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Comments

  • racy
    racy Member Posts: 976
    edited January 2014

    Jenn, you are getting good surveillance. I pray that your issues are not cancer-related. Will be waiting with you for results.

  • racy
    racy Member Posts: 976
    edited January 2014

    Alyson, sorry to hear of your family's bereavement. May God be with you.

  • kyliet
    kyliet Member Posts: 587
    edited January 2014

    I am thinking cyber group-hug x

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2014

    Oh damn Jenn!!  Walking away from doc appointments with still questions unanswered is not good...........I sure hope that firstly the pain issue is felt with and secondly that what they are not concerned with is really nothing to be concerned about.

    Yes, so far things are not boding well for 2014............damn it all!!!!

    I'm in the city at my DD's so all set for my round of doc appointments tomorrow.........hopefully I will get some answers to my hassles.   Strange how most of what's going on with a few of us is all neck and shoulder related.........could we be sharing do you think?  They do say a pain shared is a pain halved!........oh wait, I have that wrong.......it should be problem ..........well, it's almost the same.

    Group ((((((((hug))))))))) indeed!!!!!!

    Love n hugs.    Chrissy

  • Australia
    Australia Member Posts: 128
    edited January 2014

    Sorry i lost my post to everyone! But briefly hope you went well today Karen and Chrissy, fingers crossed for tomorrow.xxxxx

  • aussie12
    aussie12 Member Posts: 421
    edited January 2014

    Hi all

    Annette Mum is still the same, hopefully will find out what's going on soon. I rang her best friend on Saturday who she hadn't seen for a while and she went and saw her on Sunday.

    Everyone seems to have some sort of bad news so far this year, hope the year gets better.

    I feel a bit depressed and angry about work as I was on checkouts all day today 9am to 6pm and tomorrow 8am to 5pm and Friday 8am to 5pm. I hate checkouts and hate work and really couldn't even be bothered talking to the customer's today. It just makes me angry about how Coles treat their staff and I can't wait to get out of there.

    I know other's are worse off than me especially you lot with stage 4 but I just had to bitch tonight.

    Carol

  • Alyson
    Alyson Member Posts: 3,737
    edited January 2014

    imageimage

    This is what we all need today. Lots of group hugs.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited January 2014

    Damn Jenn - hoping it really is nothing to worry about for you (((hugs))))

    Chrissy - will be thinking of you today too, hopefully you'll get some answers xoxo

    Karen - how are you? xoxo

    I have an appointment to see a gastroenterologist on Friday.  I really have had some pretty horrid days over the two weeks I was off with bowel problems, so at least I'm one step on the way to seeing if it can be fixed.  I was supposed to see my onc on the 17th of this month, but have cancelled that appointment as I have lost my mamogram and u/s referral in the move to the new house, so waiting for him to do a new one, and thought it would be best to have the results of the colonoscopy to take with me.  Once all those tests are done I'll make a new appointment with the onc.

    I'm with the group hug too - 2014 isn't looking like a great year so far.

    Trish

    xoxoxoxo 

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited January 2014

    I am sorry all you girls are going thru so much,  Karen, Jenn, Trish, chrissy, Carol, Aly, and all i have not mentioned, i really hope they get on top of things and  find out whats wrong, BRCAUSE GIRLS,  WE GOT A WEEKEND IN DECEMBR,  and lots of chocolate fish to eat. lol seriousy girls, we need a break from all this health stuff, from Doctors, from rads and chemo, so we  can enjoy life.  I mean God knows what will be the outcome of my op in feb and hubby is really scared of his one next week.

    trish, hubby accidently brought me gluten free vogel bread and i must admit i dont get half the bloating or sour tummy as i do from normal bread, even the normal vogel..bread, but last night we got fish and chips and i made a salad at home as i love greens with those meals. cuts the grease down and i also had  half doz mussels,battered, and i did have  a tummy ache, i dont whether it was the mussels or it was just too  much fatty food, which is why i had the salad as a side. fish gorgeous tho..  mussles not bad. i had have dirrohrea th this morning, thats y am saying about the muscles.

    All you girls in your up coming tests, really hope  you come out with flying colours, hate the thought of you all going down this rocky road. 

    I have  only  two hands, but a big heart to go around all of you.

         My Grandma's saying,  I love you more than i did yesterday, but not as much as i will tomorrow.!!!
     XOXOXOXOXOXOXOX

  • Fitzy
    Fitzy Member Posts: 55
    edited January 2014

    Hope all those struggling are getting better news this week, especially Karen, Jenn & Chrissy.

  • mandymoo
    mandymoo Member Posts: 632
    edited January 2014

    I am so sorry that we are starting this year with such bad news and I pray that all will improve from now on. 

    Jenn, I don't know what to say. I really do hope you get some proper answers as that report is confusing. I also hope you get some relief from your pain. 

    Karen and Christie, please let us know how you got on... Praying for some good news. 

    Trisha, keeping my fingers crossed for Friday. 

    Carol, I agree that is too long on your feet and also dealing with challenging people as well. I hope the time goes by quick.

    To everyone else, I hope we all have a great day. My grand daughter is here for a few days so her mum gets a few thing done? GD has gone for a walk with DH and the dog and I will take her to the playground when she returns. I have done the washing and dishes and am now enjoying a nice quiet cuppa lol. 

    Hugs

    Mandy xx

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited January 2014

    Morning girls

    Has anyone heard from Karen?  I'm hoping she didn't get really bad news - Karen, thinking of you honey

    Chrissy - how did you go yesterday?

    Trish

    xoxoxo

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited January 2014

    Hi Trish, no, have not heard a thing, i am really worried to, i came on here earlier hoping to see something, but nothing. Chrissy is at daughters, so may not hear about  hers til she gets home.

    karen where  are you?. we are worried. soon as you are able  let us know.

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited January 2014

    Fitzy, I hope you have a great time in nz :-)

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2014

    Hi girls, just a quickie, I'm at the radiologist waiting for CTs of cervical spine, neck and chest as well as WBBS.........today it seems, my but will be anchored here for most of the day but at the end of it I hope I will have some answers.

    I'll let you know when I do.  Sure hoping Karen got okay news.

    Love n hugs.n. Chrissy

  • Alyson
    Alyson Member Posts: 3,737
    edited January 2014

    image

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    Hope it works this time.

  • Rakovina
    Rakovina Member Posts: 51
    edited January 2014

    Thinking of you Karen.  <fingers crossed> you have good news Chrissy.  Fitzy that is an adorable young man you have.

    hugs

    Tanya

  • chrissyb
    chrissyb Member Posts: 11,438
    edited January 2014

    Finally back at DDs!!  Bone scan .........no new mets just added arthritis.     Neck CT some nodes up but not massively they suggest an MRI for better view.......cervicle spine CT.......lots of degeneration but no mets seen and no major disc problem.....arthritis.   Chest CT.......no nodes, no mets but chronic inflammation in middle left lung....cause?...good question........needs further investigation.

    So, thems the results as I read them......pretty pleased overall but still need answers.

    Take care all!

    Love n hugs.     Chrissy

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited January 2014

    I'm happy for you too Chrissy - been keeping everything crossed for you, can now walk and go to the loo!  Bit worrying about the inflammation in the lung, but hopefully you'll get that sorted.

    Trish

    xoxox

  • midnight1327
    midnight1327 Member Posts: 1,331
    edited January 2014

    Well at least there are no new mets chrissy,,thank God for that, lung inflamation/? worrying, hope they find out that soon. arthritis not nice either, but better than mets. i am very happy for you.  lots of love annette

  • Jennt28
    Jennt28 Member Posts: 1,095
    edited January 2014

    Great news Chrissy!!!!!!!!!! :-)

    My neck scan came back all normal. GP says the pain is neuralgia and has given me Lyrica. Have taken one and pain is lessened but still there. 

    Breast biopsy was made light by the lovely ultrasound tech. The radiologist took three samples and he commented that they looked like it was maybe a cebaceous cyst. Results will be with my onc on Friday.

    Yesterday was my mother's bday. Got a call from the florist I use saying her courier was told Mum is in hospital by the neighbour! Turns out she'd been there since Saturday with dehydration after a bout of diarrhoea. No-one called me! Phoned the assessment social worker this morning and she was shocked no-one called me, or her. They have central patient files in NZ and Mum's file clearly states she has dementia. They were going to send her home today but I think I've managed to put a hold on that by asking for an assessment. Pissed the ward nurse off, but what else can i do. I may have to fly over there and try and get her into a care facility. :-/

    Had to wryly laugh when the GP said neuralgia could be caused by stress...

    Jenn

  • Kazzie61
    Kazzie61 Member Posts: 418
    edited January 2014

    hi girls.....I'm here & reading! Firstly great news for Chrissy & hopefully great news for Jen....halfway there.

    I did get the worst news......it's brain mets!! Well one brain met but one too many. I have only spoken with the onc on the phone, I will see him in the morning & should know what the plan of attack will be. My GP seems to think we will continue with the chemo I'm on as we only just started it. Onc did mention on the phone that we can do surgery or radiation (both painful apparently) but as I don't have many symptoms we might wait. Anyway will discuss it in the morning. It's a 6 mm met behind my left ear......it has a name but if course I can't remember it!!! Being triple neg with a brain met scares the bejesus out of me......prognosis is NOT good. Just stats I know & I do still feel hopeful...

    Anyway girls, forgive me for not mentioning everyone but I am a bit distracted!! I will keep you all posted, should know more about it tomorrow after onc appointment.

    (((Hugs)))

    Karen xxx

  • Rakovina
    Rakovina Member Posts: 51
    edited January 2014

    Well Karen, that just sucks!!  I am so sorry.  <hugs>.  I hope your Onc can give you a clearer picture tomorrow. Having minimum SE's is a good thing. 

    Jenn that is disgraceful that no one called you.  It makes it harder for you when you are so far away.

    Chrissy, no new mets is great.  Hopefully you find out more about the lung problem soon.

    Hugs to you all

    Tanya

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited January 2014

    (((more group hugs)))....thinking of everyone....

  • Alyson
    Alyson Member Posts: 3,737
    edited January 2014

    This Kiwi is off to bed.

    image

  • racy
    racy Member Posts: 976
    edited January 2014

    Kazzie, I'm praying for you and counting down with you till your grandchild arrives.

    Chrissy and Jenn, 'good' news on the health front for you.

    Jenn, elder care issues is probably a different forum! BTDT! Wishing you well.

  • Linda1966
    Linda1966 Member Posts: 441
    edited January 2014

    Hi all,

    Karen - I was sorry to hear about the brain met- but am hoping that one is easier to battle and that the success rate is higher - I m not educated in brain mets but assume like with standard bc that the earlier its caught the better? You've been under such close surveillance that Im hoping catching it early means that you will be with that grandson of yours for a very long time.

    Chrissy, hope the news continues to be good for you, Weve got a box of Krispy Kremes to share with Mandy next time we get together.

    Jenn sorry to hear about your mum, but glad that your health issues are being sorted.

    Trish, hope your feeling better?

    Sorry if Ive missed anyone, my attention span hasn't improved one little bit. Will be heading to the dr's soon myself - my feet burn every night and Ive just scared myself with Dr Google - diabetes and various other nasties not being appealing at all. Think its time for a physical that isn't related to BC

    My mum gave myself and my sister vouchers for the Elizabeth Day Spa for xmas and we used them today. First time ever I had a Head, shoulder, neck and back massage along with a one hour pedicure. Don't I feel spoiled. I was a puddle of goo once they finished lol. Cant believe Ive lived 47 years and never had either before. Highly recommend taking the time and money to spoil yourselves if you get the chance. Didn't tickle one little bit either which was my main worry. btw who knew so much back pain was actually caused by the muscles in the buttocks - he hit a few spots deep on the sides of the butt and I nearly jumped two feet. Whatever he did, by the end of it, no pain in my back for the first time at night in forever. Now to win lotto so I can treat myself once a week sigh.

    Hope every one gets good news, feels good, or is coping as best they can and that things improve soon if not. One thing I know for myself and for all of you is that we are all so much stronger than any of us thought we ever could be and we can and will deal with anything that life throws at us.  Love and Hugs to all

    Lyndal


  • Jennt28
    Jennt28 Member Posts: 1,095
    edited January 2014

    Thanks for the Goodnight Kiwi Alyson :-)

    Karen - I have not enough words. Just so sorry this is happening to you...

    Jenn

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited January 2014

    Shit Karen, not what we wanted to hear. I hope the chemo keeps it at bay.  We'll all be mentally pulling you through the days so you can spend a long time with your grandson xoxoxo

    Jenn - that's awful about your Mum, it must be so hard to be so far away and not be able to do anything. Good news about your neck though ((((hugs)))

    Linda, yes those spas are amazing aren't they!? I would love to be able to go every week or so too lol. Sounds like you need to see your GP soon though.  I wouldn't have thought that you'd have a problem with diabetes though? You seem to be in a healthy weight range, but then I'm pretty uneducated when it comes to diabetes.

    (((hugs))) to everyone else.
    Trish

    xoxo

  • mandymoo
    mandymoo Member Posts: 632
    edited January 2014

    Karen, bugger!  Sending you hugs and hoping you will have the inner strengh to get through this. I hope the next lot of chemo keeps it at bay for a long time!!! It must be difficult being triple negative as we'll :(. 

    Linda, my husband always used to drink lots of coke every day. That was all he drunk as he never liked tea or coffee let alone water. He was always a good healthy weight , and we were astonished that he was diagnosed with diabetes type '2. He changed his lifestyle by drinking water and no coke at all and his blood sugar level is normal now and he has lots of energy.

    I went to Adelaide yesterday afternoon and met my daughter fo a cuppa and so that GD1 could go back home with her. I then went to face painting classes at 6.30 to 9.30. The class was a hoot,  We painted each other's faces to practice on and I drove home with a tigers face painted on.  I forgot about it and wondered why I got funny smiles when I stopped at maccas. I got home at 11.30 and made my husband laugh. Lol, I can't wait for next weeks class, in the meantime, I will be practicing on myself and hubby and anyone else I can get my hands on. Off to Adelaide again now for my denosumab injection and blood test. 

    Hugs

    Mandy xx

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