Australian Sisters
Comments
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Well done Racy & hi Carol....:) I know I've asked this before (chemo brain strikes again!!!!) but which part of Perth do you live in? Glad to hear you're feeling better....
Still sleeping for hours & hours.....tempted to get my scans before Xmas so I can see what's going on but on the other hand I don't want to spoil Xmas! I haven't told my family the tumour markers are up!!! Effing cancer......
Well, hope everyone has had a nice weekend.....it's been quiet on here.
(((Hugs)))
Karen xxx0 -
Annette
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hi all
had an interesting week. last week i got a call for a job interview for a job i thought i had a good chance of getting an administration position at uniting care wesley. felt really confident and the interview went well. They said by next monday I would know if i got to the next stage. A few hours after i got an email from the lady i had interviewed with saying while we enjoyed meeting you you were unsuccessful for the position. I thought wow how could they make a decision so quickly after I left. i was upset for a few hours but i thought they may have found someone great in an earlier interview and they may have already wanted to hire the other person before i got there.
oh well it wasnt the right job i guess. im thinking more companies will want to hire at the start of next year so Im thinking new year new opportunities! oh and new boobs too!!!!0 -
Hi all
Karen I live in Ellenbrook.
As my clue was Christmas it just reminded me that I hadn't done any Christmas shopping yet, since I've got this week off I better get started!!!
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Happy birthday Chrissy!
Carol - I read your post and was thinking "Mary" lol! Apparently my brain isn't working as well as Racy's
Karen - still sending you (((hugs)))) girl xoxo
Mel - sorry to hear you didn't get the job - keep trying though - the right one is just around the corner xoxo
I've been keeping track of what I'm eating, and how I'm feeling, and beginning to think I'm developing an intolerance to wheat. We had a morning tea at work on Friday morning for Movember, and there were lots of cake and biscuits etc and I ate more than I should have. I wasn't well at all in the afternoon, and all the symptoms I had while in Sydney were there big time. Saturday and Sunday I kept away from anything with wheat in it, and felt sooooo much better. Even the pain in my abdomen quietened down. Maybe it's as simple as that??
Had a very busy day on Saturday - with the two weddings. The two girls and the two boys were an absolute delight. I can't show you the boys and they wish to keep their privacy, but the girls are happy for their pictures to be displayed. I actually cried (almost sobbed) during their ceremony, it was so touching. They drove from Wagga (about 2.5 hours from here) for the ceremony, then they all drove back home for the reception.
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Trisha the photos are beautiful. I was thinking of you and you were part of a historic occasion! I think it is wonderful when people show their love regardless of their being not part of the " norm" .
Mel, I am sorry that you missed out on that job but I am sure that the right job will turn up soon x
Carol, I thought of Natalie lol.
Karen, enjoy your Christmas.... Sending you hugs.
Cheers
Mandy xx0 -
Hi all!!!!
I've been very bust these last few days, celebrating!........lol. I had a wonderful birthday and I want to thank you all for your birthday wishes.
Oh Melp I'm so sorry you didn't get that job but I'm sure you will find something soon. I know how disappointing it is when you hear you haven't been successful.
Karen I sure hope you are feeling better......Christmas and you new GS are just around the corner.......let the excitement build and hang in there!
Katie girl, I know you are reading. Hope you are managing to get your head around it all and you are feeling better.
Trish that wedding looks fabulous!! You can feel the love radiating from each of them......I do so hope they have a long happy life together.
It seems that many of us end up sensitive to gluten and you may be right about the upset that it can cause. It should have dawned on me but I thought you were aware, I'm sorry Trish for dropping the ball. The AI's, even though small can whack a huge punch to our digestive systems and create problems that were never there before and gluten sensitivity is one of them. I have spoken to and heard from many women who have suffered the same thing, changed their diet to almost gluten free (including yours truly) and found the difference amazing. I do eat a little but most of the time I eat fresh and gluten free........makes a huge difference to my comfort and energy levels. Here's hoping your troubles are as simple as that.
Carol, yes I knew so I didn't need to guess.........lol. Hope you are feeling way better now and healing well.
Mandy the beginning of another busy week for you? You are amazing the way you just keep going!
Jenn, a few days have passed and I see on FB that you are settling in well. Your balcony looks great and I can't wait to see it when the plants have all grown, it will look fabulous!
Hi to everyone else!
Love n hugs. Chrissy0 -
Lovely photos of the Sydney catch up, beautiful venue and women. Midnight, I want you yo get that issue with your wetting yourself before you get to the toilet. I really don't want to scare you, but that is one of the symptoms I had when diagnosed with secondaries and it's important not to pass these things off. I think that was the most disgusting thing that was said to humiliate your husband! Would be severely disciplined here for such a comment. Trish, lovely to hear your great news. Dear Karen, I had no idea your condition was so serious, it has really shocked me and I feel sad to think you feel this could be your last Christmas. Sending you a big hug and dearly hope you have more that you can look back on and say " what was I thinking!" Melp, so sorry you are still trying go find a job, it's so disheartening and soul destroying, I hope that special job is just around the corner. There are so many more to send good wishes to, forgive my lapse.
I was on afinitor/aromasin combo which was supposed to be the new miracle drug ($100 a tablet) but my onc has taken me off it as I have a toenail that has fallen off and tumor markers doubling every couple of weeks. I had a cat scan a month ago and looked pretty good but having another to see if they have missed something. On antibiotics which I hate as make me feel sick and so it goes lol. Been in bed for 4days as had Zometa on Thursday and all my bones are so sore, it really knocks me around. Hate the fact I have to always take all this toxic shit! Told I will probably start an oral chemo inn a couple of weeks, oh joy! On the happy front I have booked a 2 week cruise to NZ in February with my son, yay! Love Gail0 -
I thought Christmas Eve..
Gail, you are having a rough time, sending lots of hugs.
Mel sorry about the job x
Trish lovely photos. By coincidence I know the celebrant very well x
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Oh Gail I'm so sorry you are having such a rough time at the moment........Zometa can be cruel. The oral chemo your onc was talking about is probably Xeloda and it seems to work very well for those on it and knocks back the cancer very well. Good luck with that. Yay you!!! Good on you for booking that cruise!!! I know you will have a ball and just love the whole thing and being with your son will make it even better!
Love n hugs. Chrissy0 -
Hi, Aussie girls. Good luck to all over the Christmas/New Year holidays, hope everyone tolerates treatments well and have some great times with family and friends. Love those wedding photos Trisha-Anne.
I'm back on chemo, Abraxane, after a recent dx with liver mets after 9 years NED. Will keep fighting those unwanted cells. Got to get my 14 year old through school! http://fitzcath.tumblr.com0 -
Hey Fitz! Bugger girl that the beast has raised it's head again! Here's hoping that the Abraxane kicks it right back to the curb and you tolerate it well.
Pop in here a little more often as we love to see all the Aussie girls.
Love n hugs. Chrissy0 -
Hi Fitzy, big hugs. I pop in most days to see how my Aussie friends are doing. We had such a great weekend in Sydney, what fun.
Must get organised today.0 -
Gail I'm so sorry to hear what a rough time you are having, sending you big ((((hugs))))
Fitzy - what is there to say - bugger cancer! I hope the Abraxane works for you ((((hugs))) call in here and let us know how you are going, we are a wonderful little group
Kylie - I thought you might know her - she's from Goulburn, and we all know what a small world it is.
Chrissy - don't apologise, of course you'd think that someone as intelligent and well read as me (LOL!!) would have thought of that or known it already. Ok - I'm a bit of a dunce when it comes to some things. Only started to put two and two together when I thought about what I'd been eating when feeling really bad. I must admit it never occurred to me that Aromasin could cause those sorts of problems. I probably read some of the se's when I first started taking it, or Arimidex, and never thought any more about it.
Well - we'll see how fit I get on an (almost) gluten free diet lol.
Aly - are you back home yet?
Trish
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Hi Girls, this week is weather wise, total opposite to last week, it was so hot and muggy, this week and today i am wearing a jersy as its cold. weired. last week i was sitting on the bed sweating. I am going to the gynercologist tomorrow at one. I hope he does not want to examine me. i am supposed to have a scan. I do not like gyny exams dealing with those areas, stresses me out. i hate smears too.hope its just to TALK. and then the scan at a later date. catch you later.
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morning all! Home to general chaos and the need to get things organised.
Have has frightful migraine since Sunday. Probably just tired after being away. Enjoyed Canberra where I went to the national Library and the museum and the art gallery. Please excuse typing I am on my phone.
Big higs0 -
Hi everyone,
Gail, so sorry to hear youve been having such a crap time of it. Hope the oral chemo is gentle on you and kicks bc's butt. Wonderful that you've booked your cruise to NZ, its such a beautiful country.
Fitzy, hope the abraxane works and that you beat back those unwanted cells quick smart and with minimal side effects.
Aly hope that migraine is gone by now. Was wonderful meeting you in Sydney, cant wait to do it again, next year in Auckland.
Trish how are you feeling?
Sending love hugs and prayers to Kate and Karen - hope you are both as well as possible. Missed you both badly in Sydney.
Hope we all have a good Christmas with family and friends and have as healthy as possible 2014.
On a side note, Gail talking about a cruise is making me keen for all of us to go on one lol. Anyone here get seasick?0 -
Linda that sounds like a right hoot! I can just see us now, taking over the poop deck.......what ever that is.........lol. There are so many seasick pills available that there is no need for anyone to get sea sick. Maybe we can set a year and start working toward that as a cruise lasts for a couple of weeks and tho are working will need time to apply for time off as well as having enough time to save......lol.
I have been cleaning out drawers today......a job I hate as I find it hard to get rid of clothes that still have wear in them even though they don't fit me........lol.......but I have managed to free up some space that allows me to actually see what clothing I possess........now that is a good thing!
Aly take care of that headache.....you probably overdid while you were and now need to rest a while.
Hope everyone has had a good day.
Love n hugs. Chrissy0 -
Hi all,
I'm an australian bro.....my wife is being treated for breast cancer. She was diagnosed in June with stage 3 invasive ductal BC, Her2+, 11/24 nodes+. She had a bilateral mastectomy, has had dose dence chemo ac fortnightly for 2 months and Taxol weekly for 3 months. She has started Herceptin and will do about 5 weeks of Radio early 2014.
This came out of the blue with no family history and shocked us greatly. We have 2 lower primary school children and live in regional WA so my wife has been somewhat of a "yo yo" for the past few months traveling to and from Perth and I have been unable to be with her for most trips trying to keep the homefront as "normal" as possible for all involved.
Anyway G'day and good luck to you all .0 -
Welcome Bro,
You guys have had a tough 6 months that's for sure. Trying to keep the home life as normal as possible with so much traveling for treatment must have been very hard indeed.
I do hope that you and your wife can get friendship, support and advice from us here. Its been an invaluable resource for me and the friendships Ive made along the way help me get through the days. I know we have some WA ladies here, hopefully they will be along soon to introduce themselves. Several here have completed herceptin and rads and Im sure they will be able to help with information on side effects and what to expect and how to minimise discomfort etc if you like.
Can you share your first names? Or even make up ones if you like, so we can call you something other than Her2Husband and wife lol.
I have no family history either so you could have knocked me down with a feather when I was dx, as a smoker I always figured Id be dx with lung cancer not breast cancer. Trickly bloody cancer....
Chrissy, hmm maybe a cruise from Sydney to NZ ending up in Auckland? Now that would be one hell of a trip.0 -
Hi Her2husband and welcome to our little group. So sorry to hear that your wife has joined 'the club' that nobody wants to join. I understand being in a rural area and needing to travel for treatment........sometimes you just want to tell it all to go away. Good on you for keeping the homefront 'as normal as possible' .......hard to do sometimes but yay you! for doing it.
Come and ask questions as you need or just join the conversation for support........sometimes it's just nice to talk to others who really get where you are at.
Love n hugs. Chrissy0 -
I like the idea of a cruise, i said the other day i after you got back from weekend, about the 4th, of december but i think you were to buggered to read that day, we should plan a crusie, i thought around the islandsi would love to cruise, hubby wont cruise. i always wanted to. go on a cruise, but nobody will go with me.
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Hey Linda, love your post earlier.
I have cruised from Sydney to NZ with Princess Cruises. It's a ball!
Her2husband, we are here for you and your wife. Keep in touch, and best to your wife.
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Hello Her2husband, as the others have said, we are here for you and your wife. I did Herceptin for 12 months, as did some of the other girls here - any questions please just ask. I can tell you that for me, Herceptin was fairly easy, however towards the end it was getting hard. While there were none of the serious se's of chemo, H does have a cumulative effect on some people. I found from about half way through I started to get diarrhea with each treatment and was very tired the day of infusion. It didn't get too much worse than that, but the diarrhea got worse and worse with each treatment and the tiredness got worse, but usually only the day of infusion.
I can understand the extra problems you both have with living outside a city area, while I wasn't too far away, I was in country NSW just south of Canberra, but not too far, just a 45 minute drive. That was bad enough going through chemo, I feel for those who have to travel a long way.
Linda - I'm feeling not too bad lol. Have cut as much gluten out of my diet as I can, and already starting to feel a bit better. Still have the pain in my side, not every day, but some days worse than others. I'm going to see how I go over Christmas and talk to the onc when I see him in January before deciding whether or not to do the colonoscopy and endoscopy. If my digestive system has settled down by then, maybe I won't really have to have it, here's hoping anyway :-)
A cruise hmmmm..?? I have been on a cruise, and was violently sea sick for the first couple of days, not sure I want to go there, but not ruling it out either :-)
Hope everyone has a good day.
Trish
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Hi girls, went to gyny today, he was so nice and relaxed and i felt so at ease with him, that the examination scan was even comfortable and i hate those, it was transvaginal with the womb showing up more clearly. but as i am so dam complicated, most wombs are on a tilt, mine is straight up and down and hard to see whats going on, but what he did see he wants to see more of and so will be having a op in about 6 to 8 weeks to explore in there and take biopsys. to see if the bleeding is polyps, monthlys or menopause or sinsiter and also test the cells down there, it will be a full anesthetic. hr said, it could be what is also causing the urgency on the bladder, the pressure as i am piddling before i get to the loo and always piddling my pants.but he was so good and i felt so at ease with him, very joviel as hubby put it. i told him what the one last year said, about, my cervix , how they ever managed to get a smear of that is beyond me, and he was very sort og taken back and said, i will aplogise on behalf of the gynycologist up here, that is out of order, i said he was talking to his nurse, and he said, thats no exuse, they talk out of ear shot, with those comments, not in front of a patient.. so thats the verdict hubby having his op in jan and mine in feb. couple of buets, his is men parts and mine is women parts lol. what a difference somebody can make in those situations, i felt no anixety, like i ususally do.
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Yay Annette! So glad that the anxiety gremlin couldn't find you today and yay for your new gyny! He sounds like a goodun! I'm actually glad that he is going to do a little exploring to find out what's going on as in the long run it's going to be way better for you to find out the reasons.
Don't go worrying yourself over having a general anesthetic as the newer ones are pretty damn good.
Have a great night!
Love n hugs. Chrissy0 -
Hi herhusband. Give your wife a hug from me. I also had a lot of travel for treatment and had a primary school son. It is great you are here to support your family. Treatment is really hard for all the family and 2 years later my youngest is just starting to talk about how hard it was. I look back and wish I had utilised the services such as camps and counselling for kids. X
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Off topic - it's about 18months since chemo. I have started having burning in chemo arm which feels like it is travelling along the top of my arm up to my shoulder. I have been doing a lot. Was hoping it is just residual damage from stuffed veins, anyone else have this?
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Kylie, I haven't had it but it is possible that it is the beginning of celulitis so mentioning it to your doc may be a good idea. Hope it is just vein damage from the chemo.
Love n hugs. Chrissy0 -
Kylie, it could just be muscle strain. I have this at present!
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