Australian Sisters
Comments
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Kate soooo good to hear that you are on the mend and learning to cope with this new stage of your life..........we have been rather concerned. Do pop in every now and then as you know we love you and worry when you don't.........you don't have to say much, just hi is enough.
Congrats for Sarah and her graduation, you must be very proud of her!
It's been a very rough end to 2013 and an even rougher start to 2014.........here's hoping it gets better for all of us from here.
Love n hugs. Chrissy
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You are without doubt, gorgeous Chrissy. I am so sorry that I have been away. I know you are all here, and have been from the start. Please pardon me for being so anti social. I haven't mean to be at all. Just makes me feel worse. But..... onwards I must go. What is the choice? So lovely that you, as usual, are here. xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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In a nutshell, what have I missed? I can see quite a few newbies (big welcome gals). I also see that Alyson is suggesting a NZ reunion for next year. That would be bliss. I will 'try' to come to the next one, I promise. Trish, are you enjoying being back in the old 'berra?? I bet you are. No more travelling down the Monaro every day. Is Bob OK too? please say hi to him for me (he was such a sweetie at PH). Kylie, Lyndal and Jenn. Is life treating you OK? I sure hope so. OK, gotta go. I've got to pack for trip up to Perth tomorrow for the gradauation. I bought a dress, a LBD but it is going to be 41+ up there. The dress is going to be way too hot I think, so I have to decide on a back up little number. xxxxxxxxxxxxxxxxxxxxx
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Kate there are a few of us who have been where you are now and without a doubt can tell you it's pretty hard to get your head around things and then find the best way to live while being stage IV and all that it entails. Having pneumonia on top of everything else sure doesn't help your mind set and you did what we all would have done and that is to hibernate.........so, no blame just as long as you are okay.
Loads of things happening with all of us in one way or another, tests, scans, pain, laughs (of course), general gripping and the usual day to day that we all have.......lol.......so you haven't really missed much. When you get the energy or the will have a scan back at the posts.
Have a good trip up to Perth and I hope the weather is not too hot for the big event.
Love n hugs. Chrissy
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Kate.....I was just reading through here & was wondering how you are & thinking I should ring you
I, like you, am in a bit of bubble. I'm so sorry to hear you were so sick over Xmas but really pleased your cancer is stable. Take care & if you need to stay in your little bubble well I'm a firm believer in doing so. Don't shut family out though.....
You may or may not know I was diagnosed with brain mets, my worst fear, which is why I was in hospital & had the lumbar puncture, which ladies, I am pleased to say has come back clear....yay.
The brain mets has knocked me for 6 & I'm feeling very sad & scared. I know some will pipe in with how well you can do with brain mets but Triple Neg Cancer is a whole different ball game... I've been a wee bit quiet on here & probably will continue to be but I do read your posts girls & love to hear all your news...
My grandson is still my major will to live as well as my family........only 8 weeks to go!!
(((Hugs)))
Karen xxx
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Kate......forgot to say, you should be extremely proud of your daughters graduation.......a tear 2 might be shed I reckon....😃😃😃😄
Karen xxx
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Karen, you do what you need to do.........we do understand. I'm keeping my fingers crossed that all will be well enough for you to spend precious time with that beautiful baby when he arrives. Take care and know we love you too.
Love n hugs. Chrissy
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Kate glad to hear from you. Thinking about you often.
I sometimes think about not visiting this site. I sometimes think in order to 'move forward' or as I like to think 'arse up, head in the sand' I should try and wean myself.
Well I am sticking around, because to me it is important to remember and acknowledge what I have been through and realise there are no guarantees. Plus I really enjoy hearing from everyone.
I hate the fact so many of my friends on here have mets and feel privileged that I am not shut out of their lives like on some other threads. I think breast cancer can be a lonely disease because of the assumptions people make.
Thats my rant over, sending lots of hugs to everyone and I hope everyone is coping with the heat. X
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We should have a 'like' button.....
LIKE
Karen xxxx
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Kate, it's lovely to hear from you! No need to apologise for your absence; we understand.
Kazzie, you also. yay for only 8 weeks to go!
Kylie, well said!
Thinking of y'all xxx.
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Karen, I agree with you about the LIKE button. I read the threads and quite often either I don't have time or I just don't know what to say. I would just prefer to click on LIKE.
Agreed, we are all here batting for each other, and we do try to feel how each one feels. It just sucks having cancer, and I know we all get our ups and downs, some more than others.
So, from now on girls, I am going to type LIKE. lol. xxx
Kate, LIKE
Karen, LIKE
Chrissie, LIKE
and to everyone else as well, LIKE
warm hugs
Mandy xxxx
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Tammy!!!! Wahoo, hehe. I like that.
Tammy.....
Warm hugs
Mandy xxx
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Hi Mandy....(((hugs)))
(((Hugs))) everyone!
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hi girls, i like the thumbs up like thing. at least its a safe way of saying things onthe boards. hubby is doing ok, quite agitated and when the bil rings and moans about how much not getting done be the farm worker anf there should be some supervision out there, meaning that hubby needs to be out there supervising him, honestly, i just went inside this morning when he came to get the trailer as i was really on the verge of telling him where to go, but hubby was there and i did not want him upset. it gets on your nerves.
Karen, so happy your test was clear. and not long to go for bubba to come. yay. anyway i wil go and get back later. x x
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This is the only emotion I could find,where are they? Karen,now I am worried I may have brain Mets or something. I am sooo tired all the time and I have been awake 2 hrs now and typing this will just suddenly drop the phone and doze. Same at night sitting in my chair, I will suddenly give a snore I am wide awake.As well I have terrible back pain, especially when get up from bed or chair and can't bend over to pick up anything. But the worst is my short term memory, my son is getting frustrated with me as when he talking about something I can't remember names or the story. For example my housemate said something the other nigh, and for the life of me I can't remember what it was. I don't know if its the steroids ,although I am weening off them slowly now, or because I have increased my oxycontinen from 15mg am/pm to 30mg, but I definitely feel something is not right. I am really getting worried as I go on my cruise in weeks and feel now I need rads to my spine or to get my meds right ar the very least.The onc asked me if I needed rads at last appointment, but at that stage I had no idea where the pain was coming from as I thought it could be the lungs or liver. Prattling on now, love Ga0 -
Tammy,
Midnight,
Karen, I am so sorry that you are triple negative and I really miss you on the Xeloda thread. I find that I read the thread but I cannot contribute anything at the moment. I am also starting to freak out how much longer X will continue to work for me, so I will wait to read your threads with eager anticipation. Keep thinking about the grand-baby, and keep us informed, and vent when you want to, because we all feel your pain. (((hugs)))
It is a lot cooler here in Victor Harbor and we even had some rain last night, so everything just smells so fresh outside. I am on my way to Mum's house which is 49 Km away to take her shopping. lol Tomorrow it will be dragon boating in the morning and then visit my younger son (who lives 70 Km away) and his family to get the car seats fitted correctly to their children's heights as the Grandchildren start child care on Wednesdays and I want to be there to pick them up and stay there until they go to bed on Wednesdays because my DIL will be working a 10 hour shift.Then to my daughters house who lives 130km away) to look after GD1 from Sunday evening to Tuesday evening. My poor car!!! I had to fill it up twice last week.... lol.
Warm hugs
Mandy xxx
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Australia, the thumbs up is just after your smiley face, just keep looking..... and I didn't see your thread, sorry. I hope it is just the medication, but from what you are saying, it just sounds like me. I forget what someone has just told me, and if I am doing something and get interrupted, I completely forget about what I was doing and just keep carrying on. I hope you get relief from your pain though and please see your doc to discuss these issues. (((hugs)))
Warm hugs
Mandy xxx
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......to all of you beautiful ladies.
Gail......didn't you say your meds were recently upped? That would def contribute to your falling asleep etc....I had the same prob myself & had to do a bit of adjusting. Hopefully that's all it is & maybe cut back....I know there is the pain, but just a little bit of tinkering might help. If not, request an MRI for peace of mind if nothing else.
I know I said I wouldn't be on here much & here I am! It's my sons 32nd birthday & I'm really struggling to get myself together! Not sure how I'm going to put on a happy, cheery face to go out for lunch, haven't even had a shower yet & it's 11.30......
You're all so right, we are all here for each other, mets or otherwise, & it certainly does help to have somewhere to vent.....I know it makes me feel better. I've done a lot of crying the last few days/nights.....even woke up crying yesterday.
Anyway, as we do, must soldier on.......must always remember there is someone out there worse off.
Big luv n (((hugs))) to all my special cyber friends.
Karen xxx
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Hi all,
I've been reading along all week. Very busy with work and my head/neck pain is still nagging at me. I am now taking Lyrica but the pain is still there :-( I've been off for 4 shoulder, neck, head massages now and they do make it feel better for a short time, then the pain comes back.
The only test I haven't had yet is a head/brain CT. My neck CT came back with no problems evident. I've spent so much time at the drs and getting tests I'm over it. I am due for surgery in a week (Tuesday 28 January) to get my nipple reconstruction. Was supposed to be last October but I postponed it. I figure if this pain is still a problem then I'll mention it sgain.
Great to see KATE popping in. We all have been thinking good thoughts for your treatment to work Kate :-)
I know we are all just wanting to make all the sh.t go away for all who are struggling with diagnoses and treatments at the moment!
My Mum now refuses to speak to me because her helpful neighbour told her that she was staying in hospital and being assessed because I wanted to get her out of her house. I still phone her number almost everyday and listen to it ring knowing that she is there. I've been crying about it a lot...
Just found out a couple of days ago that one of the women from here that went through diagnosis and chemo etc at the same time as me has had it come back suddenly and from being fine just before Christmas is now at home on palliative care after checking herself out of hospital :-(
Another one of the women from our group has had her best friend die of breastcancer just this morning aged 39yrs. And, another one of our group is off for an mri after sudden vision changes... The hits just keep coming...
Jenn
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Hi jenn, its so fightening isn't it,,i am glad your brain scan came back clear, but very sorry about your mum. that would be so upsetting. to have that happening to you. also sorry about these ladies getting their cancer back. i really feel so bad for you all that are having problems and i wish it would all stop. Jenn i wish i could give you a hug and make things better for you..
Hi sweet Kate, miss you on here girl,
catch you later. xxxxxxxxxxx
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Jenn (((hugs)))) I dont know what to say. There must be someone over there that can act as an advocate for your mother on your behalf. Are you having a brain CT or MRI? I hope you find some relief from your head/neck pain. Yes the hits just keep coming at the moment, so we must all vent and not let it fester inside ourselves.
midnight
karen
warm hugs
Mandy xxx
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sorry, jenn, i got abit mixed up, your neck scan came back clear, very glad about that, and when the other happens, that will come back the same.
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((((((((Jen)))))))) I dont even know what to suggest regards your mum and that bloody neighbour! Is there anyone nearby who can speak to the neighbour and get them to butt out.
(((((Karen))))) I hope you had a lovely lunch, take care.
Huge hugs to everyone else. We are struggling to breathe at the moment the smoke is so thick from nearby fires. The storm that came through this afternoon was lovely in that it dropped the temp and a bit of rain, but the lightning strikes started quite a few fires around us. Fingers crossed they get them under control soon.
Tanya
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Oh Jenn, that neighbour should be shot and it's quite obvious that she wants to take advantage of your mum. Is there any way you could get your mom nearer to you? I know that would mean uprooting her but if her dementia is really starting to kick in for her own sake it would be the best thing.
Karen, you know we are all rooting for you and hoping that you are well enough to get to enjoy your grandson when he arrives ........not long now.
Annette I admire your willingness to hold your tongue when it comes to that BIL of yours, I think I would give him the biggest kick in the arse and tell him to grow up and shut up! Who does he think he is?.....Grrrrr!
Tanya I do so hope you stay safe and those fires get out out soon......it is just sooo scary when they are very close. I hear you on the smoke.....choking stuff!!
I'm very glad to say that the temp has finally dropped here and today was far more pleasant at just 30 degrees. The change came through last night and I hurried to open the house so the breeze could cool the house a bit but quickly had to close it up again as it bought with it all the smoke from the fires that are about 80ks away. Thankfully it changed again after about an hour so the smoke cleared and I was able to once again able to open up the house. That added bonus is that that wind change meant that the flames of the fire were being blown back on themselves so made it easier for the fire fighters........God bless them one and all.
Hoping you are all a little cooler and safe.
Love n hugs. Chrissy
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Opening up the house was the first thing we did when the cool winds started too Chrissy, then an hour later we were running around closing everything as the smoke was choking. I dont think I will get much sleep tonight. If I stand at the back door I can see flames, stand at the front door, I can see flames. Might need to rethink the fire plan, we are prepared, but that is for a fire during the day. A fire at night is a whole other world.
Tanya
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Tanya that sure is scary stuff! Stay safe and if you need to leave, leave early enough that you are safe.
Love n hugs. Chrissy
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Chrissy. yea well, i have come very close to thumping him for the way he treats his brother, but really going to jail for him, NOT WORTH IT> i would get an assult charge, it aint worth that either. i just walk away. mind you he gets a few tellings off from the phone, i turned off hubbys phone last night, we were watching a movie, he must of rung at least six times. lol lwe were watching jaws. i love jaws movies., such a beautiful shark. lol. i love sharks and i would love to get close to one, lol not enough to become dinner.but to just see them up close. i am abit nutty really, lol. Hubby says i sound like Mortisha off the Adams family on tv, they have a lion that is there cat and when it opens its mouth to roar, she says, oh look at that, such a shy little kitty. lol sorry it amuses me.
How did the night go tanya. are you still there or left your house. i don't how you could stay there getting choked out with smoke.
glad your temp has dropped abit, you been watching the tennis girls, chrissy. that must be so hot for them. chrissy you get choked out too,man what a pain for you all. hope you all ok today.
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Mandy, there is no thumbs up where the smilies are ,perhaps Its my phone. You and Karen are probably right in thinking its the increase in meds that's the problem but I need to increase them more or get some pallative radiation to spine if I'm to manage my cruise in 2 weeks .A bit scary!
Jenn, gosh you are having a sad time with your mum, is it possible to visit or are you too far away? I can't remember lol. Or perhaps a mutual friend of you and your mums local to your mum who can be your advocate. Love and hugs to all who are struggling at the moment and a big hug for those that aren't because we may be making you feel depressed. Lol love Gail
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Hi gail, we understand that you need to talk how you feel and always here for you. i really hope you ok for the cruise, where are you going? i would just looove to do the cruise thing, hubby not into the water holdays. at least you can rest though or lay in the sun esp if you not well and you dont have to visit the pull off towns they visit if you not well. give you a change of sceanry too, you enjoy every moment girl.
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