So...whats for dinner?
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Yup, crap it is! But there are clinical trials and a long list of chemo concoctions to be put to the test. One thing that I'll have to work on is weaning off metformin. The Boston Dana Farber oncologist wants me off it so I can qualify for more trials. If you can be in control with diet, then you are not disqualified. And their idea of control is a lot looser than what one would consider "normal" ranges, so I can probably do it. I'll just have to cut back on watermelon, cherries, corn, and the other starchy stuff. And continue the bike riding as exercise will help.
I went to my DD's tonight for Chinese food. It is always fun and we sang our karaoke song list with the kids, it was fun. Nothing like grandkids to make you forget your troubles!
And thank you all for your love, positive thoughts and prayers! You have no idea how much it means to me!
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Michelle, I guess I'm like Ralphie in Christmas Story... Crap isn't exactly what I said when I read your post.....
The thread is sure moving fast....which is good! I appologize to those I miss.
Debbie. I shake my head when I think of the load you are dealing with right now...whew....
Taz. You sound like Sharon. A couple of days after her BMX, she was walking around the neighborhood and feeling pretty well...when her drains were pulled, she said she never felt anything except the surgeon's hands and a sense of relief.
Deb. Are those the supposedly mild peppers in the picture?
Good night everyone.
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Michelle, I am so sorry about the stupid progression. Big hugs.
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LOL, Eric - that is our most favorite Christmas movie!!!
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Ours also on the Christmas movie...laugh every time.
Deb I have been pulling in roma tomatos also, finally had enoug with some of the beefsteak ones and made a small pot of sauce last evening, had it over cheese raviolis and green beans from farmers market.
Need to find an activity for tonight as it is raining and calling for storms later. tomorrow is a reisling festival LOL I guess they can make a festival out of anything!
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Novena notification update:I unintentionally made it sound as if the novena was just for Frank. Franks change of condition triggered us to want to do a novena. The novena is for all of us on BCO and others that are added by members. The link below goes to the working copy of the combined list of intentions,If those unfamilar with a novena would like to take a look and see how it's being put together. The next paragraph is the first intention.
Dear God---May all, of many Faiths, come together in prayer and support of each other. Jesus Christ,Mother Mary , and the Holy Court of Heaven, hear our prayers for all the sisters and brothers of BCO in this there time of need. Strengthen them and their families and let them not despair. Heal them if you will, or guide them to understanding and acceptance of your plan.
community.breastcancer.org/for...
So, if you want an intention added for you , or someonelse please PM me any time now. Probably should put this link in your favorites to refer to on Aug 14th. At this point we are leaning towards ST Peregrine Patron saint of Cancer as two members are willing to take the intentions to ST Peregrines shrine near Pheonix Az.
Sorry for muddling up the first communication. It all seemed logical at the time. It was only after multiple messages received that I realized the problem Thanks for your involvement. SAS
The prayer that will be added is said once a day and the intentions are said once a day
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Debbie.. you could have your dad try Olvatine.. it's easier to stomach than Ensure and has many of the same nutrients. best of luck to you dear.
as to peppers.. i MISS hot. really miss it.
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I am trying to grow Red Savinas again...twice as hot as a regular habanero....
It usually takes a triple dog dare for me to eat one....and I don't say fudge. :-)
Sharon's 3rd RAD was today. She's getting the sunburn look and she says it stings a bit.
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Michelle- Your right, there is nothing like grand-children to lift your spirits, I love that all your family spends quality time together and has fun!
Apple- I havn't drank Olvatine in a long time and used to love it. We are going to visit my dad Sunday and I will take him a Jar of it and see if he can drink it, it sure would taste better than ensure! Thank-you very much!
Carrie-What better things to do when it's raining than go to a wine festival lol!
Eric-Hope Sharon heals fast from her Rads, Some of the ladies here could probably give you tips on the sunburn as a lot have done the rads.
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What is weird is the sunburn effect is on her right side....and they are (hopefully) irradiating her left side.
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Eric, on.another thread they recommended "my girls" cream. I am sorry I can't remember who recommended it, but it wad more than two people. I am on do many threads I lose track. But Google it, you should find it, they really liked it and said it helped. I will search and see if I can find more info.
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Eric, I used vitamin-E oil from my local pharmacy after every treatment and every evening, it worked well. Alot of the women that were having rads when I did swore by emu oil that they got through Amazon.
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Michelle, I couldn't be more dismayed about your progression if I'd known and liked you all my life. I feel as though I do know the brave women (and Eric!) on this thread. It was so wise of you to move near your grandkids and other family members as you fight this battle against bc. We should all remind ourselves that we have only the present and we should make the most of what's happening NOW.
We're having another gorgeous mild day here in the MN north woods. We went into Park Rapids for the Logging Days celebration and watched chain saw artists create really marvelous sculptures. There was also a loon calling contest! And venders and craftspeople. We'll go back tomorrow, too. The scultures will be auctioned off. Plus there are other contests pertaining to logging.
Dinner tonight is leftover eggplant parmesan, sauteed yellow string beans and leftover pork roast. My DH is the easiest man in the world to please when it comes to food.
Things are busier this weekend at Pine Hollow Resort. There's a fourwheeler club occupying the three condos. What a sight it was when they unloaded all the fourwheelers from huge trailers. There must be ten or twelve couples and every person, women included, drives a fourwheeler. I don't see the attraction of riding on rough trails and scaring all the wildlife, but each to his own.
Speaking of wildlife, we have beautiful deer in the woods around here. When I was walking today, a deer crossed the street, actually a county highway, ahead of me. And yesterday there was a beautiful doe and a spotted youngster across from the entrance to Pine Hollow. These deer look well fed. Come winter, they will be prey. Each to his own. I like looking at them.
Happy Friday to all.
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Carole, that sounds beautiful! I am glad you are enjoying your vacation! This is Kay. I changed my name because of some people from work that I didn't want to recognize me. Hopefully I won't confuse people here too much.
Pizza for dinner tonight. We got take out from a new place, and it was the best pizza we've had any where around here.
Eric, I used aquaphor during rads. It worked great for me. I know a lot of other women use it too. Only problem with it is that it is very greasy. I was putting it on right before rads though and the techs told me I was putting it on too close to rads and it could actually cause the radiation to deflect a little. They didn't want me to put it on any sooner than a couple hours before rads. And not as thick as I was originally putting it on either, but I put it on as thick as I wanted after rads. It really protected my skin and I am very fair. It was the brand recommended by my rad onc. Did I hear you say you had a daughter just starting high school? My DD starts high school right after labor day. I am quite nervous about it.
The nipple reconstruction went well. I am quite pleased about how it looks. I don't know what I was expecting, but it exceeded my expectations. No pain either.0 -
Today is her 3rd day of high school. She's in the what is called "the IB program" It can be described as an advanced placement program with an international "flair". Arizona has always started school early..but then school is done in mid may.
She is the one who wanted that..and she knows it a lot of work.
I can't say I'm nervous...It's more of a "where did the time go...it seems like yesterday that I was holding her for the first time" feeling.
Thank you everyone for the cream suggestions. I will pass them along. We're both surprised that she's getting the irritated sunburn feeling after the 3rd treatment...especially since this problem is on the side that is being not being irradiated.0 -
Those are my tomatoes similar to a plum tomato, much meatier than a regular tomato. I have a lot of basil, thyme, 2 different types of sage, parley, rosemary, lemon balm, anise hyssop, sweet margoram, Cleome, roses, hollyhocks, dill and fennel.
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luvrving - So sorry to hear about your scan/progression news, crap is right...
For all struggling with issues - sending hugs to you!
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We are all:
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Eric- I am sorry she is already having a hard time with the rads. In addition to the great suggestions you get here I would ask her Dr why it is the opposite side? I have been lucky to not have not had rads but my mom did many times and the redness and irritation could me mapped my her tattoos.
Carol- love hearing about your days and dinners. I think it is now my dream to retire and go camping for several months.
Tonight I made fajitas with spanish rice for DH and I. I took the chicken, minus fajita seasoning and made wraps with cucumber and tomato for the boys. Everyone was happy with dinner and ate it all so it was a success. My in laws wanted the boys for the day so I had a quiet day to myself and I did NOTHING. I kept thinking of all I should do....but I didn't! Took my brothers girlfriend for a pedicure to thank her for the free baby sitting while I work. That was my major accomplishment for the day, lol. But things have been so busy I decided to just enjoy it. Read a book laid on the couch and took a walk before the rain came. Thats it
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laurie - when you are the mom of young ones sometimes you need a day of relaxation when you can grab it! I think a pedicure and some reading sounds perfect!
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Carole, a loon calling event....would love that....a four wheeler event, not so much. I always felt horrified when my little 9 year old clients would tell me about their exciting runs around the woods on four wheelers. Why not let em drive a car?!
Eric, I also used aquaphor...very successfully. Was totally grossed out by the greasiness of it, but developed a regimen whereby I used Aveno cream by day (so as not to ruin my work clothes with the greasy stuff), then every afternoon right after rads loaded up on aquaphor and wore DH's softest old undershirts.....repeated the yucky dose at bedtime, and again used a t-shirt to sleep in. I really had minimal burns with this plan.....only SE was gooked up shower drain after the three month period. Good luck to Sharon and your t-shirt supply.
And best of luck to Chrissy. I loved my boys' high school years....such a great time of personal development and growth.
Happy for you, Kay, that your reconstruction went so well. If you are worried about being identified by co-workers might you want to change your photo too?
Went to Blue Ginger for dinner tonight to use a gift certificate. We shared the Ming Tsai specialty shitake leek spring rolls with slaw and Thai dipping sauce for appetizer. DH had scallops over a very interesting set of grains, vegetables and corn. I had rack of lamb with a wonderful little crispy taro corncake, Asian chimichurri sauce and adobo cream....very nice. We decided to try a new frozen yogurt place in town for dessert....Swizzles (?).
I had vanilla and red velvet frozen yogurt. Tasty and pricey.0 -
Laurie, sounds like a perfect day - you deserve that.
Eric... I haven't had rads yet... but I was told when I do to use Glaxal Base, aquafor healing cream and aloe vera for any rad burns...hope something relieves Sharon's skin.
For dinner we had pork chops, corn on the cob and romaine, pecan & orange salad with a red onion dressing.
Thinking of you all if not responding to you all.
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Kay, I'm with Lacy, I thought the same about your picture. And I love Minh Tsai. Carole, I miss camping. Haven't felt up to it this year. Sometimes I go by myself in a tent. But its been two years cause its getting too hard to pack and unload and set up by myself. Laurie, I am glad you got to rejuvenate. You need it with little ones.
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Laurie. You had a day I dream about having..and today is coming pretty close.... Laundry was the only non fun thing I did..and it's all done.
Sharon was napping, so I took DD to get lunch and run a few errands. Spending time with her is the very best part of being a dad! She makes me smile so much.... :-)
In the recent house cleanup, I apparently got rid of the ALL the easy to find Mason jars, so I'm heading out to get some 1/2 pint ones for the cactus jelly that I'm going to make tonight. I knew I shouldn't have been so efficient about cleaning up!
The RO is meeting with Sharon on Tuesday. Monday she is getting a biopsy from a lump under her left ear. I'm off work both days......
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Tonight I did 3 batches of 4 half pint jars. The final batch just clicked (the lids sealing) about 10 seconds after I pulled them out of the boiling water bath canner.
Now to see if the jelly sets up. Every now and again the jelly doesn't set, even after redoing it. If that happens, it's good on pancakes.
Sharon is asleep already. I wish stuff would cool down faster so I can get things cleaned up and fall asleep myself.
I've ordered some cream for Sharon and got her some cream (petrolatum and vitamin E) from the local CVS drug store until the good stuff arrives. Thanks again for tne suggestions.
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I had had chemo on Thursday (halaven) and was sooooooooooooooooooooo tired, i basically slept all day Fri and Sat. waking up for piano lessons and to drive down town to play the organ.. still tired today. like totally fatigued.
My son came back from a boy scout camp (Philmont) and we missed him so much. .. so my husband and daughter and returning son made a heck of a prize winning meal.. sirloin steak and those dragon eggs (i think) you take 1/6th ot 1/4th a green pepper, stuff it with cream cheese and wrap it in bacon before you grill it. omgosh.. - fantastic.
My husband is a remodeler and he occasionally brings home rejects.. he got a huge slab of marble (a perftecly matching sideboard and 2 sinks including faucet, etc.. so he put that in yesterday. It's quite a bit bigger and well, marble is marble, rather than formica. free and used.
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Shepard's Pie last night.
Rained most of the day yesterday and today we are going to get more thunder showers. My garden loves it.
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Dinner with my son and his lady friend last night - had a blast and ate from 10 different small plates...quite the smorgasbord of food!
Heading to the lakes region to meet up with Lacey and her DH. I hope the weather cooperates, it's not very nice here but hopefully this weather system is on the way out. Pictures to come, hopefully!
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Apple that marble is great for rolling out pie crust. What a find! Rest when you can and just give in to the fatigue.
Eric Cactus jelly? what part of the plant is used to make it?....okay...yeah I am a north easterner.
We did the reisling festival yesterday....total marathon wine tasting as we got there late and they were about to close.Best part of day was the chicken gyro I had for dinner with feta cheese OH YUM
Tomorrow morning we are doing a breakfast for a couple of girls that are leaving for college...one is leaving for Sweden to go to school. I am taking homemade blueberry muffins...the blueberrries are so great now.
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