TRIPLE POSITIVE GROUP
Comments
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fluff - Sadly I think it only applies to women who have not had breast cancer and were at low risk for developing it. I have so many hot flashes too. Pretty much every hour. I don't get as nauseous as I did in the beginning so maybe the nausea will get better for you with time.0
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I kind of thought that. Lol. I figure they cant get much worse. I often wonder what people must think when they look at me and I am dripping with sweat. And my pulse is racing which is just freaky also.
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Arlene,
I have calcium surrounding my carotid artery. I was told it's from the chemo. No treatment, no harm being done, it's just something that's "there"
I hope that's all it is for you too.
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Fluff my take on that was it wasn't an issue for women who have no breast abnormalty issues in the past or family history of breast cancer. Once diagnosed it is NOT an option.0
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Fluff,
That's the soonest I can get in...this is a military facility (socialized medicine ladies, take note) and they do things on their own time table. Can't rush them because you can't FIRE them. And if they decide to NOT give you something like a PET scan...that's that. They are an HMO under one roof, and that roof sets the policies. So even if you get a "second" opinion, it comes from under that roof, and they are a united front generally speaking.
Not always, but generally.
Sometimes it's like going to the post office, with windows for 8 workers and only one is ever open! lol
This may be "good" but the lymphs under my jaw (the ones that swell with sore throat) are now swollen and painful. My throat feels "squished" with all these bumps and lumps, but I'm hoping it is a virus....guess I'll wait and see.
Ashla,
I'm with SK on this one....I've learned not to be too disappointed when surgery or my plans for it go awry...it always seems to turn out for the best in the end.
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It is still frustrating when they pull the switcheroo on us, though...
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hi ladies
haven't been on in awhile
ashla - sucks about your surgery, totally hear you. After doing neo chemo you just want whatever is left THE HELL OUT OF YOU - hope they re-schedule soon. They did mine 5 wks after chemo so you are well within the window
my vit D level i found out is 67 so i don't think its that low. My doc told me to increase my intake to 2000 - i have to ask my rad onc if this is ok during rads? who knows
its actually warm and sunny here in Toronto so i will have to go out and get some natural D!
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I survived my first herceptin infusion. Everything was fine, just a long day. Left the house at 7:30 AM and didn't get home until 4PM. But i did feel well enough to take the bus home.
And they let me keep my IV in so i won't have to be stuck again tomorrow...assuming I take good care of it and believe me I will!
Tomorrow is Taxol.
Peggy
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Finished my last Herceptin yesterday - #17 - they want me to leave my port in for a year, with a flush every 3 months.
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Yay Archpurple. BTW my onc wanted me to leave my port in for another 2 years. Not sure if that means it can come out October 2013 or Jan. 2014. I set up my flushes when I have appointments but I too go every 3 months.
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Yeahhhh Archpurple.......That's great news!
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Why leave the port in? Unelss there are mets.
So far I don't even have a port. If I get through my weekly Taxol/herceptin 12 weeks I figure I'm home free. Surely I can manage one venepuncture every 3 weeks.
Peggy
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The reason is the more aggressive cancers (like HER2) tend to recur in the first 3 years. Once removed my treatment center will not put it back in the same spot because there is a higher risk of clots. My onc said I could get it out earlier but prefers I keep it in for the full 3 years (including treatment time). Once she told me that I was scared to remove it… I didn't want to jinx anything
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I am going back and forth on the port. Onc says take it out. BS said all the once sne works with are different. Her take on it is that it is a foreign bodh and with low risk...take it out. Now that I found the lump, I am inclined to leave it in for awhile, but the BS also said she had no problem putting it back in the same side, just up or down a ways, or on the other side.
I still have two weeks to change my mind 15 times.
Lago....are we on for Friday lunch?0 -
achpurple Congratulations on finishing your Herceptin!!! Yippee!!!!0
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Waiting to hear back about a 9am job interview. It might be a 1-2pm lunch. I hope I will hear something by this evening. They got back to me last night at 8.
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Arlene I have calcium deposits/growths in my lower jaw bone. I was told it was probably from "clenching" my teeth @ night. I also had some receding gums (also caused from clenching) I had a "nite-guard" made..Suppose to wear it every night....but I Don't
Try not worry
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Yay Ach puple, that awesome. Arlene I know what you mean about the stress, sorry about your calcium problem.
my little vacation is over.. I woke up this morning and horrified to find I got my menstrual cycle back! I just took my FSH 6 weeks ago and it was 76!!! I can't get to doc until end f next week to get retested, so I am worried that if I have any little devil cells, they are on a feeding frenzy now..Anyone get their monthly back on an AI? I was sick a few weeks ago and was told by my onc to stop taking, so its been 3 weeks off AI..
Lago, good luck on the interview!
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Thanks nmoss but I still have yet to hear if I actually have it.
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Good luck Lago, and 1-2 would be best anyway as we probably wont get to the hotel until about noon.
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Achpurple..
Yippee some really, really great news! Celebrate...go out and celebrate!
Just to fill you in on my latest bump in this very bumpy road....to reiterate my post neo adjuvant lumpectomy was postponed because the cardiologist didn't like my preop Ekg. It was different from my preop before sentinel node biopsy. Had an echo cardiogram yesterday and saw the cardiologist today. The good news he cleared me for surgery. There was no big difference in my ejection fraction.
He said he was more worried about my blood counts but that was for the bs and mo to sort out! He tgought I needed a transfusion.
Have no idea when we'll reschedule but the cardiologist was an. irish trained MD and he was as cute as a button. He said he does want to do a work up ith a halter monitor at some point.
Then he said in the cutest way that we can wait till November post Herceptin because " right now it
looks like your dancecard is full!"0 -
Correcton to my post..it was the anesthesiologist who like my EKG....
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Lago..
Good luck on the new job....in our family we always say..break a leg!0 -
lago, fingers crossed for the job. let us know when you hear. good luck!!0
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Thanks everyone but I am still waiting to confirm the interiew. Lets not jump the gun here. I don't even know how many people the are seeing. The job was just posted last week.
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Well, I hope they pick you, it obvious you can handle anything, and after cancer, a new job is EASY! LOL
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Not really. I think I would rather do shingles again then work for a couple of bosses I had in the past. Shingles pain doesn't last as long.
I do have a good feeling about this but I won't know till I get there. Interview is confirmed.
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Good luck lago !0
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lago - hope the job works out and is what you are looking for.
achpurple - yay!
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Fingers crossed for you lago!! Let us know what happens.
Last Herceptin?!? Yay Achpurple!!!
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