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  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited November 2015

    Mel, I'm really happy to hear your news ThumbsUpThumbsUpThumbsUp

    I've had a really good day today. The antibiotics I've been on have been making me a bit nauseous, but finally got some maxilon today and it's working well. Had the restitching done this morning under a local anesthetic and it was a piece of cake.

    I'm so looking forward to Friday.

    Delvzy - here's to Melbourne next year!


    Trish

    xoxo


  • Delvzy
    Delvzy Member Posts: 454
    edited November 2015

    Great news Mel

  • racy
    racy Member Posts: 976
    edited November 2015

    Good to hear from you, Trish, Melp and Aussie.

    Trish, looking forward to seeing you too. Keep looking for the positives, and rest in the meantime!

    Melp, Femara is a great drug for ILC. May it work for a long time with no side effects for you. May you continue to receive heaps of support from your family and church friends.

    Aussie, I hope the chemo is easier on you now, in terms of side effects, but super effective in killing cancer!

  • aussie12
    aussie12 Member Posts: 421
    edited November 2015

    Hi all

    Hope everyone in Canberra is having a good time.

    Had my second chemo today and SE"s started the minute I walked out of the chemo ward !!! I've got some tingling and shakiness in my hands, can't drink cold drinks and I'm really tired with no energy. I drove there and back and was glad to get home.

    Carol

  • Smurfette26
    Smurfette26 Member Posts: 269
    edited November 2015

    Oh no aussie12. Sorry to hear the side effects come on so quickly. Are you having Taxotere?

    Have my second infusion on Tuesday and while I'm dreading it; it's another step closer to being done.

    Glad hubby will be driving as it's 2 and a half hours each way.

    Number 1 landed me in hospital for 5 days so thinking I will "catch a break" with round 2 and couldn't possibly get so ill again. Well that's what I keep telling myself. LOL. I'm having a Neulasta shot this round so hoping that will help. What sort of side effects has everyone experienced with Neulasta? And what did you use to combat those side effects?

    Hope everyone has a good weekend; especially the lucky ladies getting together in Canberra.

    I had a busy day in town yesterday so planning a quiet weekend. It's so nice to feel well if only for a few days.

    Take care aussie12 and be kind to yourself . I'm thinking of you. Hugs Donna.

  • chrissyb
    chrissyb Member Posts: 11,438
    edited November 2015

    Ok girls here we all are.

    image

    Of course Racy was there as well but was behind the camera. Great night! Great food! Fantastic company!


  • Lucy55
    Lucy55 Member Posts: 2,703
    edited November 2015

    You all look beautiful :-)

  • suzieq60
    suzieq60 Member Posts: 1,422
    edited November 2015

    I wish there was a like button :)

    Glad you are having fun.

  • kyliet
    kyliet Member Posts: 587
    edited November 2015

    Carol and Smurfette, sending hugs for your chemo.

    Carol, some of the best advice I got during chemo was from Trish, which was to drink with a straw. Sounds so simple but it was the only way I could drink easily.

    I also had about four flavoured cordials made up as well as water. I found that alternating made it easier to get the liquid I needed.

    Mel, I am glad you have had good news x

    Edited to add. Smurfette, I found antanex was my saviour, because at least I got some sleep. Be kind to yourself and hoping this treatment goes more smoothly x


  • Smurfette26
    Smurfette26 Member Posts: 269
    edited November 2015

    Thanks kyliet. Appreciate all the hugs, hints and tips I can get.

    Of course my breast nurse suggested Ginger Beer and Ginger Ale. Both tasted terrible and I was unable to get them down even though I like them normally.

  • racy
    racy Member Posts: 976
    edited November 2015

    Smurfette, try crystallised or glazed ginger pieces. Eat small meals every few hours and whatever you crave. Hopefully you are taking steroids and Maxalon if you need it.

    Rest and fluids are very important too.

    Take care.

  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited November 2015

    Smurfette and Carol - sending you (((hugs)))

    I wish you all could have been with us this weekend. It was such a fantastic weekend to catch up with everyone.

    You girls are all so, so special to me. I'll be leaning on you all again soon, and I know I can count on you all.

    My love to you all

    Trish

    xoxo

  • Alyson
    Alyson Member Posts: 3,737
    edited November 2015

    Sending special hugs to Smurfette and Carol. We are all there with you. 

    Recovering from  the weekend which was great. Now sitting drinking coffee near my cousins place. Will go for a look at the shops then have a bit of lunch. Then cousin will pick me up and not sure what we are doing. She loves shopping. 

    Big hugs to all. 

  • kyliet
    kyliet Member Posts: 587
    edited November 2015

    So glad you all had a great time. xxxx

    Best of luck tomorrow Smurfette, let us know how you go. Hopefully no hospital this time.

    I think I lived on pramin for nausea. Ginger didn't help me, just made me hate ginger :(

  • moderators
    moderators Posts: 8,618
    edited November 2015

    Love the photo Chrissie

    ThumbsUp

  • chrissyb
    chrissyb Member Posts: 11,438
    edited November 2015

    Oh what a weekend! Fantastic catching up with everyone and sad for the ones who couldn't be with us.......maybe next year.

    I am now at the airport waiting to board my flight home........again I had to be up before the birds but it was well worth the effort.

    I spent Sunday afternoon and yesterday with my younger brother and family but every quiet moment, and there weren't many, I would nod off.......lol.......talk about power naps! I sort of have this feeling I'm going to sleep very well in my own bed tonight!

    Take it easy all and for Carol and Donna, be good to yourselves abd rest whrn required.

    Love n hugs. Chrissy

  • Smurfette26
    Smurfette26 Member Posts: 269
    edited November 2015

    Thanks so much for all the support and well wishes beautiful ladies.

    Just about to head off to Tamworth for my second infusion. Hoping I fare better than round one.

    Hope everyone has a lovely day. Hugs Donna.

  • aussie12
    aussie12 Member Posts: 421
    edited December 2015

    Hi all

    Glad you all had a good time in Canberra, great photo. One year I'll make it to one of the get togethers.

    I'm still feeling tired and have had a migrane also have had that horrible metallic taste in my mouth.

    Donna best wishes for your 2nd chemo.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2015

    Carol we would love to see you at one of the gatherings! Oh yuk! That metalic taste is just awful! I do hope you find something that tastes okay to eat......some recommend really cold and others spicy or really strongly flavored foods help.

    Hope that migrane backs off soon. Take care lovely and rest as much as possible.

    Love n hugs. Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited December 2015

    Hi all

    Chrissy I think in 2013 I had my implant surgery, this year chemo, it seems every year something comes up and I can't come !!!

    For the metallic taste I'm drinking lemonade and ginger beer, had chicken and salad for tea then some watermelon. The mornings I have no energy then in the afternoon I feel better.

    Has anyone put there Christmas tree up yet?

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2015

    Don't give up, it'll happen one year and you never know it could be next year.

    I'm so glad you are managing some food.

    I haven't put up the tree yet but plan to next week if I get half a chance.......lol. December is always a really busy time, not just because of Christmas but with family birthdays and Christmas functions. I get to the stage I just want January to arrive so I can relax. ......lol.

    Carol what are your plans over Christmas?

  • Alyson
    Alyson Member Posts: 3,737
    edited December 2015

    Morning all. Sitting in Canberra having coffee and its home tomorrow to two functions over the weekend. It's been fun but it will be good to be home. 

    Big hugs. 

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited December 2015

    Carol and Donna.. Thinking of you both (Hugs)

  • Smurfette26
    Smurfette26 Member Posts: 269
    edited December 2015

    I'm not bothering with a Christmas tree. Chemo number 3 is on Dec 22nd so we have cancelled our Xmas plans to travel to our daughters. Hubby and I will have a very quiet one at home.

    Tuesday was a big one. Two and a half hours drive each way so left home before 7am. Had an appointment for a fitting for a breast form. Was so happy to get a good silicone one. I'm not lopsided now Happy Fitted in some Christmas shopping before I saw the Oncologist at 12 noon. Chemo was supposed to be 12.15 but they were running about 90 mins late. Once I got in the chair they had trouble getting a vein. Took 3 nurses almost an hour before nurse 3 finally managed to pierce a vein. Seems mine are fine and deep. Didn't finish until 5.15pm. We had promised our little grand daughter we would visit her and she had been waiting to see "Nan & Pap" all day so we called in there for some fun and laughter with her. Was almost 10pm before we got home. Although I felt tired the late steroids stopped me sleeping. I only managed about 3 and a half hours.

    Got my Neulasta injection yesterday about 5.30pm. Hoping I will feel a little better this time with the Neulasta. No bone pain so far but early days. My taste is off already, not much appetite and feeling a little tired this afternoon. Think I will have early night.

    Thanks for the well wishes all. xx

  • Tammy_M43
    Tammy_M43 Member Posts: 565
    edited December 2015

    Donna, good news about the breast form, not so good news about Christmas...but great that you have decided to take things at the right pace for you.....there are many Christmas's to follow!

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2015

    Donna that was a huge day!! Good for you for stopping in for some of the fun factor with your grands. ......they certainly have a way of lightening our moods.

    Yep, good plan for Christmas, sort of wish I could do the same......lol. Taking it easy right now is the best thing.

    Love n hugs! Chrissy

  • aussie12
    aussie12 Member Posts: 421
    edited December 2015

    Hi all

    Donna my next chemo's are on the 11th then the 24th, I have my pump on until Boxing Day. Tuesday night and yesterday have been my worst days, have had diarrhea and yesterday I couldn't even get off the lounge as I felt so bad. Hopefully I won't have the SE's as bad for Christmas day.

    Donna how many more chemo's have you got ? It might be best to get a port done.

    Thanks again everyone for your support.

    Carol

  • chrissyb
    chrissyb Member Posts: 11,438
    edited December 2015

    Oh Carol, I do hope that you don't feel so bad after every chemo........that would really suck big time. Just remember to tell your onc what SE you had and maybe he can give you something to counteract them. No good going through hell when you don't have to.

    Trish, goodluck with your onc appointment. By the end of the day you will have a treatment plan and I'm keeping my fingers crossed that it's a goodun!

    Love n hugs girls! Chrissy


  • Trisha-Anne
    Trisha-Anne Member Posts: 1,661
    edited December 2015

    Carol and Donna (((hugs)))) to you both, chemo just sucks.

    I'll have my first chemo for this bc on 17th December. I'm having TAC this time. Three cycles of AC and then twelve weekly cycles of Taxol. I didn't realise that anthracyclines (the A and the E) can only be given six times over a lifetime. As I've already had three cycles of epirubicin (last time in the FEC) I can't have the recommended four cycles of Adriamycin this time. Going for a heart scan first to make sure my heart is ok to start with.

    We are hoping that weekly Taxol will be easier on me than the three weekly doses of Taxotere last time, I could only do two of those.

    So - with luck I may be able to enjoy Christmas dinner this year - if I can find someone to cook it for me lol.


    Trish

    xoxo

  • aussie12
    aussie12 Member Posts: 421
    edited December 2015

    Hi all

    Trish that's quick to get your chemo started. I hope it all goes well. At the beginning of this year I would never have thought that we would both be having chemo !!!

    Hope you all have a good weekend.

    Carol

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