

    It's been a hard day with the family leaving yesterday. I was fine all day , helped pack up then repack bags at the airport as they were over weight, the guy on the desk was being extremely officious. Laughed as we saw them off. But today is another story. I can't stop crying. I will miss DD so much as she has been my absolute rock or as I said my whirlwind.

    I know its not long until I see them but its just not the same.

    My brother and SiL are here and could do without them, everyone is trying to be helpful but just annoy me. Trouble is whenever the older siblings are together I get treated like a child.

    Sorry about the whinge. And my LE is playing up as is the RA.

    I need the hugs today but sending hugs to everyone.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited June 2013

    (((((((((Aly)))))))))). Wish I could be there to give them for real.

  • mandymoo
    mandymoo Member Posts: 632
    edited June 2013

    ((((Aly))))) Nice to hear from you. xxx

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Aly ((((((((hugs)))))) wish I was clever like you and send a pretty picture with the hug, but just imagine it's there :-)



    Trish

    xoxo

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited June 2013

    OH MY, i just wrote a post and went to post and it said, connection problem, well nothing was out to show that and i lost the whole post, bummer. so i will re- write.

    Aly, am very sorry you are down.  I do hope you feel better soon, does make you feel really flat after people go. sending you big hugs. lol hope yr LE settles down too. OXOX

    Kylie, some times i look around to see who is watching and some times he will just shove me up there, but they have webbing straps and junk on the floor and there is not much feet room when i have to twist around in seat, it was the tyre jack other day. but it is a nice day out and can see alot from higher up getting out of house is nice too, i agree with you, but i am always glad to get home to.

    Trish. talk about spending money, lucky mine was a dream, or i would be in trouble right now, we have mums 80th in sept 28th and i dreampt i had brought an outfit costing 12 and a half grand and then i went to jeweler and spend 5 grand on a diamond pendant, i told the shop keeper,  my hubby is going to kill me. the dress was gold and the shoes were too. I told him this morning and he said, well when you finish wearing it that day, its going on trade me and get our money back,  he said, you think you are cinderella going to the ball. i said, its more of that nobodys has seen me for so long and i am showing off. lol he  just laughed  and shook his head. Mum's party is that day, but i better look for something abit cheaper to wear lol.

    well i need to get washing done, so better sort it, hubby is out at farm sorting out the pigs, one of them has farrowed and nine little piggys, she did have ten, we have 5 more sows to farrow and then when they are abit bigger, will go to sale.  we brought some pigs off a pig farmer who had a farm bike accident and can no longer cope with all the pigs he has, so we will get our money back on them. so hubby is getting shelters made for them today, for when they farrow. these ones were born about an hour ago. see you later ladies.

    Aly, big hugs, am with you. xo

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited June 2013

    Aly, hugs back!



    Annette, so what did you outfit look like??? ....and gold too....what fun!!!!

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited June 2013

    very elegant lol, it was gold glitter,  hubby is always saying i am a princess. have to keep up my image you know lol, the shoes i will have to learn to walk in. i could end up very embarrased lol. when i kiss the floor,or at least look like i have not wet my pants  lol.its  very nice thankyou, can't wait to wear it. lol.  lucky that are  dreams are free.

  • Kate60
    Kate60 Member Posts: 523
    edited June 2013

    (((((HUGE CUDDLE))))) Aly. I know it must be tough for you. You're torn with excitement for them, but sadness for the distance and what that means for you. Thank goodness for skype and email etc. It's not the same of course but it all helps make the world a lot smaller for everyone to maintain contact.

    Love Kate xxxx

  • Alyson
    Alyson Member Posts: 3,737
    edited June 2013

    Family are safely in Ontario which is great. I am so grateful for skype etc because we can see the people. I do a lot of genealogy and the other day thought about all the parents left behind and they knew thery were unlikely ever to see their young ones again and for some they never heard from them either. It must have been so hard. Letters took months to reach folks and by then news could be terribly out of date. We are so lucky we will be there in less than 3 months but  I will miss DD a lot because as I told her she has been an absolute rock over the last few years, then I said well not a rock a whirl wind that blows through the place and keeps me going. She is a small vivacious red head, get the picture.

    DD and I can send gmail messages for free which is also great.

    Have had a busy day shopping with my sister and SiL, really tired now but must think about dinner.

    Big hugs to all

  • stressmagnet
    stressmagnet Member Posts: 4
    edited June 2013

    Hi,

    I'm pushing in here to say that I've lurked a lot over the past 5 years, but post rarely. But it's great to see the support on here and whilst I'm quiet, I AM reading and enjoying your posts.

    Best wishes to all.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Hello Stressmagnet

    Feel free to push in here anytime you want :-) You've had a lot going on in the past five years! If you have anything you want to vent, rant, cry, laugh or just share, feel free to do it here.  We do support eachother in pretty much everything bc related or not.  Hope you'll join in more xoxo

    I have exciting news ....  I finally ordered my new kitchen! Yay!  It should be fitted in around 5-6 weeks.  It's nice to finally be at the stage where it's getting done.

    Apart from that, not a lot of news, except there's a pea soup fog outside and it's minus 1 and they are predicting minus 5 by Friday morning.  

    Trish

    xoxo

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Oh - just read about this on another thread, it sounds really promising:

    http://www.sciencedaily.com/releases/2013/06/130615152341.htm

    It's about an osteoporosis drug that stops the growth of breast cancer cells, even those that have developed resistance to Tamoxifen and AI's

    Trish

  • [Deleted User]
    [Deleted User] Member Posts: 814
    edited June 2013

    Hi Trisha, Im a NZ girl, and I just want to say thankyou for posting this most interesting link. This looks very promising. This drug bazedoxifene is already "approved in Europe to treat osteoporosis"I wonder how long it will take to become available to Oz and NZ.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited June 2013

    Hi Musical

    Yes - I thought it was most interesting, especially for those of us who have bone problems from taking an AI - as well as those whose bc has become resistant to AI's and Tamoxifen.

    Hopefully we'll see it soon.  Not sure how reactive Oz is when it comes to trying new drugs and treatments :-)

    Trish

    xoxo

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