Bonfire of the Goddesses
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Hi Jo1955: thanks for starting this topic. I am a newbie. I've been reading everyone's posts but just jumbed to the end to post my reply. If no one has done so yet, I'd like to toss in my first surgeon who misdiagnosed me 2 years ago by missing my mass in wire excisional biopsy and only removing normal, healthy tissue and telling me I was benign. 2 Years later and a new surgeon, I had biopsy on same lesion since it showed up on a MRI and found out it was tubular carcinoma and DCIS. Burn, burn, burn.
P.S. waiting on rads to begin Jan 10th. My chance to whine and buy all the crap I can toss in the fire later.
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Kingjr....Now what was THAT all about, if you don't mind my asking? Has a forensic investigation been done? Did the first radiologist have the right location or was the first breast surgeon on crack? What did breast surgeon No.2 have to say about it? I would follow up for the sake of all the women who come after you....Some one needs a smack down...or MORE TRAINING...or needs to find another job...far, far away from medicine. I would start with making an appointment with a lawyer if you haven't already...
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I'm throwing in my back. Pain that has had me in tears by the end of the day for the last 6 months. Discovered it's not side effects from the Tamoxifen, because we switched to Arimidix. (sp?) Then I had a spinal MRI. I have two herniated discs. Went to the back Dr. The pain is NOT from the herniated discs, I supposedly have a muscle spasm. Went in for muscle spasm relieving shots.
No change.
I can't do this much longer.......So - INTO the fire my back goes!
Very very tired purrs,
Jenn
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Jenn... Try to get a copy of this book:
http://www.amazon.com/Mind-Over-Back-Pain-Sarno/dp/0425175235
"John Sarno
Dr. John Sarno is Professor of Clinical Rehabilitation Medicine, New York
University School of Medicine, and attending physician at the Howard A. Rusk
Institute of Rehabilitation Medicine, New York University Medical Center.For over twenty years, Dr. John Sarno has been working with patients to help
alleviate neck and back pain. His list of grateful, pain-free patients numbers
in the thousands. Dr. Sarno's revolutionary approach to back pain is based on
his discovery that tension is the underlying cause of most back problems --
leading to an often unrecognized, but highly treatable, condition called Tension
Myositis Syndrome.
Mind Over Back
PainMind Over Back Pain (review or buy) outlines
Dr. John Sarno's approach to healing chronic back pain - an approach that works
primarily with the mind and emotions, rather than drugs or surgery. In Mind
Over Back Pain, Dr. Sarno describes the manifestations and treatment of
Tension Myositis Syndrome (TMS), which is his name for the condition that causes
much chronic back and neck pain.
Healing Back
PainIn his follow up to Healing Back Pain, Dr. John Sarno builds on his
earlier theories. After identifying psychological factors in back pain, Dr.
Sarno explains how many of his patients have gone on to heal themselves.
Healing Back Pain (review or buy) touches on
themes such as: why self-motivated and conscientious people are prone to back
pain, how anxiety and repressed anger trigger muscle spasms, and how TMS can be
cured through recognizing the emotional roots of tension and pain.
The Mindbody
PrescriptionDr. John Sarno's most recent book, The Mindbody Prescription (review or buy), extends his theories to other
pain-oriented disorders such as carpal tunnel syndrome and fibromyalgia. The
Mindbody Prescription explores how the brain can produce physical symptoms
and how emotions can lead to peptic ulcers, migraine headaches, and a host of
other ailments. "I had considered Dr. Sarno's idea preposterous, but ten years
ago I was talked into seeing him. I haven't had back problems since," says John
Stossel, a correspondent for the television show 20/20. "Hope you're feeling better soon!
Please join us all for marshmallows....and a cyber back massage!
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I'll throw in this "Pain in the neck that I have constantly from the computer, and doing crossword puzzles"........oh and the "Pain in my knee too"...............................also the Pain in my feet"................the Pain in my fingers, to go along with my "trigger thumbs"..................................and how about the "Pain in my Ass.....................oh sorry, that would be my son's wife who left him and her 4 kids.............I already threw her into the "fire"...........................no repeats, right.................................
............................question...............does God punish you for what you think................or just for what you say ............................either way, I'm going straight to hell..............no one screws with my kids, even if he is 46........................ 0 -
Vr-friend/neighbor--you visited our owld stomping grounds.nice day for it.The Brooklyn water clears everything.You dont even need a filter for the drinking wate.its the best.And BTW im gonna buy the book.AND im gonna throw in my vagina too.just found out it was prolapsed.who needs it now!!!!!
And King welcome---i had a shitty dr.like yours.i burned him a while ago.big big dr who did all the wrong things.its not so easy to sue drs.you either have to have permament damage or big dr bills and i dont have eithe thank GOD.I did get an ammended path report and he lost MY ex rays.so lets burn those white coats together
hey we almost have a body now!!!!!!
come on ducky....find something!!!!!
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kingjr - I have to agree with voraciousreader. WTF is going on? I would be so pissed. Throw in the first surgeon and the person who did the biopsy. That is so wrong.
I can'r believe we made 70 pages. Thanks everyone for keeping the fire burning. Although in reality, we should not be here. For those of you who know grannydukes - she is always asking the question - "When will there be a cure?"
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No JOJO ya got it wrong its FIND A DAMN CURE!!!!!!enuf!!!!!!0
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I'll throw in this friggin cold weather....................oh.......will that put the fire out.................ok, not that then toss in PMS, I'm sick of hearing............................oh she must be PMS.ing...........that is why she is acting that way .............................no, its cause some people are just bitchy by nature......................what the hell is PMS anyway...........................I had 6 kids, and a husband who liked to be waited on, I didn't have time for PMS...........................I didn't even have time to be sick...................................thank God, the good Lord kept me healthy till everyone was out on their own...........................
And the kids call my husband the "GLUE"...........................they have no idea............................so go ahead and toss in PMS....................................
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Ducky,,,Maybe my ex was PMS ing also. Since when leaving your spouse is connected to PMS.
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Oh Ducky! You have me laughing so loud... My bed is shaking!!! So the DH is the "glue"!!!! I am sure he diapered all of those six kids and wiped their snotty noses. Did all the punishing too when they were little. Helped them with their homework? Stayed up late at night waiting for them to come home. And when they were tucked into bed and dreaming, he was wide awake worrying about them and the choices they were making as they, one by one left home. I am sure as the sun rises in the East, that as much as any of them think that Daddy was and is the Glue, make no mistake about it and shout it from the rooftop if you must.... Beat your chest and yell, " I am the GLUE!"
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Voracious............................just call me friggin "ELMER'S"...........................this is how it went.......
Diapers..........cloth, and his excuse........."oh I can't handle a shitty diaper........girls being changed.......oh I can't clean them "down there".......who the frig was he Pete the Petaphile
Snotty noses....................Yo, Duck.................his nose is running
Punishing............Yo Duck, are you gonna take care of this, cause if I do it won't be pretty..........well we never found out how pretty it would be, cause he never did it..........
Stayed up Late waiting...............Yo, Duck.........what time did they get in last night......
Laid awake worrying.............oh sure..........no, that would be snoring so loud, if I wanted to go to sleep I couldn't...........I had snoring, snorting, tugboat keeping me awake, so I could lay their and wonder "what will tomorrow bring to my children......Lord let it be good.
Yea he was the GLUE alright................well if it makes them feel better, let them think it...........they have no idea what as a "mother" myself and all the other mothers go through, as I always said " To keep the peace"..............If my husband only knew my secets...........................haha.......................yea, just call me ELMER'S.
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My GDs husband swears he is the glue.She is the one who had the baby Haloween.Glue my ass.He insisted on watching the birth.big macho man..born and raised in PA.One of a million kids.knows how to do everything.long story short when my GD was ready to give birth and they put her in the position like an angry cat and she had to push you know where he landed....OUT COLD ON THE FLOOR.they all think they are the glue.yeah elmers glue for paper only...WE ARE THE GLUE.KNOW IT!!!!!!!!!!
ya think we should throw the elmers glue in now?
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ducky...i think this might help you with DIL issues.
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Let's throw in buckets of glue!!! Burn! Burn! Burn!!
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Hysterical, and says it all.........................the bitch turned 42 on December 22, and I saw a card that was so insulting about getting older I wanted to send it to her.................no name of course..............but I couldn't figure where to send it from since she knows I live in Drexel Hill, my kids live in Springfield, and my daughters work in Phila..............so I thought................better not........someone else will get blamed.......................She was probably at some bar with her new squeeze...........................hate the bitch........love my son
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Hey Shiela....Ill take a dozen of those shirts.one in every color.I like them large XL will be fine...no pink tho....0
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hi ladies..I am been mostly off the site for the past two weeks but...about to go back to work and the work situation there and.....feel nauseated about it all.....need sleep though so.....thought I would toss my anxiety at returning to a toxic workplace into the fire.
will check more tomorrow night. just needed to let that burn!
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Sandee, hoping your return to work is more tolerable than you thought, but being the staunch curmudgeon and pessimist that I am, suspect it won't be, so just come back here and toss all the garbage in! (I am so fortunate to FINALLY have work that I enjoy, even though it is a bit stressful right now).
I am tossing in plantar fasciitis and a bum knee that refuses to do stairs without pain. I am trying so hard to get this body back in shape, but it just won't cooperate.... one thing gets better, and 2 more parts decide to go on strike. I feel like Jo, just toss the whole body in.... but by using the 24-hour rule, I got through today, and if I am here tomorrow, it will be "today" then....
And tossing in the idiots in the administration who set our academic calendar so that we had about 2 weeks off between grades due and classes starting. I have courses, 1 is a brand new course that has never been taught, the other is new to me (haven't even taught the subject in over 10 years!), and the last one I am the coordinator for 4 sections, and I didn't have any other faculty assigned until today, and classes start in the morning. So also tossing in the department chairs who can't seem to get their act together to provide teaching assignments more than a day before the semester starts!!!!
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I get the feeling that this bonfire is smokin' hot now....
So....I was off to the allergist yesterday for a consultation. Waste of time! He didn't think I was allergic. But he did get to peek in my ear and then he said, "Looks kinda funky." "Oh," I replied. Didn't know what else I was supposed to say, until he finally filled in the gap and said, "You kinda have some more healing to do in your ear and sinuses." "Ya think?" I replied. And then he says to me, "I think you need an even STRONGER antibiotic in addition to the steriods." And you know what happened next? My vagina started to REVOLT! It said to me, "What the f&*k?!" On that note, I ran out of there because I was late to the gynocologist. When the gyno finally got to peek between my you know where, you are never going to believe what she said. Ready?????
"IT LOOKS KINDA FUNKY IN THERE."
So dear sisters....Today, into the fire goes the word "FUNKY." I don't want to be "funky." I want to be "NORMAL."
Thank you all for your kind consideration of my current situation.
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Hi everyone, been gone awhile, catching up.
Two thoughts-- one-----all the AI's affect our immune status, Tamox likely does too-----so from head to toe, we are more prone to funky things.
Allergies -after I was on Arimidex and had just quit b/c of all the s.e's I met my new PCP . She convinced me to have this allergy test. It tested for 150 items by blood test. My list is soooooo long. But it explained allot. Each one does it's litle problem causing. They aren't frank allergies for the most part, some are---pineapple makes my gums swell, what it does to the rest of me who knows. Same with rye. Coffee and a bunch of others cause reflux. Chicken makes me throw up or gastric distress. How much was present pre BC and AI's , some b/c I did have reflux. The reflux reduced dramatically once coffee was deleted. I wish I had a pre AI test and post AI test.
Two----I remembered ahhh. After being on Aromasin from Nov to the next July--reducing the Norvasc dose, All my s.e.'s reduced. Enough that quality of life improved. This past July 30th, I was going to quit Aromasin b/c of QOL issues. Then boom, they reduce. Total time on AI's 13 months since may 09, twice quit b/c of QOL issues. (Ariidex then Femara). Why did they reduce, absolutely now clue---damn. I even -re-upped my Norvasc dose b/c of brain tumor growing.
Hope this is clear---Norvasc enhances the AI's by 25-75%, another source says 75-150 %(aromasin). So, taking Norvasc/amilidopine causes the effect of AI's to be more. Therefore, more s.e.'s can be expected. When Norvasc dose was cut by doc b/c BP was lower than she wanted. Within about 36+ - hours s.e's reduced-------Yeah. But I also, noticed my moustache stopped growing over a period of weeks ,usually that would be a positive. But did that mean that there was more circulating estrogen? Menigioma's ,my type of brain tumor, can be estrogen supported----until it's cut out and Pathology results are in>>reupped the norvasc dose and within a short period of time the moustache started growing again. So, Norvasc again is enhancing the Aromasin. What does that mean to the meningioma---don't know? But at least it gives me a better feeling that estrogen is being blocked. The docs that I have talked with about it follow the empirical logic, but none of us have a true answer. Empirical logic is basing a response on observation of cause and affect and then developing a plan. It has science involved, but is different than the full scientific method.
I agree heartily with VR re: alternative described by her doc she quotes Dr Sarno. I have a musculoskeletal system that could be considered a mess(polio), I have done the whole muscle tension release thing since the 70's. If I don't let things get our of control. It's livable. So take heart and good tidings. Considered surgery ONLY as a last resort. Sarno sounds like a great resource. VR you are always such a good resource.
One of the funnier things(hope I'm not repeating myself) was we had sex while I was in neck traction in the 70's. Paid for that one, for about three months, Therafter, the clue was--"Dear I'm going to hang up know".
Ducky hope your butts better
Jo, try some ice for minute or less over pain site. This not to be used with a neuropathy type thing for, example diabetic or / chemo neuropathy . But individualized specific pain in a small area may help. Also, helps immensely if you have the itchy's
Sandee wish oh wish you could change jobs, I worked for a very long time in a similar place, Once I was away from it for a short time, just a month or so. I thought I should seek counseling , to see why I would allow myself to be in such a horrible abuse situation.------Basically, it was a really abusive boss. I was waiting for my 10 year vesting and should have given my notice as soon as it was verified. Instead I stayed 3 months more----Should have stayed with the plan.
Granny ----so happy that Emu oil fixed you, I will have to look into it Thanks.
I will come close to the fire with by wine---it's called "Menage a Trois"--A red, quite a cinnamon background very nice. Probably would do well mulled without adding any other spices.
I raise my glass and click the screen-----"-Here's to you, and here's to me, shall we all have a better New year than the last------Click. Cluck'em all that bother us or give us grief"
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Sas...........................butts good.............................bruise almost gone....................now I'm dealing with a friggin heater............1 year old.......................that is shooting out cold air instead of warm.......................I'm about ready to rip the thermostat out of the wall.....................the guy came last night, and made all kinds of excuses as to why it wasn't working right..................he said "well it went on for me".......................I said "it going on is not the problem......................I frigging know it goes on..........the problem is..................no heat comes out ...................".....................I said 'it goes, on and off, on and off, and only cold air comes out".................................what part of "no heat" don't ;you get..."
I said the frigging thing has been on 70 degrees since 7am this morning.........................and the house temperature has not gone above 64.........................what are you not getting"........................stll not working.........................
He will get another call today..........................Know what.....................maybe I'll just throw this "freak" into the fire...........................At least he will get some heat..........................in he goes.................
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I took my son to his appointment to see his therapist yesterday. Its a half hour trip from our house. I got there and he isn't scheduled. I gave the secretary his appointment card with the date written on itI keep all of my appointment cards in my purse with me so I don't look like the fool. . It was for the fourth. It was written as clear as day. No way for me to screw it up. Turns out she scheduled it for the fifth. I wanted to scream...even asked for permission. I was ready to have a meltdown instead of my son. He's notorious for meltdowns. I got home late last night and took a loraepam pill to chill. I offer the therapist, appointment cards, appointments and my stress upon stress into the firey flames.0
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Veggy, if we all, were paid for the screw ups, made by all the people, we have had to deal with, we would have no difficulty paying our medical bills. Veggy , I haven't kept appointment cards, but will after this --Thanks
Ducky glad your butts better. The heating thing-------gas or electric. Gas I think there should be a concern for carbon monoxide-----perhaps no connection, but at least worth a question. Plus, a call to the owner of the company b/c the technician you got, was definitely not good---nor interested in solving your problem. If he's the owner, well make a complaint to the BBB even if they aren't a member the Better business bureau will work on your behalf.
As most of you know I have a brain tumor----appears by testing non-malignant------referral for brain surgery made Nov 11th. Did not get correctly referred out of the MO's office until a week ago. That isn't even confirmed yet. Multiple phone calls made. Had to keep suggesting to the referral woman handling my file what she needed to do to get the referral through insurance for an authorization approval. Decided I needed to go to the bosses above. Did so last Friday Dec 30th, still no phone call back from the bosses. The assistant typed out my concerns as we talked. They have a full record of the events of the 6 weeks. Now the 7th week. My insurance case manager is involved etc. Had it shown malignancy signs, there would have been daily phone calls. Now my goal is that they develop rules within that referrals are made by written internal guidelines. This is unacceptable. If it does turn out to be malignant. Well, we will be into a whole other story-------delay of treatment etc. Then I will go for the jugular. AND I have my own lawyer now(son). With BC bx showed highly malignant and brain tumor dx'd same time , the BS said see you in 3 months. Had myself on the table from Jan23rd to Feb 18th by pushing everyones buttons. Went from grade 2 to grade 3 in that time--no sampling error. I can push when things need pushing. Now I'm just getting pissed b/c someone doesn't have a clue how to do there job.
Since one of my latest diagnoses is Pseudo-dementia-----translation, both my counselor and I had to look it up, Severe depression that can be interpreted as having characteristics of dementia-----short term memory loss, depression, loss of interest, whole bunch of symptoms. I was much more comfortable with the definition than the word. (google it just so you don't think I'm wacko please.) My counselor who has about 35 years of experience and I have 40 years of experience. Neither of us had ever heard the word before. Hows that going to look in court when the referral and delay has caused me further distress. I guarantee it has caused further distress. (#$^&*. I may sound rational, but we all have gone through such horrible things from the first day of the word Cancer. Then to deal with the inadequacies of a person that has a very defined job, not have a clue how to get it done. To the fire they go, I have lost any concideration that people can make mistakes. The unusual is no mistakes.
I'm up for license renewal soon April, I've lost all interest in maintaining it. After 3 years and years of abuse before that I am questioning my sanity as to why I ever wanted to be involved with such a profession. Besides with all my head dx's I'd have to jump through so many hoops to work again. My heart is broken from all that has gone wrong, that shouldn't have.
Sandee----------our pain is the same , we believed---------now we look back and say what is it we have done, our heart , soul, and beings loved so much in doing what we did? Then realty shock , we see a system that isn't working and hurts us and others. I know from your writings that you always tried to work for the bettering of what it was you did. Now we come to the other end. What is it we see?
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SAS... Sister...my mother and sister are nurses. I hear you loud and clearly. They ALWAYS, and I mean ALWAYS would jump through hoops for their patients. Back in the day, my mother could "out doctor" all the doctors around her. Mistakes? She saw mistakes being made ALL.THE.TIME. Could never understand why she stayed in the profession so long....and excelled. She became the Director of Nursing at a large city hospital. Single handedly ran the joint. Wonder woman. Today, I compare ALL nurses AND doctors to my mother. The bar, I can assure you is set VERY, very high. And you know what...from time to time, I DO meet nurses and doctors that meet or exceed my expectations, and, I'm delighted. It makes me find a generous place in my heart for forgiving all of those who should NOT be in the profession of healing.
Speaking of healing...now it is time for you to get to the bottom of your medical ills. Moving forward, I hope you will concentrate on getting well and NOT put a single ounce of energy into what makes you feel bad. You need to muster all of your energy into feeling well and dealing with those BRAIN DEAD IDIOTS.
And speaking about dementia and depression. Yes. The DH had a catastrophic depression that made his brain MUSH. Imagine. An electrical engineer, brilliant and he couldn't even add together 2 + 2. It was frightening. Thankfully, he is well now. He has had several bouts of depression. Runs in his family. The smartest ones in his family are the ones with the depression gene. Scary. His cousin is a dentist. Depressed. His other cousin, a neurologist. Depressed. Thankfully, all of them are well.
As you may recall, my friend had a benign brain tumor. I sent you the link regarding New York University's brain tumor center. By all means, if you need a second opinion, please contact them. My friend is doing well. She had the surgery 5 years ago, because it was affecting her eye sight. Today, you would NEVER know she had the surgery. It's amazing how common benign brain tumors are and how treatable they are. It's also amazing how some of them need NO treatment at all. Hmmmm....Remarkable.
SAS...Hang in there. You've got a lot on your plate and the whole kitchen sink too. So today, dear sister... in your honor, today I'm throwing into the fire all of your angst...so you can start concentrating better on what needs to be done to get you rockin'! I also have some marshmallows toasting just for you!
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Sas, roasting a veggie dog over the fire for you! I hope today is better, maybe you can just warm up by the fire here!
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Love you all---------got in the mail today notification of insurance approval for 2 visiits to Moffit Cancer center-----that will cover the pre-op visits---then they have to submit for surgery---------YEAH< YEAH ----finally---------warming by the fire--------hmmmmmmmm.
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YIPPEE! SAS! Relatively speaking...you're off to a good start of the year.....
Toasted marshmallows will be waiting for you...following your appointments! Good luck. Thoughts and prayers to you!
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{{SAS}} you are on my prayer list sister, and I'm raising my glass to you right now. ¡Salud!
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Sorry ladies just getting back, lost track of this tread, did not save it to my favorits.
Wanted to get back to Jo1955, Grannyduckes & Voraciousre. I threw my BS on the fire. Yep, 1st BS missed entirely but she had help from the radiologist who thought she hit the lesion via MRI guided wire. OOPS! Pathology said I was benign, of course, they took out healthy tissue. 18 months later MRI showed that it was still there but BS said it can stay in. Glad, but then again not so glad, I got a 2nd opinion. Had all removed, was cancer all along. I have a lawyer on board. NY State law recognizes delayed diagnosis/diminished chance of survival as legal harm and entitles victims to compensation. There are only 24 states that have this law. Only drawback is that there is a statue of limitations of 2 1/2 years from time of 1st diagnosis. I'm still in the running. My chance of survival is very good so I'm not sure how strong my case will be other than the actual proof from the 2 MRI's and the 1st and 2nd pathology showing huge error 1st time around. Prooving my case is pretty good, it's the punitive damage I will have a hard time with since I probably will not die, I only have scars, misshaped breast and loss of my time with all the doctor and rad apptms. Will be glad though to slap her. Any change I get I'm on the computer givng her bad ratings on all the websites that rate doctors in your area. My only comment to them is "Run from this doctor".
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