Australian Sisters
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Hi all
Chrissy I'd wondered where you'd got too !!! Hadn't seen a post from you for a while.
I was at the hospital for about 3 hours, I had 2 drips one went for about 30 minutes the other for 2 hours. I also had steroid tablets and they put anti-nausea drip into my port which should last a week. I've got the pump on at the moment that will be taken off on Sunday.
I have one SE all ready. I can't eat or drink cold foods and drinks as my mouth goes funny and my throat gets tight. Not very good when it's a hot day like today and tomorrow will be 38 !!! I've sneezed a few times as well so might be something in the drugs that's doing it.
Last night I also had diahrea which isn't too good when you have a colonostomy bag LOL. I think it might have been nerves.
Chrissy I have Osteo in my fingers and there getting worse, it hurts even when I do nothing.
Thanks everyone again for your good wishes. Hope everyone has a great weekend.
Carol
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Hi all again
I forgot to say that my 4th cycle of chemo is on Christmas Eve so I will have the pump for Christmas day !!!
Luckily we are having a breakfast this year so will be hot foods.
Carol
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Oh damn Sue! It sounds like it's really time to go get that back of yours seen to properly and see what can be done........living with crippling pain is not a good thing at all, besides the longer you leave it the worse it's going to get which could possibly make what the docs could do a lot less effective. Yipee! on the knee......lol......glad you are enjoying it. I've got to go back to see my surgeon as the last one I had done is grinding like nothing was done at all and it hurts.......grrrrr!ng
The foot pain.......yeah, well it sort of feels like I'm walking on broken glass while the soles of my feet feel like they are on fire and the ankles feel like they are so stiff they don't want to move. They feel fine until I put my weight on them but I must admit that the Curcumin seems to be helping.........they are not nearly as painful still sore just not as painful and walking is a little easier.
Carol it sounds like they have you well and truly dosed to cover most of the SE's which is a very good thing. I sure hope that the chemo doesn't add to your diareah and I'm sure last night's episode was indeed nerves. Oh wow! 38 degrees, what a scorcher!! Try and stay cool and eat and drink room temperature food and beverage. I'm keeping my fingers crossed that you don't have any other problems. What a bummer! Having to have your next infusion on Christmas Eve and Christmas Day!!! Just as well you are doing a breakfast at least then you can rest up if necessary.
Love n hugs all!! Chrissy
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Chrissy are you back from France yet. you were there, or are still there. gosh people are disgusting doing what they doing. killing people. let me know you are over this side of the world will you.
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Annette, I'm home safe and sound lovely and have been for a few weeks already. So sad what is happening in Paris. Thanks for thinking of me.
Love n hugs. Chrissy
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Was thinking you would have been back by then chrissy. Good to hear you are doing ok 😄
I'm still taking things slowly. Pain tablets are controlling the pain fairly well so far. Have appt with oncologist on Friday to check in on how I'm going with everything. Carol good luck with your chemo
Welcome smurfette and Aussie Elaine.
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Mel I'm so glad that you are doing okay and your pain is undercontrol. Good luck with you doc visit on Friday and I'm keeping my fingers crossed that he gives you good news.
Love n hugs gorgeous. Chrissy
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Thank you for the welcome melp27.
I'm a week out from my first chemo and travelling ok.
Going to be stinking hot here at the end of the week. Not looking forward to it at all. Blah.
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Smurfette glad you are travelling okay.........it's a bit of a scary time right now but there is a light at the end of the tunnel and everyday that passes makes that light a little brighter.
Yeah, the 'hot' started today for me......you are very right......blah!
Love n hugs. Chrissy
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Chrissy...I haven't been here for a while and only just saw your response to my question about CEA. Thank you for responding, but I am very sad that I have bone mets as my life has changed so much now. You seem to cope very well. How do you do it?
Hugs Sarah0 -
Oh Sarah, I'm so sorry to hear this news........yes, you are right, your life has definitely changed. I cope by remembering that just because I have mets it's not the end of the world........yes, it will shorten my life but, it's my life and while I have it I am going to live it the best way I know how. First and foremost I live each day as it comes and deal with whatever it brings on that day.........I don't dwell on yesterday, it's done and I can't change anything and tomorrow never comes because when it does, it's today. Just take things day by day and live life to the fullest.
Love n hugs to you. Chrissy
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Oh Sarah, I'm so sorry to hear this.......you are right, your life has definitely changed.
How do I cope? Firstly I know that as a stage IV girl my life has been shortened from what it could normally have been but it does not mean that I have to curl up in my chair and wait for death to claim me. I am a 'cup half full' person so I tend to look at life with optimism.
I live each and everyday doing the things I love and if its a not so good day? Well then I just deal with it and move on........with the sun comes a new day and more things to do and see.
Try not to worry about what will happen in time to come as that only brings on depression and robs you of the ability to see what joy surrounds you right now.
If you want to chat at any time let me know and I'll PM you my mobile number.......I'm happy to help if I can.
Love n hugs. Chrissy
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Hi girls! Just letting you know that Trish has had her surgery and is in her room doing okay. I will further update you as I get the news.
Love n hugs all! Chrissy
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Thanks Chrissy, I was waiting for an update. Please send her my love and hugs!
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Hi all
I'm glad to hear that Trish's surgery went well.
I'm still feeling tired and haven't much energy, also my teeth and gums have been really sore, also had diarrhea again. I also had to go back to Centrelink today to sort out my Sickness Benefit that I'm trying to get. It's so annoying when I haven't claimed anything for about 20 years, it should be easier if you've paid tax for so long.
I also brought one Christmas present today, I'm really not into Christmas this year but I think I might decorate a bit just so I'm not so boring !!! LOL
Carol
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oh Carol i do hope you sorted Centrelink today as they are not very helpful at all. As for your sore gums, try rinsing often with a salt and bicarb mouthwash.......its just a half teaspoon of each in a large glass of tepid water and rinse often to cleanse and sooth your mouth. Hopefully it will also keep at bay any ulcers that want to nake their presence known. Triedness is common so just take it easy and rest when your body demands it.......right now is the time yo do exactly as your nody demands......it's the only road to recovery.
Sure hope that diarrah settles quickly fir uou but nay be a SE of the chemo do it probably wouldn't be a bad idea to let your onc know and see if he can give you something to help settle it.
Love n hugs. Chrissy
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Update on Trish.......not doing so good on the recovery from the anesthetic combined with the pain meds. Doing a lot of vomiting.......poor girl. Sending her (((((hugs))))) for healing.
Love n hugs all! Chrissy
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Trish.. Thinking of you and hoping you feel better soon.
Chrissy.. Thanks for letting us know how Trish is going..
Carol. Ugh.. Centrelink is so hard to deal with.. and hopeless trying to ring them.. They put you on hold forever.. You've done well to of started your Christmas shopping !
Smurf.. Thinking of you.. Did you end up going to Moree for your treatment?
Melp... Hope everything went well at your oncologist appointment. (Hugs)
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Chrissy, thanks for the update, looking forward to seeing you next week.
Carol, Centerlink is the last thing you need when you're not feeling well....hope it works out soon
(((Hugs))) everyon
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Trish is home!!!! She got set free today with mo drains......wow! What a woman! She needs to return for a little repair work on Monday but that will be done under a local so mo more of the throwing up.
I spoke to her a little while ago and she sounds great.
Looking forward to catching up with you all next weekend!
Love n hugs all! Chrissy
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wish I could meet everyone
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Delvzy maybe you can make it to next years get together.....that would be really neat. We would have loved to have met you as well.
Love n hugs. Chrissy
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So glad to hear Trish is starting to improve. Lucy the first 2 treatments in Tamworth but should manage the last 2 in Moree all being well. Unfortunately my first treatment has landed me in hospital. Was admitted on Thursday and have been on IV antibiotics since. My neutrophils bottomed out at 0.0 on Wed. They were checked again yesterday and have reached a whopping 0.5 Yes, I'm being facetious. Chemo sucks. Hope everyone enjoys their Sunday. Sending love and light, Donna.
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Hello girls
Thanks Chrissy for updating everyone.
Yes I'm home, and feel well enough this morning to check on you all here.
Surgery went well, and there was no obvious cancer in the two nodes they took, so good news.
Apparently I'm allergic to endone - made me throw up until I thought I'd lose my tummy too. So no more endone for me ever, if I have my chance to say so.
I had the dog ears tidied up on the left hand side while under, and it's that that's opened up a bit. So having some restitching done under a local tomorrow.
Carol - I hope you are feeling a bit better today. I went in to Centerlink with hubby on Wednesday. He's getting the aged pension and they are putting me on a disability pension. I don't have a job, and don't technically have one to go back to so disability is the best option for me. Once the dr has done the medical report for it, I'll go on it. Hope you get yours sorted.
Donna I'm so sorry to hear about your trouble with treatment. Chemo really does suck (((hugs)))
Looking forward to seeing you on Friday.
Trish
xoxo
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Trish, great news that you're home!
Donna, I hope you start feeling better soon
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Just posted in the FB group to ask if we have plans for the coming weekend? I'm so glad to be able to come along, as it just wasn't a "done deal" because of my Mum. I was supposed to go away for a girls weekend away with a friend a couple of months ago and ended up having to cancel at the last minute :-( That won't happen this time...
Jenn
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Yep Jenn, the plan is we get together and talk a lot, laugh a lot and generally have a great time! Roll on Friday! Glad you are hoing to be there!
Love n hugs. Chrissy
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Thanks Chrissy maybe it might be closer to Melb next timeTrish I didn't realise how close our diagnosis was. Glad your surgery is over heal quickly x
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hi ladies
My second oncologist appt went ok. tablets are still working so no chemo yet!!!
Had my picc line taken out because it isn't working..will have a port put in for future blood tests. Trish sorry to hear you are recovering a bit bad with the throwing up after your surgery..
Hope all is going well carol
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Yay Mel!! Great news that the tabs are still working for you. ......long may it continue. Hope the port works better for you.
Love n hugs. Chrissy
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