Australian Sisters
Comments
-
Hi everyone,
I'm back from the conference and had such a busy day at work today. I have my appt with my new onc tomorrow morning.
On Friday I am taking the afternoon off to take our Rachael to the funeral of one of her friends. Rach has Down Syndrome and one of the other young women at the program she goes to during the week was killed in a house fire here in Sydney last week. It will be so sad.
Then we are off on Sunday to Auckland. I really want to catch up with Allyson for a cuppa - will PM you! I haven't forgotten.
Jenn0 -
Jenn, goodluck with your appointment tommorrow. So sorry to hear ab0ut Rachael's friend, sad indeed.
Hope you have a good time in Auckland and please give Aly a hug from me.
Love n hugs. Chrissy
0 -
Wow, I've been away for awhile and it has taken me quite some time o get back up to date.....
Racy, I don't think about cancer every day but I am an unusually positive person (I even annoy myself sometimes with seeing the silver lining in every cloud)..... I didn't have chemo and I did pay for the Oncotype test but was it worth it?? Not sure, apparently many people are in the "grey" area and even though I was low borderline it is no guarantee. Cancer is a very unpredictable foe.... I think the thought of losing my hair was my greatest fear. Not losing the hair itself but the thought that everyone would know something was wrong with me...silly really....I think the cold caps have mixed success from people I've spoken to....
Trish, I voted for the wedding :-) You took some beautiful photos.....
Karen, I've wanted to go to The Loose Box for a very long time....I'm glad you enjoyed it and I'll keep dreaming about getting there one day...
Alyson, you must be very proud of your daughter, what a wonderful achievement!
Chrissy, your cake sounded divine.....since being diagnosed I've almost given up wine and refound chocolate....yum!
Jenn, I can symphathise with being surrounded and never getting away from the diagnosis....until today I worked with a company selling mammography equipment....it was probably the thing that led me to have the test that led to my diagnosis (perhaps it saved my life?) but afterwards it was a constant reminder until I got it under control or so I think (Racy, maybe I do think about cancer everyday!)
Anyway, today my position was made redundant :-( but I do get away from mammography everyday (see the silver lining)
I am also getting the result of my ultrasound tomorrow....I had a diffuse spot on the spine in my bone scan so I needed an MRI...it showed that the spine was OK but there was something near my spleen, so I had an ultrasound and they found two somethings ( even I'm finding it hard to see a silver lining in this one)
Best wishes to everyone....0 -
Hi all
I haven't been at work all week, I got a bad flu on Saturday afternoon and went to Doctor's on Tuesday. I also had high blood pressure and went back today and it was all right. They think it's because I was taking Codral medicine, I never knew that codral could give you high blood pressure. Will go back to work for 1 day on Friday, wish I could do it every week!!!
I got a letter today from hospital to say I've got an appointment on 19/8 in Plastic Surgery Clinic, hopefully might know when implant surgery will be after seeing Surgeon.
Jenn I saw on the news about that fire, very sad.
0 -
Tammy. nice to see you. So sorry that your job has been made redunant but maybe that is a good thing.....you never know. Also keeping my fingers crossed that the 'somethings' are really nothing......it's hard waiting for results.
Yay Aussie! that exchange is getting closer and closer.......so excited for you!
Well I' up early to finish the last litre of cleanse for the colonoscopy......I'm so glad it's only a litre and not three like yesterday. I guess the benefit is I will have a nice spring cleaned system........lol. I let you know what results if any.
Have a great day all!
Love n hugs. Chrissy
0 -
Tammy what a bummer being made redundant! I'm keeping everything crossed for your "somethings".
Chrissy - girl I forgot you were having your colonoscopy. That cleansing is really something else isn't it! I found that the last lot of stuff (that you have to drink the most of) was pretty yucky tasting. Hope today goes well for you xoxo
It's been pretty wet here in Canberra the past few days - but yesterday it got to an unbelievable 17 degrees. And that's not all - today is supposed to get to 18! Unreal! Normally July and August we count ourselves lucky if we get past 10 degrees. Mind you the weekend will have everything come crashing down with Saturday not predicted to get above 7 degrees and Sunday I think is 8 degrees.
Trish
xoxo
0 -
Trish the drink I've been given is the same as yesterdays.......I just had to get four pkts and mix them with water. I must say it's not bad tasting.......sort of like a flat soda water as I can surelt taste the mineral salts in it.
The bodily reaction to yesterdays 3 litres was definitely something else again! Thanl goodness this doesn't happen very often.
For the last two days here in Adelaide its been around the 18 degree mark but that cloud burst last night as it poured! Thought it was going to come through the roof it was so heavy.......lol. Temp at the moment is 12 not sure if its supposed to go much higher. Oh well, for most of it I won't know a thing.
Love n hugs. Chrissy
0 -
Chrissy....Good luck with your procedure today, will be thinking of you.
Jenn....so sad about your daughters friend. I hope Rachael copes ok...or as well as one can cope in such a sad situation.
Have fun in New Zealand & I hope your mum doesn't give you too much grief...lol
Tammy.....unfortunately the Loose Box is closing at the end of this month! He has apparently been trying to sell it without success & has decided to close the doors. It is still on the market so hopefully someone equally talented will buy it & have it up & running again.....it is beautiful
🌺🌹🌻
So sorry to hear about your job....hopefully as one door closes another opens.....
And please let us know the results of your ultrasound.....thinking of you xxx
Annette....so sorry to hear you are sick again, you have such a bad run lately (((hugs)))
Well I got some lovely news on Monday....I am going to be a grandma!! It's early days yet, my daughter is only 6 weeks pregnant but she is healthy & well so I see no reason why it shouldn't all run smoothly. I've had a very emotional few days, I've been thinking I'm not going to see this baby that I am already madly in love with grow up. I've had my 'feel sorry for myself' time & am now concentrating on the joy & excitement of it all! My will to live has gone up & peg or 2 (not that I didn't have any will to live before) & I can't wait to go baby shopping!!! I don't want to just hang in there to see it born, I want to hug it, look after it & love it. I hate saying 'it' so we have decided since mum is called Nic (Nicole) & dad is Nick (Nicholas) we have Nic jnr.....so Nic, Nick & Nic jnr...lol. As all you grandmas will know, it is an incredibly exciting feeling filled with so much love & joy....:) 💖💞💜
((Hugs)))...Karen xxx0 -
Oh Karen!!! What wonderful news!!!! Yes and the excitement doesn't abate until the arrival......lol......congratulations to all of you!
A good memory thing to pass onto small grandchildren is a diary which tells your story from your perspective and you can include photographs so they 'see' you as well. Should the unthinkable happen and you don't get to see their sixth birthday it is a perfect way for the child to say 'I remember gran she was........'
I know just how your mind is running right now.......all the plans of what to buy etc.......definitely exciting!!!
Love n hugs. Chrissy
0 -
Karen that's just wonderful news. I'm so happy for you. I can imagine that something like this will certainly bouy you up a bit :-) You have so much to look forward to and enjoy, so just focus on those things. Let the dark side (I know you've been there too much lately) fade to the background a bit. Enjoy today - let tomorrow take care of itself. Easy for me to say I know, but if I'm saying it too clumsily, in my defense I'm saying it with much love xoxo
Well girls, I've been for an ultrasound today - and nothing unusual found, so any detectives out there - what do you think this might be. I've been having ovulation pains! I know - at my age and on AI's - it was not what I thought should be happening. So went to doc and he thought the same thing I did - perhaps there's a cyst on the ovary. Well there's nothing there, kidneys look fine too. The colonoscopy that I had in Dec rules out anything sinister to do with the bowel. I also haven't been feeling well the last month and a half or so. Nothing too specific - just feel like I'm on the verge of getting a cold, headachy and sniffly. Doc thinks he's figured that out though - I get a lot of allergies, and I've just moved into a "new to me" house. So we think it's just my body adjusting to all the different plants and furnishings etc. He's given me a nasal spray and I've been on it a week, and defenitely does seem to be helping.
The ultrasound was an internal one, which shocked the hell out of me. It's been so long since I've had a pelvic u/s I didn't realise that's what they do now. That was really, really uncomfortable. Not the insertion or having something inside me, but the pain in the ovary area was pretty awful. Anyone had one of these lately? Is that normal?
Apart from that I'm fine, just still headachy today. I've been pretty tired lately too, and this week having trouble sleeping. Hoping the aromasin hasn't suddenly decided to start giving me insomnia!
Trish
xoxo
0 -
Good news for me, the "somethings" appear to be just small simple fluid cysts and as I have no symptoms they don't need any treatment. So, I can go off to my holiday and just relax.....I need it!
Karen, congratulations!!! Shopping for babies is so much fun...enjoy!
Aussie, good to hear that things are moving along for you and you can see the light at the end of the tunnel....
Chrissy, I hope the colonoscopy goes well, who needs to visit a health farm for a body cleanse :-)
Trish, sorry that your ultrasound was so uncomfortable. I previously had an external ultrasound looking for ovarian cysts but I was told at the time that the back side of the ovary can't be seen so it is inconclusive. Perhaps the internal exam gives and all round view? I hope you start feeling better soon.....0 -
chrissy, i hope yr procedure went well today and you did not sufffer too much pain, i hated that, also hope it was clear.
Trish, i am sorry you felt the discomfort you felt today in yr US. not much fun, the things we go thru. glad its clear tho. do hope you feel better soon.
Karen, ver happy about yr news. you have something to look forward to, amoung the other stuff you go thru. real exciting stuff.
Jenn, how horrible to hear about Rachels friend. very very sad. i do hope Rachel will be ok. and i hope yr trip over the ditch will be great, at least you have Alyson to look forward to as well.
Tammy, great to see you.hope the results of your ultra sound are good to and sorry about yr job.
well better go, good night. xxxxx ladies
0 -
Annette, thanks for your thoughts, my results were good and I'm not worrying about a new job until I'm back from my holiday near the end of August.....
0 -
Congratulations Karen! what wonderful news for you! Baby shopping with your daughter will be very special.
Trish, I know exactly what you mean about the pain from that internal ultrasound. I was like a deer in the headlights when I discovered that was what I was having. It was ok till the operator said he was going to probe the ovary. It was really awful, he then told me that this was the same pain a guy would get from a hit to the testicles. Like I needed to know that! I really wanted to give him probe, just so he'd know what it felt like! LOL
0 -
Trish I feel for you girl! I had one a couple of years ago as I was having ovarian pain as well and after the US seemed to be none the wiser until I had another about twelve months later......turns out the pain was from the ovary shrivelling up like an old prune! That's the result of menopause and the AI.....go figure. Hope your is the same thing.
Well girls, procedure all done. Endoscopy showed gastritis but have no result on the colonoscopy yet as he could only get the camera in about two third and then there were apparently two sharp curves that he couldn't get past so once I came around he sent me straight down for whar he called a virtual colonoscopy done by CT. May I say, not very nice at all!!! they put a little tube up the butt and then pumped me full of air before taking the CT from the front and then from the back........well the end result after all that air was a couple of not so quiet, very unlady like FARTS!!!!! Luckily there was no smell involved as the bowel was completely empty....thank goodness!!!
I have to ring the Docs rooms in the morning to get an appointment to see him for all colonoscopy results......end result.....get it...end.....uhm.....the result is I still dont know so hopefully I can get to see him soon.
Have a good night all, I'm about to go stuff my face cause I'm starving!
Love n hugs. Chrissy
0 -
WOW. Everyone seems to be having tests...
I told my new onc about my spine and sternum pain and he has scheduled me a bone scan for the 29th when we get back from NZ. Hopefully I just have some more arthritic changes. As he said, better safe than sorry.
They were all so nice at the centre today, and so efficient! I even found they PAY ME mileage each time I go for a study appt (every 3 months). So I get $60 each time.
Congrats Karen on the baby news!
Sorry about the job Tammy :-/
Jenn0 -
Morning all, pleased to get on each time i have tried the site has been down
Great news Karen, babies are wonderful.
Tammy good news, I know how these things worry us.
Chrissie big hugs and pleased thats over. Hope you didn't eat too much.
Trish I have had a pelvis ultra sound - absolutely horrible. They found several cysts and a pouch of fluid in the fallopian tube and want me to have another to check. I told the doc that i would have another one if she has one because it was the worst test I have ever had and thats saying something. So I really do sympathise with anyone who has this done. Haven't had the repeat and said I would wait and will do a full cat scan because these problems have been seen before on a cat scan.
Talked to my babies this morning in Canada which was great as I miss them more than I thought I would. And its only a month till we see them.
Big hugs to all
0 -
Chrissy - thanks, I nearly sprayed the computer screen with my early cuppa lol. Glad your test is over, that second part sounded like a pain in the .. ummm ... you know what I mean lol. Hopefully after going through that you'll have some answers! I like your explanation of the ovary shrivelling up and causing the pain - it certainly makes sense to me. I'll put it to my doc when I see him.
Ariom - at least I had a lady operator - and she was lovely. She told me she would stop immediately if I felt I couldn't go on. I think females are better at doing these sorts of things as they know how we feel, having something foreign shoved up there - men don't have the same empathy!
Jenn - have a great holiday, give Aly a hug from us wont you?!
Tammy - great news from you too - enjoy your holiday too xoxo
Annette - thanks for your thoughts.
Aly - I'm amazed that you all have stories about pain when having the u/s and yet the operator didn't seem to think it was that normal. Maybe we ladies with bc and especially on AI's have even more in common.
It's bucketing down here in Canberra this morning, but still quite warm (for here anyway). That will all change this afternoon though when the arctic blast comes through. I don't have a lot on this weekend, apart from emptying the few things in my kitchen cupboards and moveing the fridge into the family room in preparation for the new kitchen. So a quiet weekend reading for me I think :-)
Trish
xoxox
0 -
OW Ariom, you poor lady, don't you feel like that sometimes we are a piece of meat that they are dealing with, probing us with those instruments. its dam painful what they do at times and then compared with testicles, i tell you if they did that to a mans testicles, they would get a meat sandwich right in the kisser.that is extremely painful for them and man ours aint much better and inside of us. i have not forgotten my colonoscopy, i am opting for a mri next time, not going for that pain again, or want a general anesthectic. God that was the pits, what i felt that day. I have never used the f word in anything out loud before in that situation. maybe underneath my breath when then they removed a polyup of the cervix once, but that was nothing like i felt that day.
Chrissy, i hope that second procedure was not too hard on you, yesterday
Trish, hope you feel better today and Aussie, i read somewhere,you have a flu. can;t find it where i read it, take care, keep warm.
0 -
lol that dam parrot is being verbally active today, his is name is Gronville, like the guy off .open all hours, found the email with his name, lol/ except he probably should of been called arkright. he is bossy. he just told grubby the other one with him. (Quickly, come on, I have not got ALL BLOODY DAY) lol, that is hubby's fault, he said, oh dear whopps, have to watch what i say around)that bird. Gosh he is a charcter, that parrot. have not heard him for a few days, but today it is all on.
0 -
Mmm don't get to see the GI joe until the 8th August.......bummer!. Apparently he took a couple of biopsies from the stomach and the bowel so really have no idea what is going on yet. The saving grace was that his nurse said if anything untoward should come back on all tests he would ring me.........still, not much satisfaction there. Oh well I will assume all is okay except for the gastritis and leave it at that until or unless tile otherwise.
I think I ate twice what I would normally last night but I did stop before I was uncomfortable.......lol........so didnt really make a pig of myself. Was awakened by DD saying goodbye as she and fiancé left for the airport at a quarter five this am.......she's off to LA for ten days.......should have gone with her. Anyway, here's me thinking I would just go right back to sleep........who was I trying to kid? Try about three hours later and so the upshot is I've have not long woken and it is 11.30am! Oh well at least I don't have to go anywhere in a hurry as I'm not supposed to drive until later this arvo and jolly good thing too.........lol.
Trish I can't wait to see that kitchen of yours once complete or even before if you can be bothered taking snaps of the progress.
Take it easy guys, I'm heading for the kitchen to raid the fridge and make up for not eating........hahahaha ha!
Love n hugs. Chrissy0 -
Chrissy, sorry to hear about the wait to see your gastro man...it's the pits...
Hope you're enjoying your post endoscopy food frenzy :-)0 -
Chrissy, assume that no news is good news.
0 -
Home again......finally! Just a tad cool when I got home like 8 degrees!......brrrrrrr! Not supposed to be much better for the whole weekend so I suppose that I'll just have to light the fire and stay in front of it.......such a hard thing to do but someone's got to do it and it might as well be me.......lol.
Tammy I hear you on the waiting thing.......when it comes to test results I'm one of those people that want to know yesterday! I guess I'm just gonna have to be patient on this one.......as I said earlier, I'm just going to think alls okay until told otherwise.
Need a cuppa so I'm off. Have a good night all!
Love n hugs. Chrissy0 -
chrissy, it is strange how, when we can't have food, because of something we have to to do, we actually think of nothing else, what we will indulge on once we are done and sometimes i can actually see what i am going to have, til i can almost imagine i am eating it, what would we do, if we were in one of these countries who had no food, or very limited. i shudder to think. the funny thing is that i never have the imagined food, i opt for something else, we are funny, speaking for myself of cause. hope you enjoy yr warm fire and really hope everything comes up clear.
Karen, how are you> hope you feeling better about things. Keep looking ahead to lovely happenings. thinking of you. xxx
0 -
Annette, I ended up going to bed really early with a book on the night of fasting as every second add on tele was about food!! Can you believe it?!!!!!......lol. I wasn't really hungry but yeah, the thoughts just kept going to the kitchen........lol.
It's definitely a fire day today......brrrrrr!.......the wind is ICY!!!! Stay warm all!
Love n hugs. Chrissy0 -
Hi girls been trying to catch up all night from your posts. Everyone is having tests! Racy I used to think about cancer a lot but I had a month before surgery (surgeon away) to research what to do . I did traditional chemo surgery plus alternative I am glad with the path I have taken . I think you have to look at all aspects of your life when diagnosed emotional diet exercise spiritual. Whatever happens we are all doing the best we can. Every now and then I experience some grief for my innocence that has gone every ache and pain ( you know this Jen) could be cancer but we are stong women we shrug it off and move on. Kazzie and Chrissy your posts never fail to amaze me how you are living your lives to the full love and hugs Delvzy
0 -
Hubby had to go to Hospital tonight, he cut his hand open, quite deep, tendons still in tact though, has 8 stitches, an argument with a boar,(pig) who got in with some sows and they were trying to get him thru to his quarters and hubby was holding a wooden pallet and this dam bore went thru and the pallet just sliced hubbys right through his palm and three fingers on right hand, BIL took him to Hospital, he is home now, with his hand all bandaged up and his antibiotics and he had to have a tetnus jab of cause, he hates needles.. he had three needles, two to numb the hand for stitches and abit more as it was not quite numb enough to put in stitches.so had his share. will get some detol tomorrow as he has to soak his hand, was abit muddy due to farm work. he going to be sore tomorow. i will give more pain relief soon. he was three hours, i was half expecting he could be kept in, but he came home, he was very happy about that. anyway bed now, been quite a night. love to all. xxxxxx
0 -
Oh Annette! Your poor hubby!! That hand sure is going to be sore for awhile and I doubt he will be doing any trucking for at least a week as well. Stitches in the hand are just awful!
Hi Delvzy! Hope you are doing okay with your day to day living. It's good that you are happy with the treatment path you chose that way there is no room for regrets.
I knew it was cold today, we got a high of 7! Last time I checked about an hour ago, it was 2. Guess its gonna be a frost tonight! Thank goodness for electric blankets to warm the bed.........lol.
Stay warm all!
Love n hugs. Chrissy0 -
Hi folks, it's been a while but I'm notoriously easily distracted.
Glad to read all the good news and hear from women who are still getting things done.
I'm still plodding along on Abraxane/Xeloda. Latest scans show no new lesions but no reduction either, so I'm off for an appointment Mon (tomorrow) with Dr. Fran Boyle to get a fresh perspective on my treatment. My counts aren't going up -- but they stubbornly won't go down either! And I'm so BORED doing chemo! I know there's no trials available for me, but I'm hoping once I get on her books, she will keep me in mind -- and it gives me anther doctor to email WITH weird and wonderful PubMed articles.
Wish me luck!
And best wishes back to allo f you -- what an inspiring bunch of women.0
