Australian Sisters
Comments
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Looks like storms are on the way - just checked the radar - eek - better find Poppy and bring her inside - she really hates them
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Wow Alyson!!! That's great!!!! You are right about the Femara not helping.............actually the AI's over the last three years are the culprit for half of the weight I now have to try to loose............the other half was me eating the wrong things or just not eating and we all now what that does. My first big goal is to loose the Femara weight and then I'll see what happens but that in itself will make me a very happy girl!
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Isn't technology grand!!! Once upon a time we had no clue a storm was coming nor how severe it would be until we were in it now we can check out just about anything we like 'on the net'! Hope it's not too bad Sue!
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Well the chances of me posting photos is looking slim, I tried uploading a photo for my avatar and it says my image type isn't valid, and now I have lost my other pic also. Any hints? Thanks, Kylie x
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Kylie where are your photos when you try to post them? If they are just in your files then they are the wrong type. What you need to do is either put them on Face Book and then copy/paste to here or down load either Picassa or one of the other web ablums upload your pic to there and then copy paste to BCO. Let me know if you have problems.
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Thanks chrissy, but i am not even that advanced. How do i upload my avatar photo? x
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Chrissy - looks like they've missed Brisbane - bummer - I want rain - saves me watering the garden.
katopet - what is the file extnesion of your photo - should be .jpeg
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Just go to your My Home page and at the top of the page and click. A page will open and on the top left of the page it will say '+ photo' just click on that and follow the prompts.
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Wow Sue they passed very quickly! Yeah I know what you mean about watering the garden but I must say this summer I have been spoilt as we have had a wet one which is waaaaay unusual.
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katopet - now we see you
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Peek-a-boo I see you!!!............lol
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Easy when you know how!!! xxx kylie
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Kylie everything is easy when you know how the only thing that makes things hard is the unwillingness to learn.
Love n hugs girl. Chrissy
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Chrissy and Alyson, congrats on your weight loss. Now that you have made it public, hopefully that will give you added incentive to keep going. The diets you are on sound healthy and doable.
Chrissy, that is a very wise saying in your last post.0 -
Thanks Racy it's just something I used to say to my kids when they were growing up and have found it to be very true.
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Hey all, I was telling Chrissy that today I managed to drive myself to our monthly breast cancer support meeting and one of the ladies presented me with a Prayer Quilt...I was quite overwhelmed and very humbled by this very generous gesture...I'm hoping I've pasted a copy of it here but there's no guarantee lol...here's hoping...it has little threads on it and people tie the knots and say a prayer
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Sharon the quilt is beautiful! The perfect size for your lap on a cold winters day or night.
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Sharon - what a beautiful quilt, and such a lovely gesture. I would have been overwhelmed too!
Chrissy - what on earth were you doing up so early?? Couldn't sleep?
Trishxoxo
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Gorgeous!!! Do you realise how long that would take to make? I want one.
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Oh my, that is beautiful Sharon.
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Wow Sharon, what a lovely way to cuddle up, nice thoughts and beauty all wrapped in one.
I have made it to 7days post 1st FEC. I am finally starting to not feel so pukey but my words and thoughts are starting to muddle up? Is this normal? When does chemo brain set in? Kylie x
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Kylie - you have chemo brain already lol it seems to happen fairly quickly. So don't worry - it will be with you for a while. Take care now though - you are entering the phase where your imune system is very vulnerable - you basically won't have one for the next week or so.
I'm 12 months out from my last chemo and sometimes I think I still have chemo brain - but I think mine is more just getting older and of cours Arimidex which makes some of the se's of menopause much stronger - like loosing your memory (I almost said mind lol)
I now take vitamin d and that has helped my memory issues a lot - it's noticable.
Trish
xoxo
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Yep, Trisha is right. Even if I don't have chemo brain at a particular time - boy it's a good excuse!
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Trish - Good to know I'm not imagining things. Yes my low immune time co-incides with DDs wedding. There are 150 guests so I will be very careful, there are also rooms attached to the function centre so I can go and lie down if necessary.
Jenn how did your LGFG course go? Am I mistaken or are you up for your last FEC this week?
Kylie x
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Thanks all the Quilt will be a great snuggle in winter that's for sure...
All those in treatment I hope you are feeling well...my hysterectomy wounds are healing well and I'm feeling like I so want to get out of the house BUT I will obey Drs orders and take it easy, thinking I'll go flexi hours back to work next week...if I feel like it
Chemo brain is real...I'm sure that during my time I focused at work but when I got home pweff sometimes was sure they took my brain and not my breast...making a decision was almost impossible for me, seemed I used all my powers on treatment decisions and nothing left for normal day to day decisions like should I have some lovely immune boosting sardines, a blueberry smoothie or cheese on toast...would take me forever to decide and then I'd not be hungry once it was made...but time brings it all back I promise you - hoping that the menopause doesn't take it all away again lol !
Love me
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Trish, I was wide awake unfortunately and so I ended up taking a sleeping pill with made me sleep till lunch time today......................sigh!..................I think I'll take one early tonight and try and reset the ol' body clock to a more reasonable hour.
Oh yeah, I hear you on the chemo brain..................I felt like I was on the outside looking in and nothing that I was seeing made sense. At this time please avoid making any major decisions and if one has to be made, let others who are thinking clearly make it or leave it till later. It's really scary some of the thing that we can do when we are not thinking clearly.
I got the request from my doc re the bloods he wants done pre-op and he has included an ECG..........you would not believe the hassle I've had to get this organised! Because I only have one vein access for bloods and that is on the back of my hand our community hospital, (which is more aged care and emergency) cannot do the bloods but they can do the ECG and IMVS in Clare can do the bloods but not the ECG I now have to go to two different places............GRRRRR!!!!!
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The lymphodema clinic rang today, I will go and see them next week, my cording is getting better but still giving me grief.
It is 115kms to Campbelltown hospital to clinic; so a one hour appointment becomes a major trial trying to get there and back in school hours to be home for son. I am really stressing about how radiotherapy will go, 6 weeks of this each day. If I drive 35mins I can catch the community bus which then takes 1.5 hours to get there, and time of return is unknown. I know it is a fair way off but each appt the breast nurse asks me how I am going to manage and I just don't know.
I suppose it is like everything in this debacle, you just do it somehow. Kylie xx
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Kylie, are you saying that you will be doing this trip daily for rads? Would you be able to stay in Campbelltown during the week? I know it isn't ideal at all but they would pay for your accommodation. I can't remember the name of it PAT (patience travel assistance) I think. It is available for people who have to travel from regional places. I know it would be horrible for you, but would it be more manageable? I know it sux because I understand radiation itself doesn't take very long (30mins or so from start to finish). Before they got the cancer centre here in Bunbury, people had to travel to Perth and stay their for treatment. It's just a thought.
I'm having a 'funny' day today. I don't feel right but can't put my finger on it. I don't feel sick or anything, but again I feel that totally washed out exhausted feeling with barely zero energy. Maybe it is the nuelasta shot I had. Luckily I haven't had any bone pain whatsoever, but I definitely feel slow and off. I haven't had the brain foggy's this time. I have a big day helping out with the camp quality golf day tomorrow, so I hope I am in better condiditon than I am now otherwise I won't be able to help.
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Kate what you are feeling is the steroid crash..............you had the up with the cleaning bug well this is the other end of it........just take it easy.
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I often wonder friends if the anaesthetic during surgery damages our brains somehow. It took me weeks this last time, now 2 mnths post op, to get any semblance of organised thought back. I felt like I was mentally detached from everything around me, even to the point that I could not write anything down. Formulating words into sentences stressed me to the point that my hand started to shake each time I held a pen. It seems to be passing now though; but I dread the next op and this particular aftermath.
I saw my Colostomy surgeon today and it looks like I will be getting the reversal done in May. I will have to wait until I have full check-up, scans etc., before-hand because if they find soft tissue progression and chemo is needed, it may burn my insides and another Colostomy might have to be done. Sheesh...it never ends.
At least I should be OK by the time my eldest son gets hitched in July. I'm not even looking at outfits yet because I will probably lose tons more weight due to the op, and will have a heap more options style and size-wise a month afterward.
The surgeon said that when they opened me up they found a situation they'd never seen before so now he carries around one of those little patient name labels they stick on new pages of your file so that he can access my file and scans to teach other Drs what to do in like circumstances. He is also a professor of surgery in our area. I suppose it's a comfort to know my agony is helping to further medical research and knowledge.
Got another hug from a lovely lady at my Cancer Support group today and no matter how old I get It's a really nice gesture on her part and it does fulfil a need within. You can't go around asking people to give you hugs can you? but when they are so generously offered it's as good as one from your mother.
Sheila.
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